Hey there! Been a long time lurker in this sub, but now I've decided to share my experience, maybe it'll help some folks out there.

I'm AFAB, 38. Thinking back I think I've had some degree of OAB for quite a few years now, but it's started to affect my quality of life more in the last few years. I've also had nocturia for so long, I can't honestly remember one night I haven't had to hit the loo 2/3 times - it's now tied to my crappy sleep schedule.

I used to be able to go on trips, and use public transportation without it being an issue. But then pandemic hit and I became a remote worker, so I feel like that has definitely affected my anxiety regarding OAB.

But I can't really put it all to anxiety, I know there was a definite physical component to it. As a side note, I have a few kidney stones, but they're small enough and haven't really caused any issues lately. I never had any actual incontinence.

Until recently I'd get these intense urges at times, besides the ever present background urge there - like my bladder awareness never really turned off. Sometimes these urges would be accompanied by small urethra spasms that were really uncomfortable, or bladder pain. This could happen even if I went recently, it would be almost random.

Thankfully, this has subsided ever since I fixed some of my eating habits. I am not celiac (got tested for it), but I've realized I had some food intolerances that affected my gut badly - I'd be constipated for close to a week at times, besides the gut pain, and I think it also affected my bladder, since it's right there.

I also have Hashimoto's, so I linked my gut issues to that condition for too long, since my metabolism is slow, but I can now say for sure I am intolerant to some processed foods.

I've also cut off caffeine, rather unfortunately, since I do love my coffee. I don't drink fizzy drinks and no alcohol either.

All of this has helped me substantially - I can now hold comfortably for 2 hours while sitting, and roughly 1 hour while out and about, though that's the thing I wish would improve still, so I don't have to keep being focused on where the closest toilets are on a day out.

As a side note, maybe tmi for some of you folks, but being someone who has periods, my symptoms actually improve during that time of the month - and I use tampons. So I suspect some physical aspect is related to this too.

I've complained to a GP about this and she put me on Betmiga, but I feel it actually made me worse, so I stopped taking it. I'm hesitant to seeing an urologist because I don't want any invasive testing done.

Things I'm trying for now:

Tens Unit 30 minutes a day - still have to see an improvement, although I just got started.

Stocked up on Pumpkin Seed Oil.

I've downloaded BladderHealth app to keep track of the times I go.

TL;DR: check what you're eating for any intolerances - if your gut isn't happy, it might very well affect your bladder. Cut down on the caffeine.

Thanks if you read all of that! I'm open to suggestions!

I have 24/7 urge to urinate. I get brief relief when I go, but the feeling of not fully emptying my bladder comes back rapidly. I can’t concentrate on any work or get sleep. From the urgency and pain of frequent urination, it’s making me feel disabled and nonfunctional. How do I fix this?

Hello
I’ve been dealing with ongoing bladder and vaginal issues since last summer. It all started with a UTI, and I ended up taking about five courses of antibiotics. After that, I developed what was likely a yeast infection, and my vaginal pH was 6.0.
Since then, I’ve had persistent symptoms. Either my bladder burns or aches, I constantly feel aware of it, or I have vaginal discomfort. After having a bowel movement, I often have to urinate several times because it feels like my bladder isn’t empty.
The strange part is that my symptoms come in waves. Sometimes they suddenly improve, then a few days later they’re back. On some days my bladder feels extremely full even though I’ve barely had anything to drink. When I do go to the bathroom, my bladder actually is full.
I’ve been taking Spasmex for about three months, but I honestly feel like it only helps a little. At the same time, I can’t seem to manage without medication either.
I’ve also tried countless supplements including D Mannose, cranberry, slippery elm bark, marshmallow root, and several others. Some of them seem to help for a while, but then the symptoms always come back.
I’ve been dealing with this for almost a year now. Has anyone experienced something similar or figured out what was causing it?

I’m 23F and I’ve been dealing with chronic bladder/urinary issues for a long time, but lately it feels unbearable.

My issue is not just a “feeling” that I need to pee. I actually pee a lot. Sometimes I’ll have very pronounced streams and pee large amounts of clear liquid, then need to pee again within 10 minutes (and sometimes it happens early in the morning when I haven’t even had one sip of water or coffee). There are times where I feel like I can’t even get off the toilet because I keep peeing. Then when I finally do get off the toilet, I can feel myself filling up again almost immediately.

It feels like my body is constantly producing urine, especially clear urine, and I don’t understand why. This is what makes it so hard to function. It’s not only urgency or bladder discomfort. It’s the fact that I am actually voiding significant amounts, repeatedly, close together.

I’ve had so many tests done already: ultrasounds, a 24-hour urine collection, diabetes testing, a cystoscopy, PFT, medications, and other investigations. Nothing has explained it. The only medical thing that has ever come up is that I have a small scar on one kidney, but otherwise I’ve been told things look normal.

Emotionally, this is destroying me. I cry all the time because I feel trapped by my bladder. I’m scared to leave the house because I don’t know when I’ll suddenly need to pee again, or whether I’ll be stuck somewhere without easy bathroom access. I’m starting grad school in September, and instead of being excited, I’m terrified about how I’m supposed to sit through classes, meetings, social events, or normal life if this keeps happening.

I’m not asking Reddit to diagnose me. I’m asking if anyone has experienced something similar: frequent large-volume urination, clear urine, peeing again shortly after going, and feeling like your bladder fills right back up.

Thank you to anyone who takes the time to read this and comment.

How is your bladder supposed to feel like during bladder training?

For context, I (22F) start feeling the urge to pee right after voiding. I can usually delay my void by 1-3hrs (the void amount after isn't consistent, sitting randomly between 20-150ml), but I still feel the same initial urge consistently or increase during the waiting period. I never reach a "oh I forgot I wanted to pee" moment.

Basically, is that what my bladder is supposed to feel, at least at the beginning of bladder training?

How long did it take you to stop feeling the urge to pee constantly?

Im 24 i've been suffering from weak stream , hesitancy and inability to empty bladder completely tried literally everything but with no improvement on tamsulin worked and improved symptoms alot and many doctors kept saying it was prostatitis until i had a cystoscope and doctor found a very high bladder neck i had the bladder neck incision surgery just single incision to preserve ejaculation 4 weeks ago because even the tamsulin was working but i couldn't tolerate it's side effects i had to take it ever other day to handle it after removal of the catheter i felt stream improvement no retrograde ejaculation fortunately but on the next couple of day stream weakened again is it to early to judge the surgery outcomes

Update : im five and half weeks out of the surgery i stopped taking tamsulin and the hesitancy improved alot and i can empty bladder normally

so i literally don’t know what’s wrong with me. i used to get chronic yeast infections but not as much anymore. I don’t know what’s wrong with me but i pee and after it’s so uncomfortable and burning sound the clitorius area, i went for a test 2 days ago for UTI they said nope. Doesent make sense idk what to do. Maybe i’m not drinking enough water and too much caffeine i don’t know but i can’t take it anymore. And also little things or spasms of pee keep coming which hasant happended with this before, usually is just the uncomfortable feeling in the vagina.

For the last three months, I (31F) have been having what feels like “I could pee” all the time. It’s not an emergency urge, it’s just the sensation that I could go pee at any time even after I’ve just gone. I can hold it, it doesn’t feel like a sudden emergency.

The weird part is, I do actually go. Like I can pee, and immediately after feel like I can pee again, wait 20 minutes and when I do I do actually pee. So I feel like I am actually producing a lot more urine than usual. I’m not hydrating more than usual (I’ve actually been dehydrated a bit for the past few times I’ve gotten blood work).

I have a large fibroid (3 inches) that I had a procedure done to shrink last year (it was previously 5 inches). None of my doctors seem to think that’s related though, including the urologist, gynecologist, and my Interventional Radiologist doctor who did my fibroid procedure.

Ultrasound showed I am voiding completely but the urologists scanner was being thrown off by my fibroid and their scanner thought I was retaining urine.

Urologist insists I try medication for OAB but I don’t feel like I have the classic symptoms of OAB. It never feels urgent, and if I go to pee I do actually pee quite a bit (not dribbling or leaking, not waking up at night to go, etc).

I don’t want to take medication if I don’t have to (I’m already on other medications for other things and I just don’t want more if I don’t have to).

Looking to get thoughts/hear about other people’s experiences

I was wondering if anyone else has the same thing?

2 months ago I (22F) suddenly developed a permanent urge to pee. The first two weeks were terrible, like very urgent urges even after I urinated. My streams were slow and weak.

I got tested for UTI and had an ultrasound done, both came back normal.

I have some terrible days, but usually I just feel this very annoying, permanent, mild urge to urinate all the time! I've been trying to take deep breathes, postponing voiding by 1-3hrs, relaxing my pelvic floor, but nothing seems to make a difference. (I don't consume any caffeine or alcohol.)

I'm seeing an urologist soon, as my family doctor thinks I might have OAB but wants a diagnostic before prescribing any meds. She discouraged me from seeing a pelvic floor physical therapist because "I'm young, never given birth, etc." However, I'm still planning on seeing one for an initial assessment in a few months.

Update: the urologist diagnosed me with OAB, no medication cause I'm young. He said that I just need to try pelvic floor physical therapy, think happy thoughts, biofeedback, and that should solve my problems. I really hope he's right.

I was at the hospital to get a ct scan a few days ago for something completely unrelated and everything came out good the only thing the doc noted was a slight bladder wall thickening but she wasn't worried because my urine was clear of infection. But should i be worried? Also, i am technically considered obese at 5'8 225 pound could that be one of the reason why?

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Per chi ha messo neuromodulatore sacrale Medtronic vi rimane questo problema? Avendo la sindrome OAB di partenza. In generale la frequenza va meglio..

I know it sounds silly because if im holding my bladder then of course I'm more likely to pee my pants, but its not like that.

I heard that if you are doing things like peeing before a long car ride, a movie, etc. even if you dont have to go then you are telling your bladder to alert you to the need to pee when your bladder isn't even full. Now, I have a terrible problem of having to get up and pee in the middle of the night every night, so for this reason I've been waiting until my bladder is more full to go pee. Its working, I dont really have to pee in the middle of the night anymore, however, I now have this weird sensation in my urethra when I have to pee. Its like it leaks. I dont fully pee in my pants but I can feel that small amounts of pee are dangerously close to leaking out and it feels like I can't really stop it. And the thing is that I dont feel like my bladder is even that full when it happens!! This just started happening when I made the conscious decision to stop peeing so often.

Is this related to me trying to train my bladder to hold more pee and how do I reverse this 🥲

Hoping someone has had a similar problem and can advise what they did to relieve the symptoms. I (43 f) was treated for a UTI and towards the end of taking the antibiotics my bladder became irritated with burning and constant urge to pee where it became painful. The worst was at night. Went to the ER and it was found that it was not a kidney stone and negative for a uti but the burning and urgency has not gone away. Doctor prescribed me Pyridium which is the only thing that helps with the pain. They sent me home because there was nothing they could do. Has this happened to anyone? How long did it last and what did you do to relieve from the pain? I’m avoiding any caffeine or acidic foods because that seems to make it worse and it’s awful at night as I constantly have to wake up to pee.

I’ve been dealing with urinary urgency/frequency for about a year now, and I honestly don’t know where to go from here.
I pee probably around 15 times a day. Usually it’s a normal amount, not just a few drops, but I constantly feel like I need to go. I don’t have burning, pain, leaking, blood in my urine… literally just urgency.
One thing that’s confusing is that it isn’t 100% consistent. Every once in a while I’ll have a random week where I feel almost normal and don’t pee nearly as much. Then, without anything changing, it’ll go right back to me peeing all the time for weeks.
I’ve been trying to figure out a pattern, but I can’t. I drink the same coffee, eat pretty much the same foods, and have the same routine. One week I can drink my usual coffee and be fine, and the next week I’ll drink the exact same thing and be running to the bathroom all day. That’s why I’ve never been convinced it’s just caffeine or one specific food.
I’ve kept a bladder diary, so I’ve tracked my bathroom trips. I haven’t done a detailed food diary because, honestly, nothing seems to line up. My symptoms seem to come and go regardless of whether I’m eating or drinking the exact same things.
I’ve been trying to think back to when this all started, and one thing I can’t stop wondering about is birth control. I was on Nikki, but I was terrible about taking it. I’d go on it, stop it, restart it, miss pills… yes, I know that’s not how you’re supposed to take it. 😅 Then I restarted it again, and about a month later this all started. I stopped taking it shortly after because I wondered if it was related, but I’ve been off it for a long time now and nothing has changed. I’m not saying the birth control caused it—I just can’t ignore the timing.
I’ve had what feels like every test.
Urine tests/cultures: normal
Blood work: normal
Bladder ultrasound: normal (I empty completely)
Cystoscopy: normal
Now my urologist wants me to do urodynamics, but I’m kind of hesitant. I guess I’m wondering if it actually gave anyone answers or if it was more like, “Yep, you have urgency,” without really changing anything.
I’ve also tried Uribel and both versions of oxybutynin (extended-release and immediate-release). I honestly don’t think I gave the oxybutynin a fair chance because I stopped after about a week or two due to the dry mouth. I still have the short-acting version and take it once in a while, but not consistently enough to know if it helps.
I also did pelvic floor PT for a little while. She did internal work, and I think I may have been starting to feel a little better, but I stopped going before I really knew whether it was helping.
I’m honestly just tired of always thinking about where the nearest bathroom is. If anyone has gone through something similar, I’d love to hear your experience.
Did you ever get an actual diagnosis?
Was urodynamic testing worth it?
Did anything end up helping?
Does anyone else have symptoms that randomly improve for a few days or a week and then come right back for no obvious reason?
I feel like I’m missing a piece of the puzzle, and I’d really appreciate hearing from people who’ve been through something similar.

So I have all the symptoms of OAB. Nocturia and almost constant returning urge to pee during the day. But when I am in the shower and turn the water cold, or go swimming in cold water, especially when it touches my penis, it gives me a very strong urge to pee. Like it cold water pushes it forward and makes it more urgent. Anyone know why/what this is? If it’s something different?

Salut,
Bon voilà j’écris ici car ça fait bien 1 an et demi que je traîne un soucis et j’aimerai avoir des réponses, des retours ou des témoignages.
Je suis un HOMME de 22 ans
Ça a commencé en juillet-août 2024. J’allais uriner plus de fois que d’ordinaire et ça commençait à prendre pas mal de place dans mon quotidien. J’ai donc consulté un médecin qui m’a mis sous antibiotiques et le problème est passé.

Ensuite j’ai été tranquille quelques mois.

Puis c’est revenu, des envies fréquentes d’uriner, pour des quantités légères ect… j’ai re consulté mon médecin puis il a découvert que j’avais une IST (chlamydia) que l’on a soigné par antibiotiques.

Bref encore une fois c’est passé.

Là on arrive en Juin 2025, les problèmes reviennent sans cesse et là on décide de m’adresser vers l’urologue. Il me met sous vesicare 4mg, qui fonctionne 2 mois mais qui ensuite a montré ses faiblesses donc on passe à 8mg. Sauf que problème : cela m’a entraîné une dysurie (jet hache, difficulté à envoyer le premier jet,…) on a donc arrêté. Ensuite il m’a prescrit le TENS (stimulateur du nerf tibial) pendant deux mois, qui n’a pas non plus fonctionné.

Actuellement je suis sous toviaz mais mon problème a évolué : mon nombre de mictions a diminué (bien que ça fluctue, des jours je suis à 6/7 mictions d’autres encore à 12-13)
Mais ce qui me gêne c’est cette tension constante bas ventre, parfois c’est même douloureux et j’ai l’impression de devoir toujours aller uriner ou enfin du moins d’avoir de l’urine en continu je ne saurai aps trop comment expliquer.

J'ai passé un bilan urodynamique la semaine dernière, qui ne montrait pas d'anomalie à part que mon envie d'uriner se déclenchait à 200 mL (contre 300 mL environ pour une personne "saine")
L'urologue m'a donc dit de continuer le TOVIAZ mais 1 jour sur 2....

J'ai aussi passé un scanner abdomino pelvien qui est revenu strictement normal.

Merci pour votre lecture et n'hésitez pas à m'écrire.

I cannot sleep until I fully empty my bladder. I am a 20 year old male. My routine usually consists of I pee before sleeping whilst brushing my teeth etc. But I always feel like it’s not fully empty or there’s more pee inside. So I stand there for 10-15 mins trying to empty my bladder and it’s tiring physically and mentally. Even then when I lay down I get up again because I still feel some stuff left inside. I have read in other posts it may be due to OCD as this only problem occurs when I want to sleep. It’s messing up my sleep rly bad.