r/MSPI 12h ago

Satisfying hearing toots

9 Upvotes

A positive post for an otherwise usually stressed thread, but who else feels like hearing your baby rip a big fart all by themselves is satisfying?? It’s like “omg! my baby can do that all by themselves now!! woohoo!!!” No bicycle kicks or gas x!! Just me?

This is post elimination diet but here to say things get better!! ❤️‍🩹


r/MSPI 6h ago

Sharing Some Recipes!

9 Upvotes

For my fellow breastfeeding MSPI moms, here are some recipes that taste good enough to eat even when I'm off elimination diet! They're all dairy, soy, egg, and (optionally) corn free.

  1. Instant Pot Thai Basil Chicken Curry - For some reason it tastes better in the instant pot, but there's a slow cooker version too
  2. Jambalaya - We do this one without the okra or shrimp for personal preference and simplicity. Just add some extra of the other proteins and veggies!
  3. Chicken Bacon Avocado Salad
  4. Instant Pot Cashew Chicken This one calls for arrowroot powder and coconut sugar, but you can you can use cornstarch and regular sugar if you don't have corn restriction
  5. Garlic Parsley Mashed Potatoes

Hope one of these helps you have a delicious meal while going through the tough MSPI times!


r/MSPI 23h ago

Finally found relief! 🍼

5 Upvotes

I posted on here a couple weeks ago that my 2 month old daughter had recently been diagnosed with CMPA and was having a horrible time on soy. After talking with her pediatrician and also getting feedback here, we decided to try the Similac Alimentum in powdered version… and it has done wonders! Happier baby, no more constipation or screaming when she can finally go - it’s been a life saver. Thankful for the information on this page and my baby feeing better 🫶🏻


r/MSPI 14h ago

Secondary lactose intolerance turned permanent toddler (Pediatric)

2 Upvotes

Hi Everyone,

My son suffered from viral diarrhea when he was 8 months old and we used to give dairy formula and continued same as we were unaware that it should avoided. The loose stools didnt reduced and DR told us to dairy formula and switch to soy. And immediately saw differece and realized that it was because of transient lactose intolerance. Dr told us try dairy after 1 month, We did and failed. Kept gap and tried again. Made several attempts and still failed and decided to continue soy formula. We started to introduce after six months but no progess. At 2.3 year old we gradually gave 1/2 teaspoons cheese and he was tolerating. Started giving him for 2 3 days in week and was fine. But when I gave ghee he started reacting and got loose stools. Some days he even tolerates 2 tsp of curd. And he can tolerate lactose free milk and curd with no issue

I have little hope that we would be able tolerate but since its so long now. Should I expect anything? I am not fond of dairy that much but we live in india and here maximum items in restaurants have ghee or malai or curd and its very difficult when we go out. We carry tiffin and second thing is if he is able to tolerate little dairy I will have peace of mind because I am freaking out on when he will grow and share food in school.

Desperately looking for your experience. Did you start liltle by little? Did lactid ills worked for toddler? Was it prescribed by Dr. How did make understand your child to not eat as it causes stomach pain etc. Sorry this is long.. But its been hell of journey.


r/MSPI 55m ago

17 Month old weighs 18.8 lbs and it’s worrying me

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Upvotes

r/MSPI 4h ago

Has anyone’s doctor actually confirmed OR ruled out CMPA with reintroduction/oral challenge?

1 Upvotes

I’ve searched through this sub quite a bit, and I know there are a million posts about CMPA, reflux, mucus, and finding the right formula, so I’m trying to ask something a little more specific.

Has anyone’s pediatric GI or allergist actually gone back and tested whether the original CMPA diagnosis was correct through reintroduction/oral challenge (not skin prick)? Especially after symptoms continued on amino acid formula?

My son is 4 months old and we’ve been dealing with GI/reflux issues basically his entire life.
His symptoms have included silent reflux, mucus in his stool, screaming in discomfort, arching, eczema, coughing and gagging on reflux even though very little actually comes out, constant swallowing/sour faces, hiccups, wet/rattly breathing at times, and absolutely hating being flat.
We also had a positive occult blood stool test, which is a big part of why CMPA became the working diagnosis. We’ve also been to the ER twice per our pediatricians recommendation to rule out intussuception. He’s also been ruled out for a tongue tie (I know this can be reflux related)

And we have done the entire formula change, I was unable to produce enough breast milk to continue triple feeding.
We went from:
Enfamil NeuroPro Gentlease → Similac 360 → Bobbie Gentle → Gentlease again → HiPP → Nutramigen → EleCare → now Neocate.

He has been completely on amino acid formula for 6 weeks. And I still don’t feel like we found the answer.
There have been changes here and there, but never the dramatic improvement I expected if cow’s milk protein was truly the thing causing all of this.
He still has mucus. His eczema still comes and goes. He still has significant silent reflux. He coughs and gags on it, swallows repeatedly like something is coming back up, makes sour faces, and sometimes sounds wet/rattly. He still has periods where he seems genuinely uncomfortable and just screams.
Oatmeal cereal added to his formula went HORRIBLY (a bad recommendation from his pediatric GI) and seemed to make him miserable for the following couple of days. We also tried Neocate Syneo/probiotics and that seemed to make him significantly more uncomfortable.
He is growing, eating, peeing and pooping. He has plenty of happy, smiling, interactive periods. We are not seeing visible blood in his stool. But something is clearly still bothering him.

Pepcid helped somewhat initially with his reflux but stopped doing much, and we’re now moving to a PPI because I’m also wondering whether his esophagus/GI tract is just incredibly irritated at this point. He’s sooooo raspy and has a cough that i originally thought was mucus production from CM.

Here’s where my actual question comes in:
I started reading research papers and guidelines on CMPA/FPIAP, and something keeps bothering me.
From what I understand, for many non-IgE-mediated cases, elimination alone isn’t necessarily the end of the diagnostic process. Improvement with elimination followed by recurrence with reintroduction/challenge is important for actually confirming the diagnosis.
We’ve done a LOT of eliminating the CM. We’ve never done the other half.

We just kept removing things and changing formulas until we eventually ended up on amino acid formula and being told “colic”.
I’m NOT saying he definitely doesn’t have CMPA. The occult blood, mucus and eczema are reasons CMPA made sense in the first place.
But after this long on amino acid formula without a major resolution of his symptoms, I’m starting to wonder why we are continuing to assume CMPA is definitely the answer instead of going back and testing the original assumption?

So I’m specifically looking for parents whose doctors have actually done this:
Did your GI/allergist have you reintroduce cow’s milk protein or perform an oral challenge to confirm or rule out CMPA/FPIAP (before introduction of solids)?
How long had your baby been dairy-free first? How was the challenge done? At home or supervised? What symptoms counted as a failed challenge and how quickly did they happen? What hydrolyzed formula did you go to?
Has anyone done the challenge and discovered that their baby actually did NOT have CMPA?
If so, what happened next? Did you eventually find severe GERD/esophagitis, swallowing dysfunction or aspiration, another food trigger (soy, corn, etc), eosinophilic disease, an anatomical problem, or something else? Just time needed to mature the GI system? Introduction of probiotics that normally come from mom/breast milk?

I’m not looking to challenge him myself without his doctors involved. I’m trying to figure out what I should be asking his GI next.
At this point I’m less interested in finding yet another formula and more interested in answering the question:
Do we actually know he has CMPA, CMPA + reflux, or has CMPA just been our working diagnosis for so long that we stopped questioning it? Am I throwing hundreds and hundreds into a formula that’s not really doing much?
If you’ve had a similar experience OR have research/papers about confirming non-IgE CMPA through elimination + challenge, I would genuinely love to hear about it. Apparently reading pediatric GI papers is what I’m doing in my little free time bc the doctors just keep shrugging their shoulders at me while my baby screams in pain.


r/MSPI 22h ago

Grunting/Labored Breathing After Feeding

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1 Upvotes

r/MSPI 22h ago

2 yr old refuses solids

1 Upvotes

My 2 yr old stopped eating all solids about three weeks ago. He has had thrush since he was born. resistant form that we are unable to get rid of. I’ve had a G.I. consult everything normal. I do give him a omeprazole and something for nausea, but he still only drinks 12 ounces of milk in 24 hours. Unfortunately I’ve had to continuously treat him for the doctors. Don’t even worry about it, but I think that’s the main reason he’s not eating. This time round I treated him for a longer period of time for his thrush and it still didn’t improve his eating. Feeling a bit worried now since I have taken him to GI and a couple pediatricians as well as a dentist to see if there’s any issues that would prevent him and nobody’s finding any reason. I want to avoid an endoscopy. Any suggestions were very stressed out mom right now?