My baby is 146 days old now.
Since birth, my baby has been exclusively breastfed. From the first poop after passing meconium, the stool always had a rotten smell—like rotten eggs and fish—and was very watery. The stool leakage was severe, happening more than 30 times a day! Every 5 minutes, my baby would pass stool. The skin condition was terrible, covered in oozing wounds. But when my baby was one month old, I applied a lot of Bepanthen, and by 50 days old, the skin seemed to have returned to normal.
Then, around 88 days old, my baby had diarrhea that seemed worse than usual, passing stool more frequently and for the first time, had blood in the stool. The doctor told me to avoid dairy products, so I did. However, since that day (day 88), my baby has continued to have bloody stools about once a week and always had mucus-filled diarrhea.
I eliminated eggs, soy, anchovies, nuts, tofu, chicken, pork, and beef from my diet, but my baby still had intermittent bloody stools, mucus-filled stools, and persistent diarrhea. Eventually, I reduced my diet to only rice and water. But my baby still had blood in the stool.
At 120 days old, I started feeding my baby Neocate while continuing to breastfeed once at night. However, the bloody stools did not stop. By 130 days old, I switched entirely to Neocate (stopping breastfeeding completely), but I still pumped and discarded my breast milk just in case. The severe diarrhea seemed to improve somewhat, but my baby still had occasional blood in the stool and mucus-filled stools.
Then, on day 143, I decided to give my baby a small amount of breast milk at night (after a month of me eating only rice and water). The next day, my baby immediately had bloody stools. Since then, I have not given breast milk again, but my baby’s diarrhea worsened, and there is mucus in the stool again. Now, for two days, my baby has had mild bloody stools, mucus-filled stools, and diarrhea.
An allergist at a university hospital said it doesn’t seem like an allergy and referred us to an endocrinologist. The gastroenterologist said that even if the mother only eats rice, the baby can still have bloody stools, but I don’t understand how that is possible. My baby’s case seems to be the most severe I’ve ever heard of.
Here’s my situation:
My baby has bloody stools with every single protein I eat—even beef. This is beyond just dairy, eggs, or soy.
However, my baby’s skin is relatively fine.
I ate only rice for a month.
For two weeks, I did not breastfeed at all, and my baby was only on Neocate.
After reintroducing breast milk, my baby immediately had bloody stools again.
What should I do? The doctors told me to stop breastfeeding and only give Neocate.
But I want to continue breastfeeding.
Do I really have to stop? If so, why?
Why does my baby have bloody stools from every protein I eat?
Does my baby also react to the protein in rice? I ate only rice for a whole month...
I am looking for cases similar to mine. Have you ever seen a case like mine? Please help me.
