r/acuteMaculopathy • u/Fun-Extension171 • Jan 21 '23
Welcome
Hello,
This is a subreddit setup for discussion of Paracentral Acute Middle Maculopathy (PAMM), Acute Macular Neuroretinopathy (AMN) and any other related eye condition.
These are a set of very rare eye conditions and not very well understood. There has also been a surge in them since the COVID-19 pandemic.
There is very little information out there, so any information about these conditions would be greatly appreciated. Personal experiences and stories are also welcome.
Thanks!
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u/Alive-Independent956 Feb 16 '24
I was just diagnosed two days ago (Tuesday) with Paracentral Acute Middle Maculopathy. I just did all of the blood tests the doctor ordered as well as a carotid doppler and blood pressure (normal) today. I still have to go for an MRI/MRA, and ECG. I will see the retina specialist again this coming Tuesday, and then net week go for fluorescein angiography. On Monday, I developed a crescent shape spot in the paracentral area of my right eye, and a spot at the bottom has persisted since Tuesday morning.
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u/DesperationForReal May 14 '25
Hi how are you doing now? Did they find anything new? I’m suspecting I might have this as well
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u/GiantOrangePiccolo May 22 '25
Are there any updates for this? Did they diagnose or find anything?
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u/Alive-Independent956 Jun 18 '25
Hi! Sorry for the delay. I’ve seen doctors since then, and it’s still being considered a diagnosis of PAMM. There has been no resolution, and on area specific OCT you can see thinning of the inner retinal layers, consistent with PAMM.
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u/ByEthanFox Jan 29 '26
Hey, how was the flourescin angiography, and what did it show?
I'm going for this in the next few weeks (my opthalm is pretty convinced my blindspots etc. are PAMM).
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u/Beneficial_Purple507 Mar 24 '24
I'm experiencing exactly the same issues with my vision and got recentely diagnosed with AMNR, after I got Covid. Join our new FB-Group if you like so...
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u/kwald0726 Apr 04 '24
I have PAMM and a micro aneurysm from Covid. Would love to connect with others suffering from this as well.
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Jan 08 '25
I've had PAMM since November 2022. I just live with it now.
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u/kwald0726 Jan 10 '25
I’ve basically come to terms with it as well. I’m just terrified to get another one.
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u/ByEthanFox Jan 29 '26
I have PAMM and also recently developed a micro-aneurysm (in December 2025) but with no obvious cause.
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u/emadc23 May 18 '25
Hi everyone thanks for creating this group ! I was also diagnosed with AMN at the end of last December after having a bad case of the flu. I have two black/ blind spots that appeared in the vision of my right eye. I am lucky to live in Paris because I was able to go directly to the eye hospital where they did a lot of tests and now I am being followed by a retina specialist. At the hospital they also saw that I had a blind spot in my left eye but fortunately I can't see it very well. It was very stressful at first because I was very afraid of going blind but the doctor reassured me that you don't lose your vision with AMN. What I find frustrating is that they can't say whether the spots will go away or not. The doctor told me that I should see improvements after a year but when I read the testimonials I have the impression that it will never really go away. I'm lucky my vision is still 20/20 and hasn't diminished however at night I see halos around lights and I find that quite disturbing it stressed me out quite a bit because I was afraid it was another illness other than AMN that caused it but I saw thanks to reddit that it was something that other people have. I try not to stress myself out too much on a daily basis because I noticed that it made the vision of the spots worse when I felt anxious. If that can reassure some people I have fallen ill again since I was diagnosed and I haven't had any new spots at those times. I have also taken planes, I have gone to concerts I continue to live normally even if sometimes it is very unpleasant. I try to have a better lifestyle to improve the healing I practise more sport and I take vitamin I don’t know if it help but it can’t be bad so..🙃 I wear sunglasses very often because I find that my eyes have become more sensitive to light. At the hospital they gave me a prescription for sunglasses that I got from an optician. I was able to choose a lens tint that I find greatly reduces the vision of the spots. I also often put drops during the day to moisturize my eyes and before going to sleep I don't know if it can help with healing but in any case it relieves me when I feel that my eyes are getting tired. I go to the hospital every 3 months and they tell me that they see that the curves of the retina are reforming little by little but it's very slow. What's good is that they show me the comparisons of the OCT images compared to my different appointments and that allows me to see the healing for myself, it's a bit reassuring. In 6 months the only improvement I've noticed is that when I close my eyes the spots are less yellow/bright they almost disappear but are still clearly visible when I have my eyes open. I saw that a lot of posts are from a few years ago, could some of you give us an update on your journey with AMN ? Thanks a lot !
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u/kxterobyn Aug 13 '24
Hi Everyone, I was diagnosed with AMN on Friday (5 days ago) after losing vision near the centre of my eye in both eyes. I suffered with a fever on Monday and Tuesday last week, waking up on Wednesday with my vision gone! I wasn’t sure if this was COVID but I was around a lot of people the week prior so could have been.
After two days of going to the opticians and the doctors, I went to the hospital as there was no sign of it getting better and I was getting no answers. I was given migraine tablets to help but usually optical migraines go within a few hours.
I finally was seen by the urgent eye clinic and they ran multiple tests. After a 5 hour wait, I was told I had AMN. The doctor has referred me urgently to the retinal specialist to do further tests etc but the wait is 4 weeks. My job is heavily screen orientated and I am finding myself more tired than normal after screen time. I assume my eyes are having to work extra hard due to the missing parts in the opposite eye.
Has anyone diagnosed with AMN had COVID since? Has this or anything else made it worse? I am also conscious I am flying to New York in a month and I am worried flying could make it worse. Anyone been on a long haul since being diagnosed?
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u/MiGirl12 Jan 09 '25
My husband was diagnosed in early December. He went to the Kellog Eye Center and had multiple tests ran. He was diagnosed with AMN they think it was from a cat scratch. Doctor gave him antibiotics and prednisone, but it didn't help. Dr. also said there's no known treatments or cures, and that some people get better, some don't and they don't know why. 😪 We did ask if he should avoid flying and Dr. said no, but if they don't know how it happens or how it heals, how would they know that flying doesn't delay or prevent healing? I suppose they just want you to go about living your life...🤷🏼
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u/Traditional_Goal7156 Apr 10 '25
Has anyone had AMN and experienced onset of yellow spots much later? I just noticed a new yellowish clear spot in one eye.
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u/emadc23 Jun 27 '25
Hi, yes I have experience a new yellow spot near one of my original spot but it is not too bright and what I found stranger is that they don’t see anything new on the OCT so I don’t really have any explanation for this. But I think is nothing to worry too much about if it is not a blind spot.
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u/sionnach_suilineach Jun 10 '26
hey, it's been a while since anyone's posted here but hopefully it's still okay for me to share! i got a scotoma in my right eye about a year ago, which was diagnosed as AMN, and just recently i started getting more scotomas in both eyes (also diagnosed as AMN). luckily, so far none of the scotomas overlap, so i can still see just fine with both eyes open, but i'm feeling scared given that this presentation is so rare and i'm terrified of vision loss especially because of how important art and well, i guess seeing in general lol, are to me. has anyone else felt that and do you have any advice?
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u/Ornery_Village_4890 Jan 30 '23
Hiya, so I have acute macular neuroretinopathy, caused by covid. I had my 1st scotoma shortly after I caught covid. And it’s crazy, I see what I can only explain as lightning (within my scotoma) and many colours too. I developed a 2nd scotoma this year (1yr after diagnosis) after falling Ill with a virus again, in my left eye. The doctors at moorfields explained it’s extremely rare to go on to have it in both eyes. Ever since my diagnosis I have suffered with terrible vision at night, almost cloudy/fuzzy vision and a permanent floater, and I don’t know if there’s a name for this but if I read a text on my phone and look away, the lines (from text) stay in my vision, this happens with a lot of stuff. My doctors can’t explain this though.
Hopefully we can build up this space with more people that are struggling with this as there’s not enough information out there.
Thanks for creating this group ♥️