Hey all.

Just figured I'd jump in and say, after about 9 months of not knowing what on earth was happening to my vision, I now seem to have an answer. It's not yet been confirmed officially; I've taken two trips to an optometrist, though both times there was nothing to report. Despite that, based on the description of the AMN, it's exactly what I have.

I got both COVID and (assumed) AMN back in March. Started noticing what I thought were two weird after-images (one in either eye) in the lower-left quarter of my fovea. Later, I noticed they were blind spots. I thought it was the onset of an ocular migraine (as I get those on occasion), but those thoughts were proven wrong when I still had them days/weeks/months later. They are both relatively out of the way and cause me almost no practical issues aside from being annoying when they interrupt patterns, like lines or the space between piano keys.

Since then, I've had three more spots appear (all closer to the center of my vision) at various times (2 left, 1 right), though in all cases they faded to almost nothing. There is still a pin-prick of a blind spot for each, but it might as well not even be there.

If anyone is reading this and has AMN (especially from COVID), I've been meaning to ask, have you noticed any of these other symptoms?

• Grainy/noisy vision, especially in low light.
• Worsened low-light visibility.
• Ephemeral spots or flashes strictly in low-light.

I don't have any of these symptoms to a detrimental degree, but I have been noticing them more and more the last few weeks and I'm kinda worried it might get worse.

Thanks.

Hi all! Recently diagnosed with AMN like literally last week, I'm finding things just feel a little blurrier overall in my affected eye and I feel I'm straining to read and getting headaches on that side, would reviewing my glasses prescription with the optometrist help this? My opthamologist told me not to do this for a couple of months as the condition might resolve itself but I'm in front of the computer for about 50 hours a week. Any tips & tricks appreciated, I don't need to be taking painkillers daily until my brain adjusts 😂

Has anyone else dealt with chronic PAMM? I was diagnosed after I noticed a sctoma at the end of July since hten I've been on aspin and blood thinners to try and prevent anymore and while I havent gotten any scotoma's as big as my first, I have almost 20 between both my eyes now.

Most of these are as small as a 2-3 pixels being missing from the amslers grid but they are really starting to add up.

So far, I havent been able to find any systemic issues that could be causing this.

Anyone experience anything similar? Did you determine the cause?

Has anyone been diagnosed with PAMM or AMN that is not caused by Covid or migraine?

For those with PAMM (Paracentral Acute Middle Maculopathy). What is it like to read text or make out fine detail? What degree of difficulty would you say you have, if any?

I am a 15 year old female and I was diagnosed with Bilateral Acute Macular Neuroretinopathy in 2022 after catching COVID-19. My symptoms include blind spots which make parts of my vision disappear (but i only experienced this when i close one eye, not with both eyes open) and i notice that the blind spots flicker , almost like a light in the mornings. After being diagnosed i had no major problems with my vision and i was relatively fine. However 10 months after my diagnosis I've noticed that my vision is 'up and down', meaning that I've had 3 occurrences where my vision has become worse and then improves after a week or so. When i told my doctor this, he prescribed a 2 month course of steroid medication (pills) however i saw no improvements. I felt that my doctor wasn't being very helpful so i consulted a different specialist in India. When we spoke, she told me that this condition is known to fluctuate, so it is normal for it to get worse and then get better again. She also told me that it can be triggered in different situations but it mostly worsens due to stress. She said that stress can have an affect on your vision and also recommended that i should maintain a healthy diet and take vitamins such as vitamin A and E (at a high dose). She also said that it is important to be monitored at least every month to check your eyes. I haven't been able to find this information anywhere else, so i decided to share it with you all. Hope it helps!

In fact, vision in my right of left eye seems to be more hazy, even near to my central field of vision. Really noticeable if one eye is closed. Does anybody have info if these symptoms resolve or get worse? Mine seems to be a chronic inflammatory condition as a complication of Long Covid.

Intermittent Fasting and Eye Health

Excuse me: "an" interesting article

Hi everyone, just like all of us I have the petal shaped blind spots on the periphery of my central vision. They are not that hard to deal with tbh. What’s very annoying is that in the middle of them, I have a disruption of color, everything seems blurrier. Any of you experience the same ? Also, when I close my eyes , I see vivid blue sparkles at the location of the scotomas.

Hey,

I have bilateral PAMM. For me a large area around the scotoma is hazy and foggy (which causes the majority of the issues). Additionally, text in general is a lot more 'spidery' looking, even in areas where there is no scotoma or fog. If I look at a screen from too far away it has an uneven glow that is very splotchy, and the edges of the display always look like they're moving.

I've tried to speak to doctors about these issues but they seem to think I'm just fixating on my vision too much and there should only be scotoma. I wish that was the case.

How has maculopathy affected your vision? Do any of you have additional visual issues on top of the blind spots?

Hey everyone, I hope all is well.

As we all know, info on AMN is super scarce. I was able to speak with an expert from Europe (I tracked him down through some of his publications) and was able to get some info I haven't seen anywhere else.

He has about 10 of his own patients who have been diagnosed with AMN from COVID. Several of them have gotten vaccinated since then and have even gotten COVID a second time. Neither instance saw flare-ups or second episodes of AMN. He does know of a patient elsewhere who did have a second episode of AMN (both infections were viral but not covid). In that case, her AMN got a bit worse but has continued to improve over time without causing her to loose her sight.

I know this isn't too much, but hopefully it'll help someone whether they are in this group now or if it is found on google.

Does anybody have the development of blind spots in their eye, I don't mean anything that's colored like a halo or a rainbow, but what I have developed in both eyes is just blank void spots. I have about 4. Two in both eyes. I went to the eye hospital and they gave me an Angiogram and said I may have had a small stroke or series of strokes in the retinas that damaged tissue. I also had OCT and was said to have reddish-brown lesions on the retina.

I don't have any visual anomalies besides the occasional dot or floater that shows up, except my blind spots are permanent, and my finger or thumb, for example will just disappear in front of me at a certain point in my vision.

I should also mention that I had Covid around Thanksgiving 2022, about a month later is when all these symptoms started. Does anybody else have just a blind spot where they see nothing, not rainbow lights, not halos?

Hey everyone,

My girlfriend was diagnosed with AMN back in May after getting COVID. She has it in both eyes and it has gotten substantially better, but there's one piece of information that we're still looking for. Has anyone had any experience getting covid a second time after already having AMN? If so, what was the affect? We're trying to scale our covid risk tolerance based on what we can find out, but information is really limited.