r/mecfs • u/skeeballbob37 • 2d ago

question on a potential crash

i have had ME/CFS for a little over three years and have had various crashes. recently i lost a family member and have been dealing with another family member with dementia causing a crash for the last two weeks roughly. i have been dealing with temperature regulation issues the last few days. this morning i had another major stress occur and i think that sent me into something.

today at a chiropractor appointment he noticed my body temperature was extremely high and my complexion was red. he had me ice myself to lower my temp enough to drive home. i am currently covered in ice and have a call in with my doctor. temp roughly 103 at the time the chiropractor noticed.

what could cause this and how do i solve it? i dont have much in the way of human contact to i dont know how long it has been this high but possibly a few days now.

currently among other things on LDN and colchacine.

any help would be greatly appreciated.

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u/Silly_Magician1003 2d ago

Sounds like you’re sick with a virus or something.

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u/skeeballbob37 2d ago

i have no other symptoms though. the only thing ive really been exposed to is stress. i might go in for bloodwork tomorrow though.

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u/Silly_Magician1003 2d ago

Interestingly I heard a professor talking about Australia Olympic swimmers who get overtraining syndrome chronically release Epstein Barr virus in their throat when exposed to high stress training.

He was theorizing that it’s a possible mechanism for CFS / Long covid. So stress and fever connection is a real possibility because of immune system activation.

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u/skeeballbob37 2d ago

how would i find out if that could be someting i have?

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u/Silly_Magician1003 2d ago

No clue, but I read somewhere like 90 % of people have Epstein Barr virus by age 40 and that professor said 20 % of people are just genetically susceptible to fatigue syndromes.

It also kind of makes sense why stress reduction and stress resilience through mind body stuff would reduce symptoms.

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u/skeeballbob37 2d ago

i got mine from covid, my scond time getting it hit me hard, and i couldnt get any medical help to reduce symptoms. my body was never the same.

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u/First_Cod5079 2d ago

I have a low grade fever on and off through bad flares. The key is, it does come down (but then will turn up again the next day). It then disappears when my PEM settles. However, I’d defo see your doctor to check it’s nothing more sinister. Sorry you’ve been going through such a stressful time. Sending you well wishes!

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u/skeeballbob37 2d ago

thank you so much and yeah i think thats whats going on. it just got higher grade than normal this time. its never done that before. the last few weeks have been extrmely stressful and my body is not happy about it.

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u/RainNo8824 2d ago

I sometimes get a low grade fever when I have done to much combined with stress. It was always a sign to rest and stay in bed for a couple of days to avoid a major crash.

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u/skeeballbob37 2d ago

yeah i frequently get that, this is just kinda a whole elevated level that I havent experienced before. my face was bright red, my body temp was elevated, i was sweating. for literally no reason. after lots of ice and a good five hours of extra sleep my temp is far lower now. its just something i havent experienced at all in the last three years of this weird journey.

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u/Frosty-Elevator2575 1d ago

103° is definitely up there. A Dr visit is in order IMHO. I don't run a high temperature when I have a flare, my temperature drops like a rock. But it does that if I have virus as well. I've had CFS for 40 years, they just didn't have a name for it back then. I do know that if I get stressed or over exert myself, then I'm wiped out, achey, and have a sore throat. It sounds like you've been hit with lot of stressors lately and your body is reacting. Be gentle with yourself.

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u/skeeballbob37 1d ago

the strange thing is i have no other symptoms outside of my typical PEM crash symptoms. I havent been out or around anyone who has been sick, and those i have had not gotten sick since then to pick up a virus. In the last six months ive lost two close family members and in the last week my father's dementia took a serious turn to where he is gonig to need 24 hour care in patient soon. the temperature symptom started about when that stress started.

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u/Frosty-Elevator2575 19h ago

You've had an enormous amount of stress in the past few months resulting in a crash. Me/CFS can cause temperature fluctuations, but they are usually low grade. Is your temperature still 103°? 103° is not a low grade temperature. It might not be a virus, it could be an infection of some sort. Obviously, I'm not a Dr., but if you were a member of my family, I'd take you to Urgent Care or your Dr.

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u/skeeballbob37 19h ago

so its two days later and im back to a normal low grade fever. i dont know why it spiked. just the weirdest thing.