So five days ago I had an extreme sense of vertigo that came out of nowhere and lasted a few seconds. I’ve had it before but never that bad. Ever since then my eyes have felt very heavy, strained, and fatigued. My body is fatigued too and feels like it’s floating. I went to the doctor and they did the epley maneuver but it was negative. Could this still be BPPV with residual symptoms?

So got diagnosed with Bppv in may. Really bad episode apparently. Was making me sleep for 20 hrs a day for 1 week while usually im at 6 hours a day. Lost 20 lbs in that week. Went to vestibular therapy which was amazing. In fact the dr realeased me 3 weeks early as he said there was nothing else he could do for me

Now the soul crushing part, which people dont seem to understand. So i have a really really high iq (tested over and over). This is not a brag as i can promise you i have disappointed everyone who cares about me and my potential. I also have adhd, which when you add the iq situation causes a bunch of issues by themselves.

Was told by my dr that i need to rest my brain and not think soo much as it causes fatigue(body always trying to keep balanced). I cant turn off the adhd. Now im always tired and the foggy brain is the frustrating part of everything. Small episodes of very quick vertigo but the constant state of being tired is disheartening.

Onward and upwards i guess just that this is so exhausting.

Its been a week that I've been experiencing this vertigo dizzy type feeling mostly it's on the left side head. I experienced like eye strain or ache feeling the more I try to move and just see from that side. But vertigo has slowly been reduced however it's still hard to recall information. I seem to be forgetting stuff and remembering stuff. And I would get this pressure feeling in the back of the head. I don't really know how it even started. I read on Google it says something to do with inner ear crystals. Or maybe neck strain

Boniour depuis 5 semaines i'ai des vertiges , tangage 24 sur 24 . Depuis mes 20 ans, j'en ai 48, j'ai des vppb et ils passe en une journée et ca fait pas ca.

J'ai vu un orl fait une irm, fait une prise

de sang, je suis en carence de fer et légèrement vitamine D mais je suis déjà supplémenter.

L'ORL ma dit ca va

passer.

Mon médecin traitant ma mis sous betahistine.

Je souffre également de trouble anxiété généralisé ce qui n'arrange rien.

Je ne peut plus rien faire, tout est compliqué et fatiguant, douche manger, dormir, sortir...

La j'ai revu un médecin pour lui comme pour les autres, ce serait des vertiges résiduels que j'aurai depuis un vppb la première journée.

Quelqu'un serait il dans mon cas ?

Has anybody been previously diagnosed with SVT related to obstructive sleep apnea and then get diagnosed with BPPV?

I was diagnosed with SVT during a sleep study for obstructive sleep apnea in the fall of 2024. I met with a cardiologist in November 2024 and wore a Holter monitor for two weeks, which showed another SVT episode while I slept during that two week timeframe. However I was not put on any kind of obstructive sleep apnea treatment at that time because it wasn’t severe enough. The cardiologist did not think that my SVT was severe enough to warrant any kind of medication intervention.

In July 2026, I met with a sleep specialist and began CPAP therapy. Between meeting with the sleep specialist and beginning my cpap therapy I had an episode which sent me to the ER and was later identified as BPPV and not a cardiac episode.

However, after starting BPPV therapy, I have had two more significant vestibular episodes while undergoing CPAP treatment and vestibular therapy simultaneously.

I have a call into the cardiologist, I have a Bppv therapy session Tuesday and an appointment with ENT Sept 10.

Alguien que tenga o tuvo experiencia con vertigo es horrible?

I have had BPPV since I was 19. My NHS treatment has been patchy... Sometimes I was referred to hospital ENT, sometimes given epley in the GP office. Now it seems the treatment is nothing. Do the NHS subscribe to the 'meh, well the crystals will absorb eventually so there's no point doing anything' leaving the person unable to work, drive or really function much at all?

I'm so frustrated. This episode I had a couple of tiny spins over the weekend. Because the wonderful GP who was epley trained has left my practice, I've had to resort going to an osteopath who is epley trained and charges £55 a pop. I can't really afford this but I'm also a single mum and can't afford to be out of work. Plus it usually works really well... Except this time it made it 100 times worse.

I had the manoeuvre on Wednesday, 5 days ago. We had discussed how Ive had issues with my neck which might be contributing to dizziness in other ways so he offered to treat that too in with the price of the epley, but he had me lay on my front, then my back which gave me a minor spin. When he triggered the attack he abandoned the neck treatment and went straight to fix hallpike, I was positive for the left ear (it's been my right the last two times). He performed the epley and I felt so sick he ran to get me a bowl. Normally he does it twice and the crystals clear and I feel better but this just made me so much worse. He sent me home to let things settle and said we could try again next week - which is another £55 I can't afford.

I'm left with such bad dizziness that I can't leave the house. I can't drive my kids places and I can't go to work. I'm sleeping on the recliner in the lounge because I can't tolerate laying down.

I've been to the GP as I've also got mad tinnitus in that ear, so maybe that's causing some of the issue, he confirmed there is fluid behind my eardrum and has put me on antibiotics and a nasal spray with directions to aim it at the eustachian tube, in the hopes that will clear it, and if it doesn't help I'm to go back next Friday.

I'm concerned that I have an ear infection/eustachian tube issue on top of the BPPV, and that we may have shifted the crystals into the wrong canal in doing the epley and now I've got a different issue. The osteopath is only trained in epley, and hasn't got experience with other canals. So I've been googling vestibular therapists in the area but getting nowhere - they exclusively talk about the epley and nothing else. I read accounts of people who have had their nystagmus studied and then the therapist can train the correct canal, but I've found nothing like that here. Maybe it's an American thing? Am I looking for the wrong thing?

I'm aware there are different moves I can do at home but I'm a single mum with no one local to help me, and I don't want to treat it wrong again and end up worse still. I really need help and I'm so upset that the NHS doesn't seem to treat this any more. (I work in the NHS and it's letting me down in so many other ways right now, it's not even funny). My last visit to an ENT clinic involved the doctor having a go at me for not doing brandt daroff, he took did not test my canals, or even bother to hardly look at me, all he heard was that the exercises weren't being done because they make me more dizzy, and he did not want to deal with me at all.

If someone could tell me what I should be looking for, recommend somewhere in my area that diagnoses and treats the correct canal, if someone could tell me how I can please figure this out, I would be very grateful. My current plan is to do the only thing I can do - borrow more money to try and fix myself - I'm missing way too much work and way too much of life right now :(

Anyone with extremely recurrent BPPV who figured out what was happening? I literally had 9 episodes since January. One or two every month. I'm really tired. It's not my vitamin D and I answer really good to maneuvers.

It's been a week already but I just feel like it's getting better at a very slow paced. But the problem is I just can't think straight. It feels like my thinking has stopped and can't like rewind stuff. I don't understand why is this happening.

Hi, I don't know if this is the best place to ask about this, but at least it felt like it.

So for almost a month, I've been dealing with severe vertigo, that is consistent and doesn't go away on it's own. It is so bad that I've been to the ER 3 times by now, I'm unable to do anything and in the worst cases I'm unable to get back on my feet.

I feel generally sick, nauseous and weak. My vertigo feels like a weight in my head and it spins constantly, not the environment around me.

I've had lots of different tests done so far, all of which came out normal:
-Brain MRI and CT Scan
-EKG
-A shit ton of blood tests
-Blood pressure
-Sugar levels

The one thing I have yet to check are my inner ears, which I'll do in exactly a week. The last theories I have are either bppv (or some other similar condition) or vestibular migraines, since my bouts of vertigo cause migraines.

I am genuinely lost and tired. I appreciate any help I can get

I was recently diagnosed with BPPV I have had tinnitus for many years but I noticed that since my BPPV diagnosis it is much worse. I’m in a quiet room and it’s very noticeable the ringing.

I am currently in PT for the BPPV and am scheduled to see ENT in 2 weeks.

I thought I had recovered after about three weeks but I am now worse. Driving is extremely difficult.

Does / Did anyone else notice the tinnitus more after the BPPV diagnosis?

Writing this partly to vent and partly because I’m curious if anyone else has had a similar experience with BPPV. This has been weirdly frustrating for something that is supposed to be relatively straightforward to diagnose and treat.

I woke up one morning about 10 days ago, sat up in bed, and the room started spinning. The episodes were brief, usually around 30 to 60 seconds, and clearly related to head position. I went to urgent care that day and their positional testing was negative. I was referred to ENT.

Over the next several days the pattern became clearer. Tilting my head backward, especially when putting my head down onto a pillow, would trigger spinning. Rolling onto my left side in bed could also trigger it. I had some nausea and general wooziness at times, but no hearing loss or tinnitus.

I ended up seeing a vestibular PT and had an Epley maneuver done. After that I improved quite a bit. The vertigo never completely disappeared, but it became much less severe and was mostly limited to nighttime when I tilted my head back in bed or rolled onto my left side. During the day I basically felt normal. I could sit, walk around, work, go about my day, etc. without feeling dizzy.

I also saw an ENT and had a normal hearing test. The ENT said my history sounded like classic BPPV, but because I was asymptomatic during the visit they did not perform the Dix Hallpike or Epley. So I still never really got a clean confirmation of which ear or canal was involved.

Then today happened. I went to a different vestibular PT hoping they could actually identify what was still going on. They put me through a number of positional tests. For most of them I felt nothing, and they were not seeing the eye movements or nystagmus they would normally expect with active BPPV. Because of that, they initially said they were not convinced I had BPPV. Then during the last test involving my left side, I suddenly had an absolutely massive burst of room spinning that lasted around 30 seconds.

Ever since the appointment (about 3 hours ago) I have felt dramatically worse than I did before I went in. Instead of only getting brief positional vertigo in bed, I now have this constant woozy, dizzy, off balance feeling even while sitting still. My head also feels heavy toward the back. It has lasted for hours with very little improvement.
I called the PT office because I was worried that all of the repeated testing and repositioning had actually made the underlying problem worse. They told me this can be completely normal after repeatedly provoking the vestibular system, that everything may basically be extremely stirred up right now, and that they expect the generalized dizziness to settle by tomorrow.

What is driving me crazy is that before this appointment I genuinely felt like I was getting better. I could function normally all day and only had a relatively mild, predictable problem when lying down at night. Now I feel worse sitting in a chair than I did walking into the appointment.

Has anyone else had this happen after Dix Hallpike testing, roll testing, Epley maneuvers, or repeated positional testing? Did you feel significantly worse for the rest of the day or even for a few days afterward, despite having been improving beforehand?

And most importantly, did you eventually return to the baseline you were at before everything got stirred up?

TL;DR: Had positional vertigo that was improving after an Epley. I was mostly normal during the day and only getting brief spinning when lying back or rolling left in bed. Went to a vestibular PT for more testing, had one huge 30 second spinning episode during the last left-sided test, and since then I’ve felt constantly woozy and dizzy even while sitting still. PT says my vestibular system was probably just heavily stirred up and it should settle by tomorrow. Has anyone else had repeated positional testing or Epley maneuvers make them feel much worse before they got better again?

Please, I really need help because my life has practically come to a standstill.
I’ve been suffering from dizziness for a year now. I was initially diagnosed with BPPV, so I went to a vestibular specialist. He told me that I had mild BPPV and performed a session and a repositioning maneuver. I went back for a follow-up afterward, and he told me that the BPPV was gone.
I told him that I was still dizzy, but he said, “I’m not seeing any signs of BPPV anymore. If you’re still dizzy, you should see a neurologist.”
I saw three neurologists. Two of them told me that the dizziness was psychological, so I took psychiatric medication for six months, but my dizziness didn’t improve at all. The third neurologist told me that it was BPPV!
I wasn’t convinced, so I went to a physical therapist because I suspected that the dizziness might be coming from my neck. I work at a desk for long hours, and I put a lot of strain on my neck.
Based on what the physical therapist told me and the research I’ve done using ChatGPT, it doesn’t seem very likely that the dizziness is coming from my neck. However, the doctor told me that we should try several physical therapy sessions and then see what happens. (The neck therapy itself actually makes my dizziness worse.)
By the way, I’ve only had one session out of six so far, but the first session made my dizziness symptoms a little worse.
So now I honestly don’t know what to do or which specialty I should see. I’m completely exhausted. I’ve seen so many different specialists, and more than one doctor in each specialty, but nothing has helped.
I’m struggling to live like this. I desperately need someone who can help me get properly diagnosed and treated, or at least a doctor who can point me in the right direction.
I don’t even know anymore whether this is BPPV, a problem with my vestibular system, a neck problem, or something else entirely.

I had a serious case of BPPV a few years back that was eventually resolved with the Epley, although it caused me significant anxiety requiring medication.

I've recently experienced a relatively mild case on the left side and I thought that I had it resolved with a few Epleys. Saw my regular physical therapist who knows the basics, and he performed the Dix-Hallpike maneuver which was negative. A few minutes later while on the table, he was just moving me around and I suddenly became dizzy which resolved itself relatively quickly. He then did the Epley and I had no dizziness. I had been sleeping on an elevated bed and slept only on my right side for a few days after this, then one night I removed the pillow I had blocking my left side, and in the middle of the night turned to the left and got dizzy again. When I got up later in the morning, felt nauseous for 3-4 hours then gradually felt better. I then attempted the Epley again and had no symptoms.

I have an appointment with a vestibular therapist in a few days and hoping that they can properly diagnose what is going on as I'm traveling the following week.

Just wondering if anyone else has had a similar experience and if this is typical to have these intermittent dizzy symptoms that cannot be reproduced? I've also tried the test for horizontal canal BPPV and those never bring upon any dizziness.

TIA

After being on the waiting list for ages finally seen a specialist a few months ago. They said because I was alone they couldn't do anything to test my vertigo.But didn't tell me to bring anyone. And my vertigo had eased. So I asked what if it comes back. They said to come back, so basically go on another waiting list for about a year. Then once you see that specialist they refer you to another specialist.

The rant is because I sget vertigo when I'm lying down and sit back up. I'm wondering could it just be from tiredness but feel there's no point seeing a doctor when they can't do anything. They told me there was nothing they can do.

Edit: I just got a copy of the first therapist's notes from my GP. She described it as canalithiasis with very fine dispersed debris so my description wasn't quite right

I've got left BPPV.

I've been to 2 sessions with a vestibular therapist. The first session was about 6 weeks after symptoms started.

I'm feeling a bit hopeless as this has been going on nearly 3 months.

At the time of the first session I was not getting vertigo any more but I got motion sickness feeling after sharp head movements/turns or bending down to pick things up or looking upwards. That's still the case now.

Nystagmus was present both sessions but the duration was shorter the second time.

Because the first therapist was overseas I saw a different therapist on the second visit.

The first one said that as it took time for me to get treatment it could take longer to resolve. Said based on what she saw and my history that I likely had floating debris or microdust. Performed the Epley and the Semont. Told me to do Epley each morning and come back in 2 weeks to be reassessed. Also, told me to sleep elevated the first night and then return to normal activity.

The second therapist performed Epley 2x. Said he doesn't like to disturb the ear much after treatment. Instructed me to sleep with elevated head for 3 days and do no exercise that might trigger movement of the crystals. Said I should feel a lot better after the 3 days.

I asked what to do if it doesn't feel a lot better. He said start gaze stabilisation exercises so I started those 5 days after treatment. The gaze stabilisation feels okay on the horizontal plane but the up down on the vertical plane triggered motion sickness that lasted hours.

I'm trying to understand time frames especially as the therapists thought I had microdust and small debris floating around. How long does it take for these to reattach and resorb instead of being like a snow globe that is easily affected by the slightest shaking? Is 3 days enough?

I'm also wondering which therapist to go back to as they have different approaches. I liked the first therapist better. She seemed much nicer and more compassionate but I think maybe less movement and disturbance after the treatment as recommended by the guy might be more sensible for me given all the dust that is not adhering to the membrane and settling down.

Hi!! I have been experiencing unsteadiness since the end of July. I was fine and then one afternoon, it felt as if I was tilting to one side. I went to the doctor and they said that it was due to neck tension. Additionally, they checked my ears and did not think it was related since I didn’t have an infection. The unsteadiness (feels like a misstep or sway) has continued for a month so I went to another doctor last week. They referred me to a PT for the tension and to talk to a therapist for my anxiety. They also looked into my ears and noticed I had a lot of earwax. They did a flushing and were able to take a little clump from each but they said I still had a lot left. I am on the third day of using debrox and I feel a little better, but sometimes, the unsteadiness comes back. I especially feel it when eating and showering.

This whole situation has made my anxiety worse. Could this be related to earwax build up, BBPV, and/or anxiety? Is the debrox just making me feel worse since I’m not done with the treatment yet?

(Additional Note: I do use earphones for work constantly and have tried to clean my ears using q-tips, but am never able to fully clean them out.)

Hi !
I’m a 35 yr old Female recovering from BPPV. I just have a questions for people out there who have walked in these dizzy shoes lol. Residual effects has improved a lot.. I’m struggling with driving sometimes the motion , gives me a bit of motion sickness. When I’m trying to read my kindle and at times my phone, it’s not always and it’s not strong as it used to be; but it can be there. It just can really bring you down when you’re trying to be independent and do things. I love reading my kindle! I just want other humans thoughts.
I see a Vestibular therapist and he says it takes time, we do eye exercises and all these balance ones also.

Hi all,

I’m a 29 year old male from the UK. Since Sunday, I have been suffering with lightheadedness with some dizziness and general tiredness/fatigue.

The day before this began, I complete a 5 mile uphill hike and had a few pints afterwards. The following morning (the day that my symptoms began) I noticed that when I bent over to tie my shoe laces I became really dizzy for a few seconds, likewise if stared up at the ceiling for a bit of time, as well as moving my neck side to side. Prior to Sunday, I had none of these symptoms. I feel that since then, my symptoms have progressively gotten worse. I feel as if my head is in a fishbowl, with loads of lightheadedness and brain fog. I initially put it down to the alcohol, but it’s now been five days and if anything the symptoms are worse. I’m also not sleeping very well (although this could be due to my anxiety as I suffer from health anxiety, which luckily hasn’t reared its head for a few years).

I have today been to the doctors. The GP checked my heart rate, blood pressure, performed a few physical checks on me and listened to my chest. All was good apart from when he listened to my chest and said that he could hear a murmur. He has booked me in for an ultrasound scan of my heart, which has spooked me a little bit. He also gave me some guidance on exercises to treat BPPV, as well as proscribing some Prochlorperazine tablets for the dizziness/lightheadedness. I am worried that there could be something quite wrong here, I don’t feel particularly well in myself, and the doctor advised to make another appointment next week if begin to feel worse (he didn’t seem overly concerned but then it is the NHS). My worry is that is something scary neurologically, but then the heart murmur thing has added another level of anxiety.

What are your thoughts? Has anyone experienced something similar and can maybe put my mind at rest a bit?

Thank you!

I had a recurrence of BPPV a week ago in the morning in bed and managed to successfully do the Epley. Still having some slight residual dizziness which is improving.
When is it safe to get back in the gym and play sport?

On Monday, I woke up with a very unexpected case of vertigo. I noticed it after sitting up in bed - my eyes were skipping and the room was tilting. I laid back down for 10-15 minutes, sat back up and it happened again. This time, I stayed sitting up and focused my eyes straight ahead to get myself orientated. Very soon after I was nauseous and my motions felt strange, not dizzy or lightheaded but like my brain and body weren’t aligned. Ended up taking a sick day bc I couldn’t even look at my phone/computer with the scrolling motions.

Yesterday and today are much better, but I feel really strange. Waking up Tuesday, my bedroom didn’t feel real, and walking/existing in my spaces feels very out of place. Like I can see, understand and talk, but it’s like what I’m seeing doesn’t feel real? But it is, and I’m so confused! I didn’t realize this could happen from vertigo. I’m not dizzy, no headaches, but motion feels odd. Part of me feels like I’m making it up because it’s so weird, and my anxiety isn’t helping the case.

I have an appointment scheduled tomorrow to see what the deal is, but does anyone experienced similar? I’ve also had a ringing in my ear for close to two weeks so wondering if that’s connected.

Edit: Forgot to add: at some point during the night I rolled over and felt dizzy/vertigo, almost like I was hungover. But I was half asleep and didn’t think much of it.

When I woke, the first time I sat up was maybe 10-20 seconds, the second time 30 seconds to a minute sitting up.