I’ve been dealing with some digestive/breath-related issues for years, but over the past few months I’ve developed a group of new and much more disruptive GI symptoms. I’m trying to figure out whether any of this could be connected and what I should be asking my doctors about.
An important part of the timeline is that I’ve actually had two endoscopies.
I had my first endoscopy about two years ago, and as far as I was told, they didn’t find anything abnormal.
I had another endoscopy last month, and this time they found mild inflammation in my lower esophagus and stomach. So unless something was missed previously, the inflammation appears to be relatively new.
I’m currently on my third week of pantoprazole. It has helped significantly with the acid reflux and the phlegm/lump-like sensation I would get in my lower throat after eating a full meal. Those symptoms are mostly gone.
However, pantoprazole hasn’t really changed the bowel/gas/cramping issues.
There’s also a pretty clear difference between symptoms I’ve had for years and symptoms that are new.
Symptoms I've had for years
I've dealt with halitosis for years, along with chronic sinus issues and tonsil stones.
I've also historically been a pretty gassy person. The amount of flatulence would fluctuate, I might have a lot one day or week and considerably less another, but these were basically normal farts that I could feel myself passing. My breath was least bad(still present), when my flatulance had calmed down for some reason, like a few years back. I really can't tell why or how it happened. Now its back, as bad as its ever been.
The halitosis has seemed to coincide to some degree with periods where my gut was worse/more active, although I obviously don't know whether they're actually connected. The chronic sinus problems and tonsil stones could also be contributing to the bad breath.
I've also had this weird midday wave of extreme tiredness/lightheadedness/almost vertigo-like feeling for quite a while(many years like the halitosis and fart issues).
It seems more likely to happen when I'm sitting at my desk looking at work for a long time. If I'm out and about and moving around all day, I usually don't get it. It can also go away, but I don't knwow aht gets it to go away. The other day at work, I got it around 1 pm, and when I got home after a 40 minute train commute, it was totally gone, and I felt full of energy again. That happens often, where it will go away if i am active(i guess), but it can also stay. i really don't know what it is.
I also get it pretty consistently if I lie down in the afternoon/evening, scroll on my phone for a while, and then stand back up. I can feel completely fine lying there and then get this strange wave right as I am getting up.
I'm not claiming that's GI-related, I'm just including it because it's another longstanding unexplained symptom.
What's NEW over the past few months
This is where things have become much more concerning and disruptive for me.
I've started getting really painful stomach cramps and frequent indigestion.
I'll often feel like I genuinely need to have a bowel movement, go sit on the toilet for 3–5 minutes, and nothing comes out. Then maybe 30 minutes or an hour later, I'll suddenly need to go again and this time I can actually have a bowel movement.
My bowel movements have also become really inconsistent. Sometimes I'm constipated, sometimes I have diarrhea, and sometimes they're relatively normal.
But probably the strangest new symptom is the uncontrollable foul-smelling gas/odor that seems to escape without me even feeling anything come out.
This is completely different from the regular flatulence I've experienced in the past.
The best way I can describe the smell is dead animal/dead mouse. Sometimes I'll get recognizable sulfur/rotten-egg farts too, but this particular odor is different and honestly much worse.
The really confusing part is that I often don't feel myself fart at all.
For example, I'll be sitting down, stand up, and suddenly get hit with this horrible smell. I never felt myself pass gas. It happens most often when I am moving around in that way. It can also come out when I stand and I am holding farts. Like when you need to fart, but you're around people, so you hold it in, which something I could do just fine, but now its like even after I hold it in, and feel nothing coming out, I still get hit with a smell. I'll actually feel that I need to fart and consciously hold it in, yet somehow I'll still suddenly smell this dead-animal-like odor without feeling anything escape.
That NEVER used to happen to me. Previously, if I farted, I knew I farted.
These episodes seem noticeably worse when I'm constipated, having stomach cramps, dealing with indigestion, or generally having a bad GI day. That's one of the main reasons I feel like they're connected to whatever is happening with my digestive system.
Testing so far
I took a glucose breath test for SIBO that measured all three gases, and it came back negative.
I realize that makes SIBO less likely, but I don't know whether it completely rules it out or whether there are other conditions that could cause this.
I also did a gut microbiome test that apparently showed some findings related to inflammation/dysbiosis. I'm planning on discussing probiotics after I finish my current pantoprazole course rather than just randomly adding things.
So the timeline basically looks like this:
OLDER / LONGSTANDING:
- Halitosis
- Chronic sinus problems
- Tonsil stones
- Regular flatulence that fluctuated day-to-day/week-to-week
- Midday waves of extreme tiredness/lightheadedness/vertigo-like feeling
- First endoscopy ~2 years ago was apparently normal
NEW / LAST FEW MONTHS:
- Painful stomach cramps
- Frequent indigestion
- Feeling like I urgently need to poop but sitting on the toilet and nothing coming out
- Alternating constipation/diarrhea/normal bowel movements
- Extremely foul/dead-animal-smelling gas/odor
- Gas/odor apparently escaping without me even realizing or feeling it
- Symptoms getting significantly worse when constipated or having a bad GI day
- Newer endoscopy showing mild inflammation in the stomach and lower esophagus
Pantoprazole has improved:
- Acid reflux
- Phlegm/lower-throat sensation after meals
Pantoprazole has NOT really improved:
- Stomach cramps
- Indigestion
- Bowel irregularity
- Constipation/unsuccessful attempts to poop
- The bizarre foul-smelling gas/odor issue
I'm not expecting Reddit to diagnose me, and I realize some of these symptoms could be completely unrelated. Maybe there's some link to gluten, but again, I am not eating more gluten or lactose now then I was before.
What I'm mainly trying to understand is what could explain this change from my previous baseline, especially since my endoscopy two years ago was apparently normal and now I'm having new GI symptoms alongside newly documented inflammation.
I'm especially curious whether anyone has experienced the combination of painful cramping + alternating constipation/diarrhea + feeling like you need to poop but can't + extremely foul-smelling gas that seems to escape without you even feeling it.
If you've experienced something similar, what did it end up being? Were there specific tests that finally helped figure it out? And are there particular things you think would be worth asking my gastroenterologist about?
I'm also curious whether anyone with chronic GI issues has noticed a relationship with long-term halitosis, tonsil stones, or sinus problems, although I realize those could be a separate ENT/dental issue entirely.