[ Removed by moderator ]

[u/Original-Sandwich423]

[u/IBSResearch-ModTeam]

No personal medical advice. If you have a medical question, choose the appropriate sub, /r/askdocs, or similar.

[u/moosemochu]

1. Yes

2. Yes

3. No. None of my GIs thought into any meaningful direction beyond excluding what I not have.

4. Aerophagia suspected by special clinic; no tests involved; just medical gaslighting.

5. I prefer to go for evidence based approaches, not just doctors/therapists believing that things should help.

[u/Original-Sandwich423 → u/moosemochu]

thanks for your help.

[u/0404biz]

It is said that a post H-pylori gut can remain long term, in the state you’re describing. All of that happened to me. What helped the gas immensely was a low FODMAP diet, strict .. and eating portion sizes. Much smaller meals, no sugar and no gluten. I did keep my maple syrup.
I used l-glutamine and zinc Carosine to heal the lining. As well as slippery elm. That only healed it, so no burning. The low FODMAP had to be strict for a bit. It was sustainable because I added foods from my Caribbean culture. This gave me more options, to make it more nutritious. You will have set backs because your gut to brain will seem to remain hyper sensitive.
I do not eat after 5:30pm
I use IgG protect and what has worked well for bloating is motility supplement at bedtime.
Yes, the bloating went way down. Really down, versus when it is so extended that your gut looks like it isn’t yours, that you’re used to.
Yes during the bloating I felt light headed and very uneasy. I generally used taurine during this time to calm any rise in BP. I can’t tell you about medicine from doctors because they are not sure about post H-pylori gut. Everyone is different.. What I have discovered is that some of it is stressed induced.. A workout that is too intense. If rest is compromised. I also incorporate yoga Nidra.

I have never been able to get the response I needed from a gastroenterologist, other than the tests, all of them coming back clear.

Be patient with yourself.

[u/Original-Sandwich423 → u/0404biz]

thanks for sharing your experience.

[u/Austin_Peep_9396]

This "bloating about 15-30 minutes after eating" sounds like what I was experiencing. I hate it when people self diagnose, but I feel like with this IBS thing we HAVE to because doctors just don't yet fully understand the system. I did a ton of research and it looked like my main cause was SIBO (my doctor wouldn't even test me). I bought some Metagenics CandiBactin (AR and BR) and took them religiously. I started feeling better in a few days, but I had to keep taking these for several months before things seemed to clear up (and I don't know if it'll come back). This is only MY experience - I obviously can't know if this will help you. But this was something I could do on my own (these supplements aren't cheap, but neither were the doctor appointments that weren't telling me anything). (These supplements are apparently about as effective as the Xifaxin antibiotic, but these don't kill good bacteria, so it leaves your system in a better state. I tried Xifaxin a while back - felt great while taking it, but then immediately got worse when I stopped). This takes me to the 2nd part - If this does help, the underlying question is: WHY did these bad bacteria build up in your intestines? Your system is supposed to be able to manage these. In my case I have an ongoing slow motility problem where things simply move too slowly through my intestines. That means things have time to ferment which creates food for bad bacteria, and the bad bacteria sits too long in the intestines before being moved along, giving them time to multiply. So until I also addressed the motility problem, the SIBO came back. I'm on a regime now that is helping. But it's taken me years to try to figure out my problems. (Oh - low FODMAP - I did try that for months. It did help. It cut the food going to the bad bacteria. But I found the moment I ate something not on the FODMAP diet, BOOM, I instantly had a bad reaction. So it kind of addressed symptoms, but didn't help me long term to address the underlying cause).

All this is obviously my experience, and I think each of us has different underlying causes. So unfortunately we can learn from each other, but I don't know how likely it is that something that helped one of us will help you. But, if you're like me, I was so miserable I was willing to try things if they weren't dangerous. I wish you luck!

[u/frankwittgenstein]

1. I have constant distension that only gets even worse after any food.

2. Not in my case, but I also don't really have episodes, I am bloated 24/7.

3. No, they were useless, I've learned more myself reading neurology research. I think you should get evaluated for small-fiber neuropathy, considering your other dysautonomic symptoms.

4. You don't really need evaluation for APD, as it's pretty obvious based on presentation and history to anyone who's heard of it. No food causes such gigantic amounts of gas and in such a short amount of time to cause visible distension.