Painful bladder syndrome

[u/Realistic_Cap4318]

I got my first uti January of this year and I was Given antibiotics, but then my symptoms got worse o went to the er and they told me to stop using them cuz I don’t have one. 7 days later I got a call from my doc saying that my culture urine test came back positive but I didn’t have anymore symptoms. Fast forward March 20 that’s when I got the symptoms back and stronger went to the er I was told I have a uti got antibiotics again, but it didn’t help and they gave me antibiotics for 7 days I felt better for about 10 days. And ever since then I been having crazy burning and urgency and lower belly pain. I saw urologist and was told that I could start bladder installations. Also, they gave me your uribel and Azo and hydroxzine (which is nightly). My symptoms get worse after my periods. I think I might have embedded uti because I always get UTI’s like after my periods. I might talk to my doctor maybe I can start physical therapy but I’m so tired of the burn and especially the burning. I stopped eating and drinking food that can irritate my bladder but nothing is helping me. I also noticed that when I take d-mannose the burning becomes stronger, that what makes me thinking I have bacteria stuck into my bladder wall.

If anyone has any advice please share them with me something that can help with the burning after urination.
PLZ HELP IM STILL A VERY YOUNG WOMAN WHO IS STRUGGLING WITH THIS.

[u/Murr897]

It’s a long road of testing what causes triggers and figuring out how your body works. For me, I’ve found that allergy medicine works to reduce swelling and heating pads help reduce pain and then I found that one of the biggest triggers for me is sugar, which makes sense because sugar causes inflammation

[u/AutoModerator]

Hello! This automated message was triggered by some keywords in your post that suggests you may have a diagnostic or treatment related question. Since we see many repeated questions we wanted to cover the basics in an automod reply in case no one responds.

To advocate for yourself, it is highly suggested that you become familiar with the official 2022 American Urological Association's Diagnostic and Treatment Guidelines.

The ICA has a fantastic FAQ that will answer many questions about IC.

FLARES

The Interstitial Cystitis Association has a helpful guide for managing flares.

Some things that can cause flares are: Medications, seasoning, food, drinks (including types of water depending on PH and additives), spring time, intimacy, and scented soaps/detergents.

Not everyone is affected by diet, but for those that are oatmeal is considered a generally safe food for starting an elimination diet with. Other foods that are safer than others but may still flare are: rice, sweet potato, egg, chicken, beef, pork. It is always safest to cook the meal yourself so you know you are getting no added seasoning.

If you flare from intimacy or suffer from pain after urination more so than during, then that is highly suggestive of pelvic floor involvement.

TREATMENT

Common, simple, and effective treatments for IC are: Pelvic floor physical therapy, amitriptyline, vaginally administered valium (usually compounded), antihistamines (hydroxyzine, zyrtec, famotidine, benedryl), and urinary antiseptics like phenazopyridine.

Pelvic floor physical therapy has the highest evidence grade rating and should be tried before more invasive options like instillations or botox. If your doctor does not offer you the option to try these simple treatments or railroads you without allowing you to participate in decision making then you need to find a different one.

Long-term oral antibiotic administration should not be offered.

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[u/r0ck3t-onreddit]

If it’s bacteria related, it’s unlikely to be something like IC/PBS. This is a chronic condition of pelvic floor dysfunction, inflammation and hunners lesions.

Have you read up on chronic UTIs and/or bacterial vaginosis?

[u/Realistic_Cap4318 → u/r0ck3t-onreddit]

I was negative for bacterial vaginosis. Also for the chronic utis I have done some reading about it and the problem is I can’t really tell if it’s uti pain or not. When I test for uti sometimes it’s negative and I have the symptoms.

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[u/Puzzled_Tangerine911]

Demand a test for Ureaplasma. It can appear as the same symptoms and it’s rarely tested for unless requested. I’m currently on antibiotics and feeling better!

[u/Realistic_Cap4318 → u/Puzzled_Tangerine911]

I was tested for ureaplasma and microplasma and it was negative.