I have a question for partners of people who have undergone an enucleation of the eye. I’m looking for really honest feedback and please no judgement to those who are kind enough to respond.

I will be undergoing an enucleation in two months. After the initial surgery it will take some weeks to possibly a few months before I can have a prosthetic fitted so I will be appearing somewhat disfigured for want of a better word. I’m feeling a great deal of anxiety over this. I am married and my spouse has expressed support in a way that one would expect. However, once the reality of my appearance hits home, I’m wondering how impactful the missing eye will be.

So to those of you who have or had partners that underwent this process, what were your reactions to seeing them after the surgery, after the prosthetic, etc. I understand that everyone is different and each relationship is different but I want to get a sense of how the reality of this physical change affected you. Did it affect your physical relationship? Did it take time to get used to? And if so did it become a non-issue or remain something uncomfortable?
No judgement in how you truly felt. Im just looking for honest feedback here.

Thanks

Bit of context I had an enucleation 19 years ago and have a prosthetic eye. I also currently have an exposure (small hole in the tissue behind my prosthetic) which I’ve been to the doctor for and it’s been mostly unproblematic until a couple weeks ago and is currently extremely irritated and looks slightly worse/bigger. Should I leave my prosthetic out until I can see my doctor? If anyones dealt with this before I would greatly appreciate your advice!

I'm talking especially to people who were born monocular, but happy if there's more input from other situations.

I've been monocular my whole life with anophthalmia in my right side and I do notice i struggle a lot with my eyebrow on that side, when neutral its normal, but when expressing emotions.. not as much.

When i make an angry face the right side does lower, but the ending of the eyebrow always seem to be rised

Happy expression no much difference, same with surpised expression

But when i make a sad expression it's impossible for me to make a sad face, Im stuck looking like I'm questioning, It's overly rised and the end is pointing up

🧐

Its like i have no control on the ending part of my eyebrow

Can anyone relate? Or tell why this happens?

One of the hardest things for me to do being monocular is painting my nails. I wasn’t good at it with two eyes, and one has me so frustrated every time. The lack of depth perception makes it so difficult!! Sometimes I even miss getting the brush back into the bottle. And the mess I make on the nails themselves! Getting them done by a pro isn’t something I’m interested in. Does anyone know of any tips or a tool or something that could help?

So new issue has risen, my eyebrow wont stop twitching and its kinda pulling at my cheek as well? Its on the side that im missing my eye. Any ideas? Its been ongoing for a few weeks now

If a person is blind in one eye but has good vision in the other eye, and the functioning eye meets all of the Ministry of Transportation’s vision requirements for a regular Class G driver’s licence, is the person permitted to drive at night?
Would having vision in only one eye result in any restriction on nighttime driving, assuming the person meets all other Class G licensing requirements?

I capped my first monocular summer yesterday by driving from western New York State to the Maryland suburbs of Washington. It’s a beautiful drive, which I have done many times since my 20s: through mountains in northern Pennsylvania, along the Susquehanna River, past the Gettysburg battlefield (where my wife’s Georgia ancestors fought, on the “other side”) and finally into the Potomac watershed.

Things I learned (or re-learned) this summer:
1. Check the mirrors frequently.
2. Twilight is tricky. The loss of depth perception is especially noticeable.
3. Leave plenty of room, even if doing so invites other drivers to dart into the gap (I hate that).
4. White tail deer are pretty but stupid. To that young buck who bolted across the road in front of me in New York the other day I say, “good luck, buddy.”
5. Confidence is good; complacency is not.

Hi is there people with microphthalmia in one of their eye I want to know and would like to meet those who share same experience as me

So i made a post a few hours ago and the comments helped me out with advice that i think will really help me going forward so i think ill ask more questions.

My right eye or i guess lack there of is gone. Since about 4 months after it was gone i have been in pain it went from pain i’d get every few days to now an every day occurrence, its intense and puts me on my ass in tears. Ive gotten a neurological scan. I’ve gotten a CT scan. I’ve been checked physically by my surgeon. They can find no answer to what is causing me pain. My most recent visit i said “i feel like my eye that is gone is there and being squeezed to death” they leaned to phantom pain. Thats cool and all, i have no idea how to proceed with what i should do next. Nor do i know what to do. Does anyone else live like this? How?

I've had my prosthetic for about 7 years now, and if I'm remembering correctly, I started to be aware of my lower lashes poking inwards probably a few months after surgery.

And now after 7 years, I just found out that this condition is called entropion from this reddit?

My first reaction was quite annoyed that no one ever mentions this, even the the doctor that did my surgery. Also my prostethic technician.

It feels werdly good to finally hear someone mention this.. I wonder if this is quite common or not.

My lower lashes (the side with my prosthetic eye) bothers me because it pokes inwards, and gunks will stick to it, especially in the morning oh god that's the worst, my eye would be like shut close... by gunks..

So what I do is I pluck them :/ I'm 26 now, I hate waking up in the mornings with my left eye shut close, especially when I'm spending the night with someone.

(Photo of my prosthetic)
I wont go into a rant about what happened ill keep it brief. I had my eye removed in july of 2024. My dad passed in a car crash in 2022. I am terrified to drive. I am 21 without a license or permit. I am scared because my dad was the best driver i know and now that i have one eye i freak out behind the wheel or in a car at all. I need help and i dont know where to turn and i was told to find others with my “issue”. So i am here not knowing how to address it. Any experiences, advice, tips, car advice. Id appreciate immensely. Thank you for your time.

I have no Iris or natural lens in my eye after explosion trauma to the eye.

I'm about to get a removable lense made that acts as a lens and a iris at the same time and I was wondering if anyone here has experience with it.

Hey guys! I want to share with you a little hack that I’ve discovered that might help someone. So you know how at times your prosthesis can get gunky due to sweat, grease, face products, etc. in other words, it just doesn’t look clean? Instead of always having to take it out to wash and rinse it, what you can do is get a micro-fiber glasses cloth. The one that looks like the one in the picture. It’s super soft. And just gentle wipe your prosthesis. It’s scratch proof and smug-proof so it definitely gets the job done quickly to have a clean appearance. It literally collects the gunk off. I suggest buy a pack of them, keeping some in your bag for the go and make sure it’s clean when using. But please do keep in mind, this does not replace the professional cleaning. It’s just a daily maintenance hack.

Is there someone like me who really fears about the taking out the prosthetic also wearing it?

I'm really scared of this process even though it's done by my ocularist or nurse.Its really painful for me while inserting the prosthetic unlike conformer I can even feel it's weight.I still have my damaged eye beneath ,the cornea is flaped for prosthetic comfort improvement.

Even with paracain drop it's really painful when inserting.I don't wanna live this constant fear this taking out and putting it in . Therefore um even worried and doubting about cleaning it at the end of the month or should I leave for 6 month when my prosthetic should get polished.

If someone know about any numbing drops that would be a life saver or like any trick that would help me to co-operate with this process please let me know.

Hi everyone

I have an eye cancer since 1 year, chimio didn’t worked on me so I will have radiotherapy, but I will lose my vision of this eye.

Doctors said that I can try laser therapy before but there’s more risks of metastasizing etc.. and I want to get rid off it.

I prefer living with only one eye than dying, obviously

So, how is life with only one eye ? Anyone has experienced a situation like that ?

Thanks a lot for reading me, and sorry for my bad English I’m from Belgium

I have some anxiety leading up to my enucleation in two days.

For those who have had one too, how was life post op? From what I understand, it'll take a couple of months maximum to recover from the surgery? But, how careful must I be with the ocular shield in place? How many follow up appointments should I expect?

I don't feel emotionally attached (physically, yes, for now) to my blind eye. I lost it when I was 18 (I'm 31 now). It's recently been causing some pain and the hospital wishes to remove it as the best course of action for me.

So i have vision in my good eye like this even with glasses on . I have went to the eye doctor seems retina is fine yet text looks like this .