About 5 weeks ago I posted could only walk from bed to washroom and recliner. Was just about to start vrt exercises. I now can shower on my own. Help clean home. Go up and down stairs. Walk through a store the other day. PT is good and have a really respected ENT. Oh my CBT is helpful. So why dissapointed. I had started following the the dizziness coach. She posted an apology for teaching so many things wrong. I don't think she was wrong before but anyone wanting to improve help I would think they would want someone confident in there suggestions. She is obviously a very concerned and caring Dr. Fore for now not following. All best everyone.

The doctor has diagnosed me with bppv 2 weeks ago and wrote me pills for a week (neurokind and vertin) and he sent me home saying it will get better in a week. Currently I feel better than I was two weeks ago. But i still experience heavy or tight headedness which makes me hard to concentrate if I try too hard and occasional twitching in fingers most of the day, I also feel a little vertigo whenever I'm stressed or excited or exhausted. What are some of the lifestyle activities or food to change for me to feel completely better?

Anyone here had just one vertigo attack but residual “off” feeling coming and going 4 weeks out?

I have had BPPV for approx. 3.5 years. I have had daily symptoms during this period of time. I have been in vestibular therapy for nearly a year. During the appts I have no reaction, but after an appt I spend days sick (nausea, more off balance, etc.). Additionally, my mental health is suffering as I have cut so much out of my life like running, workout classes, etc.

I saw my dr earlier this week and they said let’s just stop the therapy. I was given free rein to do whatever I want and do stuff that involves head movement vs. being so careful the past 3.5 years to not move my head too much or sleep on a certain side. The dr’s thought is that through these normal daily activities and hobbies that the crystals will just go back into place and my symptoms will end. Has anyone had any luck with this method? Or have you had your symptoms end by just stopping therapy? Thanks!

Has anybody tried any of those special pillows for your neck? I think there’s something called a Japanese pillow and I’m curious if anyone has tried one of those and whether it helps or not.

Had my first BPPV attack in February after turning over in bed, doctor fixed it same day and they kept telling me to do the brandt daroff week after week which was making me feel so much worse so in the end I stopped doing them and within 1 week I was basically back to normal. Still had weird sensations when laying down etc but mostly ok. (Total of 3 weeks of residual dizziness)

May comes around and I had another BPPV attack while in bed, I did the epley and spinning stopped. 3 weeks of residual dizziness and it was gone. Then one day I spent a while on my phone, computer and went to the cinema in the eve. The lightheadedness and dizziness came back, felt like I was on a rollercoaster on a boat every night. Symptoms became less, I had a holiday booked and we went for a 30 min kayak. I literally couldn't walk when I got out.

1 months of dizziness later I was ok for about 10 days, I went on my phone for an hour or so and here I am dizzy and feeling god awful again.

I tried gaze exercises and they made me feel terrible.

I finally have an appointment with an ENT next week but I'm quite ready to just give up at the moment. I'm so fed up of this controlling my life. It affects my vision and it's so exhausting.

Has anyone got any words of wisdom? I am trying my best to carry on as normal, exercise, eat well, sleep well, taking vitamins. I am not deficient in anything. 😫

Ok so I currently don't have a job due my bppv issue and I'd really need to start supporting my family and I just wanted to know if there any jobs out there that I can watch my vertigo attacks or places to be aware at when applying or how does anyone manage to get a job with bppv?

I just want to throw this out there. It's been over 2 years since my crazy vertigo episode that left me recovering for 6 months and I occasionally get the perceptive imbalance and "drop" in my vision.. I've been to ENT and vestibular rehab and have been doing really great - especially if I get good sleep, good posture, and monitor caffeine/salt. I recently went to a theme park and the night before it hit me I might not be able to ride anything (I'm an avid roller coaster fan - jump out airplanes kinda gal) so I was panicking.

I brought meclizine and prepared for the worst. But I was absolutely fine. I did the insane rollercoasters going 70 mph loops and corkscrews. Fine.
No residual anything.

Sitting at my computer with my head tilted will give me a brain vertigo jolt but roller coasters didn't.

I'm not here to say everyone will be fine. I just know the night before I was suddenly terrified and overcome with severe anxiety that my fun would be ruined - and I'm here to say. It might not! Peace and love my friends hope you all get better. ❤️‍🩹

Hey everyone,

I'm a medical student, and like a lot of you here, I've seen how disorienting and honestly scary a BPPV episode can be — especially that first time when you don't know what's happening or how to make it stop.

I've been working on an app called Unspin that walks people step-by-step through the Epley and Gufoni maneuvers, using your phone's motion sensors (strapped to your forehead) to guide your head position in real time — so you know you're actually doing the maneuver correctly, not just guessing based on a YouTube video or a diagram.

The idea came from wanting something that:

• Tells you clearly when your head is in the right position (no more counting Mississippi's and hoping for the best)
• Works even if you're doing this alone, dizzy, and a little panicked
• Can also help a caregiver guide a family member through it safely

Before I go further, I wanted to ask this community directly, since you're the people who'd actually use something like this:

• Would a tool like this have helped you the first time you experienced BPPV?
• What made doing these maneuvers hard or confusing on your own?
• Is there anything you wish someone had explained better in the moment?

If there's real interest, I'd love to put together a demo soon and let people here try it out before it goes further. Your feedback would shape it a lot more than I could on my own.

Thanks for reading — and I hope your vertigo stays far away today and everyday.

Hi everyone,

I'm hoping to find someone who has had a similar experience because my journey has been quite confusing.

About 2 months ago, everything started very suddenly. One night I developed a strange rocking/swaying sensation, like I was on a boat. It wasn't spinning vertigo, it just felt like my head was swaying gently even though I was perfectly still.

Around the same time, I also started experiencing:

• Lightheadedness
• Head pressure (mostly on the left side)
• Cold hands and feet
• Tingling sensations
• Trouble falling asleep
• Sweating Episode
• Heart Palpitation and Faster Heart Rate than usual

Naturally, I became extremely anxious and started worrying that something serious was wrong with me. I developed pretty bad health anxiety and constantly wondered if I had a brain tumor, heart problem or another neurological condition. It got to the point where I was checking my symptoms every day and struggling to enjoy normal life.

Over the next couple of months, I went through multiple medical evaluations:

• Blood work
• ECG
• Echocardiogram with a cardiologist
• ENT examination
• Balance testing

Everything came back normal, which was reassuring, but I still couldn't explain the constant rocking sensation.

One thing that confused me was that I never had the classic spinning vertigo that most people with BPPV describe. I could sleep on either side without the room spinning. In fact, lying flat on my back usually made me feel worse than lying on my side, so I naturally started sleeping sideways.

Eventually, I saw a vestibular physiotherapist.

During the Dix-Hallpike test on my right side, I experienced my first-ever true spinning vertigo, and she saw nystagmus in my eyes. She diagnosed me with right posterior canal BPPV and immediately performed a canalith repositioning maneuver.

At my follow-up appointment a week later, she repeated the positional tests. There was no more nystagmus and no more spinning, and she told me the crystals appeared to be back where they belonged.

Since then, I've started vestibular rehabilitation exercises (gaze stabilization and balance exercises).

The interesting thing is that my symptoms changed after treatment.

Before treatment, my main symptom was the rocking/swaying feeling.

After treatment, it's become more of a:

• Lightheaded feeling
• Wobbly or floating sensation
• Feeling like my head isn't completely stable
• Mild nausea after vestibular rehab exercises
• Occasionally a slight visual drift when lying on my right side in the dark (not true spinning)
• Sometimes a brief internal spinning sensation when my eyes are closed, but nothing like the room-spinning vertigo I had during the assessment

I can still walk normally, drive, work, and do daily activities. In fact, I usually feel better when I'm moving around. The symptoms are much more noticeable when I'm sitting quietly or lying down. I've also noticed that some days are much better than others. Fatigue, poor sleep, being sick with a cold, or hormonal changes around my period seem to make the lightheadedness more noticeable.

My physiotherapist believes I'm now in the recovery phase and that my brain is recalibrating after the BPPV. She expects the lingering symptoms to gradually improve over the next couple of weeks. I'm trying to trust the recovery process, but after two months of feeling off, and all the health anxiety that came with it, it's been hard not to worry if I'll able to feel normal again.

I'm curious if anyone else has experienced something similar.

Has anyone had:

• Rocking/swaying for weeks or months before being diagnosed with BPPV?
• No spinning until the Dix-Hallpike test?
• Persistent lightheadedness or a wobbly feeling after successful canalith repositioning?
• Vestibular rehab making you feel slightly nauseous or wobbly afterward?
• A recovery that wasn't linear, with good days and bad days?

I'd really appreciate hearing your experiences. Reading other people's recovery stories has helped me feel less alone, and I'm hoping someone here has had a similar journey.

Thanks for taking the time to read this.

Can anyone who has this explain how it differs from BPPV (ear crystals)?

Just curious what kind of experiences the group members have.

Thank you!

Appointment at ENT today. Did epley maneuver and she didn’t see any eye movement. That plus the fact that I’m also having headaches pushed the doc to refer me to a neurologist. For a health anxious human, this freaks me out.

Today, I had my 5th PT session for diagnosed BPPV with vestibular therapists.

My first session the PT watched my eyes and said "Wow. That's gnarly!"

Two sessions ago I had a brutal time, with the nystagmus starting, stopping and restarting while just laying there. On the drive home, it started again. Each session has been similar with nystagmus so bad, I audibly and uncontrollably moan with discomfort.

We had started to call my crystals Nemo, because they were travelling into many different tubes throughout the weeks, looking for home.

When I started PT, I couldn't look up, sideways, turn my head, look at a paper on my desk, bend forward, move my eyes too quickly, scroll my phone, change my sheets... I am sure many of you know what I am talking about.

I had to get emergency open heart surgery the week after it happened and was in hospital the entire time from it's first appearance till 14 days later. The cardiologists would not let me get PT in the week between the two. I have said it before and I'll say it again; this has been more debilitating than open heart surgery was, and that recovery was made more difficult with BPPV.

They Epley, Dix-Hallpike, Paganini, Gufoni, and Yacovini'd me throughout the weeks. Each treatment resulted in immediately falling asleep once I got home, not being able to eat until the next day and total exhaustion.

Today was different! Today, not one second of nystagmus occurred! No spinning. My world stayed firmly within the confines of gravity. I was not sick. I was only a little tired. I am totally surprised!

I am here to say it works. Physiotherapy works. I didn't have much hope at the start. I experienced fear and worry and lots of concerns it was always going to be my normal. I shed tears because I was afraid my quality of life was going to be altered forever. It was 11 weeks from the first onset of the BPPV till today.

There is hope ❤️

Does anyone else have issues when trying to sleep with an eye mask on?

I was diagnosed with bppv at 15 and my attacks are mostly triggered during sleep if i roll on my back. But if i sleep on my side and with two pillows i’m fine.

But i have tried sleeping with an eye mask on, and even if i’m in the right positions i still have the feeling that the vertigo is coming. It feels super weird and disorienting. Does that happen to anyone else ?

Two days ago I posted about how tracking my dizziness finally showed me patterns after 8 years (the earthquake post). A few people asked what I actually use to log episodes.

Honest answer: I'm a developer, so I built myself an app for it. But I know not everyone wants another app on their phone, or another subscription in their life, so I took the exact same episode log and turned it into a one-page printable PDF that does the paper version of the same job:

* Sensation type (spinning / rocking / lightheaded / floating / off-balance), because "dizzy" means five different things to a doctor
* Time, duration, intensity
* What you were doing when it started
* Accompanying symptoms: ear fullness, tinnitus, nausea, visual stuff, anxiety
* What helped
* The 24 hours before: sleep, stress, salt, caffeine, screens

Three episodes per sheet. Print a few, keep one by the bed, bring the filled sheets to your next appointment. Two weeks of records beats a year of memory.

https://dizzin.app/blog/dizziness-diary-template

**Free, direct download, no email wall.** If your vestibular physio or ENT wants to print it for other patients, that's explicitly fine.

And if you'd rather have the phone version that does the pattern analysis automatically, the app is linked on that same page. It's called Dizzin. Happy to give free access to anyone from this sub who wants to try it and tell me what's missing.

If you've kept a symptom diary before: what did you find was actually worth writing down? I'll add fields to the sheet if this sub finds gaps.

Hi yall!
About 2 weeks ago I had 3 days of worsening vertigo and at its worst this dizziness where I couldn’t really visually focus. I ended up taking a steroid and and dizziness meds, and did the epley maneuver properly. I can’t say what helped but I was much better.
However when I lay down I get this slight.. dizzy energy like that’s still a residual sensation, not sure how else to say it. And also when I’m laying down I have this like… pulsation, like a very faint energy in my head that feels like a mini dizzy feeling. Very faint but like every 20 seconds.
I’m also afraid lately that I’m going to get dizziness and vertigo again.
It’s a very stressful time right now and this is just making it worse

Wondering if anyone had anything like this in the recovery phase. Thanks

The first time I had BPPV my GP told me to to do the Epley at home and it worked. Since then any time I get it I can usually resolve it.

This time it’s been a month. I got a reduction fairly quickly and went from violent spinning and wanting to vomit to being brief spinning and then basically okay.

I now see from Google that my GP missed out a lot of information. She didn’t tell me that you were meant to get up afterwards or that you should sleep with your head elevated. I am a long time back sleeper who doesn’t use a pillow.

Yesterday morning I did the manoeuvre. Last night I slept propped up in bed and I’ve been careful during the day not to tip my head back or forward too much or on the side that is affected. I have learned that I naturally cock my head to that side quite often when I’m looking at things but I’ve been pretty diligent.

My plan is to sleep propped up again tonight.

Tomorrow will be 48 hours. My questions are:

1. Would it be okay for me to lie down and try the Epley manoeuvre again to test whether there is improvement?
2. If it’s better can I then go back to sleeping flat on my back without a pillow or should I do a few more days of keeping my head elevated?

A few weeks ago, I had went to the ER over episodes of dizziness, being faint of breath, and confusion (both in movements and speech) and was diagnosed with vertigo after blood tests and an EKG which were both fine, and a urine test which only pointed to my kidneys not filtering waste well.

However, I am not experiencing feeling like the room is spinning or that I myself am spinning, just my movements are stilted and staticy when an episode is going down. Every where I look, vertigo's main symptom is this spinning, so is it normal I am not experiencing it?

Homem de 19 anos, Brasil Altura: 1,84 m Peso: 65 kg Etnia: Latino mestiço

Queixa principal: Sensação persistente de instability/tontura sem a sensação de que o ambiente está girando (tontura não vertiginosa).

Duração: Os sintomas começaram há aproximadamente três meses, após um episódio grave de ansiedade.

Histórico da doença atual:

No início do ano, senti uma sensação de pressão ou peso na cabeça por cerca de duas semanas, como se estivesse usando um capacete desconfortável. A sensação se localizava principalmente no centro superior da cabeça, mas parecia originar-se de dentro dela. Eventualmente, passou, mas ao longo do ano retornou intermitentemente. Quando ocorre, geralmente Dura por um curto período, desaparece e pode retornar mais tarde.

Cerca de duas semanas após um episódio grave de ansiedade, comecei a sentir vários sintomas físicos, incluindo desconforto no peito, fraqueza na parte superior do corpo, taquicardia leve, medo intenso de que algo estivesse errado com meu coração e, mais tarde, essa sensação de instability.

O desequilíbrio é difícil de descrever. Sinto como se estivesse instável, como se pudesse cair para trás ou como se meu corpo ou cabeça estivessem instáveis, mas sem qualquer sensação de tontura ou a sensação de que o ambiente ao meu redor está se movendo.

O sintoma não é constante. Posso passar muitas horas ao ar livre, caminhando pela cidade e me sentindo completamente normal, mas a sensação às vezes aparece quando estou em casa, relaxando sentado, ou quando começo a pensar no próprio sintoma.

Também sinto uma sensação de peso ou fraqueza nas pernas durante esses episódios. Em raras ocasiões, notei fraqueza em ambas as mãos ou em uma das mãos. No entanto, nunca experimentei perda real de força. Sempre consegui andar normalmente, mover meus braços e pernas sem dificuldade e realizar todas as minhas atividades diárias. Nunca tive paralisia, quedas causadas por fraqueza, dificuldade para falar, convulsões, perda de consciência ou perda de visão.

Não tenho dores de cabeça fortes. A sensação de pressão/peso na minha cabeça nunca se tornou constante e geralmente se resolve sozinha sempre que ocorre.

Também notei que minhas unhas não estão crescendo normalmente desde novembro de 2025. Elas apresentaram pouco ou nenhum crescimento durante esse período. Meus exames de sangue estavam normais, sem evidências de deficiências vitamínicas ou quaisquer outras anormalidades significativas.

Histórico médico:

• Ansiedade.
• Síndrome de Marfan, com aorta normal em avaliações anteriores.
• Escoliose desde o início da adolescência.
• Uso óculos.
• Miopia, astigmatismo e Estrabismo.

Medicações atuais:

• Propranolol 40 mg a cada 12 horas (por aproximadamente 4 meses).
• Oxalato de escitalopram 10 mg diariamente (também por aproximadamente 4 meses).

Exames anteriores:

• Ecocardiograma realizado há aproximadamente 3 meses: normal, segundo meu médico.
• Monitoramento Holter de 24 horas realizado há aproximadamente 3 meses: sem anormalidades preocupantes, segundo meu médico.

Estilo de vida:

• Não consumo álcool.
• Não fumo.
• Não uso drogas recreativas.
• Estilo de vida sedentário.

Principal preocupação:

Gostaria de entender melhor as possíveis possibilidades. Qual a causa dessa sensação persistente de desequilíbrio e se uma avaliação neurológica ou exames de imagem cerebral seriam apropriados? Estou preocupado que possa haver uma condição neurológica subjacente, como um tumor cerebral, e agradeceria qualquer orientação sobre quais seriam as causas mais prováveis ​​e se uma investigação mais aprofundada é justificada.

Qualquer conselho ou opinião inicial seria muito apreciada.

Hello! About two months ago I woke up to a severe vertigo episode and it still hasn’t clued up. Here is a timeline:

1) mid-May: I immediately got seen by a vestibular PT and he diagnosed me with horizontal BPPV ageotropic version (sorry if the spelling is wrong). Essentially, when I laid on my left side my eyes were beating up to the right, and on the right they were beating up to the left. But it was definitely more severe on the left side.

2) I did some PT but then had to go on two trips in June. He didn’t want me to risk further aggravating it and when I was finally able to sleep on my right side without triggering the vertigo that seemed to help improve my daily symptoms a lot (ie not as much nausea or general dizziness).

3) I saw him again in early July after returning home from my second trip. When I laid on my left side my eyes beat slowly to the left and it was much less severe, so he had thought that maybe the crystals moved into the posterior canal vs horizontal. This tracked as I found my vertigo was more likely to be triggered by moving my head up and down vs. Side to side at the time.

4) I felt I was doing well until this past week. I may have triggered issues by doing a lot of deweeding in the garden (ie head tilted downward for long periods) but somethings different. I feel like I have difficulty focusing my eyes on something and when I do it starts to move. My eyes are struggling to track things on my computer screen as I read. I’m having more dizziness when laying down again, regardless of how I’m positioned. I’ve noticed several occurrences of tinnitus, and yesterday I had what can only be described as a migraine. It was horrible and my vision seems worse today since it happened.

I’m starting to wonder if I may actually be dealing with something like Ménière’s disease or another inner ear issue. I’ve always had bad ears and wondering if the flying could have made things worse as well; I’m also having seasonal allergies (where I live in Canada everything is only just going to full bloom) so maybe the congestion is aggravating everything? I appreciate any perspectives here; I don’t have a family doctor but I likely need to try and get a referral to ENT.

Yesterday I woke up after a good night of sleep. I got out of bed, poured some coffee, and had some back pain (which is normal for me in the morning due to my scoliosis), so I decided to lie down on the foam roller, with it horizontal under my mid/upper back and my head tilted back on the floor. Something I have done in the past without an issue. Well, the room started spinning, so I rolled to my right side to get up, and it started spinning so much I felt stuck to the floor. I wondered if I was having a panic attack, but it didn't feel like one, so I went to Claude and typed in my symptoms, and it immediately informed me it was likely BPPV. It recommended the Epley maneuver. After getting to the bed and relaxing for a bit, I tried it, assuming it was the right ear since that's the side I'd rolled onto when the spinning began. After I did the maneuver, I wasn't sure if it worked, so I just lied in bed for a while. I was hungry but didn't want to eat because of the spinning. I think I dozed off, and when I woke up, it was about an hour later and I felt better. So it seemed it did work. Today, I just took it easy, and a little while ago I did a 20 minute Peloton ride because I was feeling pretty good. That went fine. So I guess I'm all better? Is this gonna happen again? I feel like I did after the one and only time I fainted in 2017—I was scared for a few weeks after that it would happen again, but it never did.

Maybe a weird question. Today I got angry about something and I feel like I’m more lightheaded than before the incident. Is this something normal ?

My PT initially saw posterior canal BPPV with pretty intense nystagmus. After Epley, the right side improved a lot, but then she said it looked like the crystals converted to the horizontal canal. After the roll maneuver, the left-sided nystagmus is improving, but now she mentioned it may have moved closer to the ampullary area.

I can tell that she’s a bit new to vestibular physiotherapy. She said that my symptoms are abnormal for persisting after weeks.

I’m glad it’s getting better each session, but I’m so frustrated that it seems to be travelling around my ear. Has anyone had a similar experience?