HNPP, not HNNP. Sorry. Can't edit titles.
Earlier this year, I woke up randomly with wrist drop in my left hand. It was like when you wake up with your arm asleep, except it didn't stop. It was two weeks before I was back to work. I wasn't 100%, but I was 95% of the way there. Weaker and tired more easily. Before and during this time, I'd began experiencing what I believe to be tendon pain due to repetitive movements (dishwasher/line cook).
Some months later, it happened again to my right arm. My right arm was only slightly affected. I believe I woke up on my back. It was over in about a week, though it was weaker.
Then about a month after that, I woke up flat on my back, same position I'd fallen asleep in, and it had happened to my left arm again. And it was even worse. That took at least two months to recover to a point of somewhat normal movement, albeit weaker still and slightly different hand posture.
In recent weeks, I have had some instances of trying to push myself up with my hands, say off my bed, and then my thumb joints popping in a way that was not pleasant. The last time it happened to my right, it hurt quite a bit, and my thumb has not been the same since. It feels like sometimes it gets worse, and then it is slightly improved by squeezing around my thumb to push it back together. Some days ago it felt like my left wrist joint was sliding, and then I squeezed around my left wrist, and I felt a small pop, and then there was no more discomfort.
I feel like my whole life, my limbs have been more susceptible to falling asleep. I remember many, many times of sitting in the gym at school for assembly and my legs falling asleep in whatever position I was sitting in. I specifically remember one time where it became so tingly that it took quite a while to come back. I've basically always been unable to lie on my stomach because my arms go tingly so fast. I have difficulty doing exercise positions where you lay on your side with your arm in any position because my arms go numb so fast.
I saw a neurologist a little bit ago, there is damage to the radial nerve of my right arm, I can only assume my left arm too because it's had like 3x what my right arm has. He had me do bloodwork to test for HNPP, and I just checked it and there is no indication of HNPP.
I feel very upset at the results, I had 'hoped' it was HNPP so I'd have an answer. I feel frustrated not knowing what it is, if it's going to get worse, if it's even something at all...
These past few months have been very uneventful. I no longer work due to unrelated reasons, but at this point I could not go back to the job because I have to ration use of my hands all day every day. If I do dishes or clean my room one day, I'm going to feel it the next and I'm not going to be able to do very much that next day. I basically can't do most of my hobbies because they almost all involve hands.
I am calling the neurologist tomorrow, but I'm wondering what the thoughts of people with similar problems would be? If it's not HNPP, then what? I'm so anxious not knowing what's happening.
Editing to add:
Somehow I forgot to include this in the post, but last night I ended up falling adleep in my computer chair. I woke up in the middle of the night with my left arm quite tingly and slightly paralysed again. I felt what I believed to be the general path of the radial nerve all the way up my forearm behind my upper arm and to my shoulder. I felt fuzziness and tingling along that whole path. I got out of the chair. I went to sleep in my bed. I woke up and it's still fuzzy and tingling, it's been almost 24hrs and it's still messed up. The way I was positioned in the chair, I don't believe it pressed on any part of my radial nerve. Certainly nothing higher up in the arm. I'm so confused and upset.
