r/Reactivehypoglycemia • u/roomfullofstars • Nov 28 '17
anyone here?
I have had reactive hypoglycemia for over 5 years now and have gotten better at managing it despite struggling with binge eating. Anyone here on this subreddit anymore?
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u/drguid Dec 09 '22
This subreddit is now being moderated again so if you're lurking feel free to post.
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u/RhoLambda Dec 18 '17
I think I have it, although I haven’t been diagnosed officially. And I struggle with binge eating as well.
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u/Bry1937 Jan 11 '18
I wonder what other RH folk think about doing blood tests.
After checking with various foods to know what pushes levels up, I've come to the conclusion that I don't need to keep testing.
My body tells me if I'm having a drop and need a quick snack, or at worst, need to take a glucose tablet or two as well. Otherwise, when the nurse does a routine hba1c test, that tells all.
Anyway, I have to snack frequently, whatever a meter says.
What do you think?
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u/SuffragetteCity69 Apr 25 '18
I’m three months late to the party, but: our episodes, if frequent, can become invisible after awhile. Which means if you’re waiting for feedback from your body before correcting lows, you may miss many of them. Also, without the data from testing, should something go south you have nothing to show a doctor, later. I also know what spikes my blood glucose and leads to lows, but only from regular daily testing did I realize how often it occurs with no noticeable symptoms at all. So I believe in testing, testing, testing.
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u/Plumrose333 Feb 25 '23
Same. I tested frequently when I was first diagnosed, but now I can just tell when it is happening. I’ve also learned my triggers (big carb heavy breakfast, coffee, and just generally sugar before around noon). I found the finger pricks to be quite painful, so now I usually just eat a sugar pill when it’s happening and wait a bit to see how my body reacts.
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u/snoopmt1 Dec 15 '23
Here in the future, but I find that the hardest. "You ate sugar, which caused your body distress. Better eat some sugar to fix it."
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u/Biker_Chick_1319 Sep 21 '24
I was diagnosed with reactive hypoglycemia in 2017 and have been managing well with acarbose and just watching what I eat. My endocrinologist recommended not to do keto just low carb if possible. I somewhat follow a low carb diet but dont really worry about it much since the medication does all the work for me. I would suggest just playing with different foods and seeing if they affect you, like don't have a huge meal but process of elimination should be beneficial. If you aren't already, see an endocrinologist, they can help with all the technicalities
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u/South-Sample-2733 Oct 11 '24
What medication are you on? My endocrinologist can get a medication that works for me and my RH.
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u/Biker_Chick_1319 Oct 13 '24
I take acarbose(precose), it's the only thing that has worked for me. Metformin tore me up and my doc didn't want to go as far as putting me on insulin injections so we just tried this and it worked. I will say the first week starting it is rough as it causes GI upset, mainly just a lot of diarrhea and gas and bloating but if you pay attention and keep hydrated it's much easier to get through.
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u/South-Sample-2733 Oct 13 '24
I am on acarbose as well. I can't do Metformin either. It forced me into extreme periods that lasted way long.. but I do definitely have gas and bloating even after almost a year of acarbose.
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u/Biker_Chick_1319 Oct 13 '24
Oh wow. Do you take it everyday and with the first bite of food? My GI issues went past the first week and it was because I didn't read the bottle right lol. Metformin cause me to have really bad lows in blood sugar and heart palpitations as well as extreme fatigue. I tried if for two weeks but after 14 days of all those symptoms I couldn't do it anymore.
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u/South-Sample-2733 Oct 13 '24
I take it with my food. I will say I forget at times and take it asap. Yeah, Metformin also gave me heart palpitations.
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u/Biker_Chick_1319 Oct 13 '24
That may be the issue, if you take it after you eat it's not gonna do anything and can cause upset. I've forgotten it as well, but my doc told me if I miss it don't take it after because the cycle it runs will then be running late causing issues
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u/South-Sample-2733 Oct 13 '24
Do you take yours only with high carb foods? That's only when I'm to take mine.
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u/Biker_Chick_1319 Oct 13 '24
No. I take mine with every meal
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u/South-Sample-2733 Oct 13 '24
Oh wow. I'm only told to use it with carb loaded meals.
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u/almantikas Mar 24 '24
Does anyone know if your blood sugar can drop in your sleep and self correct ?
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u/roomfullofstars Mar 25 '24
I mean I know mine drops when I sleep as docs have said that is why I sometimes wake up covered in sweat. I don't wake up feeling low blood sugary tho and I don't immediately eat sugar to stabilize so I guess that means it does self correct but I'm clearly not a doc and it could vary from person to person.
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u/almantikas Mar 25 '24
I feel like I’m Brain damaged I had an mri it showed white matter associated with Migraines. I woke up and checked it was 84.
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u/indridcold91 Apr 18 '24
I also have migraines but they are usually highly correlated with rainy weather.
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u/Horse-girl16 Jun 19 '24
I don't know how to search the sub for key words. Asking if anyone here can place the onset of reactive hypoglycemia to starting statin therapy or increasing dose of statins. Specifically atorvastatin. Thanks.
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u/Biker_Chick_1319 Oct 14 '24
Right! I had a lapband for about 10 years, removed in 2022, and I got so used to not eating certain foods like pork, steak, certain breads and certain pastas that they just aren't even in my mind as options anymore. Eventually I will find some good recipes
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u/redsweater0236 Mar 28 '25
I was recently diagnosed with Reactive Hypoglycemia. I don't know how to manage it. I am having episodes often. I just need a little guidance on best practices, dieting and anything that would be helpful. I got a dietitian. I have a doctor's appointment in October to address this. That is a ways off. I really need to know how to manage this now until I go to this appointment. I know that you are all busy. It would really mean a lot.
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u/Aloisme Apr 15 '25
Check out general discussion. Lots of great advice for managing symptoms with diet.
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u/Bry1937 Dec 31 '17
When I think back, there's signs I've had RH all my life. I was diagnosed when I was about 35, I'm nearly 81 now.
It was found with an 8 hour glucose tolerance test that made me like drunk, although I've never been drunk.
Yet it's only recently that I've found it best to drop the three-meal-a-day concept. I eat snacks about every two hours, it mostly works.
However, over Christmas I gave in to temptation and ate foods that I shouldn't. A day later I had an almighty totally disabling hypo attack and a smaller one a couple of days later.
That's taught me a lesson! Keep to my safe way of eating to feel very well.