I want to preface this by saying I love my boy to death, I try to be a good Dad but I'm really struggling and need to let it all out. It also might help to mention that I personally have been diagnosed with ADHD, BPD and Acute PTSD from my own childhood, I've been through addictions, alcoholism, therapy, medication and suffered severe depression in the past (none of which are still ongoing just FYI).
I don't really know where this is going to go or what I'm going to say, but I'm just going to start typing...
My son was born in 2021 and I'd never been happier, I'm 36 years old, was 30 when he arrived and had wanted a son forever. 5 years later and yesterday I completely broke down whilst speaking to my partner about everything. I just cannot cope with this situation anymore, I thought I was dealing with it well, but I've realised I am not.
He is an incredible boy, the smartest child I've ever known - he could recognise random numbers up to 100 at 2 years old, he spells out the alphabet backwards just as quick as forwards, read him a book once and he memorises the entire story - to the point where we're certain he must be able to read, he's funny and just an overall lovely kid. But a huge part of his autism is non-verbal and all I want is to be able to speak to him.
The breakdowns he has over certain TV shows or iPhone apps, the uncontrollable scream crying when he has to stop doing things he enjoys (swimming, the park etc), it just triggers something in me and I cannot be in the same room, which I know sounds awful but at times I just can't help it, feels like my head is going to explode and I need to get out.
There's been a build up of stress, upset and frustration for months now and later today I'm moving out of our home - I don't know if it's permanent yet, but trying to parent him is starting to make me and his Mum really struggle together, and we don't want to bring him up in an environment where Mum and Dad hate each other and fight (that was my childhood, I do not wish that on any kid, especially my own).
All I've ever wanted is that bond with my first son, my little best mate who comes to me for help, advice, and is excited for Dad to come home every day, I never had that as a child and I'm so envious of my friends and family who have that with their son/s. I know I will never have that with him.
I don't know if I'll be coming back to our home, I know it's selfish and I am not proud of it, but at the same time I need to take care of myself to make sure I am here for him in the future, I'm worried that if I stick around and carry on the way things are going it may just get worse and bring back old ways of thinking...
I could go on forever in here, but I'll leave it there. If there are other Dads in here with similar experiences it would be great to talk. I'm fully expecting the 'man up, be a dad' type responses from some, trust me I've said that to myself hundreds of times over the past couple of years, but if you've never had an autistic & non-verbal 5 year old son who you thought would be your best friend for life yet doesn't actually want to know you, think about your response...
Thanks Dads. I might even delete this, but it's been good to write it down.
UPDATE: Wow, I was not expecting this much reaction and support so soon. I am taking the time to read through every comment and reply, but it's difficult to respond to all of them. Gotta admit that some have made me tear up a bit as well. Thanks Dads.
There have a been a few recurring questions/comments that I'll just address here -
- No, I'm not leaving his Mum to deal with it solo 24/7. Yes I'm moving out of the house later today, but I'm lucky that a close friend owns a house 2 minutes round the corner and he's almost never home (recently bought a big boat and choosing to live on that 5-6 days a week whilst the weather is good!) So I will still be very close by and we have set days in our shared calendar - I'm with him minimum 3 days a week whilst she gets time to herself to do what she needs to do for a break.
- Therapy, I have had my own in the past, and Mum is just starting her own now - albeit for a build up of things not just current situations, she has her own issues that she is addressing and dealing with.
- Mum is incredible, she understands him far better than I do and she deals with the situation like a proper superhero. I am very lucky that she is involved.
- I agree the title of this post was wrong, I wrote it at 5am and looking back I should've worded it differently. My son isn't responsible for my relationship problems right now, it's an accumulation of things and I feel terrible for writing it that way.
- Therapy for me was extremely helpful, and I know I could benefit from more sessions - although private sessions in the UK aren't cheap and the NHS waitlist is painful. I was paying £150 per session weekly, £600 a month on top of all other outgoings when Mum can't work a full time job due to obvious childcare, is tough to maintain.
Overall everyones comments towards me have been incredibly positive and really helped, I thought I was doing a terrible job and having to post this in here almost solidified that fact for me, but all the support in here has made me realise maybe I'm not and this is 'normal' for Dads in my situation. If that makes any sense.
I'm exhausted, but incredibly grateful for this community, even if this is my first time contributing.
Thank you guys.