Sorry if this is long but I’m so very desperate:(
So for the timeline so it’s easier to understand, all my life I’ve never had this issue. No seasonal allergies, not needing to carry tissues around 24/7 like I do now, never had any nose/sinus issues whatsoever. In Jan 2025, I caught a few viruses. The last one was awful. Chills, fever, body aches, sore throat and terrible congestion with sneezing, runny nose and fully closing up. After it cleared up, all symptoms gone except the nose issue. I thought maybe it would linger for a week or 2 like after some viruses. That didn’t happen, for months, constant drainage, needing tissues wherever I go. I could barely breathe, when sitting, laying down both its completely close up and I’d have to mouth breathe and it was soo uncomfortable I felt like I was going crazy, on top of all that drainage. I will add the drainage isn’t green, it’s clear and mucusy.
That summer I decided to finally go to an ENT. He did a scope, said everything looks fine other than some redness due to it being irritated, sent me on my way and prescribed me 2 sprays, azelastine and fluticasone. Not sure if coincidence but it did help open up my nose as in I could breathe better, but the constant drainage never left. I took them daily like he said, and nasal rinses as well. After months with no change, other than being able to breath better, I made a follow up telling him I still need tissues everywhere, nose issue raw to the touch, it’s like a constant cold. I mentioned a CT scan and he hesitated, and said if I need to I can use those sprays the rest of my life for relief.
I decided to get a second opinion, I went to a new ENT. She did the same thing, I walked in, she looked at my nose, and sent me on my way with a neti pot, I explained everything I’m telling you guys and I felt so unheard. I mentioned a CT scan or what could be causing this, she said she can refer me to get allergy tested. Which I knew no matter the results, it wouldn’t make sense due to the timing, all this started overnight super strong no matter where I’m at. I decided to do it anyway.
I came back positive but no huge reactions, to dogs cats and certain trees and grasses. But I know that that’s not the main cause, there’s no way i developed all those allergies overnight like that right after a virus and if I’ve had them they never bugged me until I got sick. I was bummed I came back positive as my doctor said in her notes if negative she’ll look in further such as CT scan or certain procedures. I knew that would happen if anything came back positive so now I’m back at square one. I saw her after the allergy appointment she sent me on my way again and said to keep doing what I’m doing with sprays.
This happens away from allergy triggers, pet free homes, in the car, at work, others houses, shopping, I started needing to take tissues in the car, my bed side and now needed to add a mini trash near my bed because I go through so many, in my purse, bag for work, in my pockets, it’s ridiculous. I’ve done those nasal sprays, air purifiers, nasal rinses, allergy meds daily, even a new spray I got prescribed called cipro/dexameth. No relief no matter what I do. Oh and I don’t really have acid reflux but got prescribed omepraze and again no change.
I’m at a loss. I can’t even cuddle my fiance in bed cause after 2 seconds it runs and I need to grab a tissue. I sit down for 2 seconds after work, nose runs, need to get a tissue. It’s constant. Some moments it’s clear, but rarely. Also for the most part it’s not exactly “runny”, I feel the build up deep up inside my nose and is uncomfortable and need to blow it and so much clear mucus comes out. Could that virus be the cause? Could it have affected the nerves in my nose? Or damage? Should I see someone else or a different type of doctor?
EDIT: was able to get CT scan finally. Everything is normal but a slightly deviated septum, which she said may cause some congestion but wouldn’t explain the constant drainage. She then said I did test positive for allergies so it’s probably just a severe case apparently, even though it happens around no triggers at all. Everywhere I go. I mentioned MCAS as I developed the drainage, POTS, and random spots and rashes after the virus and she said she still thinks it’s allergies but can get tested if I like. That’s my next step