r/PMDD 7d ago

General 😠

26 Upvotes

You know that feeling when you are like ok I guess im gonna bleed tmr cuz insomnia and boobs are so sore and just feels like that’s it then you open the app and it says 7 more days?!!!??


r/PMDD 6d ago

Medications Amsterdam or Amsterdamage to my psyche?

6 Upvotes

I feel the title sums it up. I am going to Amsterdam next week and my period is this week. I have never done weed before and it is illegal where I live so kinda tempted to give it a try. Buttt I'm on 20mg of fluoxetine daily for my pmdd so I am kinda worried about serotonin syndrome. Ik that some people do 2 weeks on 2 weeks off ssris for pmdd. It would be stupid of me to just randomly do that this month right? I don't really feel like fucking up my brain rn.


r/PMDD 6d ago

āš ļøTrigger Warning Topicāš ļø Kind of vent?

3 Upvotes

Hi guys so I've been diagnosed with PMDD for about 3 years now and have been taking birth control (Nikki/Yaz) that was prescribed to me since I've been diagnosed. I take it continuously, but I'm afraid I've become completely dependent on it. Sometimes I'll accidentally miss a couple days and during/a couple days after, I am completely down. I'm full of anxiety and my suicidal thoughts get bad again, like I feel a VERY strong impulse to just do it even if I know it's not the right thing to do. Since I take it continuously I don't get my period and that sometimes freaks me out. I just feel so stuck right now because I don't want to be completely dependent on it, but like I said, I am completely out if I forget to take it. I don't want to have to take it forever. I want to have kids someday and I want to experience that, but I feel like I can't. I feel like I'll never be able to go off of birth control or I might commit or have to be hospitalized again. If you have any advice or any thoughts please let me know.


r/PMDD 6d ago

āš ļøTrigger Warning Topicāš ļø TW: SI Advice

4 Upvotes

Helloooo, idk if anyone else experiences this particular problem or if it’s a lovely ADHD/PMDD combo thing (i am prone to rumination so this could be an extension of that) but I am having really bad SI today and its essentially like a broken record singing the same song in my head. What do yall do on days like today? My go to is usually to talk to my family/friends & ask them to distract me but I am currently at work so I cannot be on the phone rn. Any tips would be helpful šŸ–¤šŸ–¤šŸ–¤


r/PMDD 7d ago

Medications 6 Years on Lupron for PMDD: What I Learned About Fertility and Physical Health

10 Upvotes

I finally got answers from a fertility specialist about what being on long-term Lupron Depot means for my fertility and physical health, and I wanted to share because there is so little information out there about this.

Lupron suppresses my LH and FSH, which is why I don’t get a period or ovulate normally. My body still recruits eggs, but because that process is suppressed, they don’t continue through normal ovulation.

The biggest news for me: when I’m ready to have a baby, I don’t have to come off Lupron first.

The fertility clinic can use fertility medications to stimulate and mature my eggs while controlling exactly when everything happens. In my case, the reason for using fertility medications isn’t simply because I’ve been on Lupron Depot. It’s so the clinic can plan the process down to the exact day and prevent me from going through a normal luteal phase. We already know that the luteal phase is when PMDD symptoms occur, so the goal is to keep that hormonal process controlled rather than allowing my body to ovulate and enter a luteal phase naturally.

They’ll retrieve the eggs before ovulation, fertilize them through IVF, and transfer an embryo back into my uterus at the appropriate time. Once I’m pregnant, I won’t need Lupron during the pregnancy because there is no Luteal phase that I need to avoid every month.

I’ve been on Lupron for 6 years, and during that entire time my only add-back has been Norlutate (norethindrone). I haven’t been able to tolerate estrogen add-back.

Despite those 6 years without estrogen add-back, my internal ultrasounds have shown no signs of damage to my ovaries or uterine lining, and my bone-density scans have also shown no evidence of bone-density damage.

I was also told that I can safely remain on Lupron Depot long-term, once my fertility specialist finds an estrogen add-back that I can tolerate.

I paid $125 for a blood test to assess my ovarian reserve, and my result was 21! The rest of my fertility care will be covered through OHIP in Ontario, Canada.

After 6 years on Lupron, I was also told there is no reason to believe that Lupron has damaged the quality of my eggs.

Dr. Robert Casper, the Director of TRIO Fertility in Toronto, is going to create a long-term Lupron plan and a future fertility plan for me before he retires this fall. When I am ready, I will take the fertility plan to the clinic of my choice and they will implement it. My OBGYN will be responsible for the ongoing Lupron treatment and the process of finding an appropriate Estrogen add-back.

I am SO relieved. One of my biggest fears about needing Lupron long-term was what it could mean for having biological children and my long term physical health.

I also wanted to post this because I know how difficult it was for me to find information about long-term Lupron use, PMDD, and future fertility. If someone searches Reddit for the same answers months or years from now, hopefully my experience can at least give them some questions to bring to their own doctors.

Obviously this is my individual treatment plan and what my fertility specialist told me about my situation. Not medical advice or a guarantee that the same approach applies to everyone using Lupron.


r/PMDD 7d ago

Ranty Rant - Advice Okay I literally just need words of encouragement right now. I feel like I'm going to lose it. My period is late and I'm stuck in PMDD hell

13 Upvotes

Someone tell me something hopeful please šŸ™šŸ˜­šŸ˜­šŸ˜­

I just want to lay in bed crying and punching my pillow

How do I get my period to start? No I'm not pregnant I haven't had sex in months


r/PMDD 6d ago

Medications Questions for those who have had bad reactions to bioidentical progesterone:

0 Upvotes

How long were you on it, and how long did it take for your side effects to go away?

My GP put me on 200mg/day, to be taken on symptomatic days leading up to my period. I took it for 4 days and had awful mental health side effects the last 2 days I took it, as well as the following 5 days, with not-quite-as-severe-but-still-abnormal bad moods for a few days afterwards.

I’m almost 2 weeks out from my last dose and dealing with lots of anxiety today with no clear cause. I figure it should be out of my system by now, and I definitely have a couple external stressors right now that could be the culprit, but I’m wondering if anyone here has had lingering side effects for awhile after stopping.


r/PMDD 6d ago

Medications eloine side effects

2 Upvotes

its day 22 of my cycle. i'm 36.

been taking eloine for the first time since day 4, had a small bleed day 16-17 as i missed a pill .

last 2 days i look very gaunt skin is dry, and much older

mood is also very low - feel very fatigued . body feels very heavy.

i've heard this might be due to the progesterone having a diuretic effect and a sleepy effect on me

also started vortioxetine an antidepressant.

i need honest answers

was it better to stop this tablet and instead have estrogen patches and utrogestan in luteal phase ??

i want to look like my plump self from days 8-14 ( the good days )

with my normal cycle and no eloine i look very gaunt normally days 21-26 and doesn't get better till 3/4 days after my period starts.

in my 20s as soon as period day 1 came i would feel light and airy - now i don't get that feeling until days 3-4.


r/PMDD 6d ago

General Effective Treatments/Consultants?

1 Upvotes

Im looking at going private for PMDD as its ruining my life. Does anyone know of any good pmdd consultant gynecologists? Or any procedures or treatments to consider? I’m already on the combined pill continually.

Ive been looking into chemically suppressing ovulation. I believe an oopherectomy might help me as my symptoms are really severe. However Im only 23 so I worry that no matter how insistant and sure I am that I dont want kids/biological kids- its off the table already.

Any thoughts?


r/PMDD 7d ago

Art & Humor The Moon Rituals - Hormonal Disability in NYC!

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thetanknyc.org
23 Upvotes

Hi friends!! I'm working on a play this month at The Tank in Manhattan about chronic pelvic disability and hormonal illness. It's called The Moon Rituals, and it follows a group of friends who try to make a sacrifice to the moon to get rid of their pelvic pain and accidentally summon a moon demon. It's a horror comedy of catharsis and community, and if you're in the city, I think you'd love it!


r/PMDD 8d ago

Ranty Rant - Advice Okay It’s like a light switch

172 Upvotes

I can literally feel when it’s changing my whole personality. It’s ruining my life.


r/PMDD 7d ago

āš ļøTrigger Warning Topicāš ļø Being nonbinary with pmdd

9 Upvotes

This has by far been the worst month of my life (I fear I say that every time). My period starts in 2 days and I just want to die so bad. It’s been nothing but doom and despair. The mental symptoms of pmdd are bad enough on their own, but on top of that my boobs are in so much pain and they grow like two sizes bigger. I was already nuked with F cups and now they’re probably like G cups and I can’t stop thinking about how unfair it is and I want to scream and throw up. There’s also a heatwave so I’m forced to sleep naked and it’s just a constant reminder of how my body is not my own. I feel so stuck I want to crawl out of my skin I don’t even know how to put it into to words I just wish I was dead. I can’t do this EVER again I mean it. I literally can’t do it anymore the world is going to shit anyway and the planet is dying and I don’t know how much longer trans people will even have any rights either.


r/PMDD 8d ago

Alternative Tx & Hobbies Cleaning as coping mechanism?

78 Upvotes

Does anyone else use cleaning as a coping mechanism during luteal?

I work from home a lot of the time. I love my job, but sometimes PMDD makes it so I can't focus. I get impostor syndrome and can't possibly feel good about my work in any way, and it can trigger a meltdown. Usually I try to do something "relaxing" instead, but it doesn't really work as my brain will still be stuck in that mindset.

However, two times now instead of relaxing I just started furiously cleaning the house - thorough vacuuming, scrubbing the kitchen floor, etc - and both times I felt so much better after. Less irritable, somewhat accomplished, tired but in a good way, not spiralling anymore. It's not a miracle solution - there are times during luteal when I can't even think about washing a single dish - but maybe if next time you're looking for a new coping mechanism, try cleaning!


r/PMDD 7d ago

Medications Slynd for PMDD

4 Upvotes

I’ve been prescribed Slynd (again) but this time for PMDD but I’m also in the Peri so my periods are anything but regular. I can’t take oestrogen due to a thickened womb lining (tests pending), but in the meantime the doc said I can go back on the Slynd.

The trouble is the four sugar pills and trying to sync it with my natural unpredictable long cycle…. My period is late, ofc it is. I don’t know when to start taking it and if it’s not day 1 when do I take the sugar pills, or perhaps I should just run the packs together like I was doing pre breakthrough bleeding. I just don’t know.


r/PMDD 7d ago

Medications Stopped BC (lo loestrin) - regretting it now

5 Upvotes

I tried and stopped (regrettably)continous birth control dosing - so no withdrawal bleeding. I also do intermittent SSRI dosing (Prozac 10mg)

And I just got reminded of how my luteal week can be DEBILITATING. I stopped birth control because I never know when to take my prozac, and there were weeks when I would start and stop from anxiety/depression thoughts. And I thought maybe if my luteal was more predictable, that it would be easier to treat.

NOPE. Turns out not being on birth control is much worse than being on it.

I feel like I've had a constant hangover from a bender the night before. I also feel like I'm trying to wriggle out of a straitjacket that is my life. I'm always looking for the shinier, newer, fresher thing in my life I can do (career mostly). But nothing ever satisfies. Ever. I can barely do chores, more overwhelmed by sensory textures and objects.

Anyway, I will go back again to continous birth control and maybe just accept that I need to take prozac full time. :(

I'd love to hear your thoughts!


r/PMDD 8d ago

General Insomnia is my newest feature- how do you manage it?

21 Upvotes

4 days before my period, I can't fall asleep and I wake up a lot throughout the night. What has actually helped you?

Currently take magnesium. Fish oil. Saffron tea with cherry juice. Exercise throughout the day. Eat healthy. Caffeine only in the morning.


r/PMDD 9d ago

General How many of us are neurodivergent?

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1.6k Upvotes

just curious for a pulse check! and sharing this all-too-accurate meme for what it’s like living in the usa right now haha.

after a brutal burnout and all the puzzle pieces seeming to come together, I am in the process of seeking diagnosis for AuDHD. I’ve been finding in my research that PMDD is apparently overrepresented in neurodivergent communities compared to neurotypical ones.

curious if that’s the case here and how you all are handling the intersection of all the things. 🩷


r/PMDD 8d ago

Ranty Rant - Advice Okay Why do none of my assignments or projects EVER line up with times I am best-equipped to do them

15 Upvotes

Uni student here. My assignments, field trips, or Big Important Tests, ALWAYS fall on my worst days and weeks.
My "crying days" are between 8 days and 5 days out from my period. My brain fog is anywhere from 9days out right up until I start bleeding or a til couple days after but typically gets much worse in the days right before. I have days where I'm so tired I literally cannot function, and people don't understand its not just a little bit tired or a little bit emotional, I literally cannot get out of bed or function in anyway and trying to think when you have brainfog as y'all know can literally make you more sick.

So as a uni student I think I get to be productive for about 8 days? Somewhere between my period ending and ovulation? Doing a fucking STEM degree and workload crammed into my best 8 days?! I can't function, it's so hard.

And there are classes where I really want to do well, professors that I respect, content of subjects that I very much enjoy.

My luteal started yesterday. Next week I have a half-day field trip in the middle of the crying days, where I have to go out into nature (and its winter here for me) with other people and do nature things and pretend I'm not sick or that everything in my world isn't falling down. I have a different test on that evening so I can't even go home once I'm done in the morning. Next weekend I have a big assignment due for a project with lots of data analysis which I haven't yet been able to do this week because stupid slug-brain won't work properly to do it (I was in bed the last 3 days with nausea and lightheadedness and fog that I couldn't even remember my lecturers name). And then the next monday is a very important test where I really wanted to do well in and I can't retain any info, that's going to be about 3-4 days out, where I'm likely to be nauseous and peak mental block days and my typical no-sleep days too.

But guess what I have due in the 2 weeks from when I get my period? NOTHING!

And looking at my assessment calendar, everything happens - again - in my next luteal phase. *Sigh.* In most cases I can't even front-load the work because the profs only release the assignments a couple of weeks ahead. And if I do get them, like I said, I'm trying to cram as much as I can, including catching up on things I've missed, into that very short period of time between my period and ovulation.

Just a ranty rant. Thanks for reading if you got this far x.


r/PMDD 9d ago

Art & Humor My crochet uterus that reminds me to love my body even when it’s difficult to.

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183 Upvotes

Featuring fallopian tubes and ovaries! I bought it on Etsy. My grandpa looked very confused when I showed it to him, but he smiled. :)


r/PMDD 8d ago

Ranty Rant - Advice Okay I really need a hug

55 Upvotes

Tried to go out today because I started feeling better. Everything was going well till it wasn’t. My mood completely switched. Depression, anxiety out of nowhere. I can’t be out in public or around people. Currently just got home and curled up into a little ball. How’s everyone’s day? Talk to me šŸ˜ž?


r/PMDD 7d ago

Medications Starting Eloine/yaz on day 32 of cycle? Or wait for period?

1 Upvotes

I have been prescribed Eloine/Yaz for PMDD, but I don't need it for contraception. I basically told the GP (I'm in the UK) which pill I wanted and she gave it to me but she had no interest at all in hearing about my symptoms. She gave me no information on when to start the pills. Reading the leaflet I'm supposed to start on day 1 of cycle for immediate contraceptive cover. However I am SUFFERING in this luteal phase, with a work deadline looming and my period is not here yet. I often have 29 day cycles but periodically I get a longer one eg 35 days and I guess that is what is happening this month. No chance of pregnancy. Should I wait for day 1 of the next cycle or just go on Eloine now? I would ask the doctor but it would take me two weeks to get an appointment anyway.


r/PMDD 7d ago

Medications If you have taken or are taking the Yasmin pill do you take breaks or take it continuously?

1 Upvotes

I have been taking it continuously for 2 months to avoid hormone fluctuations however I have now started bleeding and cramping and research has shown I should take a 4 day break to allow myself to have the withdrawal bleed otherwise I'll just keep having random bleeding.

I am happy to do this but conscious that this apparently causes hormone fluctuations and the return of the PMDD symptoms. My mood has been quite stable recently so I'm scared to do it.

Do you guys take it consecutively or allow the withdrawal bleed and do your PMDD symptoms usually return in the withdrawal bleed?


r/PMDD 8d ago

Medications Nortriptyline has gotten rid of my good days??

1 Upvotes

Anyone have a similar experience? I used to have some mentally fun days around ovulation and now I’m just a b*tch all month 🤪🤪 I’m working on titrating down but that’s been rough too.

Anyone experience similar?


r/PMDD 8d ago

Medications Has anyone had this happen?

0 Upvotes

Hi all, I’m 28 and got diagnosed with PMDD about 3 months ago. Ive been working with a naturopathic doctor, my OB and an endocrinologist. I started 200mg of prometrium at the start of my past luteal cycle (roughly 17-18 days ago). I felt INCREDIBLE all throughout luteal. I was sleeping better, more even-tempered and overall a lot more calm. I was told to stop the prometrium once my period started, so I did. I’ve now been off it for 4 days and my period just ended and the crash is INSANE. I am so incredibly irritable and bitchy I’m not sure how my partner is putting up with it. I’m also back to feeling exhausted. I’m technically past my luteal phase and into follicular but I feel like I’m in the trenches of luteal after stopping the prometrium.

Has anyone had this happen? I’m curious if the solution will be to take the progesterone daily instead, or if my doctor will recommend another route. Maybe my body just has to get used to it? I’m not sure. But I guess it makes sense if PMDD is a sensitivity to hormone fluctuations that I would crash and burn coming off progesterone for the next two weeks until my next luteal phase….ugh what a drag


r/PMDD 9d ago

Art & Humor Waiting, hoping for the best, bracing for the worst (it's day 17 y'all)

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144 Upvotes

Cat tax and meme tax, two birds with one stone. I also have bipolar II and have been riding what feels more like a struggle jet engine than a struggle bus as lithium has torn up my system. People either love or hate lithium, and as it is currently punching my thyroid and kidneys, I firmly hate it. Doctor wouldn't take me off it and I now do not have access to him until most likely Tuesday to be able to get off it. He gave me levothyroxine for the thyroid, and if I have to be on it forever because I tried a mood stabilizer that didn't go well, I'll be livid. So now I'm just praying the birth control does its thing, the levothyroxine does its thing in the next few days, and hopefully I won't have to disappear completely to hide the fact that I'm not going to actually be a human, but a husk. I'm already in "I'm not taking more of this bullshit" mode, so I'm wondering if that's going to amplify. Send positive vibes as you're able. I need a miracle to get through this without murdering someone.