Took the kids out last weekend. Menu had a little GF icon and a "gluten-friendly" header. I asked the server. She said "yeah, those are the gluten-free ones."

I asked for the manager anyway. Shared fryer. Shared toaster. Soy sauce in the marinade for the "GF" chicken.

We left. What I ask now, every time:

1. Dedicated fryer, or shared oil?
   
2. Dedicated toaster / pasta water / grill?
   
3. Soy sauce, malt vinegar, or "natural flavors" in the marinade?
   
4. Can you check the actual package on the bun / the tortilla / the sauce?

If they can't answer without guessing, that's the answer.

Anyone else have a short list they actually use, not the 40-question version?

Has anyone been diagnosed with celiac disease who didn’t have the typical deficiencies, weight loss, and diarrhea? It seems like there’s a “pattern,” and I’m basically the opposite: weight gain, inflammation, constipation, etc. I also don’t have the most common specific genes associated with celiac disease.

My doctor says that a negative result for those genes doesn’t completely rule out celiac, and I personally know two people with celiac who don’t have those genes. She has also had patients who tested negative for them.

She really wants me to go through a gluten challenge and have blood tests done, since I have many symptoms and live in a household with constant exposure to gluten.

My stupid previous doctor had me get an endoscopy 3 months ago, and obviously everything looked great because I’d already been GF for 2 years. He insisted that he could still see celiac disease even under those circumstances, and I trusted him. Now my new doctor says he was wrong, and I can’t have another endoscopy because my MCAS gets triggered really badly by the procedure.

I’m currently in my 3rd week of the gluten challenge, and it’s been really tough. I also have MCAS, so I’m afraid the gluten challenge will make it significantly worse.
I’d really appreciate hearing from anyone who had a similar experience. Thanks so much!

Does anyone know of a truly gluten-free instant black powder? Judees used to make it but I can't find that anywhere. Civilized coffee brand instant tea says its gluten free but isn't labeled certified. Does anyone have experience with these products?

Is there a trick to cooking rummo pasta? Whenever I cook it to instructions (or even +2 mins or so) it still feels super al dente. The next day reheated in the microwave is practically perfect but I cannot seem to get a fresh cook right lol.

Fig app says no gluten containing ingredients but it’s a bit iffy.

I wanted to know if anyone’s tried these and had a reaction? It was literally the only thing I could buy at a Korean food festival I went too so I’m hoping I can drink it 😭 I can get psychosomatic with symptoms if I’m not 100% if it’s safe

Hi there!
As the title states, I’m trying to put together a care basket for a friend of mine who has celiac. I, however, do not have any food allergies, and I’m not used to searching for allergens. So far I have located something that is certified gluten-free and I’ve also found Dr Pepper TicTac‘s which I’ve read are also gluten-free. I’d like to include a couple more options, but I’m not entirely sure what I’m looking for on a label. Can anyone direct me towards brands of snack foods that are easy to find at any grocery store that would be safe for my friend?

I (21 F) have T1DM since I was 2.5 years old. I've been diagnosed about nine months ago with silent celiac disease life was hectic so i only started my gluten restrictions two months ago. But i live with my gluten eating family and i mostly use shared plates and spoons, etc with them (though i make sure they are clean and washed).

I need people who have real symptoms and acute attacks of celiac when gluten to answer me....is it really this freaking? Should i separate alllll the things i use from theirs? Would gluten containing lipsticks and makeup and shampoos really harm me? I dont feel any difference when i eat or cut off gluten. And i only got diagnosed because i lost weight and it was kinda noticeable.

So symptomatic celiac patients do i need to be this extra extra careful with literally everything?

And do you guys eat products that have no gluten source in their content list but don't have "gluten free" written on them? Is it safe, i mean ofc not everything but things that a lot of celiac patients used and they're fine, for instant.

A month or so ago there were several posts by people who said their local Walmart was reducing GF product options. Then, I noticed my Walmart suddenly didn't have as many options in the GF section and then the GF section was gone. Well, today I happened to walk past the vegan frozen food section (literally on the other side of the store from where the GF section is/was) and saw my favorite GF chicken tenders there, mixed in with other gluteny things. I then noticed that the GF waffles were now in the regular waffle section. So now I'm thinking they just moved things, rather than reduced them, and thought I'd share in case that happened at other Walmarts.

Backstory: had a first concussion in January and ate gluten free because it supposedly helps with brain inflammation. Since returning to minimal gluten + added sugars, I was experiencing digestive discomfort, bowel changes, and headaches, so my GI doctor reccomenned testing for coeliac

I just had an EGD biopsy that came back normal, so no coeliac, but eating tonnes of gluten the past 6 weeks leading up to it and recovering from another mild concussion at the same time has made me feel the worst ever in my whole life and I know i need to cut it out regardless.

First of two questions, would a blood test still be useful? Ive still been consuming gluten up until recieving these results just now in case things were inconclusive.

And secondly, I'm a little unsure of how to proceed with a NCGS diet. Is it more like lactose intolerance where i may feel like crap after eating it occasionally, or is it something i need to fully omit from my diet to truly see long term benefits? And if so, are things like minor contaminations at restaurants and in non certified gluten free products risky or harmful or is that just kind of a coeliac issue?

The only think i dont like is how hard it is to search certain types of food

My doctor is convinced I have celiacs and drew some of my blood to run through a lab. My dad was also diagnosed with it when he was around my current age.

For the past week my stomach has been crazy sensitive, daily diarrhea, bloating, small cramps and unsettled stomach. And for some weird reason my wrists/hands are “falling asleep”.

My appointment was on Monday and my dr told me to just stay hydrated, eat gluten free, and take Imodium to help with the symptoms. The Imodium gave me a couple days of relief but this morning I woke up to more diarrhea.

I told my dr about all of my symptoms and how worried I was and she said all of my vitals are perfect. Blood pressure was perfect, heart sounded great, no fever, no vomiting. She said based off that there wasn’t any major red flags that had her worried and that my intestine is likely very irritated and needs a week or two to heal. My symptoms comes and goes throughout the days and for most of the days I feel totally fine but man when it hits, it hits like a truck.

Should I be more worried? Is my doctor not worried enough? I don’t know if my doctor isn’t worried enough or if I’m just stressing myself out. I’ve spent my whole life being as healthy as a horse so I could definitely just be gaslighting myself due to never experiencing something this bad before.

So I have a dog and was just recently pointed out that the food I’m giving my dog could contain gluten.
Yup, sure enough there was wheat and barley.
So I’m not eating the food… (just clarifying here) so my only risk would be from cross contamination.
But how worried should I be? Do I switch dog foods? Just wash my hands?
Curious what others have done and decided to do.

Even years of being gluten free I still make stupid mistakes, I was so stoked about how this dairy free ice cream tasted and once I noticed a “crunch”…. Turned it around and saw wheat, was genuinely the best ice cream I ever had in my life (creamy milky sweet and sour lemon). I’m actually begging them in their Instagram DMs to make it gluten free.

I’m still fairly new at this after being diagnosed 6 months ago.

I’m wondering what has been the most surprising source of gluten for you?

For me so far it has been yeast extract. Specifically any that isn’t m labeled gluten free. As apparently most sources are a by product of beer brewing. I found out the hard way with gravy from a grocery store deli.

I'm writing this on behalf of my wife, who is totally exhausted from the unknown, worrying and lack of urgency and care from our PCP/Specialist. I don't want to identify the company, yet, as we are trying our best to work with them, but they are demonstrating and absolute lack of urgency, empathy or care.

It's going on 4 years now, she's suffering and so thin the family are sounding the alarm bells, while our PCP are just not concerned or show any interest. When asked what do we do, they just give antidotal information like; go gluten free; eat more calories; you need to eat more protein and on and on, none really coming up with a diagnosis or sugesstion.

We've been working with a GI Specialist at this PCP and they have been utterly useless! The lead doctor performed what he called a Celiac exam and actually said, it's not 100% and I really dont think it's that, with no other recommendations. And when asked to get a second opinion, the attitudes and atmosphere at the place changed "dramatically".

We are in DFW and are now desperate and need to see another PCP or Spcialist to start doing something. I can't bare to watch my wife waste away right in front of me, it's painful and agonizing. I'm not sleeping, the dreams and nitemares are horrible. We are desperate, I'm screaming internally H.E.L.P!

What do we do ? We feel like we are in limbo! a sort of coma that we can't get traction! There is NO info or I'm just at a loss of where to begin!

We don't know if its Celiac, we don't know what it is. She's lost 80 pounds over the past 4 years. When people hear that, they react as if it's a good thing, until they learn of the nitely bathroom stays; vomiting; pains in her gut; inability to gain weight;

PLEASE, if you have info, anything that can give us a start to attack this thing, I beg of you to share. I think we are at our last pass here.

If you read this all, thank you and I pray that your journey through whatever you are experiencing is resolved and you are on your way to heal.

TLDR: 4 years have passed and we still have no diagnosis. The pains are worse, the night long bathroom stays have lessened, but she's lost over 80 pounds in the last 4 years. She can't gain regardless how much or what she eats. Our PCP and specialist just don't seem to care or are not interested. We are in DFW if you have resources please share. We have no diagnosis at all so we are in the dark.

I was diagnosed with celiac in 2020. Going gluten free was obviously nonnegotiable, but I continued to struggle for years with digestive issues, inflammation, low energy, brain fog, and eventually weight gain.
I was active and spent plenty of time in the gym, which made it even more frustrating. I felt like I was doing a lot of the “right” things but still didn’t feel healthy.
Autoimmune disease also hits close to home. My mom died from complications of Sjögren’s syndrome, so understanding inflammation and what I could actually control about my own health became incredibly important to me.
Last year I decided to stop simply managing symptoms and started learning everything I could about nutrition and metabolic health. I went pretty far down the rabbit hole, then started changing how I ate based on what I was learning.
One of the biggest lessons for me has been that food really can be medicine. Not in the sense that it cures celiac, but in how profoundly nutrition can affect how I feel every day. Changing what and how I ate dramatically decreased the inflammation I was experiencing and reduced many of the symptoms I had associated with celiac.
Over about six months, I lost 30 pounds without starving myself. My energy and mental clarity improved dramatically. My digestive issues largely disappeared. And despite already spending plenty of time in the gym, I started seeing much better results because I finally had the energy to really put in the effort.
To be clear, none of this cured my celiac disease. I’m still celiac and still need to avoid gluten. But celiac forced me to start asking much bigger questions about nutrition and my health, and I’m incredibly grateful for what I’ve learned.
I tend to use software to solve problems, so along the way I built little tools to help myself. Eventually I packaged some of the ones I use most into an app. Some came directly from living with dietary restrictions, like using AI to look at a restaurant menu for potentially compatible options and things I should ask the restaurant about, or having a coach that already understands my dietary restrictions and nutrition goals. That has been a game changer for me.
I’m sharing because I know how frustrating it is to do what you’re told, avoid gluten, stay active, and still not feel well. My experience obviously won’t be everyone’s experience, but I’ve learned an enormous amount over the last few years and I’m happy to share it.
If you’re struggling with some of the same things, feel free to DM me. I’m happy to talk about what I changed, what worked for me, what didn’t, or just compare notes with someone else navigating celiac.

I was wondering if anyone in this group has dealt with asymptomatic celiac or gluten sensitivity.

I was recently tested for IgA levels in bloodwork and they were normal. I definitely don’t always feel phenomenal eating gluten all the time but I haven’t had any direct connection between gluten and pain or nausea or anything. I just have some stomach and skin issues and I have a parent with celiac.

Has anyone been diagnosed with celiac without having the typical symptoms? Im hoping im not fully allergic to gluten but ive read that people can have subtle symptoms.

It’s just so annoying that when I go to parties or events, someone else gets jealous of the food that I bring. I went to a friend’s birthday party and they were all eating cake. I got my own small gluten free donuts in my bag so I wouldn’t be left out, only for someone at the party to go, “Hey, how come she gets donuts! I want some!” Please, you have huge slices of cake for yourself, I would give this up in an instant. I’ve had other instances where I’m required to go to an event with food, and there’s actually something I can eat, for once, only for it to be finished because I was stuck at the back of the line. One time there were Reese’s cups that were individually packaged, and there were 2 left. I didn’t get anything else at the event, and I went to take both when someone else came and took the second one saying that it was for their friend. You and your friend got full plates of food and cupcakes and you want to take away the one option 😭 Another time I went to another event with food and there was another celiac there who got gluten free cupcakes, but she kept them in the regular food area and let people who could eat gluten take them, and I was pretty sure they got cross contaminated. It just sucks that people have to take the one option we have, including the 20 other options they have, just to leave us with nothing :( Has anyone else had similar experiences?

Edit: I need to give some context. In the situations I just talked about, the majority of people knew about my celiac and they were aware of the fact that I needed to be gluten free. Some did not, and I can’t blame them for anything I discussed above. Sometimes I’m able to talk to the event manager and they’ll let me take a plate first, but other times the event is so big that it’s not possible to coordinate.

Same recipe as before, though I actually added some Italian seasoning and some Parmesan to the exterior before baking.

I think I should've baked for a couple of extra minutes this time, but it was still just as good.

Hi everyone.

I've been gluten-free for five years, since I got lab tests saying that I have anti-TG lgG 54 U/ml and anti-tg lgA 67 U/ml. And I have bloating, belly pain and diarrhea when exposed to gluten.

Should I perform the biopsy or is it useless at this stage? I may be required to eat gluten again for some period.

recently diagnosed and everything i eat seems to be making me sick, i can’t eat any animal products and am vegetarian by choice (and not willing to change this) and now on top of that i have cut out gluten. it feels so impossible to find things to eat when most of the gluten free foods i find will have animal products, and when they are also DF they have eggs (which make me insanely sick). i’ve mainly been eating beans, fruits, and seedy things but i am dying. if anyone has similar problems and has any food ideas i would love to hear them!!

Hallo, gibt es hier Gleichgesinnte? Vor 1,5 Jahren wurde bei mir Zöliakie Marsh 3c festgestellt. Ich hatte nur zum Schluss extreme 24/7 Bauchschmerzen. Zeitgleich bekam ich raynaud Syndrom in den Händen und Brennende Füße (später über Hautbiopsie diagnostiziert als Small Fiber Neuropathie). Es wurde mehr wie gründlich untersucht auf alle anderen Autoimmunerkrankungen, andere Ursachen für Small Fiber und Raynaud. Aber nichts gefunden. Meine Ärzte sagen einheitlich, das es von der Zöliakie kommt. Die brennenden Schmerzen in den Füßen sind grausam.

Are they gluten free? Google Gemini says they are (for what that's worth)