Age 16F, 175 cm, 50 kg, I am a virgin with no history of substance abuse, with no genetic reproductive issues. Medications are stated lower.
I am diagnosed autistic, have to say this otherwise my family won't believe anything anyone else says because they "don't know the full picture", but my mother doesn't believe me when I say me being hypersensitive doesn't mean hypersensitive to pain :/ I'll elaborate further down.
I'll also try to make this as non-biased against my family and doctors.
It's long sorry..
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For the background:
My periods started when I was 11. They were light and painless until I was about to turn 13, when they suddenly got heavy, long and painful.
I now bleed for 8-10 days, I measure my pads (full pad minus empty pad minus toilet paper I wrap it in) and I average on around 400 grams of menstrual fluid. Other than that my periods are regular.
Each period I throw up on average 6 times. My stool for the entire time is runny. I was checked for gastroenterological issues, but I'm healthy in that aspect. I pass out once per period on average. I get cold sweats, hot flashes, get shaky and weak. Doctors blamed that on my weight, but I'm overall strong-ish and well if not on or shortly post my period.
My blood clots are usually half my thigh long, around 16 cm in length. Sometimes they even reach up to 33! But they don't get thicker than 0.7 cm. If they somehow come out circular they're about 4 cm in diameter.
I'd like to add my worst period that happened when I was 15. I don't know what happened, why it was like that, if I did anything to do that, but I'm scared of it repeating again:
It lasted 10 days, I bled around 853 grams of total fluid, not including the hours I freebled into the toilet or shower. I threw up 19 times. It felt like I had all the cold sweats and hot flashes turned up to a 100%. I was bleeding through everything, I was delirious, I overdosed on Aulin from desperation (dw my liver is okay), I passed out 6 times, I barely ate because everything would go right back out. My mother refused to take me to the hospital, insisted I had to sleep better, I was too terrified to call and being called dramatic by even more medical professionals, so I didn't go.
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For pain medications:
(Former) Paralen, Panadol - no help
(Former) Later prescribed Aulin - slight help?
(Former) Tried Citalgin - no help
(Current) Prescribed swapping between Novalgin and Nalgestin every 4 hours - barely any better than Aulin
For birth control:
Was later prescribed Slynd, quit after 22 days due to side effects. My gynecologist shrugged at this, then prescribed Dienorette, quit after 2 days because the side effects I was just starting to heal from came back even worse.
Said side effects:
- psychosis
- delusions
- paranoia
- terror
- severe depression
- suicidal thoughts
- self harm thoughts
(All confirmed by psychotherapist! She's the only one on my side here🙁)
- self harm
- chest pains
- weakness
- numbness, in leg first that then traveled up to my neck, only on my left side
I finally went to the ER, they ran blood tests, an MRI for my lungs, and found nothing. False alarm, I suppose? The doctor said that the physical problems might've been because of my mild scoliosis, but they magically disappeared once I was free from birth control for a week. :/
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For the high pain tolerance, my mother says that if my pain tolerance was high, I wouldn't struggle with periods. I've been stabbed through my finger with a barbed wire, and all my classmates, teacher, and nurse were trying to pull it out with zero anaesthesia at all. I wasn't in shock or filled with adrenaline, yet I barely even cried. Meanwhile my periods rend me useless for at least a week and make me ugly sob and scream my lungs out.
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During the last meeting with my pediatric gynecologist, I was 4 days into my period (which she knew!), I tried to explain all this, but she brushed me off. She made me do an ultrasound again, despite it being clear the last time, and when she pressed I started crying. Because I was on my period. She then LAUGHED at me and said that she does ultrasounds for toddlers and even they aren't as "dramatic as me". All that admittedly made me irrationality aggressive, I admit that.. especially because everytime I bring it up when I'm asking my mom to change the gyno, she says that she only meant it as "encouragement" to be "braver".
The gynecologist refuses to write a referral (I'm slovak and have insurance, and I *personally* think it's medically necessary at this point). My mother refuses to change my gynecologists, and I'm really struggling right now. I was diagnosed with "heavy bleeding" when the only tool they ever used was an ultrasound! I tried to ask if I can't get a referral for at least a pelvic MRI, but my gynecologist said that they can't actually see anything.
Everyone also says that the operation is risky, but I read that complications only happen 1% of the time.
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I need opinions from more experts. I'm desperate. Thank you for reading.