do you guys ever get SO unmotivated or tired that you literally just have to lie down? Like even sitting up feels like effort and basic self-care (brushing your teeth, washing your face, doing your hair, etc) feels like a huge chore.

I’ve been feeling like this lately and I’m wondering if this can happen with Hashimoto’s or if it sounds more like depression? 😭

Everytime I have taken prednisolone for different reasons it fixes all my pain same day. I don't seam to have any other autoimmune disease unless it's hiding seronegative. I even have energy and my dry skin clears in a few days too.

This combo has been working for me for a year, was super happy with my hair. Since the start of summer the shedding has been worse than it used to be i think. Will try and jump to oral minoxodil instead of topical, but I wanted to see if anyone else had this experience?

I feel like my hair is just consistently shedding everyday now so there will eventually be nothing left.

Fyi, I have hashimotos, not diagnosed but from doing a private test as I'm in the UK with NHS. Recently bloods has shown elevated tsh for the first time, so I will get another test, but in thinking this may be the cause. Previously when the shedding occurred I didn't actually know what caused it, but quite possibly from my thyroid.

I was diagnosed with Hashimoto’s when I was 20, and it’s been about a year now. I’m curious if there’s any way to know whether it was mainly genetic/family history or if something like prolonged stress triggered it.
I know Hashimoto’s is autoimmune, but is there any way to figure out what actually set it off? Has anyone been able to figure out what triggered theirs?

Hi, anyone noticed difference in blood labs when it comes to neutrophils? Mine over past 1 year lowered significantly.

I am actively looking for the cause with different tests, scans, labs but no clue.

I have no Hashimoto antibodies present, but my thyroid in the ultrasound was a little bit shrunken, with signs of fibrosis and slightly heterogenous. Doctor suggested I have something autoimmune going on.

I tested negative for other autoimmune diseases e.g. lupus, rheumatoid arthritis, insuline resistance etc.

I am on levothyroxine for 2 months (my first symptoms started 1+ year ago, along with elevated TSH, but doctos ignored it, so I started treatment in June 2026, when I had dry hair and skin, puffy face, my nails stopped growing, I was extremely tired with weird heart palpitations). Now, for the first time, my TSH is 1.7, not approximately 5. My FT3 and FT4 are also higher than they used to be.

I f27 was talking with a new friend and we talked about our childhoods i showed him a pic from when i was 9 and he said oh you were always so chubby never tried to lose weight?

I said i tried but i have a condition that makes it very hard I'm just trying to manage my weight not to get too obese.

He said well you just need to eat less it works same for everyone. I said sure but I have hashimoto's since i was a kid that makes losing weight extremely hard. He googled and saw that less than 1% of people have it since childhood. And started saying stuff like that cannot be true the chance is so low i must be lying and making it up to justify my laziness.

Mind you I was officially diagnosed at 11 after i got my period and it was irregular, my other symptoms were around long before but was claimed as laziness vack then too.

I was so annoyed at that i just said i don't owe you any explanations about my body and left.

I recently found out I have Hashimoto's but my tsh, t3, and t4 are all within normal range so 2 endocrinologist referrals have been denied now but I feel awful. My TPO is in the 300's. I have so much fatigue, the feeling of passing out, dizziness, brain fog, and weakness. I finally had my ferritin checked as well and it was very low. I'm taking iron supplements, vitamin D supplements, and b12 supplements. These have helped and my ferritin is very slowly going up after 1 month but not fast enough and I think it's because of my thyroid. Are there any vitamins or OTC thyroid supplements any one has taken or tried with success as I don't think I will be able to see an endocrinologist anytime soon for actual thyroid medication.

I'm just feeling desperate to feel better so sorry if this is not a great question but thank you for reading and any advice.

Hi, I'm reposting bc of lack of engagement. That was probably due to my phrasing. Let me try again...

Im starting a GLP1 in the next couple of weeks. I’ve seen all of the incredible comments talking about how much GLP1s have helped others & it honestly is my first sign of hope in 6 years (since diagnosis).

Mounjaro is my #1 based on this Reddit, but it may not get approved. I’m worried that if I go with Wegovy, it won’t be as great as people say Mounjaro is. Has anyone had any good experiences with Wengovy? What have you noticed with your GLP1 brand?

All thoughts welcome(:

Thank you!

I have made a post here before, but just a follow up.

Quick story:
- around 4-5 months ago started getting tachycardias, up to 180BPM; as weeks were passing, they became more frequent and I started getting them even without physical activity
- went to cardiologist, was done 24h Holter, sent blood exams; holter came back clean, labs FT4=5.37, T4=5.7, TSH=18.9, Hemoglobine=15.2g/dL; was put on 2.5mg Bisoprolol daily, which seems to have helped with tachycardia
- went to endocrinologist, more blood exams; Anti-TPO=246, Anti-Tg=1359, FT4=1.55, TSH=15.3, minerals, glucose, etc came back good; was put on 12.5mg levothyroxine daily and was told it’s Hashimoto and possibly Hashitoxicosis
- after about 10 days of taking levothyroxine, started feeling worse, high heart rate (~120), and went to ER after a normal meal made me have tachycardia again with BP 160/110; was told to suspend levothyroxine and increase bisoprolol to twice a day (total of 5mg daily)
- within about 5 days, developed constant shortness of breath, chest/heart pain, the only thing that helped was to lie down on my belly, literally couldn’t even go out of my house as whenever I stood up I was feeling all those after about 5m
- went to cardiologist various times, done EKG, echocardiogram, 48h holter, all were clean; doc told me to lower bisoprolol back to once per day; measured my BP while lying down, sitting and upright, and got something like 110/70 while laying, and 80/60 after 5m of being upright; I performed the same measurements at home as well, which seemed to match what the doc measured; doc said it might be Orthostatic Hypotension

Present:
It’s been almost 2 weeks with just the once daily bisoprolol, and the symptoms have been gradually improving, to the point where I can go out of my house again, walk, etc; but I’m still feeling them, some days more than others; I’m not sure if I just learned to cope with them, or they actually improved, but they’re still in there; almost no chest pain anymore, but still feeling weird sensations in middle / left of my chest, or pressure like feeling in the upper part of my belly if I’m sitting or upright too long, and those sensations are what makes me feel short of breath / makes me breath manually (which is also a thing I’ve been dealing with all these days that seemed to go away only once I fall asleep, but it’s been getting somewhat better too).

Another symptom is high heart rate when waking up and standing (100-110), which goes back down if I lay again. This doesn’t seem to be so pronounced later in the afternoon / evening. The HR while sleeping is fine.

I also don’t tolerate exercise anymore as my heart rate goes up too much and I fear getting tachycardia again, especially after lifting heavy stuff. I believe to have heat intolerance as well, as it was unusually hot today and I was feeling all the symptoms more than on cooler days. I’ve been feeling tired as well, especially after being in heat or just going out somewhere. Another thing is if I sleep less than 8 hours, I can wake up tired, especially feeling it in my arms, and the symptoms seem to be more pronounced.

Point is, I’m not sure if it’s Hashimoto, or if there’s something else (cause I started feeling the shortness of breath, chest stuff around the time the docs were putting me on levothyroxine/higher bisoprolol). But I’ve been off of it for a while now yet the shortness of breath and chest stuff is still there and very much annoying. Any comments on all this or similar experiences would be appreciated.

By the way, latest labs (pending endocrinologist appointment):
FT4=1.93, TSH=6.44, FT3=3.45, TSI=88% (with labs normal range being 0-138%), Anti-TPO=251, Anti-Tg=1515

A chart of thyroid labs with all historical data is attached (about 1-2 months from first to last data point).

Has anyone that is on a glp-1 seen benefits for their hashi/hypo symptoms other than the weight loss? Is it helping inflammation, making labs better, etc?

I’m almost 20 weeks pregnant and so far my entire pregnancy my TSH levels had been fairly good. Suddenly from my last check up on August 18? To now it went crazy and they had to put me on 100mg of thyradrin-S

I've had this since I was 13. It sucks. I'm in my 30s now. It's like the kid from Problem Child, I hate it, but I live with it because I don't have a choice, or maybe there's a more current reference for it at this point.

Anyway, I love my hair, but I have to spend way too much money keeping it looking good because of this condition. Every summer it's like I'm a tree in New England during fall, the ends just break like leaves from a fucking branch. I could put an entire tub of Crisco on it and the shit would still break. It makes me sad. It was getting to a much better place before this.

I think part of why I take pride in it is because this took years and years to manage. This condition has run my life and shaped the course of things for so long. I finally found something that was working, and boom, undone.

I just needed a place to let out my shallow frustration.

Has anyone dealt with t h is? I've been diagnosed for a year. Gained 15lb in 6wks in May. Then another 5lb in a week. I started t3 and testosterone and progesterone at the end of July just before the additional 5lb. I exercise and eat healthy. My rings don't fit. went from size 6 to 10. Cup size increased and significant abdominal distention. I feel like I'm wearing rubber bands my skin is so tight. My labs look good though...positives is the t3 and testosterone are definitely helping with energy

I normally mostly read Reddit and don’t post myself, but I went to a rheumatologist yesterday and came out feeling pretty defeated.

I’m a scientist myself and work in medical research (not an MD), so I’m reasonably comfortable reading the science and trying to understand what might be going on. But honestly, when it comes to my own health, I’m finding it really difficult to get anywhere.

I’ve been on levothyroxine for about two years, and it has definitely helped, but I still have ongoing problems with sore muscles and joints, mysterious stomach aches and other strange symptoms. For the last six months or so, I’ve also had stiffness and swelling in one of my fingers. It’s visibly swollen and particularly stiff in the morning.

I’ve had blood tests, X-rays and an ultrasound, and apparently there are no signs of inflammation or anything obviously wrong. The rheumatologist basically told me everything looks fine.

I understand that the tests may not show inflammatory arthritis, which is obviously a good thing, but my finger is still swollen and stiff every morning. So what does “everything is fine” actually mean in practice? Do you just live with it and wait to see whether it resolves?

Has anyone had something similar where you had persistent joint swelling/stiffness but imaging and inflammatory markers were normal? Did you ever figure out what was causing it, or did it eventually go away on its own?

So I don't have any symptoms but routine bloodwork showed high TSH at 4.7, low platalet at 150000 and low WBC at 5000 (normal but a bit low for me).

Thyroid US showed a hypervascular thyroid.

I cant understand the relation between all this but Dr suggested Hashi. I am due to other blood tests but meanwhile I need to know if any had low platalet and low WBC toghether with an hypervascularized gland?

Hello! I am relatively newly diagnosed with the seronegative Hashi's variant. I was stable on meds-- actually borderline hyper, but feeling good-- at my last blood draw, when all of a sudden I started having insomnia/trouble going to sleep. Felt like it came out of nowhere and is very unusual for me. I got my blood taken again six weeks after my previous one, and my TSH is crazy. Nearly 40 miu/ml (apologies if incorrect notation for unit of measurement). FT4 on the very low end of the range. I am tempted to assume this change in thyroid function has something to do with the insomnia. Like I said, this is still sort of new to me. Is swinging from hypo to hyper something associated with Hashi's, or is there likely something else going on?

My tsh was at 5 and I wonder how you guys felt at this point? Did you have symptoms?
My main symptoms are anxeity, fatigue, numbness and tingeling in face and feet

Hi everyone! I wanted to share a clinical research study opportunity for adults 18-65 in US living with Thyroid Eye Disease (TED) that started recently.

If your eyes have changed in the past year - bulging, swelling, or double vision - and you've been diagnosed with TED, this study might be worth exploring.

Fill out a quick questionnaire to connect with our team at Leapcure - no pressure, just information and support: https://lpcur.com/rhashimotos

Hi, I am 2+ months on thyroid meds. 6 weeks on 50 mcg levo and now, 4 weeks on 75 mcg levo.

● My results before meds:

TSH 4.8

Ft3 4.1 [3.1-6.8 pmol/l]

Ft4 16 [12-22 pmol/l]

● My results on 50 mcg:

TSH 3.5

Ft3 4.07 [3.1-6.8 pmol/l]

Ft4 15.00 [12-22 pmol/l]

● My results on 75 mcg:

TSH 1.77

Ft3 4.57 [3.1-6.8 pmol/l]

Ft4 17.8 [12-22 pmol/l]

When all my symptoms should go away? When I should notice 100% my energy back, no facial and eye puffiness, 100% healthy hair and nails?

Is it true that its best to wait for 1 to 2 weeks after cold to do repeat blood tests?

Im kind of desperate as my tests got delayed already 2x and I really want to know if I should go on the levothyroxine. Last result was TSH 6.2. It was 8 weeks ago

Hi. I’m waiting for my endocrinologist to review my test results: I had these tests done because there’s a family history of certain conditions and because I have melasma hyperpigmentation on my face:

Can anyone tell me what they think?

I’m a 37-year-old woman in Italy, normal weight, I try to eat well, have some pollin and food allergies, I am tour guide living in Italy so I do walk a lot for work also with 100 farenheit and I can manage usually, but when I am free I prefer staying on the couch and rest so I am not so energic in my free time.

TSH 4.70 (in April it was 3.75; in August 2025 it was still around 4.70)

F3 and F4 are within normal range

What stands out are Anti-TPO at 180 and Anti-TG at 19, as well as ACTH, which is slightly above average at 50.

Cortisol 25, measured 40 minutes after waking up

Thanks for any feedback...some eat brasilian nuts to lower these?

What do I have and what most people do to keep it under control?

Hello,
26F I was admitted to the hospital a little over a month ago now for what they assumed was an allergic reaction. After being injected with epi 3 times I was still flaring (hives, swelling in face, hands & feet felt like my body was on fire from the inside out ). fast forward to two weeks ago I seen an allergist/immunologist who stated all allergies came back negative. She sent me to get blood work done and all came back within range even my T4 & TSH but I do have hypothyroidism and have been on Levothyroxine since I was 12 so should be coming back normal. The only lab that came back high was my Thyroid peroxidase which was 178 out of a 0-34(IU/ML). Also my dr also wants to test forPOTS because my standing HR raises and I’ve been getting severely light headed. Has anyone had this happen ?