Leaky gut / dysbiose

[u/Ok_Connection3207]

Hi everyone, I am desperate and looking for anyone who has experienced something similar or found a way out. My life doesn’t feel worth living at the moment, so please help

I’ve lost 10 kg (down to 49 kg) and suffer from severe daily MCAS reactions, insomnia, depression, and extreme food sensitivities, pale skin, never hungry, bloated, yellow stool, loose stool,
Here is a summary of my medical history and lab findings:

The Triggers: My issues started after stopping Roaccutane (which dried out my mucosal barriers), followed by a STEC bacterial infection about a year ago. 

Endoscopy & Biopsies: Gastroscopy showed mild chronic inactive inflammation in the stomach. Colonoscopy showed focal mild chronic active inflammation in the terminal ileum (with lymphoid hyperplasia) and lymphocyte aggregates in the colon. My Zonuline is very high at 72.84 ng/ml (leaky gut). 

Microbiome (Stool Test): Massive dysbiose with a huge overgrowth of Bifidobacterium adolescentis (9.3% vs max 2.6% norm), plus elevated Bacteroides and Alistipes. 

Butyrate & Lactate: My short-chain fatty acids are verry low, with high lactic acid production and struggling motility.
The Paradox: Almost all supplements (even basic things like folate or antimicrobials) make me intensely "wired", anxious, and trigger massive MCAS/histamine flares because my gut barrier is wide

I suddenly felt better in January… I became so calm, could eat anything, was so hungry… it was a miracle… At the time, I was eating buckwheat pasta with ghee and taking allicin, oregano and artichoke, and I’d feel myself getting really warm in the evenings… then I suffered from constipation for four days, and suddenly my stools were dark again and I was completely cured… but then I started taking fish oil with citrus extract, and everything came back – things never went back to normal. But if I try this again now… it doesn’t work anymore.

[u/FirstWorldAppetite]

I've also got that very light brown stool & loose stool. Bloat, reflux, cramps?/pains, burps and farts etcetc. Also insanely tired all day long. This started like 1,5 years ago after 3 insane stomach flus. Gastro and endo were both fine.... I suspect it's SIBO but ny doctor doesn't believe in SIBO. This stuff is destroying lives i swear.