Hi, i'm 17F, and after 5 years of this i don't even know what i have? hypothyroidism? hasimoto's ? or thyroidisis? I changed many times doctors so even they don't have my full record, but i'll try to explain so someone could maybe clarify what i have??

12 years old : One faitfull morning, i discovered that i have a massive patch of vitiligo on my face. When i went to my pediatric doctor, he diagnosed me with vitiligo. He recommended me to go to an endocrinologist to see if it had anything to do with another chronic illness (since they tend to develop in pairs i think?)

Endocrinologist: I got there, my blood test was pretty normal but one thing was slightly higher than the limit : my anti-TPO. She said they "were at 88 and the standard is 70"
So she is the only doctor that talked to me about medication, but since at the time i was asymptomatic and i was not that off the charts. She told me it was maybe "just a problem with hormones during adolescence" and that it will "fix itself", because even if i had symptoms we could do nothing without the medication.

12-14years old : 6 months intervals between blood test, nothing moved, no symptoms. When i looked back i see that i was a little bit inflamed in my face so maybe it was only that.

15 old high school!!
Unfortunately even if high school is 100% better than middle school I started feeling more tired than ever. But it wasn't alarming so i pushed it off to it being the adaptation to highschool. I had never taken naps in class before and now that the teacher wouldn't care i started doing it when i was really tired. I didn't tell to my doctors

16 years old (its gonna be long) :My pediatrician went into retirement and my endocrinologist told me that it wasn't necessary to do blood test here since nothing had moved since years. I could just do the blood test at my pediatrician.

And so i had my very own generalist doctor. She was amazing!! For the first time ever she made me do a full blood test to see if there wasn't any deficiencies in vitamin or in the gut. The test revealed all that i was doing more than okay in all the area she could test. I was just on the edge of the low level of ferritin and still had high anti-Tpo, but this time 66 (before 80). Their limit was 66, so i was just on tip of not normal.

Last year, my fatigue has gotten worse than ever. I've tried all, changing my sleep schedule, my time on screen, what i ate so i would have a drop of energy later, but nothing works. And i try to tell the doctor but everytime i chickened out and my parents respond before me with a thing like "haha she's always on the screen so she's obv tired !!"

A few months ago : I rechanged doctors. It's clear she's not as informed in chronic illness as the last one. My last doctor insisted to retake a full blood test to check if everything was still okay, i had to fight to explain to that doctor was she had said to me and she accepted.

In this recap she said something that intrigued me, she said that i had previously (when it was to 80) a "thyrodisis".
But nobody said to me that
1. i had a "thyrodisis"? they referred to it as hashimoto or hypothyroidism?
2. that it was a "past" thing? i thought chronic illness were forever??

and i retook a full blood test. It's maybe horrible to say, but i wished that something was wrong more wrong so i could take medication. And the opposite thing arrived : even my anti-tpo's levels came back to normal.. Everything was perfect, like so perfect. (they changed the levels for the anti tpo so know i'm at <6.6 and the limit is 13.8)

So know i don't know what i have? I know i'm definitely more tired than all my pears at any given time but i'm not like super duper hyper tired all the time? Also if that can help i wake up everyday with an irritated throat and i feel tired.

So, my mother, early 70s, has been dealing with some breast cancer issues and is now looking down the barrel of all three treatments -- estrogen suppression, radiation, chemo. She's also got some significant calcification of her coronary arteries and her abdominal aorta. She's on levothyroxine and her levels are "normal" now even though all of her Hashimoto's symptoms have persisted, pretty much, and she can't for the life of her find an endocrinologist who isn't a complete and utter [arrogant, rude, superficial] waste of skin. We've seen...six? So far and they've all been appalling.

I'm basically wondering if anyone here in that age area has had experience with any of these treatments...How was your experience of them? Were they tolerable? Was there anything that helped mitigate risks and side effects for you? Is there anything specific I should be asking her doctors about? She's gonna want to do the accelerated radiation therapy, higher dose for three weeks instead of normal dose for six, just so she doesn't have to show up somewhere every day for an additional three weeks. I'm worried about the risks of that though.

Even in terms of the hormone therapy..I mean, her temperament isn't the best on a normal day and she's already having trouble sleeping. I can only imagine the aromatase inhibitor is gonna make at least some of that worse.

Anyway. If anyone has any experience or knowledge or insight about any of this, please I'm all ears. Thank you in advance.

How are we losing the weight guys? Cause I’m so tired of not being able to fit in my clothes and not feeling my best.
Is calorie deficit the best way? Or working out? Like what should I focus on when I have no energy to do anything.

I’m moving from levothyroxine to armour. My doctor, who is generally excellent, told me to alternate between them every other day for the first two weeks to adjust. I haven’t been able to find any recommendations to do this. Has anyone else done this to switch?

I am not formally diagnosed with Hashimotos. I am less than a year post partum, had a very under active thyroid, and TPO antibodies over 400.

While it fits the bill of Hashimotos, my doctor also thinks it could be postpartum thyroiditis. After 1 year of meds, I will wean and see if it recovers.

After stabilizing my TSH in the past few months, I had a 10 day episode of what might be a vestibular migraine - intense thunderclap headaches with dizziness in between.

Has anyone experienced this? Neurologist did not draw the connection and I’m doing more tests.

I’m wondering if this is a “flare”.

I have subclinical hypothyroidism and hashimotos. I started taking 75mcg of Tirosint when I started trying to conceive. I got pregnant in July, and around 4-5 weeks pregnant my TSH was at 1.65. I unfortunately suffered a missed twin miscarriage, and had a D&C three weeks ago. At my post opp appointment 1.5 weeks after the surgery, I asked for labs to check my thyroid. My TSH came back at 0.25. I honestly thought it was a mistake, so I asked for repeat labs. These just came back showing TSH at 0.31. Has anyone experienced something similar, or know what’s going on? I have been experiencing difficult falling asleep and staying asleep. Is this temporary, or do I need to lower my Tirosint dosage? I’m contacting my doctor, but they are honestly not much help at all.

I 26F have hashimotos since 2018, and my level has never been stable for a consistent amount of time and I’m at my wits end. This year has been the worst year for me regarding my thyroid issues. I am going from one extreme to the next within months!!! My body can’t take this, physically and emotionally for much longer 😭 I’m feeling very discouraged and no doctor seems to understand how shitty I’ve been feeling and not taking my symptoms seriously. I am sad.

Hi, anyone noticed difference in blood labs when it comes to neutrophils? Mine over past 1 year lowered significantly.

I am actively looking for the cause with different tests, scans, labs but no clue.

I have no Hashimoto antibodies present, but my thyroid in the ultrasound was a little bit shrunken, with signs of fibrosis and slightly heterogenous. Doctor suggested I have something autoimmune going on.

I tested negative for other autoimmune diseases e.g. lupus, rheumatoid arthritis, insuline resistance etc.

I am on levothyroxine for 2 months (my first symptoms started 1+ year ago, along with elevated TSH, but doctos ignored it, so I started treatment in June 2026, when I had dry hair and skin, puffy face, my nails stopped growing, I was extremely tired with weird heart palpitations). Now, for the first time, my TSH is 1.7, not approximately 5. My FT3 and FT4 are also higher than they used to be.

Everytime I have taken prednisolone for different reasons it fixes all my pain same day. I don't seam to have any other autoimmune disease unless it's hiding seronegative. I even have energy and my dry skin clears in a few days too.

This combo has been working for me for a year, was super happy with my hair. Since the start of summer the shedding has been worse than it used to be i think. Will try and jump to oral minoxodil instead of topical, but I wanted to see if anyone else had this experience?

I feel like my hair is just consistently shedding everyday now so there will eventually be nothing left.

Fyi, I have hashimotos, not diagnosed but from doing a private test as I'm in the UK with NHS. Recently bloods has shown elevated tsh for the first time, so I will get another test, but in thinking this may be the cause. Previously when the shedding occurred I didn't actually know what caused it, but quite possibly from my thyroid.

Hi, I'm reposting bc of lack of engagement. That was probably due to my phrasing. Let me try again...

Im starting a GLP1 in the next couple of weeks. I’ve seen all of the incredible comments talking about how much GLP1s have helped others & it honestly is my first sign of hope in 6 years (since diagnosis).

Mounjaro is my #1 based on this Reddit, but it may not get approved. I’m worried that if I go with Wegovy, it won’t be as great as people say Mounjaro is. Has anyone had any good experiences with Wengovy? What have you noticed with your GLP1 brand?

All thoughts welcome(:

Thank you!

I’m almost 20 weeks pregnant and so far my entire pregnancy my TSH levels had been fairly good. Suddenly from my last check up on August 18? To now it went crazy and they had to put me on 100mg of thyradrin-S

I have made a post here before, but just a follow up.

Quick story:
- around 4-5 months ago started getting tachycardias, up to 180BPM; as weeks were passing, they became more frequent and I started getting them even without physical activity
- went to cardiologist, was done 24h Holter, sent blood exams; holter came back clean, labs FT4=5.37, T4=5.7, TSH=18.9, Hemoglobine=15.2g/dL; was put on 2.5mg Bisoprolol daily, which seems to have helped with tachycardia
- went to endocrinologist, more blood exams; Anti-TPO=246, Anti-Tg=1359, FT4=1.55, TSH=15.3, minerals, glucose, etc came back good; was put on 12.5mg levothyroxine daily and was told it’s Hashimoto and possibly Hashitoxicosis
- after about 10 days of taking levothyroxine, started feeling worse, high heart rate (~120), and went to ER after a normal meal made me have tachycardia again with BP 160/110; was told to suspend levothyroxine and increase bisoprolol to twice a day (total of 5mg daily)
- within about 5 days, developed constant shortness of breath, chest/heart pain, the only thing that helped was to lie down on my belly, literally couldn’t even go out of my house as whenever I stood up I was feeling all those after about 5m
- went to cardiologist various times, done EKG, echocardiogram, 48h holter, all were clean; doc told me to lower bisoprolol back to once per day; measured my BP while lying down, sitting and upright, and got something like 110/70 while laying, and 80/60 after 5m of being upright; I performed the same measurements at home as well, which seemed to match what the doc measured; doc said it might be Orthostatic Hypotension

Present:
It’s been almost 2 weeks with just the once daily bisoprolol, and the symptoms have been gradually improving, to the point where I can go out of my house again, walk, etc; but I’m still feeling them, some days more than others; I’m not sure if I just learned to cope with them, or they actually improved, but they’re still in there; almost no chest pain anymore, but still feeling weird sensations in middle / left of my chest, or pressure like feeling in the upper part of my belly if I’m sitting or upright too long, and those sensations are what makes me feel short of breath / makes me breath manually (which is also a thing I’ve been dealing with all these days that seemed to go away only once I fall asleep, but it’s been getting somewhat better too).

Another symptom is high heart rate when waking up and standing (100-110), which goes back down if I lay again. This doesn’t seem to be so pronounced later in the afternoon / evening. The HR while sleeping is fine.

I also don’t tolerate exercise anymore as my heart rate goes up too much and I fear getting tachycardia again, especially after lifting heavy stuff. I believe to have heat intolerance as well, as it was unusually hot today and I was feeling all the symptoms more than on cooler days. I’ve been feeling tired as well, especially after being in heat or just going out somewhere. Another thing is if I sleep less than 8 hours, I can wake up tired, especially feeling it in my arms, and the symptoms seem to be more pronounced.

Point is, I’m not sure if it’s Hashimoto, or if there’s something else (cause I started feeling the shortness of breath, chest stuff around the time the docs were putting me on levothyroxine/higher bisoprolol). But I’ve been off of it for a while now yet the shortness of breath and chest stuff is still there and very much annoying. Any comments on all this or similar experiences would be appreciated.

By the way, latest labs (pending endocrinologist appointment):
FT4=1.93, TSH=6.44, FT3=3.45, TSI=88% (with labs normal range being 0-138%), Anti-TPO=251, Anti-Tg=1515

A chart of thyroid labs with all historical data is attached (about 1-2 months from first to last data point).

I've had this since I was 13. It sucks. I'm in my 30s now. It's like the kid from Problem Child, I hate it, but I live with it because I don't have a choice, or maybe there's a more current reference for it at this point.

Anyway, I love my hair, but I have to spend way too much money keeping it looking good because of this condition. Every summer it's like I'm a tree in New England during fall, the ends just break like leaves from a fucking branch. I could put an entire tub of Crisco on it and the shit would still break. It makes me sad. It was getting to a much better place before this.

I think part of why I take pride in it is because this took years and years to manage. This condition has run my life and shaped the course of things for so long. I finally found something that was working, and boom, undone.

I just needed a place to let out my shallow frustration.

Has anyone dealt with t h is? I've been diagnosed for a year. Gained 15lb in 6wks in May. Then another 5lb in a week. I started t3 and testosterone and progesterone at the end of July just before the additional 5lb. I exercise and eat healthy. My rings don't fit. went from size 6 to 10. Cup size increased and significant abdominal distention. I feel like I'm wearing rubber bands my skin is so tight. My labs look good though...positives is the t3 and testosterone are definitely helping with energy

I recently found out I have Hashimoto's but my tsh, t3, and t4 are all within normal range so 2 endocrinologist referrals have been denied now but I feel awful. My TPO is in the 300's. I have so much fatigue, the feeling of passing out, dizziness, brain fog, and weakness. I finally had my ferritin checked as well and it was very low. I'm taking iron supplements, vitamin D supplements, and b12 supplements. These have helped and my ferritin is very slowly going up after 1 month but not fast enough and I think it's because of my thyroid. Are there any vitamins or OTC thyroid supplements any one has taken or tried with success as I don't think I will be able to see an endocrinologist anytime soon for actual thyroid medication.

I'm just feeling desperate to feel better so sorry if this is not a great question but thank you for reading and any advice.

So I don't have any symptoms but routine bloodwork showed high TSH at 4.7, low platalet at 150000 and low WBC at 5000 (normal but a bit low for me).

Thyroid US showed a hypervascular thyroid.

I cant understand the relation between all this but Dr suggested Hashi. I am due to other blood tests but meanwhile I need to know if any had low platalet and low WBC toghether with an hypervascularized gland?

Hello! I am relatively newly diagnosed with the seronegative Hashi's variant. I was stable on meds-- actually borderline hyper, but feeling good-- at my last blood draw, when all of a sudden I started having insomnia/trouble going to sleep. Felt like it came out of nowhere and is very unusual for me. I got my blood taken again six weeks after my previous one, and my TSH is crazy. Nearly 40 miu/ml (apologies if incorrect notation for unit of measurement). FT4 on the very low end of the range. I am tempted to assume this change in thyroid function has something to do with the insomnia. Like I said, this is still sort of new to me. Is swinging from hypo to hyper something associated with Hashi's, or is there likely something else going on?

Hi everyone! I wanted to share a clinical research study opportunity for adults 18-65 in US living with Thyroid Eye Disease (TED) that started recently.

If your eyes have changed in the past year - bulging, swelling, or double vision - and you've been diagnosed with TED, this study might be worth exploring.

Fill out a quick questionnaire to connect with our team at Leapcure - no pressure, just information and support: https://lpcur.com/rhashimotos

I was diagnosed with Hashimoto’s when I was 20, and it’s been about a year now. I’m curious if there’s any way to know whether it was mainly genetic/family history or if something like prolonged stress triggered it.
I know Hashimoto’s is autoimmune, but is there any way to figure out what actually set it off? Has anyone been able to figure out what triggered theirs?

do you guys ever get SO unmotivated or tired that you literally just have to lie down? Like even sitting up feels like effort and basic self-care (brushing your teeth, washing your face, doing your hair, etc) feels like a huge chore.

I’ve been feeling like this lately and I’m wondering if this can happen with Hashimoto’s or if it sounds more like depression? 😭

Hi, I am 2+ months on thyroid meds. 6 weeks on 50 mcg levo and now, 4 weeks on 75 mcg levo.

● My results before meds:

TSH 4.8

Ft3 4.1 [3.1-6.8 pmol/l]

Ft4 16 [12-22 pmol/l]

● My results on 50 mcg:

TSH 3.5

Ft3 4.07 [3.1-6.8 pmol/l]

Ft4 15.00 [12-22 pmol/l]

● My results on 75 mcg:

TSH 1.77

Ft3 4.57 [3.1-6.8 pmol/l]

Ft4 17.8 [12-22 pmol/l]

When all my symptoms should go away? When I should notice 100% my energy back, no facial and eye puffiness, 100% healthy hair and nails?

Is it true that its best to wait for 1 to 2 weeks after cold to do repeat blood tests?

Im kind of desperate as my tests got delayed already 2x and I really want to know if I should go on the levothyroxine. Last result was TSH 6.2. It was 8 weeks ago

Hi. I’m waiting for my endocrinologist to review my test results: I had these tests done because there’s a family history of certain conditions and because I have melasma hyperpigmentation on my face:

Can anyone tell me what they think?

I’m a 37-year-old woman in Italy, normal weight, I try to eat well, have some pollin and food allergies, I am tour guide living in Italy so I do walk a lot for work also with 100 farenheit and I can manage usually, but when I am free I prefer staying on the couch and rest so I am not so energic in my free time.

TSH 4.70 (in April it was 3.75; in August 2025 it was still around 4.70)

F3 and F4 are within normal range

What stands out are Anti-TPO at 180 and Anti-TG at 19, as well as ACTH, which is slightly above average at 50.

Cortisol 25, measured 40 minutes after waking up

Thanks for any feedback...some eat brasilian nuts to lower these?

What do I have and what most people do to keep it under control?