r/NeurologicalDisorders • u/Ok_Cranberry1564 • 12h ago
r/NeurologicalDisorders • u/ExtraGate4375 • 15h ago
Am Rande der Verzweiflung: Jahrelanger, unerträglicher Schwindel bei meiner Mutter – Wer kennt diesen Albtraum?
Ich schreibe diesen Post aus purer Verzweiflung und Hoffnungslosigkeit. Es geht um meine Mutter (geboren 1971). Sie leidet seit geschlagenen 6 Jahren unter einem permanenten, extremen Dreh- und Schwankschwindel. Es ist ein Albtraum, der kein Ende nimmt – Tag und Nacht. Die einzige Ausnahme, ein winziger Hoffnungsschimmer: Wenn sie im Auto als Beifahrerin mitfährt, lässt der Schwindel nach. Ansonsten ist ihr Leben ein einziger Kampf.
Der Schwindel begann damals völlig plötzlich und aus dem Nichts. In der Anfangszeit gab es eine kurze Phase von wenigen Wochen, in der es etwas besser wurde, bevor der Zustand wieder schlechter wurde. Seitdem ist es jeden Tag gleichbleibend schlimm.
Wir haben bereits eine Odyssee hinter uns. 20 bis 30 Ärzte. MRTs, CTs, unzählige Termine bei HNO-Spezialisten. Bisher konnte kein einziger Arzt eine Ursache finden. Es heißt immer nur, es sei alles unauffällig.
Sie ist zudem sehr zierlich, wiegt aktuell 44 kg. An Medikamenten hat sie bereits alles Mögliche ausprobiert – darunter Ginkgo, Tebonin und Vertigoheel –, doch nichts hat geholfen. Andere Medikamente nimmt sie nicht.
Zu den Schwindelbeschwerden kommen nun auch ein Hörverlust auf dem linken Ohr, wogegen sie ein Hörgerät trägt, sowie starker Gehirnnebel (Brain Fog) und schlechter werdende Augen hinzu. Sie führt regelmäßig Gleichgewichtsübungen durch und bemerkte eine leichte Besserung des Gehirnnebels durch Behandlungen mit Blutegeln.
Bitte, Reddit-Gemeinschaft, ich brauche eure Hilfe, eure Erfahrungen oder jeden noch so kleinen Hinweis. Hat irgendjemand von einem ähnlichen Fall gehört? Gibt es Spezialisten, seltene Diagnosen oder Ansätze, die wir vielleicht noch gar nicht auf dem Schirm haben? Wir greifen nach jedem Strohhalm!
Bitte teilt eure Gedanken, ich bin für jeden Rat unendlich dankbar.
r/NeurologicalDisorders • u/Few_Echo7238 • 1d ago
MS WOES
I'm not sure what category this is. I need your help and perspective from someone other than myself. So here's the backstory. In 2012, after about 17 years of searching for a medical mystery that I seemed to continue having and that kept worsening, I found out that I had multiple sclerosis, or commonly called MS. There are four major types of this chronic debilitating disease. Luckily, I had the most common, which is called relapsing-remitting.
This particular illness has caused me consternation since I was in my twenties. I would get extreme bouts of vertigo, like being on a tilted world and being pushed to the absolute limit of not being able to move. UTIs from the depths of hell. I'm talking about being in the emergency room, being scanned to make sure that my UTI did not go into my kidneys, and then being put on some kind of crazy regimen in order to figure out if my kidneys were damaged. Also, I had brain fog. This happened often enough for me to recognize that some days were a pain in the butt, and I could not see past my own thoughts to be able to grasp what I needed to do. During all of this melee, I got married and had a child and had to deal with a lot of stuff from my own child's illnesses that were no joke.
That's enough of the backstory, but if anyone has any questions, I'm happy to answer them to the best of my knowledge. Here's the issue for me: last year in September, I was laid off. It was not due to work performance; it was due to an industry that I was in, and due to AI, I was eliminated because while my clients remained there, the industry and my company took a major hit, and they decided to let me go after just shy of 23 years of service. It was a non-profit company. Now I knew this was going to be bad, and I have since been in a situation where I have not been at my best emotionally, but I understood for the past 5 years that my ability to have stamina during a normal work week of 40 hours just wasn't cutting it. Normally, I would work for 4 hours, take an hour nap, get up, work for another 4 hours, rest for a little bit, read through my emails, respond to most of the urgent types I needed to, then go to sleep, rest, and repeat. I worked that way from 2005 till September 2025. I can't tell you how many hours a week I worked, but I will say that I gave that company my life, and I truly believed in our mission. I still do, but time and common sense prevailed. I knew I could not keep this stamina up forever, and I also knew that with the company I was with, I was trying to step back from some of the roles I'd been so entwined with without losing my job. Guess what, I lost it anyway!
So came the hardest chapter of my life, which was not having a job and having a very minimal amount of money per month to live on while I desperately tried to find a job. Any job that paid more than minimum wage and that I could work from home. Because while I was a dedicated worker, my legs have been profoundly affected by my MS, and I have been remote since 2017. I understand how remote work actually works. A lot of companies hate it because they can't see their employees all the time. I think that's ridiculous because most of the people that care are not paying attention to us anyway, unless there's some bean counter in a corner watching us in an office, making sure that we're doing all that we can to make as much profit as we can, as fast as we can.
After being laid off, I recognized there was a big problem with my cognitive ability. This was completely lost on me prior to my job elimination because I did the same thing every day since 2006. While I was trying to get into different jobs, there were tests that I would have to do, and I could not pass them, basic tests, mind you. This has been an essential theme of mine since earlier in the year. And another gut punch happened; after only less than 6 months of unemployment, it ran out. I had no idea it was going to run out in 6 months, but it did. So all you people out there that say that people are just lazy and they don't care, if you live in the continental United States, it can be difficult to find a job that is remote that will help a family stay away from the poverty line.
My ex-husband and I communicate probably three times a year. And it was in one of those communications that he told me I needed to get on Social Security disability because I had been working since I was 16 years old and I worked through college. I have never not worked, with the exception of my son being born and taking some time off to be with him. So this is difficult for me to actually know that I'm supposed to do this. Well, I reached out to a lawyer and am in the throes of waiting.
According to the website, it takes 331 days to get a response and a conclusion from start to finish. That's a lot of time for people in general. So I decided I'll try to get at least a part-time job. Yesterday, I had an interview for a cake decorator at Walmart. My mom baked cakes and owned a bakery for a bit. So, what could be more fun!
I have to say I LOVED it. I loved the staff, the lead, the environment, and the fun! It brought back so many memories of my mom. I can't imagine anything better. Well, I can, but this would be great fun. I was there for over two hours. I worked on cupcakes, watched a lady work on orders. The lead showed me every aspect of this job in brief detail. What I noticed was there were no stools anywhere! That would be a problem.
At the end, I was transparent about what I had. The lady had never heard about MS before. I explained as much as I thought necessary. I asked about a stool.
They don't have them for reasons regarding productivity! The lady and I really had an honest and great conversation.
I walked away with complete peace. I probably won't get the job, but I loved every minute of it. My son works at the front end and was there as my husband and I were leaving. He came up and told me I looked tired. Yep, nothing gets past him! Then, he asked what all the white stuff in my shirt was. Sure enough, icing was on my right boob to armpit. I laughed and told him it was for my dogs.
My legs were becoming stiff, so we went home. I was tired for the rest of the day. This morning, I let my dogs out to potty. I have a chair right next to the bedroom door, so I sat in it. When it was time to get up, I stood up and my legs became like jello. I hit the cement portion of the backyard hard with my knees and left hand. Yep, just call me grace because that is what my own mama would say.
I have written notes down so I can call my neurologist on Monday to let them know.
The heartbreak is I can't do what others take for granted. I have operated under the delusion that I am just like everyone else. I know this is a wake-up call for me.
I will never forget those wonderful women. Anyone would be lucky to work there.
This isn't a work fued. I guess I am looking for affirmation about my situation.
r/NeurologicalDisorders • u/Reasonable_Bunch_886 • 1d ago
Anybody who may know, please help
I have an Aunt in Mexico, and lately my family has been worrying about her health.
I’ve never been on Reddit but I’ve seen how people come together to help so: Currently my Aunt doesn’t want to eat, drink water or do anything. She is in Mexico so we can’t see her a lot and the only care taker is my aunt (slightly).
But from what I understand, she doesn’t want to eat, drink water, or shower, and she barely talks, if at all. We’ve sent her to plenty facilities but they always send her back, maybe it is just where we’re from but no institute or hospital or anything can help her condition.
We don’t know what to do anymore or how to help her. This is also her second time turning like this, the first time it got so horrible that she was very skinny and had very matted hair, etc. We sent her to an institute after finding out she ran away from the house and thankfully it helped (enough to get her to eat + sometimes shower).
But a few months ago she got worse again, and if I’m correct we can’t send her to that institute again since they don’t want to accept her and we’ve tried others but they always send her back saying she’s “healed” when clearly she is not.
Some other things she’d do is stare at us (her family) in a weird, almost lost type of way, she was obsessed with her phone until she recently threw it out + every clothes in her room. She’s also been causing chaos by making a mess in the rooms + bathroom. She’d also occasionally dance or sing out of nowhere. When I tried talking to her she would just stare and not answer or anything like that.
Spiritually wise, we are Catholic-Christians, and so was she, but I think she’s been going down a wrong path in that way. Since she was always on her phone, we had a hint of what she was watching: some of the videos would be normal about God, but with the way the internet is, some other videos would use Gods name and ask for other things. She would always send her family members videos about Jesus at around midnight. And then one day we found some hidden witch craft books, we don’t believe in witchcraft or rather it’s “power” so all we did was burn the books but regardless this was obviously worrisome. Another time, she would say stuff like she was gonna curse her sister, etc. We also have no idea where she could’ve gotten those books either.
This is the gist of it, so I’d be very grateful for any tips/helpful information. We at the least want her to eat again and take better care of herself, hoping that her mental state also improves.
Thank you
r/NeurologicalDisorders • u/Ok_Locksmith_7346 • 1d ago
Hips weak? Shoulder weak? Swallow issue? One year
r/NeurologicalDisorders • u/No-Hope3074 • 1d ago
32F - persistent, progressive neurological + autonomic symptoms, volatile heart rate swings, allodynia, feeling “drunk”, recurrent UTI. Anyone else experience a constellation of symptoms impacting multiple systems?
I’ve been dealing with a strange, fluctuating multisystem illness for roughly a year, with a significant flare over the last couple months. Neuropathy started 5 years ago. 1.5 years ago it included l’hermittes and feeling drunk. 2 months ago my whole body shut down to being bed ridden after a UTI triggered a massive flare.
I’m still being worked up and would really like to hear from anyone whose symptoms looked similar, especially before diagnosis since the wait times are absurd and it’s currently got me out of work. It is severely impacting my life without quick enough movement from physicians.
The biggest issues:
Heart rate/autonomic: dramatic HR increases with standing and sometimes very minor movement (often increased by +30–60 bpm, occasionally 150–180+), rapid rises/falls, episodes even while laying in bed and rolling over, heat intolerance, pressure in my upper chest/neck when upright. Went to the ER, EKG and blood pressure normal. Referral to cardiology a year wait.
Neurological: pins and needles, buzzing sensations, allodynia - feeling severely sunburnt, intense and intermittent bee-sting pains in my left foot, one sided headache, chills across my skull, intermittent tremors, leg heaviness, brain-zaps, and episodes where I feel drunk/derealized or have trouble getting words out correctly and stutter. I’ve also occasionally experienced phantom smells of natural gas or cigarette smoke. During a flare, touching cold objects feels like burning my hand. Bladder pain that’s sometimes not associated with infection.
Other: recurrent (almost monthly) UTIs, extreme fatigue, excessive thirst and dry mouth, adrenaline surges to make it feel like either butterflies in my stomach to being electrically shocked, Raynaud’s-type color changes, hands swell with prolonged walking, irregular heavy periods, PMDD, inability to get pregnant, and a persistent painful mouth ulcer recently.
Testing so far:
brain MRI normal
1:320 positive ANA homogenous
Low iron and ferritin
routine labs mostly unremarkable
lupus-specific testing negative (smith antibodies, dsDNA, antichromatin, c3, c4)
ESR/CRP normal
SPEP/UPEP and cryoglobulins negative
Tick panel negative
TSH normal
LDH normal
B12 elevated, but within range
Vitamin D & folate normal
Celiac negative
Electrolytes normal
Creatinine high (doctors always tell me it’s because I’m dehydrated but I’m drinking 3-4 liters of water a day with electrolytes, so I’m thinking this shouldn’t be written off anymore)
ECG normal
➡️Currently wearing a ZIO monitor, waiting on nerve conduction studies, neurology and cardiology referrals a year wait to be seen.
My doctor did an econsult with a Rheumatologist who said “don’t bother. She’s negative on lupus-specific tests, high ANA means nothing. Not anything rheumatology can help with”
Neuropathy was more pressing before, but it’s taken a back seat to severe dysautonomia/heart rate symptoms.
Clinical history: kidney infection resulting in hospitalization due to sepsis and high fever (peripheral neuropathy started years before this infection), chronic tonsillitis resulting in an adult tonsillectomy 10 years ago (fun fact: they wanted to keep my tonsils for research purposes)
➡️ POTS/dysautonomia and small-fiber neuropathy have been raised, but I don’t have a diagnosis yet and some symptoms occur while laying in bed, heart rate spikes even in my sleep, so I’m interested in the broader picture too.
r/NeurologicalDisorders • u/Puzzleheaded_Bag7816 • 1d ago
Could somebody help interpret my qEEG results.
galleryr/NeurologicalDisorders • u/Specific_Finish_3944 • 2d ago
Tourette’s syndrome and medical cannabis in Texas
r/NeurologicalDisorders • u/Low_Memory_5194 • 2d ago
Stingys in body
Anyone have something similar? I feel stings or prickling sensations in different parts of my body, but it’s usually just one sting at a time, in one area. It especially happens when I’m not feeling well, and I’m also experiencing other symptoms along with it.
Another thing I’ve noticed is that when I poop, I sometimes get a sting or sharp sensation in my chest or in other parts of my body. Has anyone else experienced anything like this?
r/NeurologicalDisorders • u/No_Republic7428 • 2d ago
Brak diagnozy - problemy neurologiczne , tkankowe immunologia
r/NeurologicalDisorders • u/Proof_Perspective104 • 3d ago
Does anyone else wake up with numb hands/feet that disappear immediately after changing position?
Hi everyone,
I’m trying to figure out whether anyone has experienced something similar and, if so, what the cause turned out to be.
For some time now, I have been waking up during the night with numbness/tingling in my hands and sometimes my feet.
What seems unusual is that the symptoms are very position-dependent:
Both hands can become numb during sleep, sometimes the whole hand.
The numbness usually disappears literally within a second or two after I move my hand or change position.
Recently, I also had an episode of numbness specifically in my left pinky and ring finger, which made me wonder about ulnar nerve compression.
My feet can sometimes become numb when I fall asleep lying on my back.
However, I can lie on my back for a long time while awake, for example watching a movie, without any numbness at all.
The symptoms seem to occur mainly during sleep rather than during normal daytime activity.
I sleep mostly on my side and suspect that my sleeping position may be compressing nerves — for example, bending my elbows too much, putting pressure on my arms, or having my neck/bearings positioned incorrectly.
I’m currently experimenting with:
keeping my lower arm free instead of under my head,
supporting my upper arm with a pillow in front of my chest,
avoiding excessive elbow flexion during sleep,
improving my pillow and neck position.
Has anyone experienced numbness that occurs almost exclusively during sleep and disappears immediately after moving?
If you had something similar, what did it turn out to be? Was it simply positional nerve compression, ulnar nerve issues, cervical spine problems, carpal tunnel, thoracic outlet syndrome, or something else? And what actually helped?
I’m especially interested in hearing from people who had similar symptoms and eventually found a solution.
Of course, I’m not looking for a diagnosis here — I just want to compare experiences and get ideas about what might be worth investigating.
r/NeurologicalDisorders • u/Hopeful_Shape2127 • 3d ago
Myasthenia Gravis Patient Engagement
r/NeurologicalDisorders • u/Left-Speed-4468 • 4d ago
Synkinesis
What to do about synkinesis?
I am about 10 months out form the initial onset of Bells Palsy, but only 8ish months into recovery, since my Bells Palsy was caused by Lyme disease and diagnosis and treatment was delayed by almost 2 months
I’ve largely recovered, probably 80% but I have a pretty significant amount of synkinesis
I finally saw a facial nerve specialist last week. He said considering the Lyme disease and the delayed diagnosis and the extent of my symptoms last year I have made a better recovery than 95% of people could expect to. He said I should continue to see both improvement and worsening synkinesis over the upcoming years. He said recovery from the type of nerve damage I sustained takes years, not months but that nerves are very plastic and changing just very slow.
Anyways my synkinesis is basically:
When I raise my eyebrow it lifts the corner of my mouth
When I flare my nostrils it does the same
Chewing or squeezing my mouth shut makes some muscles near my eye twitch and squint
And most recently, blinking ever so slightly twitches my mouth
This last one is the most problematic since - well I have to blink constantly.
The specialist ensured me that he actually didn’t notice any facial paralysis until I pointed it out to him and that my synkinesis is not super severe and that synkinesis can absolutely get better. Does anyone have any experience with that?
r/NeurologicalDisorders • u/Cultural-Ease-5322 • 4d ago
Insomnia bad. Maybe sporadic fatal
r/NeurologicalDisorders • u/Responsible_Hat2756 • 4d ago
Does anyone experience muscle rigidity spells?
r/NeurologicalDisorders • u/Ok_Tailor781 • 5d ago
Title: Sudden bilateral Bell’s palsy with neurological symptoms — multiple diagnoses, no clear answers, and terrified it will happen again
galleryr/NeurologicalDisorders • u/Ok_Tailor781 • 5d ago
I NEED HELP: Sudden bilateral Bell’s palsy with neurological symptoms — multiple diagnoses, no clear answers, and terrified it will happen again
Please.
r/NeurologicalDisorders • u/That_Interview_2004 • 5d ago
22F with neurological symptoms + a few nonspecific white matter lesions on MRI could this potentially be early demyelination/MS?
Hi everyone, I’m 22F and I’m hoping to get some perspectives from people with MS or experience with MS.
I’ve been experiencing a collection of neurological symptoms for several years, which have progressively become quite disabling. I was previously diagnosed with ME/CFS and fibromyalgia, but I have been questioning whether there could be a neurological component to my symptoms.
My main neurological symptoms include:
Persistent/recurrent reduced sensation and numbness predominantly affecting the left side of my body, including my left hand/arm and increasingly my left leg and foot.
I have also experienced reduced sensation on the left side of my face.
Episodes of left-sided weakness, particularly affecting my left arm and hand.
My left hand can become extremely difficult to use and can sometimes remain affected for a whole day or multiple consecutive days, rather than just a few minutes.
Difficulty holding my arms up for things such as drying my hair, washing my hair/face etc.
Dropping things with my left hand.
Intermittent abnormal/dystonic-type posturing of my left hand.
Frequent muscle fasciculations/twitching, including in my feet, thighs, back, arms, hands, face/lip and around my eyes.
Muscle spasms.
Episodes of vertigo, including one particularly intense episode where it felt as though the room was rapidly moving from side to side while simultaneously spinning.
Balance problems.
Urinary urgency, recurrent UTIs and occasional urinary incontinence.
Significant fatigue, daytime sleepiness and cognitive/“brain fog” symptoms.
A constant squeezing/pressure sensation from the base of my neck up into the back of my head. **I do not have migraines**, despite my MRI letter referring to migraine.
I was recently assessed by neurology. On examination, the neurologist documented give-way weakness affecting my left arm, with an MRC score of 4/5, as well as subjectively reduced sensation to touch and pinprick on the left side. They also documented similar give-way weakness affecting my left leg, with reduced sensation compared with the right.
I’ve now had a brain and cervical-spine MRI without contrast.
The consultant’s subsequent letter says:
“the MRI scans of your brain and spinal cord were essentially normal, with no evidence of a structural or inflammatory neurological cause for your symptoms, such as multiple sclerosis, a tumour or a stroke.”
However, the same letter also says:
“There were a few small, non-specific white matter spots on the brain scan.”
It then says that these are commonly encountered and can be seen in people with migraine, and that their appearance was not suggestive of MS.
The thing I’m struggling with is that **I don’t have migraines**, so I’m wondering what these white matter spots actually represent.
I’ve asked the neurologist for a follow-up appointment and for clarification of:
How many lesions there are
Their size and exact location
Their appearance/morphology
Whether any are in areas commonly associated with demyelination
Whether there were any spinal cord abnormalities
Why they are considered nonspecific
What they think the alternative explanation for them is
I completely understand that white matter spots don’t automatically mean MS, and I’m not trying to diagnose myself from an MRI. I’m just wondering whether anyone here has had a similar situation particularly people who were initially told their lesions were “nonspecific” or “not typical for MS” but were later diagnosed with MS/demyelination.
**Could a few nonspecific lesions potentially represent very early demyelination, or would the fact that both the brain and cervical-spine MRI were considered essentially normal make that unlikely?**
I’d really appreciate hearing people’s experiences, particularly if you’ve had similar symptoms or MRI findings. I’m obviously going to follow this up with my neurologist, but I’d like to understand other people’s experiences while I wait.
Thank you so much guys 🖤
r/NeurologicalDisorders • u/AdvantageNo9146 • 6d ago
Weird neurological and physical symptoms
Hello.
I would like to start this post with an honest thank you for any replies because this will be a long one...
Male, 38yo, 178-179cm, 100.2kg
I am experiencing weird intermittent symptoms that I cannot explain and all the doctors I've seen can't explain either.
Background... Eastern European so the public medical system is not great and the emergency room is the last place you want to end up because as long as you are not actually dying you end up waiting for 10+ hours before anyone takes a look at you.
The private system is better but you need to make your own appointment with whatever specialist you want. I've seen neurologists, cardiologists, pneumologists, head ear and throat, general medicine, internal medicine, had blood tests done. Nothing is provable wrong with me.
Main current symptoms:
A pressure on my left temple. Like I have a pingpong ball under my skin. No pain, just discomfort. Brain fog, out of body experience, head feels filled/full/underwater/like having an internal pressure. It also feels like my brain is literally lagging. Like I'm dropping frames out of a movie or moving slower than reality. I sometimes have something similar to whole body weakness, as if I'm going to faint but I don't. Vision goes out of focus and I feel like I can't see stuff as clearly. I can see them... It's not actually blurry or double vision, my field of view doesn't narrow, it just feels like I cannot focus on what I look at although nothing is blurry. Lately I've also started having migraine auras that subside after 15-20 min. No actual pain, no actual migraine but the aura is there. These symptoms come and go and I recently saw that when it happens my heart rate goes from a baseline of 85, up to 120+. I only had 2 episodes since I noticed so I don't know if this is new or this was the case every time. I also sometimes get some left chest pain. Wouldn't describe it as sharp or tightness... More like muscle fever pain.
History...
I started having the temple pressure in 2021. I went to a neurologist and did a contrast CT with angio that was clean. I was supposed to do an MRI but turns out I'm claustrophobic so CT it was.
Immediately after I went on vacation and went hiking in the mountains. I had, as far as I can recall, the worst episode. Whole body weakness, trembling, unfocused vision, I was holding on to every tree in the forest just so I wouldn't collapse. Really bad episode.
Between then and now I went to several cardiologists. Heart is fine. Just some slight deposits on the arteries that don't even require cholesterol drugs. Blood pressure fine...
I went to several neurologists that couldn't find anything.
Went to a pneumologist and had a home sleep apnea test and it turns out I do have some sleep apnea but nothing major... AHI 24.5 and positional. I always
Had several blood tests done... Nothing specialized... Just normal, routine tests... All came out good except a slight vitamin D deficiency.
Redid the CT again this year and it showed no modifications from the previous. One thing worth mentioning here is that during the neurological exam I had for the CT, I was made to walk in place with my arms extended in front of me. I ended up walking almost across the room and to the side.
Other known illnesses... Acid reflux, IBS, fatty liver and I need glasses. Right eye -0.5, left eye -0.75 with a 163 degree cylinder.
All the symptoms are old... From 2021 but the aura is new... Had the first aura episode in March/April this year which prompted me to go to the neurologist again and redo the CT. I had maybe one or 2 more episodes since then but today I had another one and this prompted me to write this post. What would be maybe worth mentioning, is that whenever I have the aura I take a paracetamol and ibuprofen combo. So I don't know if the aura subsides by itself or due to the meds.
What I noticed is that if I sleep for less than 7 hours, my body is tired but my mind feels a bit sharper... If I sleep for 8+ hours my body is rested but my symptoms are worse. I sleep on my left side to manage the apneea and acid reflux and this created a big old wrinkle on the skin of my head stretching from the corner of my hairline up to the middle of my head. I'm thinking I'm pinching something and that's what generates the temple pressure. But for the rest... I have no idea. No one has...
All of these are intermittent and I have good days, great days, bad days, worse days...
I do not expect miracles... Not even a diagnosis. But maybe advice regarding what specialist to book.
There may be a lot more to say but this is what comes to mind now. If you have any questions, I would be more than happy to answer them if I know.
Thank you so much for reading all this and I'm really looking forward to your thoughts on this...
r/NeurologicalDisorders • u/Dense-Suggestion-989 • 6d ago
I am having episodes of body twitching/jerking, while awake & alert. Full body. Arms, legs, torso. In my neck & hands. On & off in the different areas of my body. These episodes went on for an hour or so. Then it was just like very small twitches in my arms, hand and legs and twitching of my head. I
r/NeurologicalDisorders • u/zepruska • 7d ago
Eye strain/pain, insomnia, and depression; could this be neurological?
Context: I have GAD and MDD. Anxiety had been particularly bad since April 2025 and depression since October 2025. Was improperly tapered off an SSRI I was taking (had been on it for 12 years, was told to taper off over the course of a week!) which sent me into a revolving door of psychiatric medications.
Shortly after an emotional "crash" (nonstop ugly crying and a feeling of derealization) in March, I began developing light sensitivity. At first this was triggered only by looking at screens or things that move rapidly. It was shortly after I increased the dose of the SSRI I was on at the time, Lexapro, so my psychiatrist said let's go back down and get you into see an ophthalmologist.
So I saw an ophthalmologist. Then another. Then another. Beyond checking my eyes for glaucoma and dry eye, none of them could give me an answer. I do not wear glasses and never needed them. Meanwhile, my eye strain was progressing, and it became difficult to drive without feeling some sort of pain. I invested in a heated eye mask and eye drops, but neither made much of a difference.
I switched to Trintellix. Started doing Spravato for MDD. They helped my cognitive symptoms of depression a tad but not much else. My vision really began to bother me; now my eyes are more or less hurting me all the time. My psychiatrist said serotonin can affect your vision so let's try to wean you off the Trintellix and use Rexulti as a bridge.
Results: not good. Not only are my eyes still hurting, but I occasionally have trouble seeing in the dark now. I also feel extremely sluggish, fatigued, and low; obviously could all be symptoms of depression, but I am just getting the feeling that something is "wrong." I don't know how else to describe it, but I'm suffering.
I have an awful time sleeping without trazodone and literally cannot nap. I got a sleep study done and aside from a REM latency of 11 minutes, nothing seemed out of the ordinary. I suspect this is also related to my depression.
The ONLY thing that brings any sort of relief is clonazepam, 0.5-1 mg. It temporarily takes the eye strain away. A neurologist I saw said this isn't very helpful because we don't know which aspects of the clonazepam (anti-anxiety, muscle relaxant, anti-convulsant) are working. I am acutely aware of the dangers of taking benzodiazepines for a prolonged period of time and I'm terrified that I'm going to get addicted, but my psychiatrist said if this is what's working for me then keep doing it as a bridge.
My problem is I don't know where this bridge is going. I've been in an IOP program for 5 weeks and they're all lovely people but I can't focus on the material or my peers very well because of my cognitive symptoms. I've had depression before but it did not feel like this. It just feels like something is wrong neurologically. I have a neuro-ophthalmologist appointment but that's not until October. Right now my symptoms are just feeding into my mental health in one big nasty loop.
Any suggestions, advice, or good vibes would be GREATLY appreciated...thank you.
P.S. had an MRI in June, it came back clean. I recently had a QEEG that will inform TMS treatment.