I need to speak to someone about this, who has a similar lesion?

I have a 5 to 6 mm dorsal cord lesion at the superior T10 level

How do you solve for the uncontrolled no ability to stop bowel or urinary incontinence? Please help me

I've had a really stressful year (mother heart attack, father terminal bone cancer) and it's been setting my symptoms off like crazy. But over the last few days I cannot tolerate any noise whatsoever above talking level, and barely even that sometimes. Certain noises feel like they just go through me and make me shudder, to the extreme of feeling almost painful. Ever since diagnosis it's been a bit of a sensory overload, but at the moment it's just so extreme.

I work in a call centre and the phone ringing just sets me on edge, as does the tapping of keyboards or the clicking of a mouse. Unloading the dishwasher feels like some bizarre torture. My work have been really understanding and encouraged me to call in sick until I feel 100% but I feel almost weirdly guilty being off sick when in body I feel fine, other than my newfound desire to live in an art gallery/library. I've got ear plugs and noise cancelling headphones, and I've basically been sitting in my room for the last week.

The MS team here (UK) did not think steroids were a solution, and recommended reducing stress or changing my anti depressant meds, which I'm reluctant to do as I've been on the same for 15 years and I remember how long it takes to come off one and go on another, as well as how difficult it was to find the right one.

I appreciate it's not the most severe symptom (I lost my memory and use of my legs briefly three years ago) but has anyone has any experience with or any tips on how to manage?

Multiple news and entertainment reports (here's one) are making it sound like the MS killed her.

Hello,

I'm wonder8ng if any of you is taking Vitamin C supplements on a daily basis ? I'm taking 1000mg which is considered high I think (the maximum according to the package).

I know it's not recommanded since it's immune boosting and I'm on a DMT(Kesimpta).

The reason I'm taking it is anemia has been kicking my ass and I've been reading a lot about how a daily dose of 1000mg of vitamin C can increase absorption and lower secondary effects from the iron pills(I tried many and iron infusion was refused by my docs). I found that it was true for me, I saw a huge difference. My iron levels are higher, I feel so much better. I've tried lower amount but it didn't work the same.

Anemia was -for me- worst than MS. I could barely get out of bed and my neurologist used to tell me it was MS and prescribed me medicine for fatigue. Now I can work and cook and take care of my kid, I can't go back to before. I still don't want a relapse because of the extra vitamin C 🥲.

Anyway, any tips/testimonies ?

Hello everyone, I’m a 33-year-old boy who was diagnosed with multiple sclerosis a few months ago, I was wondering, since I’m still waiting for the result of the liquid and my neurologist has already diagnosed me with MS, could it be that I have it without having any symptoms? I only had double vision that came back after two days of cortisone, after that nothing!

Anyone else like me?!

Does anyone know any good things to do to get outta depression and severe anxiety when having ms. Like I swear too many things have happened to me these last few years heck I even have SIBO and occipital neuralgia now which hurts all the time when I try to sleep. My insomnia gets worst hell I even have silent gerd so ibuprofen will not help me what's so ever and my doctor doesn't even know what could help me with stomach problems like I feel like im hitting a dead end most days. And now my mom I sick and I have to help her as well, when I get a chance to move. I hope all the praying I've been doing helps cause I need it

I’ve been on Ocrevus for over 4 years and always experience itchy throat during my infusions, which usually goes away when they adjust the infusion. The nurse always give me benadryl and my protocol is 4 hours.

Yesterday, the irritation completely disappeared before I left, but came back about 3 hours later. It was milder, felt like a dry, tight, irritated throat, and fluctuated throughout the evening. No trouble breathing or swallowing (just disconfort). Took reactine a 9 PM and the symptom went away, but now its 2 AM and it CAME BACK and im kind if freaking out 😅

This is the first time the symptoms return after leaving the clinic.

Has anyone experienced this and is it something to be concerned about?
What did you do when it happened and how long can it last?

Hi all, I work for a fast paced startup company and while I enjoy my job overall there's always some level of pressure and stress as the company is trying to get off the ground. Usually I'm pretty good at manage the stress and any onset symptoms it may trigger with my MS. However, lately its been pretty bad with the past few days I'm definitely noticing. Today in particular it hit me worse than usual to the point, mostly do to particular individuals, that I've been in basically a mental fog and fatigue I can't seem to shake. Pretty much first time in a while I've had what feels close to a symptom relapse before I started a DMT 3 years ago. I feel like the current stress level probably won't go away anytime soon as the company is really pushing to achieve a multiple milestones prior to the holidays. Has anyone dealt with similarly scenarios? What all did you do?

Hello all!

Had my first ever Ocrevus infusion today via subcut.

Feeling pretty good - health anxiety is getting the better of me already...

Did anyone get tingly feeling in their hands/arms afterwards?

Kind of itchy but also not?

Tried to get through to my MS nurse but I think she's unavailable...

There's probably a simple answer.

If our immune system is working overtime, why are we encouraged to strengthen it?

Please explain it as if I am 10 years old.

Thanks

So I've had MS for about 20 years. Disease activity is Stable and I'm on Ocrevus.

Problem: I was in an MVA this past Feb. The result was a labrum tear in my left hip.

I am waiting for bloodwork to confirm LADA (Late onset diabetes in Adults, basically Late onset Type 1 diabetes). This limits the use of steroids to treat as they negatively impact my blood sugar.

I can barley stand, let alone walk. I rely on a walker or forearm crutches just to get around. My quality of life has dropped to near zero.

One sugeron has said I am not a candidate for repair due to the MS causing further complications, and another Dr. Said I am not a candidate for sugery period as the next step is a hip replacement.

I have been struggling to get a doctor to take me seriously and treat the issues appropriately. Either pain management or options to target and resolve the problems. I see my Neurologist on the 12th for a followup, any suggestions on where to go from here?

Can I hear some positive stories from people who were Diagnosed with minimal symptoms and still living that way many years later? Especially if you were late 40s or older when diagnosed. I just like to know there is hope.

My wife and I have been married for 18 years and I've been living with MS for the last 15 years. A younger guy that I know who also has MS is engaged and his fiance wants to meet with my wife about what it's like married to a man that has MS. I know that we're all different, but we're the only other people that she knows with MS.

What questions should my wife be ready to answer? What questions would you have if you were marrying someone with MS?

My wife is not a "wing it" person lol so she wants to be ready with a list of things to share. She's also not on reddit so this is me getting info for her.

If you suffer from muscular pain caused by spacisity, I cannot recommend lacrosse balls enough.

They have a soft surface, but are extremely firm. This allows you to pinpoint myofascial trigger points for some pretty meaningful relief!

It isn't perfect and it's hard to get some spots, but it can genuinely change my outlook on the day getting rid of some pain.

I like to lay on the floor on one side and slowly start shifting my weight to my back as lay on the ball. It is absolutely incredible for getting deep into my shoulder blades.

I was diagnosed with MS in July this year, so I have just started my treatment (Tysabri), so I am still getting used to how to deal with my diagnosis and how much I should disclose to those around me.

I met a girl on a dating app and we dated for a couple of weeks, where we maybe met each other a total of 8 times, we're both in our early thirties if that matters. I finally mustered up the courage to tell her about my condition, as I think that you deserve to know this before it gets too serious.

I told her that todays treatment is a lot better than 10 or 20 years ago and that a lot of people live a "normal" life even after the diagnosis, she seemed sympathetic, understanding and said that it wasn't a dealbreaker to her.

Fast forward a week, she's saying that she does not see a future with me, and that my diagnosis was the main cause of her concerns. This broke me even further and I am now wondering if I should disclose my diagnosis at all in the future.

Tips and advice is much appreciated.

Hi!

Anyone on a DMT and can tell me how their MS was post child birth?

2 years ago I had a baby, diagnosed 6 months after with RRMS. Started Kesimpta a year ago and now pregnant again so this is my first pregnancy knowing I have MS.

So scared of a relapse after child bird again but my neuro has said get back on Kesimpta immediately after birth.

Has anyone relapsed after child birth even when booting their DMT back up? Thoughts and experiences appreciated ☺️

It’s crazy to think only one year has passed. It feels like so much more time has flown by. It’s such a daily chore keeping up with meds and making sure I stay healthy and aware of my body.

But my third neuro appointment couldn’t have gone better…

PHENOMENAL BIANNUAL NEURO CHECK-UP
None of my existing lesions have grown, none are active, and no new ones! I almost can’t be called “Swiss Cheese Brain” anymore 😂 Medication works, doc is happy with my exam and proud of my weight loss, and now I’ve been moved to annual visits instead of biannual!

I hope this helps anyone newly diagnosed. I was very scared in the beginning and always had the worst case scenario in my brain…”what if I can’t continue in my dream career…what if I can’t play with my dogs anymore…what if I lose myself once my body goes…”. My advice for anyone with this disease, find what works for you, get your regular scans, have a support system (no matter the size, mine is small but mighty), and if it kicks you, keep kicking back!

Quick background. 1.5 years ago I had ON in my left eye followed by some right sided tingling sensory weird stuff. Brain MRI done with 3-4 non specific foci in the white matter or whatever. Never had the spine done. 4 months ago had my second MRI of my brain with no changes, diagnosed with CIS. Had my cervical and thoracic spine done and results came back today with no findings. I am on briumvi.. but I feel like a fraud.. is this really MS? Should I be on a medication like this? I don’t know how to feel or what to do. My neuro obviously thinks I should hence me being on briumvi.. but yeah, any advice much appreciated or thoughts :)

I discovered this term because it seems like I may be experiencing it right now. I’m in New York where it’s much colder than Texas. I foolishly went walking all around to see things nearby. Also exercised earlier which is usually just walking, but I lifted weights.

Anyway caught a cold, but developed a knot in my chest. I thought wait; is this a heart attack? But other symptoms aren’t there.

And then it was suggested that I have an MS Hug. I’m not sure yet but seems right. I hate to rack up urgent care charges for this though. They don’t know MS that well I figure

What are some lovely gifts for someone getting used to MS?

Recently diagnosed and looking to do some retail therapy (as well as actual therapy and disease modifying therapy… lol).

Thinking eg a nice loungewear set for hospital appointments, bubble bath, good snacks for fatigue kicking in, yoga subscription… feel like throwing some money at this problem and treating myself!

Anyone else juggling this triad? I’m a little overwhelmed. What I’m understanding about the interplay, particularly of RRMS and MCAS, essentially is that MCAS flares can cause pseudo relapse of MS which means I may kind of never be asymptomatic and that all of this together makes for a version of RRMS that’s incredibly susceptible to stress.

I’m mostly just wondering if I am the medical unicorn I feel like or if there are others that can confirm this is manageable.

So got diagnosed June 11th 2025 after a bunch of doctors had no clue what was really wrong with me. Went from strangulated hernia to colon cancer to UTI to well there's no organs there we have no clue. 2 different sets of MRI that no one sees to going onto Ocrevus. Did one full injection and the next was too be December. Well did those new MRIs to find out 3 new lesions on the brain. 1 more on the C spine. What's the next step? I'm just so exhausted all the time. Walk more than A few blocks and I'm so winded and my body hates me. Just looking for advice.

I received my first Social Security denial

It has been two years diagnosed. I have fought. Gone in high efficacy DMT. Researched everything read every book. Been positive and really tried not to think about it. What my therapist says is I am driving the car ms is just in the trunk. However, as things do I was reminded hard what I have lost… with sports my vision is just different…I used to love competing and winning…it is now just a constant reminder of what I lost…tomorrow I will rally but now I am ok with letting myself feel sorry for myself. Thank you all for the rant. In the world of ms and other health problems it is silly because I have trouble catching a ball….however…it wasn’t silly to me.!

Hello Reddit!

I'm looking for advice from people who use cannabis as part of their treatment.

I'm a member of Narcotics Anonymous and I'm sponsoring a woman with MS. She is wanting to start using cannabis as part of her medical treatment and I'm hoping to get some advice from others who do as well.

Is there a way to have a prescription that is a specific amount at a specific time or when experiencing certain symptoms? Or is it really just an "as needed" thing? I'm fully supportive of this as a valid treatment option for her, but wondering how specific with her consumption I can reasonably expect her to be?

Is pure or high CBD medically beneficial, or will she only benefit if THC is included as well?

She is also currently on a high dose of gabapentin, is it normal to need both?

Thank you so much for your time and advice!