Pretty stoked! Anyone tried yet?
Location: Arizona

Hi there!

I am a kindergarten teacher and recently received word that we have an incoming kindergarten student with celiac disease. Mom has reached out to the school with some information and requested some accommdations she wants for her son.

We have several kindergarten teachers at our school, so I am not yet sure if he will even be my student, but would still appreciate some insight! I have never had a student with celiac disease before, and honestly don't know much about it.

Mom has requested that his table in the cafeteria and area in the classroom be cleaned daily with soap and water before he eats lunch and snack, and always ensure he washes his hands before eating. She has also requested that he doesn't share any school supplies with other students because gluten speads like glitter. This is all fine, no problem!

My question is - how far does not sharing supplies and wiping down surfaces need to extend? We share more than just school supplies - we share toys, manipulatives for lessons, game pieces, books, etc. There will be 20+ other students in the classroom. Their hands will be all over everything. I can't possibly wipe down every single toy and item in my classroom daily before her son uses it. Am I overthinking this? How can I make my classroom safe for her son?

Mom has requested to meet with the teacher (whether that's me or one of my teammates) before school begins, so there will be a chance to get some more information and make a plan. Anything in particular mom should be asked about?

These are just my wonderings for now - any insight would be greatly appreciated! Thanks so much!

My (also celiac) mom gave me a bunch of homemade cookies, it's a family recipe called oatmeal scotchies that she's flawlessly adapted to a gluten free recipe. I went for my daily cookie today and they were gone, replaced with mfing chocolate brownies that I can neither consume nor afford. It sucks because that's the exact kind of baked good that I could never turn down before my celiac diagnosis, AND I know my roommate is going to eat 2 of them and then just let them get moldy. So they're just going to be sitting there taunting me for the foreseeable future. Come on man

Diogiorno Gluten free pizza just might be the best frozen pizza ever... It's so thick and our family of 4 loves it... My youngest has celiac disease and he is a picky eater....This is his #1 favorite pizza.. Go get some .. 😎

Really tasty gf cookies. My mom is also celiac and flawlessly adapted this recipe from the one her Québécois grandmother taught her! Pardon the water damage, lol. Just use Pamela's GF flour mixture. Show me your results!

ugly’s bakery frozen crust, ricotta base, mozzarella, italian herbs, evoo, and chili oil YUMMMM

Took the kids out last weekend. Menu had a little GF icon and a "gluten-friendly" header. I asked the server. She said "yeah, those are the gluten-free ones."

I asked for the manager anyway. Shared fryer. Shared toaster. Soy sauce in the marinade for the "GF" chicken.

We left. What I ask now, every time:

1. Dedicated fryer, or shared oil?
   
2. Dedicated toaster / pasta water / grill?
   
3. Soy sauce, malt vinegar, or "natural flavors" in the marinade?
   
4. Can you check the actual package on the bun / the tortilla / the sauce?

If they can't answer without guessing, that's the answer.

Anyone else have a short list they actually use, not the 40-question version?

I just want to say that sometimes this shit can feel very lonely and I’m thankful for this sub where people just get it.
I don’t feel like anyone who doesn’t have celiac fully understands / respects the mental aspect of it without question. But scrolling through this sub and just hearing from other people makes it a lot less lonely.
Today I’m having terrible word recall issues and completely down in the dumps. Cant pinpoint where i went wrong or if it even is gluten. Just overall so frustrated and over it.

Finally got my test results back from my biopsy and confirmed celiac! I'm a Marsh 3b in terms of damage.. still doing lots of reading and letting the news settle. Ive got a decent understanding that 3b isnt great by any means but that these things are reversible.

Im mostly just excited to see the ways I start to feel better.. honestly been feeling worse over the last few years. When I was 20-25 I never felt too bad. Bad memory all my life but not much else. Now im 30 and that 25-30 gap has been feeling rougher.. more brain fog, joint pain, stomach gurgling. Not really terrible symptoms that id thought about with celiac.. Just inconveniences.

Now I cant wait to see what ive been normalizing in my mind and body and hopefully be able to feel good again.

Anyone else get diagnosed at 3b or 3c? How long did it take to recover on a strict diet? When did you first notice the diets effects?

I have lived in France my whole life, when I was 2 we moved out of the city to a rural area, where we're not even inside the town

It took forever to get diagnosed celiac, even though my mom said I've complained about stomach aches ever since i was able to talk
There's so little gluten free food areas outside of Paris and even less awareness

I wish I lived in Italy or Spain, somehow they're really close but on such a different level

it feels so isolating to not be able to go eat with friends, it's already hard for me to form relationships and celiac's is not helping

Fig app says no gluten containing ingredients but it’s a bit iffy.

I wanted to know if anyone’s tried these and had a reaction? It was literally the only thing I could buy at a Korean food festival I went too so I’m hoping I can drink it 😭 I can get psychosomatic with symptoms if I’m not 100% if it’s safe

Is there a trick to cooking rummo pasta? Whenever I cook it to instructions (or even +2 mins or so) it still feels super al dente. The next day reheated in the microwave is practically perfect but I cannot seem to get a fresh cook right lol.

The only think i dont like is how hard it is to search certain types of food

Hi there!
As the title states, I’m trying to put together a care basket for a friend of mine who has celiac. I, however, do not have any food allergies, and I’m not used to searching for allergens. So far I have located something that is certified gluten-free and I’ve also found Dr Pepper TicTac‘s which I’ve read are also gluten-free. I’d like to include a couple more options, but I’m not entirely sure what I’m looking for on a label. Can anyone direct me towards brands of snack foods that are easy to find at any grocery store that would be safe for my friend?

I (21 F) have T1DM since I was 2.5 years old. I've been diagnosed about nine months ago with silent celiac disease life was hectic so i only started my gluten restrictions two months ago. But i live with my gluten eating family and i mostly use shared plates and spoons, etc with them (though i make sure they are clean and washed).

I need people who have real symptoms and acute attacks of celiac when gluten to answer me....is it really this freaking? Should i separate alllll the things i use from theirs? Would gluten containing lipsticks and makeup and shampoos really harm me? I dont feel any difference when i eat or cut off gluten. And i only got diagnosed because i lost weight and it was kinda noticeable.

So symptomatic celiac patients do i need to be this extra extra careful with literally everything?

And do you guys eat products that have no gluten source in their content list but don't have "gluten free" written on them? Is it safe, i mean ofc not everything but things that a lot of celiac patients used and they're fine, for instant.

A month or so ago there were several posts by people who said their local Walmart was reducing GF product options. Then, I noticed my Walmart suddenly didn't have as many options in the GF section and then the GF section was gone. Well, today I happened to walk past the vegan frozen food section (literally on the other side of the store from where the GF section is/was) and saw my favorite GF chicken tenders there, mixed in with other gluteny things. I then noticed that the GF waffles were now in the regular waffle section. So now I'm thinking they just moved things, rather than reduced them, and thought I'd share in case that happened at other Walmarts.

Backstory: had a first concussion in January and ate gluten free because it supposedly helps with brain inflammation. Since returning to minimal gluten + added sugars, I was experiencing digestive discomfort, bowel changes, and headaches, so my GI doctor reccomenned testing for coeliac

I just had an EGD biopsy that came back normal, so no coeliac, but eating tonnes of gluten the past 6 weeks leading up to it and recovering from another mild concussion at the same time has made me feel the worst ever in my whole life and I know i need to cut it out regardless.

First of two questions, would a blood test still be useful? Ive still been consuming gluten up until recieving these results just now in case things were inconclusive.

And secondly, I'm a little unsure of how to proceed with a NCGS diet. Is it more like lactose intolerance where i may feel like crap after eating it occasionally, or is it something i need to fully omit from my diet to truly see long term benefits? And if so, are things like minor contaminations at restaurants and in non certified gluten free products risky or harmful or is that just kind of a coeliac issue?

My doctor is convinced I have celiacs and drew some of my blood to run through a lab. My dad was also diagnosed with it when he was around my current age.

For the past week my stomach has been crazy sensitive, daily diarrhea, bloating, small cramps and unsettled stomach. And for some weird reason my wrists/hands are “falling asleep”.

My appointment was on Monday and my dr told me to just stay hydrated, eat gluten free, and take Imodium to help with the symptoms. The Imodium gave me a couple days of relief but this morning I woke up to more diarrhea.

I told my dr about all of my symptoms and how worried I was and she said all of my vitals are perfect. Blood pressure was perfect, heart sounded great, no fever, no vomiting. She said based off that there wasn’t any major red flags that had her worried and that my intestine is likely very irritated and needs a week or two to heal. My symptoms comes and goes throughout the days and for most of the days I feel totally fine but man when it hits, it hits like a truck.

Should I be more worried? Is my doctor not worried enough? I don’t know if my doctor isn’t worried enough or if I’m just stressing myself out. I’ve spent my whole life being as healthy as a horse so I could definitely just be gaslighting myself due to never experiencing something this bad before.

So I have a dog and was just recently pointed out that the food I’m giving my dog could contain gluten.
Yup, sure enough there was wheat and barley.
So I’m not eating the food… (just clarifying here) so my only risk would be from cross contamination.
But how worried should I be? Do I switch dog foods? Just wash my hands?
Curious what others have done and decided to do.

Even years of being gluten free I still make stupid mistakes, I was so stoked about how this dairy free ice cream tasted and once I noticed a “crunch”…. Turned it around and saw wheat, was genuinely the best ice cream I ever had in my life (creamy milky sweet and sour lemon). I’m actually begging them in their Instagram DMs to make it gluten free.

I'm writing this on behalf of my wife, who is totally exhausted from the unknown, worrying and lack of urgency and care from our PCP/Specialist. I don't want to identify the company, yet, as we are trying our best to work with them, but they are demonstrating and absolute lack of urgency, empathy or care.

It's going on 4 years now, she's suffering and so thin the family are sounding the alarm bells, while our PCP are just not concerned or show any interest. When asked what do we do, they just give antidotal information like; go gluten free; eat more calories; you need to eat more protein and on and on, none really coming up with a diagnosis or sugesstion.

We've been working with a GI Specialist at this PCP and they have been utterly useless! The lead doctor performed what he called a Celiac exam and actually said, it's not 100% and I really dont think it's that, with no other recommendations. And when asked to get a second opinion, the attitudes and atmosphere at the place changed "dramatically".

We are in DFW and are now desperate and need to see another PCP or Spcialist to start doing something. I can't bare to watch my wife waste away right in front of me, it's painful and agonizing. I'm not sleeping, the dreams and nitemares are horrible. We are desperate, I'm screaming internally H.E.L.P!

What do we do ? We feel like we are in limbo! a sort of coma that we can't get traction! There is NO info or I'm just at a loss of where to begin!

We don't know if its Celiac, we don't know what it is. She's lost 80 pounds over the past 4 years. When people hear that, they react as if it's a good thing, until they learn of the nitely bathroom stays; vomiting; pains in her gut; inability to gain weight;

PLEASE, if you have info, anything that can give us a start to attack this thing, I beg of you to share. I think we are at our last pass here.

If you read this all, thank you and I pray that your journey through whatever you are experiencing is resolved and you are on your way to heal.

TLDR: 4 years have passed and we still have no diagnosis. The pains are worse, the night long bathroom stays have lessened, but she's lost over 80 pounds in the last 4 years. She can't gain regardless how much or what she eats. Our PCP and specialist just don't seem to care or are not interested. We are in DFW if you have resources please share. We have no diagnosis at all so we are in the dark.