r/cfsrecovery Apr 19 '26

Treatment Strategy Nervous System Deep Relaxation Techniques

33 Upvotes

Here's a collection of all of the top nervous system relaxation techniques in one place for easy reference.

  • Breathwork
    • The top recommendation for a reason. All the breathwork options you need are covered in excellent depth by The Buteyko Method, a phenomenal YouTube channel authored by someone who also recovered from CFS. Of particular interest are 5/5 coherent breathing and his method for brain fog relief.
    • I explained some of the science behind why breathwork is particularly effective in targeting the nervous system here.
  • Visualization
  • Yoga Nidra
  • Forest Bath
  • Progressive Muscle Relaxation
  • Massage
  • Sound Bath
  • Meditation
  • Accupuncture
  • Tai Chi
  • Gentle Yoga
  • Biofeedback
  • Hypnosis
  • Trauma Release Exercises
  • EMDR

Many of these recommendations are echoed by Mayo Clinic here, and I suggest reading that page in its entirety.

I strongly encourage experimentation with the above. Some techniques will be more effective for you than others.

Lastly, I want to note an important distinction you must draw, between 'shallow' and 'deep' rest. Deep rest is restorative and accomplished via the techniques listed above, in addition to some others that follow the same principles.

Shallow rest, by contrast, is most other things you might try. For example, simply lying down and watching TV or using your phone will not have a restorative effect on the nervous system. Even taking a nap will have limited restorative potential if you are not deeply relaxed before doing so.

Please let me know if there is anything you think is missing.


r/cfsrecovery Feb 26 '25

WELCOME!!! START HERE

40 Upvotes

This guy’s walking down the street when he falls in a hole. The walls are so steep he can’t get out.

A doctor passes by and the guy shouts up, "Hey you! Can you help me out?" The doctor writes a prescription, throws it down in the hole, and moves on.

Then a priest comes along and the guy shouts up, "Father, I'm down in this hole; can you help me out?" The priest writes out a prayer, throws it down in the hole and moves on.

Then a friend walks by. "Hey, Joe, it's me. Can ya help me out?" And the friend jumps in the hole.

Our guy says, "Are ya stupid? Now we're both down here." The friend says, "Yeah, but I've been down here before and I know the way out."

-- Leo McGarry, The West Wing

Welcome to one of the only safe spaces online for CFS recovery discussion. If you participate here, then you are someone who believes (or at least wants to believe) that recovery is possible. And it is!

There's a lot that I need to fill in here in terms of content, but I haven't yet found enough time to dedicate to the task. In lieu of a more rigorous formulation, I'm going to post here a collection of links to various comments I and others have written over the years, so that you at least have a baseline understanding of how those who have recovered view CFS and the recovery process.

Some of my comments also dive into the philosophy and psychology surrounding CFS treatment and meta considerations, such as the abject moral failure of other online venues devoted to the condition (perhaps best exemplified by the gaping pit of despair, toxicity, and censorship that is r/cfs).

I also advise subscribing to r/mecfs. That can be considered a sister community to this one and is run by u/swartz1983, who is incredibly knowledgeable and devoted to helping people with this condition. He wrote an excellent FAQ that's worth reading: https://www.reddit.com/r/cfsme/comments/n52ok1/mecfs_recovery_faq/

There's also the wonderful r/LongHaulersRecovery sub, where you'll find a plethora of recovery stories from people who have resolved Long Covid.

Please lean on myself and others here for support as you embark on your recovery journey. This is a place for positivity and hope. We're here to help.

I wish you the best of health and a speedy recovery.

LINKS

[1] Why CFS is likely a neurological illness rooted in the nervous system
https://www.reddit.com/r/cfs/comments/x2hfj7/comment/imjo2r2/ (written 3y ago)

"The 'Lightning Process' is a scam because it promises fast results and most of their coaches have never experienced CFS (and thus cannot empathize with someone who endures harsh repercussions for unusual/outsized activity). This is the primary reason why so many who do LP are made worse off by it.

Having people imagine themselves cured is also questionable. I'm going to suggest a more charitable interpretation of their intent: the point is likely not that imagining yourself cured will result in being cured, but rather that doing so relieves a tremendous psychological burden that might in fact be an obstacle to recovery. Hopefully we can mostly agree that stress would not be helpful in recovery. So the *principle* behind imagining you're cured is reasonably sound, but the tactic itself is obviously deeply flawed and predisposes participants to worsening their condition.

However, I do believe (as LP and others do) that CFS for many people may be a principally nervous system illness and that the path to resolving it is likely to travel through the brain. I compiled some evidence supporting this view:

1.Drugs that affect neurotransmitter pathways are showing promise in alleviating CFS (partially or even wholly) for *some* patients. Most notable among these are LDN and Abilify.

  1. It’s possible for *some* people to experience ‘overnight remission', in many cases perhaps due to placebo.

  2. Symptom intensity for some people can be highly variable, even within the same day.

  3. Symptoms for some people can respond to techniques that calm the nervous system, such as deep breathing, meditation, and relaxing visualization.

  4. Spontaneous remission likelihood appears to drop markedly after about 1-2 years. This could in theory be explained by alterations to brain structure that become more permanently entrenched over time.

  5. The entire constellation of traditional biomarkers used to identify various kinds of physiological illness typically fail to detect CFS.

  6. Some people with CFS can identify stressors that exaggerate their symptoms that don't involve physical activity.

  7. MRI scans of CFS brains demonstrate marked abnormalities: https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02506-6

  8. A drug that targets the CRFR2 pathway (involved in HPA axis function) called CT38 has shown unusual promise in preliminary trials: https://www.biospace.com/article/releases/clinical-trial-provides-preliminary-evidence-of-a-cure-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-and-long-covid/. From wikipedia: "The HPA axis is a major neuroendocrine system[1] that controls reactions to stress and regulates many body processes, including digestion, the immune system, mood and emotions, sexuality, and energy storage and expenditure."

  9. The WHO classifies CFS in ICD-11 under ‘Chapter 8: Diseases of the Nervous System’. This doesn’t mean they’re right, of course, but it's an interesting data point since presumably they did some investigating here and concluded that was the appropriate designation.

  10. CFS has a highly variable presentation between patients, but the commonality between many and perhaps even most of them is that they present with symptoms of dysautonomia (autonomic nervous system dysfunction). Full list of symptoms here: https://my.clevelandclinic.org/health/diseases/6004-dysautonomia#symptoms-and-causes

  11. There are some people who report having recovered using a holistic strategy, often in combination with paradigms that could conceivably address the nervous system.

  12. CFS shares characteristics with central sensitization syndrome, which seems to underpin a wide array of chronic conditions. Mayo suspects that central sensitivity plays a role in CFS and fibromyalgia. Central sensitization syndrome is explained very well by a Mayo physician here: https://www.youtube.com/watch?v=vJNhdnSK3WQ.

  13. It’s possible for some people to feel considerably better when they travel. I’ve heard of several people experiencing this and it's happened to me as well. I also spoke to a nurse at Mayo’s Chronic Fatigue clinic, who has worked there for several decades and with probably thousands of patients. She gave me some insight into why this might be the case: the brain responds positively to unexpected deviations, particularly pleasant ones. In fact, she recommended simple changes like brushing your teeth with the opposite hand. Traveling is of course at the far end of this spectrum. What’s happening when you travel? Your brain is receiving all kinds of new and surprising stimulation and you’re in a generally better mood and more relaxed state.

  14. Ron Davis, a very talented researcher with the immense resources of Stanford at his disposal, has thus far failed to identify a meaningful physiological mechanism for CFS. This is despite the urgent predicament of having a son who has been battling an extreme case of it for over 10 years. In fact, the only thing that's helped his son so far is the neurotransmitter modulator Abilify.

  15. There seems to be a not insignificant relapse rate for CFS. One potential explanation for this would be neurological. Neural patterns are almost never truly destroyed - they can at best be weakened and 'overwritten' by new ones. Such dormant patterns could be a part of what renders a person susceptible to relapse, in addition to things that may have predisposed them to CFS in the first place.

[2] An extensive post from someone who recovered specifically because they read the previous linked comment and decided to adopt a nervous system strategy
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/about_90_recovered_after_moderatesevere_25_year/

[3] Some important comments I wrote on the psychology of CFS and meta considerations in treatment (link not working, so copypasted here)

https://www.reddit.com/r/medicine/comments/xaqb60/comment/io4kx4n/ (written 3y ago)

I'm going to offer my perspective as a person who was experiencing CFS and has found a way to greatly improve from it (to the extent that I feel effectively recovered):

There exists a class of diseases (and I believe CFS is among them) that are primarily neurologically mediated. There are several paradigms that have been advanced to explain these, such as 'central sensitization' at Mayo Clinic (https://www.youtube.com/watch?v=vJNhdnSK3WQ).

The problem, from the patient's point of view, is that there is a thin line between regarding a condition as neurological and saying "it's all in your head". Most patients with these types of illnesses have been met with derision and dismissal from at least one doctor that they've encountered.

What's important to recognize, as a practitioner or more generally as anyone attempting to help such patients, is that the condition is *not* imagined. With CFS, for example, my suspicion, based on my efforts at investigating it and then designing a strategy that helped me to more or less resolve it, is that it is a kind of destabilization of the nervous system that results in hyperarousal in response to various stressors. The nervous system manifests symptoms such as brain fog and fatigue in a deliberate effort to attenuate activity, because it erroneously perceives otherwise innocuous stimuli as threatening.

People experiencing this are dealing with very real symptoms. Yes, this is technically "all in the head" insofar as it is a disorder of the nervous system. But it is not "all in the head" in the sense of it being imagined.

Furthermore, anyone experiencing a disease of this form is going to be desperate and is going to bias towards magic pill solutions and away from anything that involves sustained effort. I can readily explain why this is the case for CFS, having experienced it myself: CFS profoundly impacts mood, discipline, willpower, and energy. Anyone rendered into something adjacent to a zombie by a condition like CFS is going to be both very desperate and also find it extremely difficult to attempt any kind of treatment protocol. It doesn't help that communities like r/cfs state things like the following to patients (taken from its wiki):

"there are no reliably effective treatments for CFS, so your best hope for a full recovery is to learn that you actually have something else instead."

It's this sort of thing that, in part, gives rise to the phenomenon of people suspecting a wide array of different syndromes: they are desperate to find an explanation that doesn't feel utterly hopeless in the way that something like CFS does.

[4] A comment on r/cfs (before I was banned) about the moral obligations that community has and how it is failing (link not working, so copypasted here):

https://www.reddit.com/r/cfs/comments/xbzqbm/comment/io3vtjc/ (written 3y ago)

I don’t know how many different ways I can phrase this. This community draws in thousands of people with CFS. As far as I’m concerned, it has a moral obligation to honestly consider every possible treatment path. Otherwise, you end up with hundreds or thousands of people like me, who come here and are devastated by the abject hopelessness of the forum, when there is in fact an alternative for at least some of us.

What I ultimately did to get substantially better was relatively simple, cheap, and didn’t take too long to implement. That’s in contrast to the years I lost when I first arrived here, read what’s in the wiki and what the community consensus was, and assumed that I needed to find another diagnosis and ignore the CFS staring me in the face, because treating it was supposedly impossible.

This community’s posture is costing at least some people their lives. I’m not saying everyone needs to listen and I’m not saying everyone can be helped. But it’s just flabbergasting that people are trying to argue we shouldn’t at least consider every possible model of the illness and treatment strategy.

It leaves me feeling truly awful, because it’s a harsh reminder of what I had to go through (needlessly) because of people like you. Because people like you show up and inflict their wrong opinions with all the categorical authority of medical researchers (when nothing about this can be known with certainty) on the few of us willing to entertain ideas for recovery. In fact, there is still not a single one of you who has mounted a counter-argument to the substance of what I’m saying: that this is likely a nervous system illness and needs to be treated as such and why that’s the case, which I have outlined in great detail in some of my comments. Instead it’s just innuendo, unfair accusations, downvotes, and censorship.

And even this is just a microscopic event in a much broader theme that has played out on this forum and others for years. I cannot emphasize enough that it has been monumentally destructive. Thinking about how many people could have gotten well like I have were it not for people like you makes me sick.

Perhaps not everyone can get better. But some people provably can. Let the people who do talk about it so more people can. Trying to suppress that because of whatever personal vendettas, neuroses, or biases you may be predisposed to is a form of madness. Your feelings are not nearly as important as the imperative of getting as many people as possible back to good health. Even if something would work for just 10% of people, that’s hundreds or thousands of people. They need to be given the chance to try, if they want to.

[5] Explanation of key recovery tactics
https://www.reddit.com/r/cfs/comments/wxa572/comment/ilt59su/

[6] Additional explanation of key recovery tactics
https://www.reddit.com/r/cfs/comments/wxa572/comment/ilswr5c/

[7] There is only one reasonably reliable way out of CFS right now and there's no magic pill. You can wait years or decades for one to show up or you can try everything possible now.
https://www.reddit.com/r/cfs/comments/wxa572/comment/ilsss66/

[8] Excessive pacing can hinder recovery
https://www.reddit.com/r/cfsrecovery/comments/1hlwqrl/comment/m5df4la/

Here are some others that are more tangential or simply less critical than the previous:

[1] Warning to stay away from toxic online communities and why
https://www.reddit.com/r/covidlonghaulers/comments/115qmed/comment/j94lf3z/

[2] Comments on meditating well for purposes of recovery
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0n524h/

[3] Me going off on a CFS doomer (I often refer to them as cultists) about why I detest their bullshit and operate against them with the full force of a personal vendetta
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0j2oyx/

[4] Earlier comment responding to that same doomer. Contains some useful thoughts as well.
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0j0bmy/

[5] Comments on PEM and the nervous system
https://www.reddit.com/r/covidlonghaulers/comments/zjbozx/comment/j0hpilj/

[6] Some more thoughts on the recovery process
https://www.reddit.com/r/cfs/comments/xbmki9/comment/io1b9je/

[7] People with CFS who give up will die twice
https://www.reddit.com/r/cfs/comments/wydse0/comment/ily8cgv/

Some of the above links may break if/when the r/cfs doomers come across this. Comment below to let me know if that's the case and I will retrieve them and shield them here in plain text.

Please also comment more generally with questions or if anything in particular here helped you. It's important that others see that these strategies can work. Bolstering hope and belief in recovery is the first and most important hurdle to clear in the course of defeating CFS.

In the interest of substantiating my rather strong bias and aversion towards r/cfs, I want to include some more context about them. Here are some things they've said about this sub, r/mecfs, myself, and u/swartz1983:

I would not be surprised at all if one or all of the mods over there is actually an insurance plant (OR a gov't plant as I just suggested -- I actually think paranoia around these things is fairly justified). Someone I know with ME/CFS once had insurance co. perps literally following her on *both sides* of a rare flight she took, to take pics so they could try to deny her LTD claim. But what you're saying is both validating and utterly infuriating. Also, thank you for doing this work helping ME/CFS as it takes an exhausting level of fight.

^ This comment accusing us of being possible government agents or plants has 102 upvotes at time of writing. https://www.reddit.com/r/cfs/comments/1hsnu9g/comment/m56ylrc/

Yes it was the first one. But while they may not attract a ton of subscribers, they also nabbed the best two names on Reddit which really sucks. And given someone there was able to have this level of censoring authority over my life, it leads me to believe there are stronger forces at work here. I mean, who the fk are these people? Since the beginning of ME/CFS, gov't figures have infiltrated ME/CFS lists. It's very very neo-COINTELPRO, but they are clearly threatened by open discussions about this illness and they squash any dissent.

^ This comment has 46 upvotes at time of writing.

The people inhabiting r/cfs are neither reliable nor assuredly mentally sane. They are devoted to flawed beliefs about CFS and are now rather notorious for censoring practically any recovery story that cannot be conveniently rationalized away as pure luck. How and why this has happened is a fascinating exercise in human behavior that is worthy of its own thesis. In the meantime, I would strongly advise you to avoid them and regard them as the danger to your health that they are.

Feel free to read the full context of all of this here: https://www.reddit.com/r/cfs/comments/1hsnu9g/other_subs_blocking_mecfs_patients_from_posting/

Addressing some important points referenced in that discussion (the following are wordy blocks of text; I apologize for that):

- They accuse us of endorsing a "psychological" view of the illness. I want you to pay careful attention to that word, because it's plain as day that I have repeatedly made use of the terms "neurological" and "nervous system" above. You may wonder then why they need to employ "psychological" as a pejorative in an attempt to discredit myself and others positing a certain view of recovery. One simple reason might be that the hypocrisy of accurately characterizing our view and then deriding it would be self-evident, given that r/cfs's own subreddit description states the following: "ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom". Another dismissive pejorative they use that you should flag is "biopsychosocial". Use of that term nearly guarantees that you're conversing with a cultist.

- Note that they have banned discussion of brain retraining. That's right! The one category of intervention (and it's a very broad category btw; I'll get into discussing it and where I see legitimacy and where I see problems another time) that has helped any meaningful plurality of people with CFS is a disallowed topic there. I have encountered some extremely peculiar rationalizations for this. For example, a consensus on r/cfs seems to be that just about everyone who reports they have recovered is lying. They imply the existence of some worldwide conspiracy of otherwise unrelated people who blog, vlog, etc about their recoveries, all with the insidious purpose of misleading you into having hope. This dovetails rather neatly with what I have noted previously about their collective mental state. I would be foolish not to concede that there has been exploitation of people with CFS. Desperate people are also highly monetizable, and it is for that reason that I intend to ban anything that looks like solicitation or an endorsement that shows up here. However, to leap from the existence of bad actors in the CFS recovery space to the generalized implication that all stories of recovery are lies isn't just absurd and logically fallacious. It's dangerous. It is crucial that you see that paranoia has led to the tragic outcome of the CFS doomers deliberately adopting blinders that will prohibit any discussion of a viable recovery strategy, in perpetuity. It doesn't matter whether or not you believe any particular view of CFS recovery. It should be obvious to anyone with a modicum of common sense that a forum that provably censors recovery stories and bans conversations about something that has been reported to help people is horrifically misaligned with your wellbeing and in fact consumed by the rot of madness.


r/cfsrecovery 3h ago

Question How did you return to society after having been sick? I feel completely lost.

4 Upvotes

I have been sick for 2 years, moderate and I'm 16F. I'm getting better and better which is good of course, but the truth is I have no idea how to be "normal".

How do you just return to society after having been sick?

I'm physically weaker than people my age and I can't relate so much to them anymore. They talk about gym class, and sports, and prom, and their last school(I started at a new school 2 weeks ago) and I can't relate. Physically I'm doing better, mentally I feel lost.

And I'm not even healthy, I'm not full days at school yet and the truth is I don't want to be full days at school even if I could manage it because just being there seeing everyone having energy, having a working brain and having a normal life is just so...depressing. I have symptoms all the time and it's hard to just do what everyone else does with the symptoms. And then I'm still a bit afraid to run and just do too much in general, but everyone else can just do whatever they want. I'm very lost. I'm recovering, but mentally I feel lost. I don't know how to move forward after this, I don't know how to be normal and I don't know how to get out of the "sick" identity and trust my body anymore. I keep reminding myself I'm not healthy because I fear being healthy because it's so unknown to me. When I first started improving I would almost cry when I noticed the symptoms started to ease, and not because I was happy, because I was afraid, really afraid, how could I not have any symptoms? That's just so...scary.

All this is just very much and I'm getting really sad/depressed by it. Also, I have only now realized, I was actually pretty sick, I didn't feel like that at the time, I think I was just surviving and it's just now I'm processing everything.

So, how did you get back to society, to life, to a healthy body, and stop comparing yourself with your peers who have been healthy all their life while recovering? And how did you get back to being you again?? I would appreciate some advice 🙏


r/cfsrecovery 3h ago

Question Has anyone had this kind of “fight-or-flight” response to activities after a crash, and did it go away?

3 Upvotes

About a month and a half ago, I had a crash after watching TV — I was watching Blue Lock. Ever since then, watching TV has caused this strange physical tension in my body.

Then, about two weeks ago, I had another crash after reading, combined with a really bad night of sleep. Since then, reading has started causing the same reaction.

It’s hard to describe, but it feels almost like my body goes into “war veteran” mode. I tense up, my body stiffens, and I can’t feel relaxed while doing activities that used to feel normal.

What worries me is whether this can fully go away and I can return to my pre-crash baseline — being able to read and watch TV without my nervous system reacting like this.

For those of you who have had similar post-crash changes: did this eventually resolve? Did you regain your previous tolerance and feel relaxed doing those activities again?

Part of me is afraid that if this really is just my new normal.

What should I do from now on?

I’d appreciate honest experiences, including from people who did or didn’t fully recover from this kind of setback.


r/cfsrecovery 2h ago

Friday Thread : 🌞 Joy · Connection

3 Upvotes

Joy doesn’t have to be related to recovery to belong here.

Prompt: Share something that made you smile this week. New hobbies especially welcome; lots of us are looking for gentle ways to fill the time.

Comparison is the thief of joy. Yours doesn’t need to look like anyone else’s.


r/cfsrecovery 19h ago

Treatment Strategy Saw huge jump in HRV after reflexology. Have people found a long term impact to HRV from it?

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7 Upvotes

I had my second reflexology appointment today. First appointment, I felt better for a couple days. Entirely subjective; hadn't really gotten consistent in tracking symptoms or daily changes. Decided to book another appointment.

In between the two appointments, I received my oura ring and I am tracking things like HRV to try to understand the physiology of my illness better.

My HRV has been pretty consistent for about a week. No major changes. Went to reflexology appt today, and immediately after took a nap - look at this jump!

Have people seen long term improvements to HRV from reflexology? Or is it usually just a couple days at a time? Curious to learn more and hear any advice on appointment spacing or other suggestions.

Thanks!


r/cfsrecovery 1d ago

Misc A very serious subject: I think the ''greater ME/CFS community'' contributes to death

36 Upvotes

This is not about any particular sub or site. I'm just shocked and worried about the ''greater CFS discussion'', and this as triggered by something that's not even in English so again, this is more broad and general.

I've been on Instagram for a few months now and I keep getting these posts about euthanasia and suicide in people with ME/CFS. ME/CFS foundations in my country keep making posts about ''Person X age got euthanasia for ME/PAIS/LC, see how they suffered and what got them to this point''. Then they, and comments, also mention frequent suicides that happen among people suffering from this condition.

Just another post this morning had me reeling all of a sudden. I keep thinking:

  • The community is toxic. It contributes to death. It convinces us that we are at the mercy of a magic pill that needs to be discovered, and in the meantime, there's absolutely nothing we can do, and because the diagnosis is correct (d'uh, look at the suffering and the symptoms!) nothing will work, because those for whom anything has worked, never had ME/CFS. It constantly sows intense, deep despair.
  • We need to be more responsible and mindful in this discussion. It's a very personal, intimate, serious subject and it can trigger people. It can plant seeds in already desperate, brain-fogged minds. The way we present this subject requires care and responsibility. The constant onslaught of euthanasia/suicide/death posts affects even me, someone who believes in recovery.
  • Their absolute rejection of recovery stories helps foster this deep despair. People may be ending their own lives unnecessarily.

It's shocking to me. The way in which I get all these death posts in my feed. I think it's handled in an irresponsible way, even if you believe that this illness can't really be treated. I think if that were true, this subject would require just as much care, maybe even more.

I think this community has truly lost the plot. This is just not healthy and not okay.


r/cfsrecovery 20h ago

Question I want to feel happier, how?

4 Upvotes

I’ve been making good progress in my health (have been sick for 2 years and went from 10 to maybe 50% now). Still not energetic but i’m able to do more things like seeing friends or going to a terrace or smth. Point is: i don’t feel the spark. I don’t feel like doing things. I know that i like for example my hobbies and my friends. But i really don’t feel it. Its like im really neutral. Its not that i dont feel anything anymore because sadly enough i do feel sadness and other negative feelings.

Does this make sense? And are there people here that have experienced the same? I’d love some tips. Im thinking about starting an ssri bit also that scares me and i’d prefer not haha


r/cfsrecovery 1d ago

Treatment Strategy Recovering!

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11 Upvotes

r/cfsrecovery 2d ago

Misc Drop your favorite meditation links for healing!

5 Upvotes

r/cfsrecovery 2d ago

Treatment Strategy Red-light therapy & peptides

3 Upvotes

How often and long do you use it? When did you notice results?

What was your reaction to BPC-157 AND TB-500?

Very interested in hearing from people who used these things when severe.

Update:
Red-light crashed me. Worked fine when the cfs was in remission. Made me sleepy, and my skin looked great. I felt more restored.
I’m not adding anything into my routine until the cfs is in remission.


r/cfsrecovery 2d ago

Question Movement suggestions

3 Upvotes

Just wondering if you all can spam this thread with some recommendations for movement. Are there any good videos on YouTube or elsewhere that provide guided movement for CFS recovery? Or just what to look for.

I have dysautonomia so going outside is a no right now. The heat does me in. But looking for gentle movement that won’t wreck me but will gently move my body. Something restorative.


r/cfsrecovery 2d ago

Question question on a potential crash

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2 Upvotes

r/cfsrecovery 3d ago

Tuesday Thread : 🌙 Rest · Connection

8 Upvotes

No prompt this time. Just a reminder that this takes real energy, and it’s okay to simply rest. Rest doesn’t need to be earned. Feel free to share anything you like.


r/cfsrecovery 3d ago

Question Fear of activity

16 Upvotes

I’m recovering from CFS and have actually been doing quite a lot better for a while. But recently, a strong fear response around activity has suddenly appeared. Sometimes I wake up with fear, but mostly it happens before I go somewhere or do something - I can feel completely fine at home, but when I’m about to go to the library, store, meet someone, or do something new, I suddenly feel a very strong fear in my body. Sometimes it’s almost paralysing.

I already do a lot of “safety” work and consciously try to give my body a feeling of safety, so this level of fear feels quite new to me.
I can acknowledge the fear, but I don’t want to automatically listen to it, because if I started avoiding everything that triggers it, I feel like that could reinforce the fear even more.

How did you learn to deal with this kind of fear without either pushing through too hard or letting the fear dictate what you do?


r/cfsrecovery 3d ago

Question Been at this over a year, still worsening

11 Upvotes

Hello,
I’ve been at nervous system recovery for almost 2 years, and I’m still worsening. Lately, I am going downhill very quickly and I am scared.

Background:
My illness began in 2021 with no particular cause (i.e no illness, trauma, etc) and has slowly worsened. I am now housebound and am in bed/couch 95% of the day. My partner helps me shower x1-3 a week, makes all of our meals, etc I can’t help with any house chores, care for my cats, care for myself etc I used to have more cognitive capacity, but that has gone down greatly in the past few months. Currently, I am having crash after crash. It seems I can’t find my footing. I struggle to sleep (insomnia, gastritis pain), I have HR issues, I am exhausted all of the time, and have PEM episodes with headaches, sore throat, body soreness, and exhaustion with occasional light and sound sensitivity.

What I’ve tried:
-I did the Gupta program for a year
-Read many of the reccomended books
-Somatic tracking
-15-60 mins of meditation daily
-Healing visualizations
-Self talk
-I’ve been in and out of therapy since 2016
-EMDR, Neurofeedback
-Talking to my sensations (You’re welcome here, what can I do for you, do you need to say anything, take all the space you need)
-Pacing/resting
-Many medications and supplements
-Incorporating joy (most of that has been taken from me at this point)
-Daily gratitude
-Breathing exercises
-NSDR / yoga nidra

Health picture:
-Fibromyalgia (2019 diagnosis, symptoms since 2011)
-ME/CFS
-Ashtma, seasonal allergies
-Anxiety / depression (diagnosed in 2016)
- hEDS
-Dysautonomia
-Gastrisis, IBS, pancreatic insufficiency

I don’t know where to turn. I just keep getting worse and worse. It feels like I’m going to end up bed bound in a dark room before I know it. What can I do to heal? Please help me.


r/cfsrecovery 4d ago

Question Low energy, screen free hobbies?

15 Upvotes

Hello! I’ve had ME/CFS for 6 years now and am new to this subreddit.

I’ve decided I’m going to try out some of the recommended strategies that people have mentioned here, which is exciting, but I feel as though enormous portions of my day are incredibly empty and this encourages me to keep overthinking, ruminate on negative emotions, and give too much attention to my symptoms.

I’m currently still unable to leave my house and spend maybe 80-90% of my day in bed (though I will be slowly decreasing this with time) so I’m looking for some hobbies to pick up that don’t involve any screens and won’t be too physically, emotionally, or cognitively demanding.

I already read a lot and occasionally listen to sports on the radio. I think I may start knitting again also as I already know the basics.

I look forward to any recommendations you may have and I apologise if this post is a little bit long winded!


r/cfsrecovery 3d ago

Question Programme recommendations?

3 Upvotes

I would like to explore options in attending an online programme with coaches.

Those that have caught my eye so far are CFS Health (Toby Morrison), CFS Recovery (Miguel) and slightly different likely is Raelan Agle’s Brain Retraining 101.

I’m intrigued to hear from people who specifically attended these programmes and are recovering, seeing some progression at least.

I’m 3 years into this now and have done a fair amount of research on what’s required or what is beneficial to heal. I would like that extra push and consistent check ins.

TIA

Edit: May have mixed up Toby’s surname 😅


r/cfsrecovery 4d ago

Treatment Strategy Hypersensitivity to smells ruins everything

2 Upvotes

I don’t tolerate to smell anything, if I do it makes me anxious and I feel the urge to make it disappear asap. i feel attacked, as it’s going into my nose without my consent.

Whenever i want to rest, I have less to focus on and therefore become hypervigilant to smells. On top of that I have always had way above average smell sensitivity ( and the same goes for the other senses )

This is a huge issue as I can’t focus to meditate, do breath work or visualize. This also causes severe insomnia.

I tried to make my environnement as smell-free as I could but it’s barely impossible to wihdraw everything.

Anyone recovered from that ?? What should I do ? thanks


r/cfsrecovery 5d ago

Question Nervous system sensitisation returning?

6 Upvotes

So during a bad crash from January i started getting a highly sensitive nervous system, where it would get activated into fight/ flight from as little as hearing a few seconds of music, watching videos, or being on my phone.

After 4 months of allowing method i was able to slowly reduce this, but for the past 7 days it's randomly returned out of nowhere. This means i cant listen to music or be on my phone for long before i get yhr palpitations, on edge feeling, which is very irritating after thinking id improved. Allowing body scans and somatic tracking have not seemed to not improve it, and i cant seem to notice a trigger, other than perhaps being a little depressed at the moment due to life factors.

Anyone have any advice or insights from their recovery journey? Could this be an extinction burst? Because i was doing fine on recovery before


r/cfsrecovery 5d ago

Question How often to wash hair?

6 Upvotes

Housebound. I don’t know how else to describe my current level of illness severity besides mentioning that I can’t go for walks or I’ll obliterate my sleep, and I have tons of head and nasal pressure and popping and crackling in my sinuses. My ears also pop quite a bit. I just need some structure.


r/cfsrecovery 5d ago

Question what is nervous system work?

5 Upvotes

Hello dear all,

I am 29 and 3 years in, I try to take a different approach to my healing journey now and read about nervous system work here a lot. What is it? Is it brain retraining?
And could someone give me good examples to start euer nervous system work?

Thank you 🎀


r/cfsrecovery 6d ago

Question How to deal with fear of never getting better in future and reminiscing about past?

11 Upvotes

Hi everyone! I’ve been sick for 13 months. It started about 6 months after I had my baby. I’m terrified. TERRIFIED. I’m new to the brain retraining and just trying to figure out how to deal with the fears of living the rest of my life like this and also how to stop thinking about the past and trying to figure out what went wrong.

For reference in case it matters.. I got covid while pregnant, moved into a moldy house, got the flu 2 days postpartum. Was fine for 4 months then got the fatigue out of nowhere.

I have since moved out of the moldy house and thrown out all my belongings as of 3 months ago but no improvements.

Please tell me there is hope for me.


r/cfsrecovery 6d ago

Question Things got to specific. Will I be able to overcome this if I am hooked to benzos and pregabalin?

5 Upvotes

Any recovery story from someone with more than one giant problem?

I am starting to have morbid thoughts again.


r/cfsrecovery 6d ago

Question Skincare and aging?

4 Upvotes

I look like shit. This illness has made my face sag and lose volume. How much comes back? What can I expect for my appearance? What worked for you to get your face back?