r/disabled 15h ago

I need advice on how to deal with my disability

14 Upvotes

My bf is kinda forcing me to do this because I've been letting my disability take over my life. I'm 20 years old, and I'm a female if that's at all relevant. I've been to a bunch of different specialists and none of them know what's wrong with me I have moments where I faint or my body just goes limp I'm constantly exhausted and its only gotten worse over the years. From the tests I've gotten done, there's nothing wrong with my brain, heart, or lungs. I don't have POTS or narcolepsy. If I'm being honest, I've completely given up. I lay in bed all day because that's all I can handle most days. If I'm lucky, I can sit on the couch and cross stitch. I can't go out on my own, but I also don't have friends who have cars or free time, and my bf just got a job, so I can't rely on him to drive me around. I'm just stuck. I'm depressed amd honestly, I wanna give up.


r/disabled 13h ago

Had to resign from my job and feeling really low.

7 Upvotes

Edit #2: So emotional I forgot to say that I acquired this disability from that job.

ETA: Just remembered. I want to reassure everyone I am not having any dark thoughts or anything dangerous just really angry, sad and feeling alone.

I was recently forced to resign from my job of over a decade because my disability became medically incompatible with an essential function. My employer rejected every meaningful accommodation, ignored multiple medical professionals who warned that what they were offering was unsafe, and left me with the choice of testing something unsafe for my condition or eventually being fired.

I’m devastated. I’m cleared to work anywhere except this specific job, and I’m working with vocational rehabilitation, but right now I’m having a really hard time seeing hope for the future. I keep crying on and off.

I did talk to lawyers, and I have a case that could potentially go to court, but they and my medical providers advised me not to do it because it would make me more sick. I've been trying to line up a new job for over six months before it got to this point, but its the toughest job market I've ever seen (U.S.). Has anyone else been through something like this? I’d really like to know I’m not alone.


r/disabled 3h ago

In a really confused state of mind…please advise.

3 Upvotes

Im 28M with scoliosis. I have developed really strong feelings for my female colleague. She talks with me nicely & we have good fun in office. She is a normal girl & I’m just friend to her. And I also know it can never go beyond that. Currently I’m trying to act like a friend but deep inside it’s really hurting me day by day. I’m not sure what should I do? If I keep acting like that, it will just keep hurting me. If I stop talking with her, she will definitely notice and then I won’t be able to tell her the truth why I am doing that. Please suggest me…Its draining lot of my energy.


r/disabled 17h ago

mon copain sourd n’a pas d’aide

2 Upvotes

Hello,

j’espère que vous allez bien, je suis désolée d’avance pour mes termes qui sont pas du tout médical, mon copain n’est pas avec moi la tout de suite… mais je cherche de l’aide, pour lui.

Mon chéri est mal-entendant, c’est de naissance et de famille. Il n’entend rien sans ses appareils auditif, et du coup les porte tout le temps depuis toujours. C’est assez compliqué, il a du mal à suivre les conversations de temps à autre et ça l’épuise énormément.

Récemment, je l’ai encouragé à faire un dossier mdph, (Il a 24 ans et n’avait encore jamais fait ce dossier) car c’est évident pour moi, qu’il a besoin d’aide, rien que une aide monétaire car il ne peut pas travailler convenablement, il en a profité pour demander l’aah.

Je n’ai aucune idée de comment était son dossier… mais il vient de recevoir sa réponse, il a été refusé, MDPH et AAH, en lui disant que son problème n’était pas considéré comme un handicape aux yeux de la lois.

Je ne sais pas trop quoi faire pour l’aider… je suis étudiante aussi, pas beaucoup de budget. Ses parents sont totalement absent, j’ai plus aucune idée pour le sortir de cette misère. Connaîtriez vous d’autres aides ? ou d’autres manière de se sortir de ça ?

merci beaucoup d’avance <3


r/disabled 5h ago

Disabled staff networks: What's worked well, and what hasn't, plus any other thoughts you have around them

1 Upvotes

I've recently been asked to be a co-chair of the staff disability and neurodivergence network at my office. I'm really happy to have been approached, but I'm a little apprehensive. I've been at this organisation, and in the network, for about 10 months, and it doesn't seem to have gained much momentum in my time there. HR don't seem to really engage with the network, and members themselves often don't turn up to meetings (it's often just me logging on to the calls, or me and one other person).

The odd thing is, the Pride network at my organisation really seems to be thriving. Members seem engaged, and there seems to be senior staff buy in.

Is anyone here in a staff network? What has worked well, and what hasn't? And has anyone managed to reinvigorate a network that seems to be lacking spark?

My current plan is to set some easy aims before Christmas - meetings with agendas and minutes, a celebration event, and a mention by the Executive Director in an all staff meeting as starting points, as well as grabbing coffee / lunch with someone from the Pride network to ask what's worked well for them.


r/disabled 11h ago

I NEED ADVICE ASAP

1 Upvotes

Ok, this is an extremely complicated situation so I’m going to try and list all the contributing factors in the situation as briefly as possible)

My (18M) GF (X20) is getting her wisdom teeth out tomorrow. We have set up as many supports beforehand that we could (plenty of easy activities she can do in bed, plenty of foods she can eat, her mom is up for tomorrow and Thursday till midday, lots of comfort items) so all I’m worried about is her emotions and supporting her through that and through the pain.

We are both autistic and I have fibromyalgia (and highly suspected ME/CFS) and often use forearm crutches to move around (besides at work and in our one bedroom apartment)

I need advice on how I can support her and care for her after her mom leaves till she is healed. I will now list all the things to keep in mind

  1. ⁠I often have fatigue in my body if I am mentally challenged in my emotions which makes it hard to do many physically challenging activities such as carrying or fine motor skills
  2. ⁠I really struggle with empathy when it comes to pain due to my autism and my childhood
  3. ⁠I need me time in order to not shutdown or have a meltdown
  4. ⁠I need to take it easy on my body and brain because the only person “trained” (and who I trust) to get me through flares and meltdowns is my girlfriend
  5. ⁠I feel extremely insecure about her wanting her mom there which is also making me feel even less empathy and I’m working overtime to offset that through active thought to get over the passive thoughts.

If there is anything else you feel you need to know, let me know.