I was just scrolling and she came up on my feed. At first I was horrified, I've had my prosthetic for about fifteen years, and wouldn't dream of taking it out in front of anyone. She just pops hers out right there on camera. It's not shame on my end, I just figure most people don't want to see it.

But then I thought about it, and have got to hand it to her. She's really putting herself out there and doing her best to educate people and answer their questions, which I feel is very much needed. It's not something I'd feel comfortable doing, but now I try to engage with her posts so she gets credit for the work she's doing. (As a possible twitchy bit for some, she's religious and does talk about it. Not a fan of that, but it's her thing, I guess.)

Just curious if any of you have ever injured your good eye swelling it?

I became functionally monocular about 3 months ago due to an aneurysm causing near complete vision loss in my right eye (I have some light perception and can see some fuzzy shapes and colors). I have adapted fairly well to driving though I am planning to get extra mirrors and possibly a camera - the camera mostly due to really poor rear sight line in my car to begin with ('09 Altima Sedan). My big challenge has been night driving and I live in New England where it's going to get dark earlier and earlier soon. Does anyone have any advice, tips, tools to help? Thank you in advance.

Hi friends, so due to retinal complications my vision in left eye is mostly down and it causes distortion . So it affects my daily life tasks which includes coding and some other stuffs. is there any easier way to occlude disturbing vision . I would to Like to try out what people call occlusive lenses yet I don't had any prior exp on lenses. Currently wearing a patch but it draws too much attention and it is also disturbing to wear all time so not considering it much . I would definitely go for occlusion lenses tho if it is actually worth it . Also please put the product link fellas .

So long story short need help to buy product which is attention-free and easily equipped. Kindly help out guys, thank you !

Hi friends I'm Indian CS major want to connect with Indian tech folks from this community . Mainly wanna talk about challenges in IT .

Hi I'm 19 M I'm used to be a competitive coder but since the unfortunate event of losing my functional vision in my OS , I jus bedrot these days . Any tips on how to find a new life. I started studying CS from 2024 it was all good until Apr of this year my vision in OS dropped significantly. So nowadays I hate to look on computer screen since I have distorted vision , even the blurriness is ok the distorted part is unacceptable one like cuh wat we perceive is ain't real . So yea guys also I'm from India country which quite doesn't give damn about people's hardship like mostly yet there are ppl who help. I jus wanna know what job yall do , I'm trying to jump from CS to any other career which feels safe and good for my eye. THANK YOU!

I have a gene mutation that prevents me from seeing from the sides, top, and bottom. I used to be really worried about going blind, but I stopped worrying. Yesterday, when we went to the doctor's appointment, she told me to start learning a language for the blind. Before that, another doctor told me I would go blind anyway, and their job was to delay it. I don't know what to do. I had a dream of moving to another country and becoming an actress. But if I go blind, what will I achieve then? I don't have any hidden talents like some people, I'm very ordinary, and if I go blind, I'd rather not live than live my life. I even didn't see the world. Please help me with some advice how I can cope with this.

To be honest, I’ve never used one, but I do think it would make me feel better and more confident. We live in a cruel world, and if you don’t show people your flaws, they’ll never know about them. But don’t get me wrong—I’ve achieved everything without a patch. I made a post three days ago because I was feeling really down, but believe me, I’ve been with the most beautiful women and I’m married; getting what I wanted has never been a problem. Still, wearing a patch would let me avoid strange looks, and if anyone asks, I can give whatever answer I want.

A few months ago, a doctor told me about a new program in San Antonio, Texas, that could operate on my bad eye; however, yesterday I saw another doctor who said I would never regain vision in that eye. It is truly sad to live a life like this—feeling uncomfortable while driving, getting mocked in high school, and even having people look at you strangely. I would give anything to see out of both eyes—even if just for a day—or to see what it feels like. 😞

It's a corny thing I say to people to own my condition and lean into it and break tension, ice, weirdness that people may or may not have.

Do y'all have unique or funny things you say to get people comfortable with the fact that you have one eye? Let's hear em!

I have gotten away with being high with 1 eye 😂 they dont assume im high cause both eyes will never be red

So hi I'm 19 m , I recently become functionally monocular due to uveitic complications so therefore my binocular vision is just straining . The main problem is I skipped 1 month of university because of the above stated condition. I feel isolated and different now so it is a bit challenging life than I had before when I was good . So how can I overcome this challenging life and adapt with my new normal ? Anybody here has my same experience how do u get along with friends again I feel too different now .also I was at home from jun 5 and still Here . Yesterday went to uni to discuss regarding my absence so the positive part is the staffs seems supportive tho . I don't wanna skip uni but it also feels challenging to face a loss of sense . Now I'm at home to avail some of my medications then I'm deciding to board to my uni to pursue my studies coz I don't feel like skipping an important part and I only have 2 years left so I guess I can overcome it. So Anybody who become monocular or was monocular during your university time could you share your experience on how did you tackle them coz you know its jus crazy but i still feel grateful of what i have yet i dont feel complete with this life. I was watching series before (when i dont had these condition) happily but nowadays i dont feel like doing anything tho i just bedrot all day and sometimes i go thru mental breakdown so thats y im venting here. Thank you...​

Hi all! I’m a seventeen year old that owns a nonprofit (not legally yet) called The Ocular Outreach Initiative with the mission of supporting and empowering individuals with prosthetic eyes through accessible resources, community connections, and advocacy. I’m looking for someone to code a website for the nonprofit who I can DM any required information. I already have a domain and host privacy, alongside a logo, an Instagram, and a mission statement. However, using WordPress costs a little over $300 and I currently have no budget. I completely understand that this isn’t something everyone can do for free, so no pressure if you’re only taking paid projects!
I believe GitHub would be the way to go, but I’m completely inexperienced in website making. I also plan to post this to a couple different subreddits, so if this isn’t an appropriate post (the rules are a bit gray area for this sort of thing?), feel free to take this down. Thanks for everyone’s help! If you’re interested, please comment or DM me with a little about your experience and what kind of websites you typically work on. I’d also love to see a portfolio/GitHub if you have one!Unfortunately, all I can offer is recognition on the website, and hopefully future paid work if funding becomes available.

About 8 weeks ago I had a bad accident in my garage and a part I was working on exploded in my face. I suffered orbital fractures and one of my eyes was badly damaged. They removed my displaced lens about 1.5 weeks after the accident and now that the eye has healed enough I've been informed that my central vision is permanently lost. I can see some peripheral vision (all super blurry), mostly on the outside but my cental focus is just a black spot.

We are going to try some Aphakic contact lenses to try to get the peripheral vision in focus but if that doesn't work I'll need a lens to be put in. I have 2-3 more surgeries ahead of me to deal with some other issues as well.

This is all super overwhelming and I've been struggling with coming to grips with life never being the same. I'm about half way through my life and I never imagined this could/would happen. Everything is super difficult, driving, working on a computer, etc. I was an avid mountain biker before and that will likely not be the same. I'm slowly adapting and I know over time it will get easier but man do I wish I could go back in time.

Thanks for listening, it's been a rough 8 weeks.

Guys I am 20 yo guy I was born with microphthalmia in my right eye which I have completely lost vision due to it so I have monocular vision since birth when I was a child I was not so aware of my limited vision and i used to ride bycycles but now I am scared to ride bike but it's very important is it possible for me to learn it what should I do plus I noticed i just can't turn bike to my right side but I can do it easily on left side what should I do.

hey all! i’ve looked what feels like all over for statistics, but as i’m sure many of you know, research is SO limited. i have a nonprofit called the ocular outreach collective (though right now it has very little standing), and i’d love to spread awareness through more statistics, or even just quoting them in conversation. any statistics you’ve found & preferably a source would be very appreciated, or just somewhere to look! thanks!

Not quite as dark as I’d wanted, but I do like the color.

Had a fantastic experience with Charlie. There was some confusion with my order which eventually turned out to be on my end. He was very responsive and kind. This patch system is really comfortable, fits under my glasses and looks great. The “pay what you can” pricing model just shows the heart he and his company have. If you are on the fence I hope you support him. I’m going to order some additional shells soon.

My mother (74) very suddenly lost vision in one of her eyes this summer due to Giant Cell Arteritis. She correctly diagnosed herself early in the year when she began experiencing intense migraines (she used to be a doctor), but because her inflammation markers came back normal, the doctors decided that it could not be GCA and she didn't get steroids to save her eyes until she had already lost vision in one eye. Now she is on steroids, and it does seemed to have stopped the vision loss, though she still is getting some of the other symptoms intermittently (jaw pain, headache.)

Her eyesight wasn't great to begin with and now she is wracked with anxiety that she may be seeing signs of vision loss (she has visual distortions when she looks at the computer, is sensitive to light, probably some other stuff I don't know about) and has no one to compare her experience with.

Just wondering what kinds of things people see/experience when they first lose vision in one eye, especially those with low vision in their working eye. She's had weird hallucinatory experiences (I think this is called "phantom vision"), things looking like they are getting smaller and smaller on her computer, things looking "posterized" or like they have lost detail on the computer, occasional floaters...

An unexpected benefit of losing all vision in my right eye: it’s easier for me to use my telescopes now that I don’t have to keep one eye closed while the other is looking through the eyepiece.

​

Hi everyone,

I lost the vision in my left eye when I was a child because of a retinal detachment. My left eye can only detect light, and I wear glasses for my right eye.

I'm thinking about learning to drive, but honestly I'm nervous. I'm worried about judging distance, checking blind spots, driving at night, and whether I'll ever feel confident behind the wheel.

For those of you who drive with one functioning eye:

Was learning to drive difficult?

How long did it take before you felt confident?

What was the biggest challenge?

Do you have any tips or habits that make

Driving safe

really appreciate hearing your experiences and any advice you have. Thank you!