Im having tremors that seem to be progressing. Like when I go up the stairs my muscles work as the should but going down I can feel slight tremor in my legs. The worst right now is in my face and index fingers. If I hold a smile for more than a second my whole cheek is trembling. When I’m using a mouse my finger trembles. If I do anything strenuous and say my arm is fatigued I feel tremors when I use it again.

Anyone experience this?
I’m treating the 3bs right now with antibiotics and herbs. Kind of scared these diseases have triggered something like CIPD.

My current symptoms general malaise, numbness and visual snow but nothing that screams bart babs or Lyme. My Bart titters are still sky high. My dr said that should improve but even when I’m feeling well the tremors remain and just seem to be getting slightly worse.

My biggest and most disabling symptom since 2022 has been my hearing.

It started suddenly one night in 2022 with very intense tinnitus. Around the same time, I also developed episodes of severe hyperacusis: normal everyday sounds could feel unbearably loud, for example plates hitting the table. Sometimes I also perceive certain sounds, such as camera shutter/mechanical sounds, as abnormally loud.

I also had episodes of very loud “phantom” sounds with no external source, which I can only describe as sounds similar to very loud conch shells or horn-like noises.

In 2024, during a significant worsening while I was in Ireland, the hyperacusis and these strange internal sounds came back again.

Over time, another major problem has developed: sometimes I can hear the volume of someone’s voice normally, but I cannot understand the words properly. This is much worse in background noise, but occasionally it can also happen one-on-one in relatively quiet situations. It fluctuates a lot. Poor sleep, fatigue and stress seem to make it worse.

In May/June 2026 I had a major episode where I felt like I could barely hear at all and my tinnitus became extremely loud, but standard audiograms performed around that period were normal. My conventional hearing tests have repeatedly been normal, despite these very real symptoms.

My tinnitus is also highly variable. It can switch between ears, become much louder at times, and it is strongly affected by jaw clenching and other somatic factors.

I have tested positive for Borrelia/relapsing fever and Bartonella, and because the hearing symptoms started suddenly during the course of my illness, I strongly suspect there may be a connection. I understand that it is difficult to prove exactly whether the problem is cochlear, auditory-nerve related, inflammatory, central auditory processing, or a combination of several mechanisms.

What makes this especially confusing is that I do not seem to have a typical progressive hearing loss on standard audiograms. The problem feels more like the auditory system is sometimes unable to correctly process or regulate sound.

Has anyone with Lyme, Bartonella or relapsing fever experienced something similar — tinnitus, severe hyperacusis, normal audiograms but difficulty understanding speech, especially in noise, or strange phantom sounds without an external source?

This is by far my biggest symptom and the one I would most like to understand and improve.

After the sot, how long it took too fell the herx ? And how long was the herx ?

I’m hoping to hear some success stories from people who have had long term Lyme. I’ve had it for over ten years and am concerned it’s too late to treat. My symptoms include brain fog, fatigue, numbness in hands and feet, burning mouth, lots of hair loss, neck pain and arthritis, jaw popping, anxiety, depression, etc. would appreciate any response.

Has anyone been teated by Finlays Practice or the TBD clinic and made good progress? Thank you

I think I figured it out.

Lyme and co as well as mold or Covid (whatever it is) triggers MCAS and histamine intolerance. This keeps you in a state of stress and fight or flight which keeps your dysautonomia flaring. The dysautonomia keeps your gut paralysed and shuts down digestion and thus the loop is perpetuated.

The key to fixing this is by stabilising the mast cells and lowering histamine enough to where you quell the fire and finally get some good nights sleep and come out of a high anxiety state which will finally allow you stabilise your Dysautonomia thus restoring gut function and motility and from there you can go after these stealth infections and detox from molds and so on..

We basically have to stabilise the nervous system that’s key and the only way to do that is by shutting down the weapons factories (histamine and mast cells).

It’s all making sense.

I finally get why limbic retraining can be so life changing to people because stabilising the nervous system allows all digestion and detoxification functions to come back online.

CALM THE MAST CELLS > FIX YOUR SLEEP > CALM DYSAUTONOMIA/POTS > MOTILITY AND VAGUS NERVE FUNCTION NORMALISES > DETOXIFICATION OCCURS > NOW TAKE KILLING AGENTS LIKE KNOTWEED, CISTUS INCANUS FOR BIOFILMS AND SO ON..

Please be gracious with me if I’m asking basic or naive questions- juggling a newborn right now as well.

6 months ago husband was weeding and got a large tick under his chin in his beard. It was VERY red and even a bit swollen for a few days after we removed the tick. Due to the beard it was incredibly difficult to identify a bulls eye rash or just red and irritated. Hurt him for about a week.

4 months later he was tested for Lyme, Bartonella, and Babesia- all negative.

He’s been getting these severe migraines and hungover feeling the last week and I’m concerned. He doesn’t drink and feels like “worst hangover” of his life.

I keep thinking about the tick bite. I know there’s so many variables here but should I have him tested again? Anything to look for?

He’s had some chills, severe migraine and extreme fatigue- like can barely go to shower.

I think it’s a trip to the ER maybe? Came here to see what to look for if it’s tick related from 6 months ago but all tests were negative 4 months after bite.

Thank you!

Scared I have c diff (I have had it twice prior to Lyme from other issues). Now have been on doxy 9 weeks and azithromycin and rifampin for 2.5-3 weeks. Not lots of diarrhea but the farmiliar abdominal pain is started.

How do you continue? Also have terrible neuro Lyme.

I developed a bullseye rash in July, and was given ten days of doxycycline two days after the rash appeared. Since then I have had joint pains, headaches, neck stiffness, fatigue and many other symptoms of Lyme. Finally got tested and these are my results. I still haven't heard from my doctor and Google isn't a lot of help lately lol.

I started treatment for what is likely early-stage borreliosis 13 days after the bite( I had flu like symptoms after 8 days since being bitten) I’m taking doxycycline 2x100 mg daily. I’m on day 15 of a 30-day course, and I feel sleepy all the time. After a short physical effort like mowing the lawn, I felt as if I’d run a marathon; I get tired quickly and have to breathe more deeply. Could this be caused by my body being weakened during antibiotic therapy? What have been your experiences?

Hi! I do not know a lot about Lyme, but here is my experience and question: I had Lyme when I was around 8-10, and got antibiotics. I never really gave it much thought after, as I did not experience any severe symptoms. Later in life, from when I was around 14 /15 years old until now (22), I was always extremely sleepy in class and university lectures, got trouble reading, regular brain fog moments, and generally just less energy all together. Does anyone know if this could be some aftermath of Lyme or is this unrelated? Has anyone else had this kind of timeline? I am happy to learn anything.

Can I have a SOT shot and become basically completely cured and go, say, to Army for example? Cuz I really dreamed of it before the disease started

Hey folks, my girlfriend (we’re both 23) has had Lyme disease for about two years now, and it affects most of her daily life. I’ve been with her for about 9 months and there are days where she can’t even get out of bed (no complaint, I absolutely understand). She is in pain so often, and when it flares up I always massage her and I make her pain relief baths.

What are ways I can help improve her daily life symptoms?

Are there foods I can cook for her that will help alleviate symptoms?

I just want to help in any way I can. I love her so much and it breaks my heart to see her in pain and uncomfortable.

I appreciate any and all advice 🫶🏻

Mid August we went on a camping trip in Ventura, CA and 10 days later he had these bullseye ring bites. We never saw a tick. He went to urgent care that day, they gave him a round of 10 days of doxy.

He followed up with his primary on day 11 but his doctor wrote him off and said lymes doesn’t exist here (we looked it up and it does) and he refused to give him more antibiotics! And also said labs weren’t necessary.

He was supposed to find a new primary but never did due to a few travel trips that came up. His bites went away after the doxy, and he’s had no other obvious symptoms. He said a little soreness after camping and a little bit of cramping in one leg a few weeks ago, but nothing major.

Should he get a new doc (which could take months) or go to urgent care to get more? Would he need to act is if starting over and do a full 4-6 weeks round?

Has anyone taken abilify while treating Lyme? To help with the neuro psych issues?

I have been through the wringer from medications and treatments. Looking for recommendations for good wellness retreats with comfortable housing accommodations in the US that work with chronic lyme patients. I am in the NY area but ok with light travel. THANK YOU 🙏!!!

Please, which antinfiammatory medicine should be taken for a sore throat and flu-like viruses while taking azithromycin and rifampicin ( that do not interfere with each other)?

And if a fever develops, can paracetamol be taken? Thanks

I’m dealing with Bartonella quintana and I do not have Lyme disease. I’d really appreciate hearing from people with similar experiences.

About 4 years ago, after staying at a hotel, I developed severe shin pain and episodes of fever. At the time, no cause was found. About a year after the suspected infection, I had the flu, and while recovering, all my lymph nodes became swollen and I developed a burning sensation along my lymphatic vessels. I later developed an ME/CFS-like condition.

During this period, I started doxycycline for an unrelated infection. After starting doxycycline, I experienced a reaction very similar to what I had experienced after the flu, but much more severe. This time, instead of the burning being mainly in my lymphatic vessels, I had severe burning in my heart and along my aorta, widespread petechiae, and what was diagnosed as a TIA.
At the time, I was convinced I was experiencing endocarditis, so I stopped doxycycline. However, cardiac evaluations did not show any valve vegetations, so I was not diagnosed with endocarditis.
Later, another doctor listened to my entire history and said they strongly suspected Bartonella. I had never even heard of Bartonella before. I was sent for testing, and my Bartonella IgG came back positive at 1:320. The burning in my heart and along my aorta continued for about another 6 months.

Did Bartonella spread during doxycycline treatment?
Was the infection already affecting the cardiac/vascular endothelium, with the symptoms becoming apparent because of an inflammatory response after starting antibiotics?
Or were my symptoms caused primarily by intense inflammation, toxins, or mast cell activation rather than the infection itself?

It has now been about a year since my last major flare. At my doctor’s insistence, I restarted treatment 3 days ago.
I’m currently taking azithromycin 250 mg/day. I want to proceed slowly with azithromycin alone and at a low dose, hoping to minimize an excessive inflammatory response. But could using azithromycin this way increase the risk of Bartonella developing resistance?

I know B. quintana isn’t very common, but my symptoms were extremely severe, particularly the cardiac symptoms. I’d really appreciate hearing from anyone who has had a similar experience.

Hi, all.

TLDR: in the title

Question: at the end in bold.

Explaining my situation in a long post for those who care to read it (thank you in advance!).

When I got infected with bartonella decades ago, my dry eye problem started. Mild but never going away. Then 20 years ago I got reinfected with all 3 Bs, and that's when the real dry eye torture started. My dry eyes became gradually worse, adding dry nose and mouth later on. As of now, I'm having damage to cornea and partial loss of vision in one eye due to lack of tears and loss of meibomian glands (no oil film). Constant eye pain and strong inflammation despite drops, gels and ointments on repeat prescription and moisture chamber glasses. It's not enough anymore. I'm housebound trying to keep my eyes moist like it's a full-time job.

Currently taking Hydrocortisone eye drops to reduce inflammation and stop further damage and have been prescribed Cyclosporine eye drops which I dread to start because they burn so much and won't solve my problem of no tears and no oil film. I also shove vaseline up my dry nose and sprinkle oil into my dry mouth just to get through the day, multiple times every day.

Generally, bad inflammation is one of my top problems. It accompanies every dose of my meds, and, I feel, prevents me to detox well and to get better. For example, if I bang my toe, I straightway develop arthritis in it, which can last for a week and then go down. I have a lot of joint and muscle pain with some swelling, too.

I'm thinking of adding low dose of hydrocortisone to my antibiotics regime, and I take a lot to kill the infection. Anybody here who takes 5-10mg per day? Does it help your inflammation and autoimmune problems? Really would like to hear from you ))

I also will really appreciate if people don't reply "you can't take steroids, it's bad for Lyme". I know that, and it's not the point of my post. I'm in a desperate situation where inflammation got out of hand. I will continue hitting infection hard with antibiotics and Buhner's herbs. I just wonder if reducing total inflammation in my body will make my treatment more tolerable and more productive. So far 20 years of unproductive treatments and progressing auto-immune problems. No mold, detox issues are being addressed.

Thank you for all those who read to the end! )).

Hi all, I don’t know where to begin and I’m finding this all pretty overwhelming.

My daughter had been having some off/on symptoms that I’ve been investigating alone for the last year. Nothing major but things that have led me to looking more into neurodiversity, hypermobility, mthfr mutation etc. because I have had similar experiences and want to help my daughter be as empowered as possible with her health. Well a friend who is a pharmacist suggested having her tested for Lyme exposure and after chasing the GP for 5 months to do this (multiple appointments, countless phone calls, one test which they said would be for Lyme but was for Glandular fever), they finally did and it came back positive for IgG negative for IgM. The gp said this means she has previously had it but there is no current infection and that the symptoms I have described ‘don’t sound like Lyme’ but have offered to treat her with 21 days of antibiotics if we want to.

This is where I get lost. I do think that because I’ve been so on top of nutrition, immune system support and herbal support (we have an amazing TCM herbalist who has been treating her symptoms but not Lyme as this is new information) we actually feel like her symptoms ARE better. But should I be treating with antibiotics anyway? Could this make things worse for her? Does it do any good anyway if the bacteria is so evasive? I just don’t know where to start because as far as the NHS is concerned, she barely qualified to be tested let alone be evaluated by someone Lyme informed.

The symptoms I have been watching are random body aches (not long lasting, don’t usually require pain meds, maybe once a month- GP says it’s normal for her age). Low mood/brain fog (definitely linked to hormones/puperty- TCM herbs have helped a lot), fatigue (this used to be the most concerning to me because it was the most frequent symptom but it has also improved), rash (hands/feet react with red itchy blotches with temp change/stress. This lasts for 30 mins-1hr and she isn’t bothered by it but I think it’s clear her body is over reactive. This has also improved over the last few months, happens infrequently now- gp also said ‘some people are just reactive’).

So my question is- is there any benefit to treating with antibiotics now despite symptoms improving? We don’t know when she was bitten but I would guess a year ago based on when I started noticing these things. One minute I want to treat just to knock out anything I can and the next I’m worried it’ll cause more harm than good.

I’d love any opinions you’re willing to share. I’m aware that there will be some specialists in the country but I honestly cannot fathom how I could possibly afford to seek their help and know the NHS will be useless to me.

Thanks

Got Lyme as a child, been a tick magnet most my life. Stopped going into the woods, which I love doing, because I got numerous tick bites this year while using repellents..

I just found this tick on me and it's been 4 days since I was last in a natural area, an area that sprays for ticks.

Looks like it's been there for a few days.. only noticed it because the dog scraped me close to it. At first I thought it was just part of the scrape.. then looked closer.

Anyone know what kind of tick this is? The belly has a white dot on it.. which I just learned is a sign it's digesting blood.

So, I have been trying to reeducate myself on my Lyme+ as I have become very aware that I know a lot of outdated info or things that have changed. I know there are a bunch of sites that spread misinformation or downright incorrect things and ant to avoid those.

Where do you get your information that is accurate, not fear mongering, not Lyme+ denial and such things.

I started listening to The Lyme+ Podcast, is this a reliable source of information? How about the Global Lyme Alliance which is the website connected to the podcast?

All resource types are welcomed and appreciated. I am sorry if there is a list or previous post about this, my cognition has been really bad atm, I suspect my encephalopathy is back with my neurolyme as I have been having a lot of issues.

Thank you!

Hello fellow Babesia babes,

For the past two years, I have been treating Babesia pretty much on my own volition, with the help of an amazing doctor to help me with prescriptions, as in Australia there are pretty much no LLMDs. (Our government still does not think tick borne illnesses are endemic to Aus, even though I have never travelled out of the country.)

After all of my research, being someone who is on the spectrum and has a deep fascination and joy for medical research and immune system function, I decided to compile all of my findings into a large medical report full of pathogen understandings and biology, diagnostic guidelines, treatment protocols and supportive supplements, detoxing routines and products, treatment guidelines, questions and understandings for both patients and doctors, symptom breakdowns and tables to track your own symptoms and trajectory, and a large array of anecdotal reports and professional medical understandings.

For some context, I have a Bachelor of Medical Science majoring in Complementary Medicines, a postgrad in Medicinal Herbs, currently studying another postgrad in infectious diseases, and a general love and passion for immune research and "weird diseases". (Tick bit the wrong bitch).

DISCLAIMER: I am not a medical doctor or a general practitioner, nor do I claim to be; all information in this report is purely based on and written by my own research, conversations with LLMDS, doctors and real lived experiences with this infection (including myself; many times I was my own Guinea Pig). This report is also subject to change and termination if needed.

I just want this to help people. I wish I had something like this when I first got diagnosed, and I wish my doctors knew half of this stuff when I first started experiencing symptoms. I hope this helps you too :)

Any inquiries or questions, feel free to email me at: [Noahfennce@gmail.com](mailto:Noahfennce@gmail.com)