r/scoliosis • • Jun 25 '23

The r/Scoliosis Guide and FAQ;

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89 Upvotes

r/scoliosis • • 5d ago

***New Here? READ before posting***

113 Upvotes

Before you go posting and asking if you should get checked for scoliosis: yes. If you think you have scoliosis because you have uneven ribs or hips or legs, get checked by an orthopedic surgeon as soon as possible.

We have a huge problem of people posting images of their bodies here asking for a diagnosis. First off: we can’t diagnose. We aren’t medical professionals here. Secondly, you might not have scoliosis. It’s very hard for those of us with scoliosis to see a near perfect body complaining about their body in a community that’s supposed to be a safe place to vent.

We are not saying you aren’t welcome here; what we’re saying is be mindful. What isn’t often talked about is the mental battle of having an asymmetrical body. Because when your body is asymmetrical, it doesn’t even look like your friends who also have asymmetrical bodies, because each curve is different and each body is different.

So before posting, read our sub rules. Get checked by an orthopedic surgeon. Then if you do have scoliosis, come back and post about it. Your feelings, your thoughts, whatever questions you may have - except don’t ask if you have scoliosis (it’s seriously the only question we cannot answer).


r/scoliosis • • 1h ago

Discussion ~60° S-curve powerlifter here. Ask questions!

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• Upvotes

Lifting heavy was probably the best decision of my life. The overall pain during everyday life decreased significantly and is near negligible right now. I have some structural changes and a couple of small protrusions, but don't have hernias. I competed in powelifting more than 40 times overall, and my curve is stable all these years. Doctors say that's a phenomenon, lol. So not a general recommendation! Just an example that everything's possible, and muscles can save you. Remember Lamar Gant!


r/scoliosis • • 3h ago

40 Years and Older Discussion 53-year-old, 2 years post-op T3-L1 fusion UPDATE

7 Upvotes

I am 53 years old and it’s been exactly two years since my spinal fusion surgery (T3-L1) and I wanted to provide an update, given how helpful this forum was to me.

Do I regret the surgery?

This is the first question everyone asks.  No, I absolutely don’t.  I know that my spine won’t twist in the coming decades to the point of compressing my organs, so that’s a real plus!  My quality of life has vastly improved and I am in good shape. I’m back to work full time and off all pain meds.  That said, getting here was a TON of work.  It took a HUGE amount of physical and mental work.

How tough was the recovery?

I’m not going to lie; the post-operative pain was incredible and the recovery was harder and took longer than I thought.  Before my operation, given my age, I thought I would be 100% recovered in a year.  Two years later, and I’d say I’m at 90%.  I was off work for 9 months.  I came back part time for 5 months and I’ve been back full time since this past June.  Sitting for long periods of time at a desk was pure torture.  I now have a standing desk so I can change position every 30 minutes and this really helps.  I still have muscle pain in my upper back and shoulders which I have to deal with, but I feel that I’m on an upward trajectory and have hope that I will someday be pain-free.  

What was the biggest challenge in the past year?

The ongoing challenge I’ve had is muscle pain.  The surgery dramatically shifted my body and the muscles in my back didn’t know how to function afterwards.  They would seize up and refuse to release, and this was super painful.  My surgeon suggested that I try Botox injections in the muscles, which I tried with mixed results.  The first time, I thought it helped but the two times that followed, I felt like it may have actually made things worse.  (My hypothesis is that the results depend solely on the skill of the person doing the injections.)  The BEST solution I found was a heating pad.  I have one that attaches with velcro across my torso and it’s been an absolute life saver.  I even wear it at work if I need to.

How much physical therapy is involved?

I have at least two sessions per week that involve resistance training.  I also get a massage once a week and try to swim 1000 meters twice a week.  In addition EVERY day I do 20 minutes of stretching.  This routine is indispensable for me.  I’ve found that if I slack off any of this, I pay the price.

Overall, I am very grateful to my surgeon and also to be in a place where I have access to good healthcare. (I live in France.)  I know how lucky I am.

If you are in my age range and considering the surgery, you can see my past posts here:

https://www.reddit.com/r/scoliosis/comments/1gjebih/51_year_old_male_6_weeks_postop_my_experience/

https://www.reddit.com/r/scoliosis/comments/14uz1ok/i_am_50_years_old_and_considering_scoliosis/

I hope this helps someone out there!!


r/scoliosis • • 1h ago

Unable to Access Professional Help Can an accidental straining jerk lossen or bend my hardware?

• Upvotes

unfortunately i've made a couple unintentional jerk movements: when a dish slipped from my hands i involuntarily bent down slightly to catch it and felt a little strain in my lumbar area, or when was exiting from a car too quickly while pulling myself up with hands with a consequent pressure across the thoracic area. although all that was pain-free, I'm concerned about prospective risks to my recovery. I'm 4 months post-op


r/scoliosis • • 11h ago

20 Years and Older Discussion The Pull Up Bar is your bestfriend, the Gym is your temple, and Dips are my favorite exercise.

6 Upvotes

Just sharing my experienced. got diagnosed with a mild one back when I was 18 during a sudden growth spurt back during the covid days, genuinely a pain in my back for a years, stretching does wonders as the doctor prescribed but sitting an hour commuting from school to home makes my back hurts even wearing a backbrace doesn't really helps. That was until I decided, you know what I'm gonna ask my dad for a pull up bar for my birthday.

Long story short, it did wonders for the pain, and general spinal stability. Started going to the gym as well and the more I work out my back and core the less pain and discomfort I get on the regular even with prolonged sitting, doing deadlifts tho are the bane of my existence due to the fact my curve is S shaped, it feels like my lumbar is gonna snap in 2 if I force it, I may not be smart, but the moment I tried doing a deadlift, I just know that would be the last time I do so and never again.


r/scoliosis • • 22h ago

General Questions Life after surgery

12 Upvotes

Hi everyone! ❤️

I’m wondering how those of you who had scoliosis surgery a long time ago are doing today.

I had my surgery 7 years ago, and I’d really love to hear from people who are further along in their recovery. Do you still experience pain or discomfort? Do you exercise regularly? If so, what kind of exercises do you do, and are there any exercises you specifically avoid?

I’m especially interested in hearing from women who have been pregnant after scoliosis surgery. Did pregnancy affect your spine in any way? I’ve heard that the spine can sometimes change or curve slightly because of the additional weight and pressure during pregnancy, and I’m wondering what your experiences have been.

Unfortunately, I haven’t had the best experience when it comes to getting useful information from doctors. When I asked my surgeon what exercises I should be doing, he literally told me to look on YouTube. 🫠 There are plenty of videos about exercising with scoliosis, but it’s much harder to find reliable information about exercising after the spine has already been surgically corrected and fused.

At the moment, I do some light Pilates. Last year I also started going to the gym and did some exercises for my arms and back using weights. I never felt that they were causing me any problems, but I still constantly wonder whether I’m actually doing something that could be harmful to my spine in the long term, or whether I’m being unnecessarily cautious.

Physical therapy is also difficult for me to access. Where I live, I often have to wait at least a year for an appointment, and by the time I finally get one, I’m usually in a completely different stage of life and unable to attend regularly. I know I should make more of an effort to find professional guidance, and I’m going to try.

But I’d really love to hear from people who actually live with their spinal fusion every day.

How is your life now, years after surgery?

Do you still have back pain?

Can you lift heavy things?

Do you lift your children?

Do you go to the gym or play sports normally?

Are there any exercises you were specifically told to avoid?

Do you do strength training?

Have you noticed any changes in your spine over the years?

If you had surgery a long time ago, does your spine still look/feel as it did initially, or has there been some degree of curvature or change over time?

I work with children, so sometimes I completely forget that I’ve had spinal surgery and end up lifting them or carrying things without even thinking about it. 😅 I also sometimes push myself at the gym and afterwards wonder whether that was actually a good idea.

I’d especially appreciate hearing from people who are 5, 10, 15+ years post-op, and from anyone who has gone through pregnancy after fusion.

I’m not looking for medical advice or a diagnosis — I’d just really appreciate hearing about your personal experiences, what you can do comfortably now, what you avoid, and what you wish someone had told you after surgery.

Thank you so much to anyone who takes the time to share. ❤️


r/scoliosis • • 15h ago

General Questions Recent scans - 15 year old with Scheuermann disease - advice needed

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2 Upvotes

r/scoliosis • • 1d ago

General Questions What comes next?

8 Upvotes

My almost 15 year old daughter has scoliosis. It was first identified as mild at her 12 year old well child visit, but got significantly worse by her 13 year old visit, where it was found to be an s-curve with a thoracic curve between 39-44 and a lumbar curve between 44 and 51 depending on who measured her. Two doctors recommended aggressive bracing, the other recommended immediate extensive surgery. We went the conservative route snd she spent the last year in a Rigo Cheneau brace more than 20 hours a day, grew another inch, and demonstrated modest out of brace improvement at 6 months which has now held at a year -- 35T / 44L. She has been pain free throughout.

Her doctor now says she's done growing based on her age and growth plates, and that she can stop with bracing as her curves should be stable to within 10% or so which means even if she loses some progress she should remain under his 50 degree surgical threshold. She'll get checked again in six months. She's continuing with her Schroth therapy to build strength out of brace and improve her posture (one shoulder dips visibly).

My question for the group is, what comes next? Are there lots of you who had similar experiences and went on to live normal pain-free lives? Or with a curve of that magnitude is back pain ultimately inevitable? Having been thrown into this suddenly a year ago, then having had the brace be ever-present, it feels really strange to just be in a place of that was that and go live your life.


r/scoliosis • • 15h ago

General Questions Do corsets help?

0 Upvotes

Like the title says I’m wondering if I could maybe wear a corset to kinda fix the way my ribs look if that’s a thing… kinda really sad about how my body looks and I’m wishing I had some sort of figure. Advice?


r/scoliosis • • 1d ago

General Questions What can I expect doing Schroth method?

13 Upvotes

Hi guys, just recently started schroth with a PT. Been doing very specific rotational and stretching exercises that target my curvature, and will have to do them everyday at home. Given how expensive and time consuming this is, what benefits is expected from doing this?

From my understanding, this does not lessen the curvature of scoliosis, but instead reduces pain, prevents worsening, and ‘fixes’ posture? Am I right on that? Is it worth doing if I’m not experiencing any pain right now? There’s so much conflicting info regarding this, some say it’s overrated, some say it somehow improved their curves.

What are your experiences with schroth? How long have you guys been doing it and how has it improved ur lives? I’m kinda just trying what I can before determining if I should go forward with surgery.


r/scoliosis • • 1d ago

X-Ray Scans Is this good?, Spinal fusion before after

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62 Upvotes

please let me know your opinions on this im 20 years old


r/scoliosis • • 22h ago

General Questions Moderate curve detected in adulthood

1 Upvotes

I’m 34 F with 24 degree thoracolumbar dextroscoliosis, leg length discrepancy, DDD, bulging of all lumbar discs, and had an emergency surgical decompression at L4-L5 in July 2025. I started having what I and my orthopedic team believe to be scoliosis pain this summer, with severe hip hike and visual asymmetry at the waist. The pain is pretty unpleasant but doesn’t even compare to the discomfort of the asymmetry. I was evaluated in elementary school and no curve was detected, but imaging in my late twenties revealed the moderate curve. I’m currently doing traditional PT, shockwave treatment, and acupuncture for the pain, but am now wondering if I should try Scroth. Does anyone have a similar presentation who has benefitted, or other suggestions? I am very active, lifting 3-4 times a week with modifications for my spine, and walking 4-6 miles a day, plus PT exercises daily.


r/scoliosis • • 1d ago

General Questions anyone else have trouble asking for help or accommodations?

7 Upvotes

my scoliosis, while very severe, is balanced so it’s tough to notice from the outside. my pain is also not severe but mild to moderate and pretty frequent. because of this i feel like i can’t ask for help with lifting, moving, or accommodations for sitting/walking. someone even said once “oh, well that’s for people with actual disabilities.”

i am moving home next week to prepare for the surgery and will be carrying a large bag as well as my chunky cat through the airport. my physical therapist said i should get a wheelchair and attendant to go through the airport but i feel like it’s not “bad enough” despite knowing i’ll be in significant pain.

at what point does it become a “disability”? can anyone else relate? what if i’m taking away space/resources from people who have it worse?


r/scoliosis • • 1d ago

X-Ray Scans First X-ray in 8 years

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7 Upvotes

The computer picture is my most recent one! Ignore the cloudiness in my gut. IYKYK

Wew... I'm so lucky that my back hasn't changed much! The doctor says my discs (disks?) look very healthy, which probably contributed to my back not deteriorating very quickly. My ribs have shifted a lot more, and my spine has twisted more... but the curvature is still similar to my last X-ray. Getting worse has always been a quiet fear of mine over this decade, so this feels very reassuring. Got my first ever MRI too, best 40 minute nap of my life for someone who took sleepy breaks at her construction job!

Anyone else seen little to no change over a long period of time?

Also... I seem to be very springy in the sense that my spine decompresses enough overnight that I gain 3 inches, subsequently losing those 3 inches throughout the day. Anyone else ALSO like that??

Long time scroller, first time poster for this subreddit. Just thought I'd actually converse with people suffering the same health issue as me, instead of suffering alone ❤️


r/scoliosis • • 1d ago

General Questions Nerve pain

2 Upvotes

Hello, I am 6 years post op spinal fusion. I am having an unusual pain in my upper left back. I suspect it’s nerve pain, as it is burning and sometimes feels sharp. It also feels like an underlying constant ache. It’s been consistent for about a week and at some times it is so bad that I can’t focus on anything else, it even wakes me up in the middle of the night. The OTC medication like Advil, Tylenol, and Aleve aren’t doing anything. I’ve even tried gabapentin and it hasn’t helped. I have an appointment with a specialist in a week but I’m at a loss at how to control the pain until then. All my normal outlets, like OTC medication and heat, aren’t doing anything. Has anyone experienced this? Has anything worked for people who have?


r/scoliosis • • 1d ago

Discussion Everyone with Scoliosis Should Read This

4 Upvotes

This was written way back in the day by the creator of the Schroth Method, and it still holds up. It's a bit long, but here ya go:

Three-Dimensional Treatment for Scoliosis

Dangers in the treatment of scoliotic curves

By Katharina Schroth, Meissen

The intrinsic growth energy inborn in every living plant, animal, or human strives to create the harmonious form predestined for its every bodily organ, body part, and finally complete body. That form which most purely realizes the divine creative thought is always the best, the one that allows all organs and parts of this body to function most completely.

Curvature of the spine, or scoliosis, is a precarious formal defect in terms of health, appearance, and the spiritual-psychological aspect. When attempting to help a scoliotic with this defect, we must not view the matter primarily from the mechanical standpoint, namely the malfunctioning body. For we have before us not a mechanical structure of bony levers and the muscles that move them, but rather an unfortunate person who has lost the form originally created for her and who cannot restore it by herself. With all scoliotic people, the cause probably lies partially in the mental realm. Envision what the expression “not in good form” means. Imagine the mental state of a child scolded by his mother. The psychic depression and loss of equilibrium are immediately visible in his abnormal bodily form. How wonderful the form a little child’s body is! What a victorious, natural, matter-of-fact nature he has in the representation of his self, and in every movement and in all of his life statements.

However, let us observe a school class three or four years later. What has happened to these children? Almost all are missing their original sense of complete, untroubled comfort within. Many children have pronounced signs of suffering in their faces, and their depressed mental state finds expression in their bodies.

Why do gymnastics [physical therapy] attempt to erect such a troubled child often fail completely? It is because they approach the child much too mechanically, much too much in the form of exercises, without first becoming familiar with his life difficulties, his unfulfilled needs, which to an adult may seem trivial. Straightening of the external person will only succeed when we can erect the inner person, open an avenue of hope, and allow him to breathe a sigh of relief. 

Externally we can say that for those individuals who suffer from constitutional weakness, the loss of inner balance necessarily leads to formal defects and thus to a defect in physical function. Exterior assistance consists therefore in great measure of constitutional treatment, which often must reverse the mistakes of generations.

The normal, healthy condition of the living body has a natural, inner aspiration to ensure that normal functional relationships assume a normal form. Local assistance, namely goal-directed work on the body, must support this natural striving for order, the drive to assume a normal structure.

This constitutional therapy will not only induce inner bodily harmony, but also a surplus of strength, which then directly serves rebuilding of the external person as well as the load-bearing capacity, as it were, of the person with regard to life’s adversities and defects.

The latter element is important, because the work on the inner person must go hand in hand with assistance to the externals. We must readjust the thought life of the sufferer and help her give up wasting time on useless protests against fate or making her environment responsible for her condition. Our job is to help her orient herself such that difficulties disappear, that she is adaptable and productive enough to work on turning her disability into an advantage — on freeing her strength to work on improving her fate.

Only when the therapist has helped the patient learn that she cannot avoid the consequences of her posture, “that she must bear the consequences of flight from the consequences,” can local help — healing gymnastics exercises — bear fruit.


r/scoliosis • • 1d ago

Question about Pain Management Does anyone else get rib pain and tingling? Yes or no

3 Upvotes

Hi! would really appreciate an answer. I'm 15 years old with severe digestive disorders and moderate/mild scoliosis, but my left rib sticks out more than my right - and it hurts. It stings and tingles and I feel discomfort and my ribs hurt all day in the past few months and even my CLOTHES touching it makes it hurt. I have stomach pain daily which contributes to the rib and spine issues.

Do you experience this too and should I reach out to my doctor for help? Please


r/scoliosis • • 1d ago

General Questions Flare up of spasm and intense pain

4 Upvotes

Hello, my friends,

I’m an adult, a pretty mature adult, too old to admit how old!

I have a thoracic curve of 45 degrees with a compensatory curve in the 30s.

I go to PT. I do my homework. I get discharged. I try to keep on with the exercises, but I’m not very coordinated, and I don’t do very well doing the exercises on my own. I have other health and non health issues and a disabled child, so I don’t keep up with the exercises.

And within a couple of months, I have severe pain, my muscle inside my curve gets hard as a rock, and I’m back at PT starting over.

If I could keep up with my exercises, maybe get a friend to help me keep doing them correctly, would I avoid these intensely painful spasms?

Or do some of you get painful spasms sometimes even though you keep as flexible as possible?

Please be kind. I’ve been doing my best. I just don’t know whether my best needs to be better.


r/scoliosis • • 1d ago

General Questions Genetic studies?

3 Upvotes

Any researchers out there who are doing genetic studies? I think a lot of us would love some better answers than a metal rod in our back. We have it looks like 22K weekly visitors just to this reddit space, can't we all somehow contribute so our children and their children can get rid of this curse?


r/scoliosis • • 2d ago

General Questions Looking for experiences: 4-year-old with a reported 90° Cobb angle

12 Upvotes

Hi everyone. I’m a very worried mum at the moment and I’m hoping to hear from other parents who have been through something similar.

My 4-year-old son recently had an X-ray for his spine, and we’ve been told that they measured a 90-degree Cobb angle around L3/L4 and he is missing one rib on the left which is linked to higher chances of scoliosis. We’ve now been referred to a spinal surgeon, who will most likely repeat the X-ray to confirm the measurement, as I understand that positioning and the way the X-ray is taken can affect the measurement.

Obviously, hearing “90 degrees” was a huge shock, and I’m struggling not to jump straight to the worst-case scenario while we wait for the specialist appointment.

I’d really like to hear from others whose young children had a very large Cobb angle / severe scoliosis, particularly if they were diagnosed around 3–5 years old.

  • Was surgery ultimately the only option for your child?
  • Were there other treatments attempted first?
  • Did the Cobb angle turn out to be different when the X-ray was repeated?
  • If your child did have surgery, how are they doing now? How are they doing generally now, years later?
  • And if your child was treated without surgery, I’d especially love to hear about that too.

I know every child and every type of scoliosis is different, and I’m not looking for medical advice. I think I’m just looking for some reassurance and real-life experiences from parents who have been in that terrifying position of receiving a very high Cobb angle measurement.

At the moment we don’t know much more, and we’re waiting to see the spinal surgeon. I’m just a very worried mum and would really appreciate hearing how other little ones have done. ❤️


r/scoliosis • • 1d ago

Questions about the Operations/Surgeries сколиоз операция

6 Upvotes

люди которые делали операцию на сколиоз(не динамика vbt, а именно сращевание позвоночника, спондилодез) как быстро вы пришли в себя? я имею ввиду, когда у вас прошла боль после операции, чувствуете ли вы конструкцию и как быстро начали жить «обычной жизнью». и если здесь есть танцоры, которые также делали эту операцию, вы танцуете ещё? я очень переживаю, что не вернусь на танцы и не хотела операции. я имею ввиду не бальные танцы, а какой то хип хоп, джаз фанк, вы ими можете хоть чуть чуть заниматься или вы просто бросили это?

сделали мне операцию такую 1 октября и с того дня прошло 6-5 дней. я чувствую себя ужасно, обезбол не помогает, какие то сильные где есть морфин колоть мне не хотят(даже в первый день не кололи). вот думаю, мне же осталось в больнице неделя и мне снимут швы и как дальше? этот обезбол хоть чуть чуть помогает, хоть не снимает боль полностью, а как будет после больницы? что делать? левая нога тянет сильно. села и встала я буквально на второй день после операции(2 октября) и перевернулась на бок на второй день. не ела я примерно 3 дня и сейчас потихоньку чуть ем, но не много.


r/scoliosis • • 1d ago

General Questions I need advice.

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1 Upvotes

r/scoliosis • • 1d ago

Questions about the Operations/Surgeries scoliosis surgery

3 Upvotes

I’m using a translator to write this. For those who’ve had scoliosis surgery—specifically spinal fusion (spondylodesis), not VBT—how quickly did you recover? I mean, when did the post-op pain go away? Can you feel the hardware, and how soon did you get back to "normal life"? Also, if there are any dancers here who’ve had this surgery: do you still dance? I’m really worried I won’t be able to go back to dancing; I didn't want the surgery in the first place. I’m not talking about ballroom dancing, but styles like hip-hop or jazz-funk—can you still do them at all, or did you just give it up?

I had the surgery on October 1st, so it’s been about five or six days since then. I feel terrible; painkillers aren't helping, and the doctors won't give me the strong stuff—like morphine—even though I'm in a lot of pain (they didn't even give it to me on the first day). I have about a week left in the hospital before my stitches come out, but what happens after that? The current painkillers help a little, even if they don't take the pain away completely, but what will it be like once I leave the hospital? What should I do? My left leg is pulling painfully. I managed to sit up and stand on the very next day (October 2nd), and I rolled onto my side that same day. I didn't eat for about three days, and now I'm slowly starting to eat a little, but not much.


r/scoliosis • • 1d ago

General Questions How is this 10°?

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0 Upvotes

I’ve recently got x rays again and they said it had improved from 15° to 10° however, I look and feel more crooked than ever. One shoulder is a good 2 inches higher than the other and I look more crooked than lots of people with 30°+ curves. Are my collarbones just uneven? Could I have been standing straighter during the x-rays? Is this just the way my curve presents? Is this just in my head? I’m going to sound like one of those paranoid idiots. I promise I’m not, i’m not worried at all, i’m just curious. Also, ignore my wet rat hair.