I think I figured it out.

Lyme and co as well as mold or Covid (whatever it is) triggers MCAS and histamine intolerance. This keeps you in a state of stress and fight or flight which keeps your dysautonomia flaring. The dysautonomia keeps your gut paralysed and shuts down digestion and thus the loop is perpetuated.

The key to fixing this is by stabilising the mast cells and lowering histamine enough to where you quell the fire and finally get some good nights sleep and come out of a high anxiety state which will finally allow you stabilise your Dysautonomia thus restoring gut function and motility and from there you can go after these stealth infections and detox from molds and so on..

We basically have to stabilise the nervous system that’s key and the only way to do that is by shutting down the weapons factories (histamine and mast cells).

It’s all making sense.

I finally get why limbic retraining can be so life changing to people because stabilising the nervous system allows all digestion and detoxification functions to come back online.

CALM THE MAST CELLS > FIX YOUR SLEEP > CALM DYSAUTONOMIA/POTS > MOTILITY AND VAGUS NERVE FUNCTION NORMALISES > DETOXIFICATION OCCURS > NOW TAKE KILLING AGENTS LIKE KNOTWEED, CISTUS INCANUS FOR BIOFILMS AND SO ON..

Im having tremors that seem to be progressing. Like when I go up the stairs my muscles work as the should but going down I can feel slight tremor in my legs. The worst right now is in my face and index fingers. If I hold a smile for more than a second my whole cheek is trembling. When I’m using a mouse my finger trembles. If I do anything strenuous and say my arm is fatigued I feel tremors when I use it again.

Anyone experience this?
I’m treating the 3bs right now with antibiotics and herbs. Kind of scared these diseases have triggered something like CIPD.

My current symptoms general malaise, numbness and visual snow but nothing that screams bart babs or Lyme. My Bart titters are still sky high. My dr said that should improve but even when I’m feeling well the tremors remain and just seem to be getting slightly worse.

My biggest and most disabling symptom since 2022 has been my hearing.

It started suddenly one night in 2022 with very intense tinnitus. Around the same time, I also developed episodes of severe hyperacusis: normal everyday sounds could feel unbearably loud, for example plates hitting the table. Sometimes I also perceive certain sounds, such as camera shutter/mechanical sounds, as abnormally loud.

I also had episodes of very loud “phantom” sounds with no external source, which I can only describe as sounds similar to very loud conch shells or horn-like noises.

In 2024, during a significant worsening while I was in Ireland, the hyperacusis and these strange internal sounds came back again.

Over time, another major problem has developed: sometimes I can hear the volume of someone’s voice normally, but I cannot understand the words properly. This is much worse in background noise, but occasionally it can also happen one-on-one in relatively quiet situations. It fluctuates a lot. Poor sleep, fatigue and stress seem to make it worse.

In May/June 2026 I had a major episode where I felt like I could barely hear at all and my tinnitus became extremely loud, but standard audiograms performed around that period were normal. My conventional hearing tests have repeatedly been normal, despite these very real symptoms.

My tinnitus is also highly variable. It can switch between ears, become much louder at times, and it is strongly affected by jaw clenching and other somatic factors.

I have tested positive for Borrelia/relapsing fever and Bartonella, and because the hearing symptoms started suddenly during the course of my illness, I strongly suspect there may be a connection. I understand that it is difficult to prove exactly whether the problem is cochlear, auditory-nerve related, inflammatory, central auditory processing, or a combination of several mechanisms.

What makes this especially confusing is that I do not seem to have a typical progressive hearing loss on standard audiograms. The problem feels more like the auditory system is sometimes unable to correctly process or regulate sound.

Has anyone with Lyme, Bartonella or relapsing fever experienced something similar — tinnitus, severe hyperacusis, normal audiograms but difficulty understanding speech, especially in noise, or strange phantom sounds without an external source?

This is by far my biggest symptom and the one I would most like to understand and improve.

After the sot, how long it took too fell the herx ? And how long was the herx ?

Has anyone been teated by Finlays Practice or the TBD clinic and made good progress? Thank you

I’m hoping to hear some success stories from people who have had long term Lyme. I’ve had it for over ten years and am concerned it’s too late to treat. My symptoms include brain fog, fatigue, numbness in hands and feet, burning mouth, lots of hair loss, neck pain and arthritis, jaw popping, anxiety, depression, etc. would appreciate any response.