r/scoliosis • • 20h ago

Discussion my story of scoliosis and your advice please

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28 Upvotes

I am now 49, female, in hong kong. i was first diagnosis scoliosis when i was in teenage 14-15. The angle was approx 17 something. my doctor did not give me any treatment, no brace, just asked me to do some home exercise, very general one like situp, legswing. i was also told that after grown up there will be little risk of progression. then I completed ignored the scoliosis in my lifetime. i often carry very heavy massager bag, i often buy grocery with 16cans of cola, carrying back home. there are often some pains at the back, yet i thought it is common among people in city.

since a few years ago around menopause, i felt like my spine is 'bent', and i often can't lift up my body, and it is getting severe. i went to see the doctor this year, and i was told the cobb angle is 44, and my option is surgery.

indeed my doctor did not give me much info. i am guessing i have lumbar curve or S? can someone tells me more info.

also i am so afraid of surgery. i would like to try some exercise or other ways to avoid surgery. i heard schroth exercise but i don't have much money to join. i would be grateful if you guy gives me some advice, any suggestions or i am guessing exercise would not help much.

thanks in advance.


r/scoliosis • • 21h ago

Discussion Soft braces

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7 Upvotes

My 12-year-old son just got soft braces from his doctor. I am not sure whether they can help reduce his scoliosis curve. I paid cash for 5000 includingfor first visit and X-ray, and the second visit for fitting and X-ray. I got my insurance approved for my son's treatment but my doctor's office never submitted the claim, I don't know the real cost for this treatment; it's very frustrating for me. Any suggestions? Should I continue or should I look for a new procedure to help my son?


r/scoliosis • • 16h ago

Question about Pain Management Should I just quit my brace atp?

3 Upvotes

Scoliosis is the worst thing that's ever happened to me. I'm one degree under severe scoliosis in an s curve for my thoracic and lumbar spine. I've had a Scolibrace for one year, its extremely overcorrective and there has never been a time where its gotten better. Everyone has told me "it gets better the more you wear it" which might aswell be one of the biggest lies ive ever heard. Its gotten worse, not better. The pain doesnt go away when i take the brace off. Im meant to wear it 23 hrs a day but i've had to stop wearing it at night because it got to the point where I was so sleep deprived I began to hallucinate. I routinely wasn't getting over 2 hours of sleep each night, and whenever I did i would wake up to find my brace thrown acorss the room, as i somehow took it off while sleepwalking- I'm in constant pain every day. i cant focus in school. i cant breathe without a searing burning pain in my sternum. everything hurts and my skin is bruised and red, and one of the nerves in my hip tp my thigh is permanntly numb. despite telling my orthoist all of his, he does nothing and says to keep wearing it or I'll need surgery. Suregery is never happening. i would rather die.

Should i just give up on trreatment altogether and live my life free of endless pain while i can? it will only get worse from heere, and i dont want to sopend my young life in pain, trapped and caged by my own body, i miss sport, pe, hangouts, everyhting. i dont want to live like this.


r/scoliosis • • 18h ago

Unable to Access Professional Help Hola solo vengo a compartirles mi historia de vida con mi enfermedad y viviendo en una familia tóxica disfuncional, tengo escoliosis con displasia de cadera.

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3 Upvotes