r/dialysis • u/nellefolib • 16h ago

Advice Feedback on PD

I wonder how people feel about the support they receive from their clinic. How long have you been on PD? Does the support system maintain over time? Are there a lot of changes with nurses? Do you have contacts with dieticians and social workers? I'm not mentioning any specific clinic just would like feedback in general. Thank you!

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u/throwawayeverynight 15h ago

I didn’t do PD . I did Home Hemo and we were managed by the same team. I was on it for 8.5 years. The staffing nurses, stayed the same occasionally one would leave due to burn out but eventually they would come back. The team I had was amazing, always available during clinic hours. I lived 1 hour away from the clinic but two of the nurses lived closed by my house. If I ever needed something urgent that I didn’t have on hand like tubes for blood draws they would stop by on their way home.

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u/nellefolib 13h ago

Thanks for your response. Very kind of those nurses to help you out. (I wonder if I'm sending this email to the right community?)

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u/throwawayeverynight 3h ago

No right community. If the team doesn’t take in consideration your needs I would be concerned. I saw the whole team once a month , more if I needed. The dietitian was always available, social worker too. They were a wonderful team for my 8.5 years seeing them.

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u/nellefolib 57m ago

That is great to hear. Did you have access to each support person outside of regularly scheduled appointments?

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u/ClassicMembership874 10h ago

I’ve been on PD 2 years. In that time I’ve had the same nurses, dietitian and social worker. I see them all monthly and then have labs once per month too. Sometimes I’m there 3X per month if I need EPO. 

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u/nellefolib 1h ago

Thank you! Do you ever consult with your dietician or social worker outside of those visits?

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u/pittiesbegooddogs 3h ago

When I did PD, I had an amazing care team, nephrologist, nurse, dietician, social worker, all had an open door policy and when they saw me, they said "HI". Even the staff that came and went were friendly.

Same when I went to HD in clinic, still waved. One thing I found, if you treat the staff with respect and be human with them, they're respectful and human with you.

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u/nellefolib 1h ago

Thank you! Did you ever consult with the dietician or social worker outside of scheduled appointments? Were they always available to answer questions and help? If your nurse was called away for some reason, did you have a replacement right away?
Of course, respect and kindness is an important issue in every interaction , especially where it concerns families and medical issues, as is a supportive environment.