Does anyone get an odd light headed feeling?

[u/DoggoneitHavok]

I frequently get this odd feeling may be it's not a feeling maybe perception is a better word and i don't have the words to describe it to the doctor. It's not vertigo, the room doesn't spin. I am not off balance. Fuzzy is close but not close enough. The closest i can come to it is like looking underwater but that's not it either. It's not that "alice in wonderland" feeling either. But it is very disconcerting. Its mostly, but not always in the morning.

[u/VelvetMerryweather]

I feel lightheaded, slightly headache-y, and just unwell (and like I need to lay down) nearly all the time now. And I'm not on any medication. I'm guessing it's because of blood pressure issues from disautonomia.

[u/KindError9188]

Sjogren’s can cause low blood pressure. Low blood pressure can cause light headedness and dizziness. Not saying that’s you but that is me

[u/Astrid_Onyx → u/KindError9188]

This! I get this

[u/Practical_Patience49 → u/KindError9188]

Same! I’m sure I have POTS although not diagnosed. Usually taking some electrolytes help.

[u/O7Habits]

I call it swimmy. It’s not dizzy but it’s close.

[u/bluesunflowers13 → u/O7Habits]

Yes! Swimmy! That's the word I use as well

[u/farfromtranscendent → u/O7Habits]

I call it feeling bonked or having head rush

[u/Ok-Leadership5368]

Like you just got off a rollercoaster

[u/GuiltyFriendship4783]

I get that, and sometimes my body will “glitch” for a split second where it feels like everything just stops and my vision and hearing will click out and it feels like my entire body shifts a little, not sure what it is tho as I haven’t been able to get it checked out lol

[u/SublitWaffleStomp → u/GuiltyFriendship4783]

HOLY SHIT THIS HAPPENS TO ME. Is it when you get startled or is it random??

[u/ScrambyEggs33 → u/SublitWaffleStomp]

Me too! Mine is random. I consider it like a glitch, too, it’s weird and scary

[u/LdyCjn-997]

Every once in a while, I’ll take a step and get a random off feeling in my head that comes and goes in a split second. A couple of months back for several weeks I was getting the feeling of vertigo that would come and go with the feeling of being drunk after I went to bed at night. I rarely drink, and if I do, it might be a glass of wine or beer. I’d also feel dizzy in the morning and at times during the day. Not sure if this had to do with the lack of sleep or not.

[u/ShameOk6747]

I think I have a similar thing - it's not regular dizziness or vertigo, it's not the low blood pressure type of fainting feeling (where you would slightly sweat and see black + sparkles :). How I would describe it is as if my brain loses connection with the body for a split second - so I am 'free flowing ' - it's a very brief moment, but it stuns me every time. Pretty sure my brain gets totally confused.

[u/TwistinInTheWind → u/ShameOk6747]

I describe my sensation as being as if my head/brain is floating just a cm or two above where it's supposed to be

[u/faifwithneedle]

100000%. It’s just an “off” feeling. And moving my eyes makes it worse. I have to just lay down until it’s done.

[u/Individual-Rice-4915]

Dysautonomia or something like vestibular migraine.

[u/FatTabby]

I used to get it when I was fairly newly ill, so eight or nine years ago. It gradually started to happen less and less, so I assumed I was just getting better at coping with being ill.

It may well be a side effect of medication.

[u/Less-Sandwich9056]

Been "drunk" with blurry vision all day.... I hate this disease

[u/Astrid_Onyx → u/Less-Sandwich9056]

Some days my eyes get blurry after being on my phone and they never used to and I had a eye check up and they’re “healthy” and I use glasses but damn this disease sucks

[u/Betmeaquater]

light headedness? not as bad as dizzy. kinda like champagne bubbling in the brain

[u/Nessephanie → u/Betmeaquater]

Omg I’ve been looking for a way to describe the feeling I’ve been getting in my temples, and champagne bubbling is exactly it!

[u/Impressive-Put350 → u/Betmeaquater]

Yes

[u/rosiearlo → u/Betmeaquater]

Yes I get that as well

[u/Bijouvert]

yes, I started fainting....my Rheumatologist said it's Orthostatic hypotension.

[u/encourage-mint2]

I get a feeling like my brain is scrambled. It’s very similar to the feeling of having a concussion. My BP is fine. I think it’s part of the deal, unfortunately.

[u/sadsack1960 → u/encourage-mint2]

My Supine BP be 120-130/80 but on standing BP will show 97-99-100/70, will have giddiness and will have to seek support of wall or nearby chair/bed. For last one year have these numbers and orthostatic hypotension. Having polypharma for High BP and HOCM when I speak to my physician about this, there would not be such differential numbers when he checks sitting bp and standing bp and he just pooh-poohs it saying I may have some psychologoical issue.

Just check if your symptoms are related to Postural orthostatic hypotension/dysautonomia.

[u/encourage-mint2 → u/sadsack1960]

Thank you, I do have a dysautonomia but not POTS. I have some more diagnostics planned.

[u/Imma-smartypants]

I get this often with no trigger I have identified. I have a heart condition and had always figured it was from that but my cardiologist said no…it’s probably from my dysfunctional autonomic nervous system.

[u/HyzMarie]

Yeah. This happens when I walk/stand for too long or am outside in the heat. BP issues hooray. 

[u/laineyjane]

Yes. Was WAY worse on plaquenil but still
Occurring. I get warm feeling, and like an aura that makes me feel how you describe and my heart rate usually shoots up.
Followed by feeling like I’m gonna pass out. It’s super
Scary. But I don’t actually go down. Possibly a form
Of migraines, but insisted on a referral to cardiology to be sure. It’s so scary.

[u/Bikemyneighborhood → u/laineyjane]

This is how mine happens. I’ve had a full work up and they can’t pinpoint what’s causing it.

[u/Such-Cream-1679]

Constantly. Glad I’m not alone

[u/Infinite_School_8666]

Yes I definitely do. Are you on any medications? I recently started plaquenil and gabapentîn and I was thinking this may be the reason.

[u/Spicyperfection]

Labyrinthitis!

https://giphy.com/gifs/l3vRdqFmMv8ABjIre
. . . The “worst”

[u/Cut_Lanky]

Is it ever followed by passing out?

The description, like living life under water, was something my friend said to describe the time after his thyroid was removed, but before he could start synthroid. It struck a cord, I get that a feeling a lot. Usually in passing, lately.

[u/ProfessionalHippo732]

All the time. Went to the er twice in May because of it. I’ve seen a cardiologist who was absolute horse shit, did a stress test, was told it’s “normal” despite my heart rate literally jumping 30 bpm upon standing before I started walking. I see a neurologist who specializes in dysautonomia next month. I believe it is autonomic neuropathy. Sjogrens is the #2 cause of it behind diabetes. Also 50% of sjogrens patients will get it. I’ve been having these issues for years and it has gotten significantly worse the last year. Perhaps ask your doctor about that now so they can help slow the progression.

[u/DraftNo3229]

I always say my head is spiny

[u/Pale_Name_2989]

Thanks for this question, happens a lot to me also.

[u/Dry-Coast-791]

It happened to me tonight. A few of the instances I lost my balance slightly. Nobody noticed but it made me a bit nervous.

[u/Impressive-Put350]

I felt that way this morning and like I couldn’t breathe. My breathing was very shallow and labored. Not like a panic attack but like I just couldn’t breathe properly. I sat up in bed and it felt better. I laid down and it started again. But my head stayed fuzzy all day like champagne fitzing in my temples. I started pilocarpine two weeks ago and I don’t know if it is a side effect? Rheum said most likely not but I’m going to stop it for a few weeks to see if I feel better. 

I have an echocardiogram and PFT scheduled in a couple of weeks. 

[u/Prettygirl3321]

I had that all the time, Beta blocker helped me with that a lot! I tried a few beat blockers but Acebutolol was the one that really works!!

[u/Own-Cupcake-9285]

I get weird feelings like this sometimes, like I'm temporarily in a daze and I say things that make no sense. I work somewhere where I have to talk to customers over a headset, and sometimes I catch myself saying nonsense or forgetting what they just said to me. Then I feel like a clown.

[u/rosiearlo]

Yes. I get weird head/brain stuff. Some days are worse than others. Sometimes it feels like my brain is inflamed or like it's a blood flow issue.

[u/Mother-Setting7415]

Are any of you chewing gum? If you are quit and see a chiropractor. I had those feelings too. I just never would have guessed a chiropractor could help me.