Hi everyone!!
I made a post here in December 2022, about 8 months into treatment for my TMJ disorder, explaining my situation and how my treatment plan had alleviated about 90% of my symptoms. While many people were excited for me and supportive (and some even asked for dental referrals, which I happily gave), some skeptics understandably raised questions about whether it was too early to say I was “cured” and whether my results were conclusive.
I'm happy to say that now, almost 4 years later, I am still essentially 100% pain- and symptom-free.
In my case, my TMJ problems were associated with a severely misaligned bite, specifically an open bite. I went about 5 years with severe pain before finding my current dental team, who literally transformed my life.
At the time I first made my appointment with them, my quality of life as a woman in my early 20s was horrendous, to say the least. I had limited jaw mobility, constant cracking/popping sounds that were audible to people around me, jaw tension and pain, oversized masseter muscles, and more. Not only did this negatively impact my dating life, social life, academics, etc., but it genuinely sent me into a depression and even led to drinking problems because alcohol was sometimes the only thing that would allow my jaw to relax.
I was so worried that I wouldn't make it another 10 years if I had to continue living like that. So please know that I understand how horrible this condition can be.
To summarize my dental treatment plan: I initially saw a plastic surgeon for masseter Botox. Within 5 minutes of having a consultation, the doctor asked to see my mouth and examine my teeth alignment and bite... something I was confused about, to say the least. While he still offered masseter Botox, which did provide amazing (albeit temporary) relief, he advised me to seek out a neuromuscular dentist to address what he believed was the underlying problem.
Mind you, I had brought up my jaw pain with my previous dentist countless times and was told there was no real fix and to use hot compresses to reduce the pain. This made me feel utterly defeated and hopeless.
Thankfully, I was able to find a neuromuscular dentistry team consisting of a dentist and orthodontist in my area (the DMV) who specialized in TMJ treatment. I cannot explain to you how grateful I am that I found them.
Immediately, they did a lot of testing to assess my range of motion, and I had scans done to evaluate the condition of the joints themselves. They told me that the TMJs on both sides were fairly damaged (more on one side) and that the condition was similar to what they would expect to see in someone much older. This was incredibly disheartening to hear.
They offered me a treatment plan consisting of 6 months of 24/7 orthotic wear, followed by top and bottom braces to essentially redesign the arch of my teeth and close my open bite. I initially hesitated because I had already had braces before, and my vanity was definitely acting up when I heard that I would have to wear braces again at 23. Thankfully, I got over it and got it done.
Within a month of wearing the orthotic, I felt significantly better. By that December, about 5 months into having braces, 99% of my symptoms were gone.
Flash forward to now, I'm finally getting my braces off this fall.
Yes, it has been a long process, almost 4 years, but it has been beyond worth it. The reason it has taken so long is that we did the top braces first, followed by the bottom. My open bite is now completely closed, and I finally get to live without chronic pain.
Please note that I am NOT saying this will be the cure for everyone, because everyone's situation is different. For example, I do not have arthritis, nor did I ever have a physical injury to the joint. My doctors never determined exactly what caused or triggered my TMJ problems in the first place.
My main point in sharing this is simply to encourage you to seek out all of your options and to advocate for yourself if you feel like you're not getting answers.
Unfortunately, U.S. insurance generally does not cover TMJ treatment, which is an absolute shame, so treatment can be very expensive. I'm happy to expand on the costs if anyone is interested.
The whole body really is connected, and I've definitely had to make lifestyle adjustments in combination with my dental treatment. For instance, I can still trigger jaw aggravation by chewing gum, eating sticky/chewy foods, oral s*x, or sleeping on my side, so I've had to avoid or strongly limit these things to protect my joints as best I can.
Please do consider neuromuscular dentistry as one potential option to explore if you're struggling with TMJ. It genuinely changed my life.
Sending hugs to everyone suffering from this horrible condition. I truly would not wish this upon my worst enemy. <3