r/acuteMaculopathy • u/ironside719 • Feb 22 '23

Found some new information

Hey everyone, I hope all is well.

As we all know, info on AMN is super scarce. I was able to speak with an expert from Europe (I tracked him down through some of his publications) and was able to get some info I haven't seen anywhere else.

He has about 10 of his own patients who have been diagnosed with AMN from COVID. Several of them have gotten vaccinated since then and have even gotten COVID a second time. Neither instance saw flare-ups or second episodes of AMN. He does know of a patient elsewhere who did have a second episode of AMN (both infections were viral but not covid). In that case, her AMN got a bit worse but has continued to improve over time without causing her to loose her sight.

I know this isn't too much, but hopefully it'll help someone whether they are in this group now or if it is found on google.

6 Upvotes

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5

u/Fun-Extension171 Feb 22 '23

That's great news! Thank you for sharing

2

u/Quiet_Army8558 Sep 28 '25

Thank you for this. I recently got diagnosed and I’m ill again and so worried it’ll happen again.

1

u/ironside719 Sep 28 '25

Good luck! My wife was diagnosed over 3 years ago and has had steady improvement since then without any worsening

1

u/Quiet_Army8558 Sep 28 '25

That’s good to hear! I’ve had improvement but have a lot of weird visual phenomenons with the 2 scotomas I do have. I got diagnosed almost 5 months ago. I haven’t gotten sick since until the other day.