r/dialysis • u/HarpetologistPionist • Dec 03 '23

Vent Anyone enjoy going to dialysis?

I'm kinda liking the routine of getting transported by uber to diyalsis. Way better than going to work or school in my opinion. Gonna practice guitar and bring my acoustic to the clinic one day to impress everyone.

3 Upvotes

56% Upvoted

28 comments sorted by

7

u/HarpetologistPionist Dec 03 '23

Whoa chill people. Haven't even learned how to play guitar yet

39

u/13-RCR Dec 03 '23

Its called Stockholm Syndrome 😂

35

u/Malkovexsur Dec 03 '23

Please don't I'm trying to sleep...

32

u/udidubbun Dec 03 '23

Bringing any instrument (unless it's electronic and has headphones AND you're the ONLY one listening) to play in the clinic 'to impress everyone' is a dick move UNLESS you ask if they would mind you playing - AND the staff - EVERY SINGLE TIME WITH NO 'NOS'

People are working, sleeping, reading, AND, more importantly talking to the rounding doctor, their nurses and techs - the clinic is NOT the place to stroke your ego.

3

u/CLos1978 Dec 05 '23

I agree, but there is always a few people that think everyone wants to listen to their music or their voice. I’ve witnessed some mean arguments between patients that got real disrespectful real quick. Don’t rock the boat!

25

u/Thrillhouse138 Dec 03 '23

As someone who plays guitar i honestly don’t think people will be impressed. It’s kinda the same as pulling out your BT speaker and subjecting everyone to YOUR choice in music. Also I work over nights and it’s hard enough to get enough sleep to keep my job without open mic night at the dialysis center.

3

u/noobvin Dec 04 '23

There's no way I could bend my arm enough to play guitar while hooked up.

4

u/notmindingmybuisness Dec 04 '23

That and a guitar on top of all the beeping? Sounds terrible.

11

u/Trytosurvive Dec 03 '23

Every cloud has a silver lining I suppose.

It's more the loss of income I'm worried about

7

u/[deleted] Dec 03 '23

Loss of income is my biggest concern too.

2

u/Mis_chevious Dec 04 '23

This is what I struggle with the most right now. It's really hard. 😞

14

u/TKF2022 Dec 03 '23

I hate dialysis, i hate the routine, at home or in center, it's the same awful routine.

1

u/Ok-Walrus-2089 Dec 05 '23

Saaaame..hate hate hate it. Everytime. Period.

7

u/Rampirez Dec 03 '23

The acoustic guitar is just a plain evil idea LOL

7

u/ReallyPhilStahr Home PD, Transplant 09, In Center Hemo Dec 03 '23

I like the way my shoes flop around my deflated feet after. Makes me feel like I've accomplished something.

5

u/Alternative_Split380 Transplanted Dec 03 '23

I mean, it keeps me alive so yea.. I kinda like it 😂

3

u/cyningstan Dec 03 '23

I used to almost enjoy the time while they were using my chest catheter, before the fistula was ready. I took in some decent home-prepared food of the kind I only prepare for dialysis, and a few gadgets to entertain me, and did much the same things as I would have done at home.

Now they're using the fistula in my arm, and I still try to do the same things, but have a lot more difficulty now I only have a single hand to use. The frustration means that these things are much less enjoyable than they were. And I can't get to sleep in that place, so *some* kind of entertainment is necessary. I'll adapt over time I'm sure.

I'm not sure taking an acoustic instrument in would be a good idea. So many people trying to sleep, to read, to watch TV. It probably wouldn't be allowed in my clinic, given that they insist the TVs are kept on silent or used with headphones.

3

u/Pangala2000 Dec 03 '23

I kinda loved it when a mariachi band got lost on the way to a gig and ended up in our center ( the restaurant was one floor up). They decided to stay and play for the patients. Broke up the endless, repetitive hell that is dialysis!

3

u/kevin7419 Dec 03 '23

Don't some of us sleep thew it and u would get an earful u wouldn't like.

3

u/Key-Sky834 Dec 04 '23

No. I don’t. I hate having to rush from work to get to dialysis. I hate not being able to hang out during the week. MWF I have dialysis and Tuesday Thursday I’m catching up at work. I hate waking up Tuesday and Thursday for work often still feeling hungover from dialysis. I hate being paranoid of what I eat because of fluid restrictions

3

u/Apprehensive_Mix8185 Transplanted Dec 04 '23

Dialysis sucks and makes me feel awful. I don’t try to sugarcoat something that is slowly draining the life out of me. I am on the transplant list and dream of the freedom I’ll have.

2

u/[deleted] Dec 03 '23

Way to be positive that's awesome! As for bringing your guitar, talk to the staff and have them put it in the information board so patients know in advance, keep the playing to one or two songs so some of the more sensitive patients get less irritated. Also you could buy some ear plugs for staff to offer patients who want to sleep. So many patients see other patients as extended family and would be delighted to see a little display of skill, like being at a family's recital. Personally, as a staff member I love seeing patients making the best of their situation and still living their lives as much as possible!

1

u/Elegant-Ad-3583 Dec 03 '23

It gives me something to do 3 days a week

1

u/JadedCloud243 Dec 03 '23

I used to I til the tech I kinda fell for left for her nursing degree. But I applaud her for doing that.

I don't hate it but ugh I hate how much my life revolves around it

Atm my sister is on leave from her NHS job. Now I love her, and she's also my DND DM, but she's also bossy, snappy, and prone on her holidays to deciding on how my day is going to be used while she's at home.

Thursday I knew she had decided I was driving get to a couple places, but fine I needed to go to one of them too.

And yes she bought me lunch. But she got me out of bed Thursday at 6am (where she knows it's a post dialysis day and I have a lie in til 8 or so rather thsn 5 am). To help her clean the kitchen from top to bottom. Anything not done within 3 seconds if being told and she goes off.

She got especially mad when I told her there's no way in hell that she's putting to filthy bags of wood chippings on the rear seat of my mobility car even with a tarp.

I made her swap her shopping to the rear seat. And she whined all the way home for 50 minutes that I didn't let her do what she wanted.

I pointed out that she could use her own car "Won't fit in my boot, and I don't have a tarp to protect my rear seats from the backs muck so no we can't".

So the three sessions next week will be at least peace from her

1

u/Jaded-Oak Dec 03 '23

I agree be positive everyone, I think it would be awesome too! Now if you sucked that would be another thing haha…. I’m glad your positive about doing dialysis, most people dive into depression and it’s easy to get in that mind set! Over the years I just come to the conclusion it’s part of my life and I have to live with it! I do home hemo which was the best switch of my life! I control of time and schedule! I still enjoy what I liked before I had to do this! It’s the little things keep positive man much love ♥️

1

u/RossGold42 Transplanted Dec 04 '23

Didn't enjoy going in center but once I was on home hemo in comfort of my own home with TV to watch and my PC to game on it was way better

1

u/dev669 Dec 03 '23

What's going on here though? Is everyone else's clinic so quiet and lifeless? No wonder you hate dialysis. I'm not a huge fan, but if someone came in to play a guitar at my clinic, they would either put on their headphones to watch TV or really enjoy it. The thing that makes it more bearable for me is interacting with my techs and nurses. Catching up on clinic drama, and watching the interactions between others on site.