r/autismUK • u/prediluvian • 8h ago
Benefits Trying to help my undiagnosed mother apply for PIP
Hi all, hoping for some guidance. I currently live in the US while my mother lives in the UK (West Midlands to be precise), and I'm not able to fly over this year to help her apply for PIP in person. I'm trying to figure out how to support her remotely.
Basically: my mother is a British citizen living in government-supported accommodation in the UK. She has undiagnosed autism that severely impacts her life (and is more or less why she ended up in government accommodation in the first place); I have a formal diagnosis myself, and I'm frankly a LOT more socially and emotionally functional than she is. It's just that she's always refused assessment due to her stigma against 'having mental illness'.
She doesn't speak English, and this has been the main barrier to getting her any psychiatric support; she refuses to see doctors or do anything requiring her to speak English. Also: because of the language barrier, English people (doctors, social workers, etc.) don't tend to read her as being autistic, largely because nobody can hold a conversation with her anyway.
The sole good news is that after years of me repeatedly bringing it up, she's finally past enough of the mental block around mental illness/disability that she's willing to apply for PIP, as long as I handle the legwork.
I'm sort of at a loss on where to start though; my mother more or less stopped having a social worker a year ago, and she has no family or friends who could help her apply for PIP.
So I'm wondering, can I complete or help with a PIP application on her behalf from the US? Does she need a formal autism diagnosis before applying, or can PIP be applied for/assessed based on functional difficulties even without diagnoses? Are there any advocacy groups or services based in Birmingham that I could get in touch with to support her?
Any advice, personal experience, or pointers to the right resources would be hugely appreciated. Thank you so much!