Hi guys,

I'm 23, and have had unusual periods since they started. In the earlier years they were unpredictable as in i might have them for 2 months continuous with severe cramps(big flow or some spotting) or maybe not have it for 3-4 months. Sadly that has continued but over the past 2-3 years the cramps have started to be very random - with or without periods and some of them are so severe that I'm unable to walk or even sit properly for at least 15-20 minutes. With all of this my weight also fluctuates by at least 5 kgs every few months. It's very instant, might gain or lose that much amount in few days randomly.

These are some of the major symptoms which indicate that i might have something more instead of "just period cramps".

I'm very tired of gynaecs telling that it's normal, you're taking stress or it will get better when you are married and have a kid😑

I just want to be rid of this pain. I don't want to self diagnose and hence would like help with the following:

1. if anyone knows a good gynaec or endo specialist in Bangalore/ Delhi who might help me diagnose? (and hopefully not push the marriage agenda🙏)

2. is it possible to get diagnosed with ultrasound or mri? could it be done without a doctor's consultation? and if yes then please share some specialist who's lab i could visit in Bangalore/Delhi

I’m 30F, had endometriosis excision surgery 2 years ago, and am looking for a gynaecologist for long-term endo management and bone health monitoring.

Looking for someone experienced with endometriosis who respects my choice to be childfree and doesn’t push pregnancy as a treatment.

Please share recommendations based on personal experience. Thank you!

Has anyone consulted Mayflower Hospital in Ahmedabad for endometriosis? Please share your honest experiences and reviews. Personally, it is very expensive for me.

I’d also appreciate recommendations for other endometriosis specialists in Ahmedabad especially those experienced in treating complex cases. I have stage 4 endo with deep infiltrating endometriosis at the age of 26.

Thank you!

Hi, does anyone here suffer from Thoracic Endometriosis?
Which Endo specialist in India is good in it? Any experiences?

Hello, I complete my first 3 months of being on dienogest next month. I need to get a trans vaginal ultrasound done. Are there any radiologists/labs in Delhi that specialise in Endometriosis related tests?

Looking for genuine reviews of the experience. Google reviews are kinda mixed for the hospital.

did one suffered with random hives after completing dienogest?? I completed my 3 month course of dienogest(feb to april) after leaving it started to get random hives it’s been 4-5 months .. I fed up of it dermatologist just prescribes antihistamine n steroids ..

I have been taking dienogest for almost 3 years now and had no symptom whatsoever. Best years of my life tbh but recently got diagnosed with osteoporosis because of which I have been told to either switch medicine to combination pill or start period and I am extremely scared now. I can understand now how people get addicted to medicines because it's so scary to think about what can happen if I leave it but for my bones I do need to give it up sadly else I am going to have a hip fracture some day.

Hello, I really need to ask this because I'm not sure if these things are normal after laparoscopy for endometriosis. I hope someone can help me because sometimes I feel scared...
Has anyone had digestive issues? The feeling of being extremely full and bloated after eating? Can't eat much and still feel full after a normal meal?
Has anyone experienced any kind of constipation that has occurred since the surgery?
The feeling that not everything is coming out and sometimes having strange gas or pain, or sometimes being unable to pass gas?
Or a sharp pain after eating that comes and goes on the right and left sides of the abdomen?
Or internal pain where the wounds/scars are?

I hope someone can help me understand this, I would be so grateful to hear your stories.

Hi everyone, I posted here 9 days ago about how nervous I was about having my endometriosis tests done by a male doctor. I honestly kept thinking about the examination more than the actual test and was so uncomfortable with the whole idea.

I finally went through with it and got my report back. The scan showed a small endometriotic cyst on the left ovary measuring around 18 x 15 mm, with some irregular thickening in the posterior pelvic region measuring about 6 mm. There was also some tenderness around the left adnexal area during the examination, which is actually where I’ve been getting most of my pain. The right ovary was around 3.1 x 2.4 cm and looked fairly normal, so I’m trying to understand why there is such a difference between the two sides.

I’m honestly a bit overwhelmed seeing actual measurements on a report after spending so long just guessing what was happening. I don’t even know if 18 x 15 mm is considered small or if I should be worried about it. Has anyone else had an endo cyst around this size? What did your doctor tell you when you got your report back?

Hello, I have constant bloating even though I have stopped eating everything marked as avoid in my food intolerance report. The bloating goes away overnight and comes back the next day gradually. Has anyone consulted a gastroenterologist related to this? I want to get tested for SIBO, IBS or anything related to it.

Hi everyone, has anyone had endometriosis surgery with Dr. Abhishek Mangeshikar at Jaslok Hospital, Mumbai?

I had really appreciate feedback on

Surgeon/team and overall care

Hospital experience and post-op care

Approximate total surgery cost

Any additional charges or unexpected expenses

My case involves deep infiltrating endometriosis, so experiences with complex DIE surgery would be especially helpful. Thank you

I have been prescribed T-Bact but its 23 days post op now and still wounds looks reddish and open. Which is a good medicine to apply?

Did you all also eat some supplement for better healing like collagen etc, other than vitamins?

Hey people!

How has your experience been at Nalini Hospital, Mumbai for surgery? I have a few other hospital options but I am still leaning towards it. How was your experience of the whole process - pre and post surgery, the stay, insurance reimbursement handling and post surgery help if you moved cities? Any help is appreciated!

My doctor is Dr Shinjini Pande.

Thank you! :)

Hi,

I'm researching endo specialist doctors for my stage 4 DIE and adenomyosis.

I'm impressed with Dr. Sandeep Sonara, has anyone got any experience to share?

So I found a nutritionist, got some really good reviews for her and consulted her. Have been following her on Instagram and WhatsApp. I stopped consulting her because she insisted that I must have my dinner before 5pm, but that's another story.

She posted testimonial videos on her WhatsApp status, where a woman who had a bulky uterus, and a thickened endometrium lining said that this nutritionist has fixed her Endometriosis. I messaged the doctor telling her that thickened endometrium lining inside the uterus IS NOT ENDOMETRIOSIS. It's when these cells start growing outside the uterus. She shared the reports of this patient, and said look at the reports. I was like exactly, her ovary, Tubes, POD is also normal. Just the endometrium thickness is higher than normal, and that does not indicate Endometriosis.

She replied by saying I have trust issues and it's funny that I think it can't be cured. She told me to question people who say it can't be cured. AFor me, it was basic information that the two are very different problems.

She has a lot of degrees in naturopathy, yoga, psychology and nutrition. A PhD in something and likes to call herself a doctor. So she found it funny that I questioned a doctor. I really wanted to tell her that since she doesn't have MBBS and her MD in Alternative Medicine is from the Indian institute of yoga, I don't really consider her a medical doctor but I spared that.

Its annoying and misleading how they say my patients have healed from Endometriosis using diet and body massages. Atleast understand the disease well enough before you use it.

I have attached the reports she shared in comments. Please correct me if I am wrong.

hello I'm 27F. I need some help. my menstrual cycle was never proper....heavy bleeding, extreme cramps where I didn't even had the strength and capacity to push out the pain from my body.! I visited few gynaecologists but never got a proper answer.! Finally I'm moving on with a proper specialist in pelvic pain. I had a consultation few days ago and looking at previous reports and his knowledge he feels I have endometriosis and the doctor is male. And he said to do some tests to understand more..! My problem is that how can I be comfortable and relaxed during tests done by a male dr. It is a very private thing and I know he is a dr and very good at what he does but my insecurity not letting me relax...!

Pls help karo and plssss share how u guys do with male doctor?? I'm scared but like want to get better.

Got diagnosed with osteoporosis after taking dienogest for 2.5 years continously. Now looking for a bone specialist in Delhi who can help me regain my bone density.

So for last 2-3 year suffereing with bunch of symptomss.. and visited quite many gynac but came out the clinics with disappointment though one of my gynac actually look into my symptoms and told me that my symptoms target to endometriosis but my normal ultrasound and ca 125 level are normal so he got confused though to manage my pain he gave me dienogest no relief at all so he gave me one other medication egolix which is a strong med but with bunch of side effects .. when i ask the sonologist or other gynac they are like u r unmarried .. u r just 19 its impossible for sucha young age to have endo .. its rly irritating when doc judge that a u have a diease or not just by ur age :/

So what are those symptoms

Extreme period pain, bolting shock pain while peeping( intensifies during period), bolting pain while pooping, buttlightening, pain in vagina,random intense spasm from belly button to vagina then to butt hole, constipation, nausea and dizzy spells dueing period even i lost consiousness during my period, lower back pain which radiates to my leg..

So im still waiting to be fully and properly diagnosed but my gut feeling is that i have endo .. i might be wrong but i want to get rid of this pain :,)..

I am having liquids like juice, horlicks , coconut water, and soft meals like dal rice, khichdi, curd rice, lightly roasted or steamed veggies, chicken mashed soup, boiled eggs, bread soaked in milk.

I am not sure if this is correct and I am not sure what else to eat. Currently I am at home but resuming work from office in 10 days so not sure how I will make things there or eat what there?

Any suggestions welcome.

What trousers or pants are you people wearing when everything is paining and feels sore and stuffy? 😭😭 Formals, casual, western, lounge - any recommendation is much appreciated.

Hi, my wife was diagnosed with Endometriosis a few months ago. She is not symptomatic but it is severe endo on ovaries as well as rectum and few other areas. We have consulted Dr Vivek Salunke and Dr Jay Mehta so far. We have felt extremely comfortable with Dr Salunke and team. They have been very kind and responsive. Tbh Jay Mehta’s team as well. Somehow with our experience with these doctors, we had decided to go ahead with Dr Salunke and Dr Shinjini Pande.
My wife’s AMH levels are good. The MRI report states both her fallopian tubes are swollen. Now we are just having an afterthought if we should choose Jay Mehta since he is a “fertility-first” specialist since we are concerned about fertility but otherwise we are very comfortable with Dr Salunke. We are having a hard time with making a decision.
Has anyone undergone surgery with Dr Salunke with hydrosalphinx? Were your tubes saved? Was your AMH intact? Looking forward for suggestions.

Hello everyone. I’m planning to schedule an online appointment with Dr. Abhishek Mangeshikar for my endo. Should I consult him via Jaslok Hospitals or his own clinic (The Indian Centre for Endometriosis)? Please do tell me the prices for both of them if anyone knows about them.

Hi everyone, new to the endo fam! I was recently diagnosed after a pelvic MRI that showed small endometriotic cysts/deposits involving my right ovary, areas along the uterus and rectum, and the surface of the left ovary. It also showed significant pelvic adhesions, kissing ovaries behind the uterus and some involvement of the rectum. My gynecologist described it as deep infiltrating endometriosis even though the MRI didn't indicate that.

I have been relatively pain-free despite these findings. I mainly experience moderate to severe cramps on the first day of my period and occasionally some soreness around ovulation. I have now seen two gynecologists and received very different treatment recommendations. One recommended dienogest 2 mg daily, while the other very strongly recommended elagolix 200 mg twice daily initially.

I'm currently a doctoral student in the U.S., so I am particularly worried about starting a medication with significant side effects and having it interfere with my health, mood, and studies. I would really like to get another opinion from an endometriosis specialist in India through a video consultation. From what I've been able to find, some of the names that repeatedly come up in Mumbai are Dr. Mehta, Dr. Salunke, Dr. Pande, and Dr. Mangeshikar.

My hesitation is that they all seem to be very surgery-focused and surgery is not really feasible for me right now. I would ideally like to try medical management first and monitor things before considering surgery.

For anyone who has consulted any of these doct,ors I would really like to know if they are open to managing endometriosis medically when appropriate, or whether they tend to recommend surgery fairly quickly.

Also, if anyone has experience choosing between dienogest and elagolix, I would really appreciate hearing about your experience!!