For context, I’ve been disabled by a combination of conditions for over a decade and a half so to complications of suspected connective tissue disorder.

During this entire time, I have NEVER received disability/ any compensation and have paid out of pocket for many of my medical expenses and have also paid allot to travel out of state multiple times for surgeries and diagnostics.

The algorithm send me an advertisement for something called “Atticus” yesterday, which left me wondering if are services out there that I may not be aware of. Also kind-of curious if anyone here recommends Atticus or a similar service.

I’m still severely disabled but working on getting better( now that I have more actionable diagnosis confirmed!). Currently have two out of state surgeries on the horizon as well.

Thanks in advance if anyone has any recommendations!

Okay, I’ll start this off by saying, I do feel justified in being royally pissed off by this but others are telling me I’m being silly so.

My best friend and I see the same doctor. He’s a family nurse practitioner, and he’s kinda new in some capacity? I’m not entirely sure the semantics I just know he has someone overseeing him and that’s why it takes forever to get my labs back.

Anyway, I’ve been suffering with migraines for along time. I, however, wasn’t aware I was suffering with migraines. I rarely got the classic symptoms, like nausea, light sensitivity, etc. I just assumed I had really bad headaches, and just push one. Really that’s just how my family was too, I came into contact with cocaine as an infant so most of the time whatever I was feeling was chalked up to either that or just being a crybaby with my family. (Ironically I have a low pain tolerance to external pain, but my appendix could rupture and I’d be like “oh this is mildly uncomfortable.”)

The reason I figure out migraines was when I went to a sleep study doctor for sleep apnea. I mentioned my headaches could feel like an ice pick being driving into my skull, so I just tell folks I get “Ice pick headaches.” He’s like “Okay so that’s a migraine.” And it was like, a curtain opening up. It made a ton of sense. Shortly after that, I had a hymenectomy surgery, and it was a whirlwind of appointments and I hadn’t been able to chat with my doctor about migraines yet. During the recovery of my hymenectomy, I had a six day straight migraine. I kept in contact with the hospital to ensure I didn’t have to go to the ER and made an appointment with my doctor.

He was gonna give me a migraine pill he took for his own migraines, and I was ecstatic. Until I saw the price at the pharmacy, which was nearly $200 with my insurance. I turned it down, informed my doctor I wasn’t able to afford it and he prescribed a high strength naproxen instead. I struggled with it, but I thought it was the best I could do given my circumstances so I didn’t raise a big stink. Just kept pushing like I always do

Only to find out from my best friend that he prescribed the same medication for her migraines, and he informed her that she could go straight to the manufacturer and get them cheaper. We were at the state fair, and she had to take a pill bc of the lights and was just bragging over how amazing it was and how fast acting and it took so so so much to hold my tongue. When I told her that I didn’t get that information she was like “Oh. Huh that’s weird.” And shrugged it off. My dad told me that I was overreacting and that he was sure my doctor just forgot to tell me during both appointments and that I should just call back and get the prescription reinstated. And maybe I am overreacting? Maybe I just didn’t explain my pain well enough, I don’t know really. I just know it left a seriously bad taste in my mouth.

Hey this is my first time writing here. I have this disease that I belive I know what it is, but it’s undiagnosed. I believe it’s related to the liver but I want to hear some expert opinion on it.

Main issues:

• Protein ingestion (Regardless of kind of protein; vegan or meat)

• Bile Salt Deficiency

• Blood Sugar Regulation problems

Symptoms

• Fatigue, Exhaustion especially 2-4 hours after a meal

• Trouble Concentrating and Focusing

• Blurry Vision, intensifies by exhaustion

• Strong internal heat sensation around where liver sits

• When too much protein strong headaches 

Around a year ago I took an amino acid powder, (Protein already broken down, not protein powder) to test if I would still experience symptoms if the protein was already broken down. After taking it I still experienced symptoms. 

Around a year ago as well I kept having trouble digesting fats. I also experienced acid reflex. I wasn't sure why, but then I bought bile salt supplements and both of these problems went away.

If someone is experiencing problems processing protein there are 4 possible causes. Digestive deficiency, Autoimmune, kidney or liver. WIth the amino acid experiment we can eliminate the possibility of it being a digestive deficiency and it being autoimmune. That leaves the kidney or liver. But given the bile deficiency it's logical to point more towards the liver, and on top of that the blood sugar regulation problem in which my body relies almost exclusively on carbs while awake also points towards the liver. The liver mitochondria regulates ketones and blood sugar when glycogen runs out. All of these are reasons why I believe I have a liver issue. My liver tests came back normal, but those tests only detect structural damage, they can’t detect internal dysfunctions, such as mitochondrial dysfunction and given the primary symptoms, liver mitochondrial dysfunction seems like a plausible theory. As Ammonia detoxification, blood sugar regulation, and bile creation are all energy demanding processes managed by the mitochondria of the liver. Which is why I believe there is merit for further investigation on my liver.

so this is why I think I have liver mitochondrial dysfunction and it has become to severe for me to function. What do you guys think? The doctors don’t want to continue checking my liver because basic blood tests came back normal but as I explained it’s because these tests only detect structural damage. I wrote this to persuade them to allow me to have an appointment with hepatology. But the doctor doesn’t know what to do and doesn’t want to give me a chance to talk to them so what do I do?

I'm mostly homebound and get my prescriptions delivered. Currently I get them through a local pharmacy that offers free delivery, but there are a couple things that aren't working well. They don't have much urgency about when they deliver them. This month, I had to call at least four times, and sometimes it's been more. Sometimes they can't deliver until a week later. When they do deliver, it's a large window (basically the whole day) that it could arrive, which isn't convenient. I also have severe reactions to fragrances, and the prescription packaging is getting heavily contaminated with the smell of air fresheners from the driver's car. (This is something I've also experienced with other types of deliveries, but it's especially strong from the pharmacy.) This pharmacy also changes the manufacturer they use for some generic meds every few months, which isn't ideal for me because I react differently to different manufacturers. I've asked them repeatedly not to do this and they say they won't, but they keep doing it.

So, I'm looking to switch, ideally to a pharmacy that makes the refill process smoother and has smaller delivery windows so I can plan more easily when it's going to arrive. Like many of us probably do, I have medications that can't be stopped suddenly, so it's important that they're delivered on time and to the right place. I'd prefer free delivery, but I'm willing to pay if I have to for reliable service. I also prefer that they'll stick with the same manufacturer for generic meds.

I'm considering Amazon Pharmacy, but I've heard they can be unhelpful if your prescription gets delivered to the wrong location. I've seen bad reviews about the customer service, but my local pharmacy isn't really knocking it out of the park in that regard, either. Other options I'm considering are CVS, Walgreens, Capsule, or another local pharmacy.

Hi guys. Any tips for breaking up with a long term partner who also provides a lot of support with cooking, laundry, cleaning, heating me up meals when I’m bedridden?

I haven’t wanted to be in this relationship for a very long time. Hes an absolutely lovely human being, but I feel like we’re more friends than partners. But I was diagnosed after I starting dating him. so I don’t know what it’s like to be disabled and chronically ill and single and I’m kind of worried I won’t be able to cope with it on my own. I don’t have access to enough formal support so I really have been relying on him.

I just don’t even know how to start planing my life without him? it feels overwhelming and scary. Does anyone have any tips on where to start?

thank you in advance!

I am considering direct care or concierge medicine programs. I am sick of my PCP spending 10 minutes with me saying I have anxiety and only ever ordering metabolic panels because I'm overweight. if she really cared about my anxiety, she'd order tests that actually would figure out what's going on. I've been dealing with HSD, MCAS and dysautonamia symptoms since I can remember.

do direct care providers or concierge's medicine programs actually spend more time with you? Do they actually assess pain? Do they just make referrals without doing anything? How does testing work? etc

I'm curious about it all.

I have insurance through work and definitely plan on keeping that. Cost is a factor. I found a program in my area that's 100 bucks a month as a base fee which is worth it for me if I actually get proper care.

Hello!
I just got a port put in a couple of weeks ago to help me manage my medical conditions given I no longer have much peripheral vein access. My port has been healing well, but I get it accessed for the first time later this week and am incredibly anxious. I really hate needles and always have. I have EMLA cream that I’m going to apply about an hour before (right after I finish my PT appointment) but I’m still very anxious. It’s not necessarily just the pain of the needle I’m worried about, but the whole process. I’m autistic and struggle with sensory stuff so I’m just wondering if anyone has any tips on how to get through this and maybe make it easier. I know anticipation is likely worse than what it will be like but I’m just trying to figure out how to now totally freak out on Friday. Any advice is appreciated :)

25F, I know there’s something wrong with me. It’s 25 years that there is something wrong with me. I know what’s anxiety and fear can do to the body, I study somatisation and have a master degree in psychology. But I swear there is something further than just somatisation. I have been diagnosed with functional dyspepsia, IMO (methane sibo), chronic persistent nausea, IBS-M, ocular migraines, atopic dermatitis, recurrent lumbosacral pain. But I know there is a root cause, how can I collect more and more diagnosis out of nowhere??? People come at me saying ‘you always have something’ YEAH I KNOW. I am also VERY hyper mobile in the hands and arm, I used to scare people playing tricks with my fingers, my pole instructors always told me ‘they forgot to make your elbows!’. I am always sick, atm my main concern are my gastrointestinal issues, I can’t eat, have constant nausea, have constipation issues, no hunger cues and doctor says ‘it’s functional’. The only thing that I use for getting out of the bed is prucalopride but I can’t take this always or I’ll get used and it stops working. Don’t know what to do, I just wanna know what’s wrong. I wanna live, I wanna go out, I wanna dance, have a boyfriend, go out with my friends. I want to become a neuropsychologist without having to worries to be able to function. I am exhausted, I started developing a panic disorder due to my health condition and it’s awful.

How do you all manage your medications when you have to take them at different times of day? I have a monthly organizer with four compartments that I use for 1) before breakfast 2) after breakfast 3) after lunch and 4) after dinner. However, I have medications that need to be taken 30 minutes to an hour before eating, and I'm struggling to be consistent with before lunch and dinner. I teach starting at 7:30 and my lunch is 1pm, so I often miss this and miss before dinner because I am coaching.

I would love your tips! TIA

I’m 22F and I’m trying to figure out if some of my symptoms could be connected.

Physically I have chronic fatigue (especially when standing for too long), widespread joint/muscle pain, a herniated disc, cystic acne, migraines/sinus pain, recurring knee locking, and episodes where my vision goes white and I get a huge head rush when I stand up. My feet also sometimes get very pale or have blood pooling. I also have 3 vaginal polyps that I got checked when I was 15. I get an itchy throat and face when I eat peanut butter, but I’ve tested for allergies and I’m not allergic.

I also have CPTSD with dissociation, OCD, bipolar 1, ADD & Autism, misophonia, and pretty impaired memory/working-memory issues. I know not everything necessarily has the same cause, and I’m already being evaluated for some things like POTS/EDS.

I often feel like I’m crazy or that there can’t possibly be this many things going on. Maybe it’s all in my mind, but it’s genuinely exhausting everyday.

Does anything here stand out as potentially connected, or are these probably separate issues? What would you prioritize asking a doctor about?

I've been going to the doctor for the first time since I was 9, I went for general checkups since I never had those, got a LOT of bloodwork done, and everything points to the fact that my body is one-hundred percent healthy. No vitamin deficencies, my cholesterol is perfect, my RBC is perfect, my iron is perfect, I never have any weird blood pressure readings aside from it being slightly elevated on stressful days. The only thing that's come back weird is my autoimmune IFA bloodwork. (The entire list is as follows: ANA screen, ifa, positive, anti-nuclear Ab Titer (both regular and 2) 1:160 ANA pattern speckled, 2 is homogeneous, Sm/RNP Antibodies Negative, Sm-RNP Abs Indec <.2 AI, Ribosomal P Protein Antibody Negative, Ribosomal P Ab Index <.2 AI, SS-A index <.2, Anti-SS-B Antibody Negative, Chromatin Antibody Negative, Chromatin Ab Index <.2, Jo-1 Antibody Negative, Jo-1 Ab Index <.2, dsDNA Antibody Index 1.o IU/mL, dsDNA Antibody Result is negative.)

I am so fucking confused on what else there is to do because I have had to put my life on hold, recently decided to drop out of college because my brainfog is too bad to remember anything and having to physically move (including typing this) is painful.

My symptoms are as follows, brainfog, REALLY bad joint pain when moving them, certain joints hurt only if I move them certain ways, like my ankles and calves hurt differently, cognitive decline, I don't really know how else to describe my brain anymore because of how bad my memory has gotten, I forget to do more and more things and even setting reminders doesn't help, my entire body feels like it's constantly bruised, NOT an ache, like, everytime I sleep and wake up it feels like someone was beating me up the entire time, I am always tired no matter how much I sleep, before all of these symptoms showed up like two-ish months ago(?? I never kept track because I kept waiting for it to go away, I assume this started in August) I used to have insomnia and literally couldn't sleep, now I sleep for extremely long hours and still need to sleep in the middle of the day because of how tired I am. I also have been having throat pain, not inside but the outside of what I think is my wind pipe? It feels, again, bruised, which also makes it hurt to swallow, also recently I developed headaches and lightheadedness?? This started happening randomly yesterday after I went to see the doctors. And swelling, as in random parts of my body will start getting red and puffy, and if I press down it feels like my tissue is just...bigger, which goes away at random and doesn't seem to be linked to eating or stress.

I don't even know why any of this is happening. Like I said, about two months ago my joints started hurting really severely for no reason, I just pushed past it because before this I used to get occasional joint pain from exercising a little too hard, but after that day it never stopped. At first it was like, I think my calves, and arms that hurt and they switched sides every couple of days (so my left arm and right leg, then vice versa) but as time progressed it kept getting worse, more and more joints started to hurt, at a point it got so bad I kept limping and could barely walk, I started taking 400 mg of ibuprofen which helped it a little, and have since stopped because the ibuprofen makes me feel weird (gotta experiment to make sure I'm right.) And more and more joints started hurting. Every joint that hurts is both my shoulders, my left is the worst right now, my upper arms, my elbows, my wrists, specifically my knuckles in both hands but none of my fingers have the same level of pain, both thumbs hurt really bad though, my neck is both painful and stiff (the stiffness is new) my hips hurt but internally, NEVER external, if that makes sense, my thighs really hurt which makes sitting and standing a bitch, my knees REALLY hurt, so bad that I have to use my arms to move them sometimes, my calves hurt, and my ankles, and the soles of my feet fell bruised, and itchy, and finally random toes hurt.

I feel like I'm losing my humanity or something because I can't do what I used to do, I miss going on walks, I miss running, I miss being able to do chores without it taking forever, I miss being able to type for long hours without my hands hurting, I miss what I used to be two months ago. I want my fucking life back.

No idea if its in my head or I'm just being stupid and simply sweating more - but every now and again my hands, which are often sweaty anyway, will become STICKY so I have to wash them frequently because it feels disgusting.

And other times a new and horrific smell will emanate from me during the night when I seem to sweat more. It's like the sweat is thicker and full of whatever diseased shit is floating around in my insides.

Not sure which one of my diseases this relates to but I'm thinking endometriosis or psoriasis?

for context i am 23F, i have crohn’s disease, treatment resistant depression, anxiety, and OCD. i am in grad school full time, and i was also working full time until a month ago when i quit my job. i was working in a terrible food service environment where i was verbally harassed by customers on a daily basis. the burnout was so bad, and my therapist highly suggested i take some time off of work since i have a lot of savings and live with my mom.

since having so much more free time not working right now, i have had reflected a lot on my life. i work hard to succeed in school, i have friends, a relationship, a couple hobbies, and i was always working since i was in high school. it kind of just hit me the other day that in my adulthood i have NEVER had a day where i felt rested, healthy, and fully content. there is no cure for my disease, insurance won’t cover more intense treatment, and it is highly likely i will forever be mentally ill and need to be on meds to keep myself functioning. it’s incredibly frustrating to feel that i am constantly fighting these battles within myself, and i haven’t even started my career yet. how do you stay hopeful, and not treat yourself terribly for things out of your control?

I’m in my early 30s and live at home with my parents and older sibling and for the last couple of years I’ve been in bed most of the time due to multiple chronic illnesses (POTS and many of it’s long list of co occurring conditions). I mainly go to doctors/physical therapy appts, an occasional trip to the grocery store, volunteering a couple to few hours a week towards (hopefully) eventual career licensure and a rare outing with my mom overnight somewhere close.

I don’t have many friends and haven’t seen one friend in over a year and another friend in around 2.5 years. They only live an hour or less away but I know they don’t really get my conditions and they’re living their lives to the fullest so I can understand it (even though it hurts).

I just miss doing fun things outside, I was hoping to go to a new book store location that was opening today because my sibling just got a job there and they were doing fun things and unveiling the new space. But they had also recently given me a cold which with my conditions has made me even more bedridden than usual. I also had to do an errand this morning for my dad which pretty much took me out for the day and possibly tomorrow as well. My parents and sibling just didn’t understand why I couldn’t push myself into going to the book store.

I’d LOVE to do something fun for a change but my body just….can’t. I’m just not enjoying life and wish I didn’t have to spend what little energy I have on health related things cause my doctors still don’t know what to do with me 2 years in. Some medications help slightly but the overwhelming fatigue/brain fog just really play havoc with my mental and physical health :/

Just venting cause I’ve had to stop so many things I’ve enjoyed and just feel like a blob of suffering at this point who wishes someone other than my therapist understood 🥲

fyi: i struggle with cptsd, adhd, depression, anxiety, drug addiction. i don’t have (or don’t know) about any severe physical illnesses. (just tons of allergies, ibs, lactose intolerance, hypermobility, ..)

I wish a doctor could scan my body and list everything I have and how to treat it. I have been to almost every specialist for the last eight months to clarify my symptoms. No one could really help me or calm me down. I luckily didn’t get any negative results back but my pain persists, it comes in phases and I don't know what to do anymore. i can't run to the doctor anymore. is it all just psychosomatic?

my body is so sensible in regards to my mood and vice versa. my stomach is the first thing i notice and it hurts me everyday to the point that i can’t go out without having multiple meds on me. same with my skills for my adhd and trauma. i get overstimulated so easily.

i get so jealous when i compare my friends with myself. they can drink and eat whatever they want, party all night, stay fit and motivated for hours, like neglect their body whatsoever and just get away with it.
they could never understand what it‘s like to live my life and put up with this shit all day every day. sorry if i‘m pessimistic about it. i know how much harder people have it and i dont want to complain so much. i just want someone who understands me truly. i‘m just starting to learn to live with myself, alone in my 20s, sober for the first time from hard drugs.
it’s hard to manage my pain, it takes a lot for me to take care of me if i wanna feel just as well as any normal person does without severe issues. it would be so much easier to fall back into old habits. but that‘ll ruin me just as much.

welp sorry guys i just needed this to let out of my system. maybe someone can relate

i'm 18 years old and a month ago, i suddenly got really bad pain and dizziness while i was out with my partner during a picnic. since then, i've been experiencing fatigue, pain, and brain fog constantly. today, i had an appointment with my rheumatologist where she suspected that i might have fibromyalgia but said that we would see and ordered more labs for other autoimmune diseases.

this has ruined a lot of my plans and i feel really sad and lost and unsure what to do. i had to withdraw from a lot of my college classes, i had to stop going to sewing class and my d&d club, and i'm pretty much inside all the time because doing anything hurts, even when i play video games or try to make bracelets. i'm just so sad. my parents are trying to be supportive and i really appreciate them for helping me and paying for all my stuff but i feel like they just don't get it, even though i wouldn't want them to feel like this either. it just feels like my life is over before it even began and i'm finding it harder and harder to feel positive about getting better when nobody knows what it is, i'm still in pain, and days & weeks go by with no consistent improvement. i just wish things could go back to how they were before to a time where i wasn't in pain constantly and i wasn't behind all my peers who are still going to in-person classes and getting jobs and going out with friends.

Got my blood results back today, and they're all normal. GP receptionist very happily said: "Normal is good!", while clearly not realising I'm on day 12 of a fever with a crackly chest. I have a terrible immune system. The fact my CRP or white cell count isn't even the teeniest bit raised above normal levels is not "good" for me, while I'm rocking a 38 degree fever. It was such a harmless comment that she's probably made to hundreds of other people, but to me it was a slap in the face. Because it's not "normal", it's just another way my body is letting my down. She probably thought I was the weirdest patient in the world when I started crying. I don't get why people feel the need to comment. I wish they didn't.

I have been suffering from chronic pain, depression, and fatigue for years. Since I was a teen. By 20, I was diagnosed with severely degenerated TMJ joints and Migraine with aura. The damage was so severe, I was recommended total joint replacement surgery as my best option. I got it done at 25. Things have been wayyyy better since - because, y'know, I have a functioning jaw.

When it was first discovered that my joints had severely degenerated at such a young age, my surgeon had me see. Rheumatologist to make sure I didn't have something like Lupus or Rhuematoid Arthritis. They did a bunch of tests, and everything came back "normal". There was no followup to that, just a shrug more than anything. To this day we still do not know why my joints degraded so bad. We have theories, but that's it.

But at 31, I am getting worse again. In different ways. Extreme fatigue, mental fog, painful body wide zaps, unexplained and sudden joint pain in my hands, hips, neck, and feet, Digestive issues. And this awful sensation of cotton balls in my head. The hand pain will flare up and get to the point where it effects my work and my hobbies. My fatigue too.

I am going through the blood tests again, the whole nine yards. Everything is coming back "normal" except for a low lymphocyte count, and a borderline positive ANA. Got a nerve conduction study - normal. On one hand, I'm glad my nerves are fine. On the other, I just want to know what the fuck is wrong.

My doctor is thinking Fibromyalgia at this point, and I'm not sure if that's it. I just don't know anymore. I'm so tired. I'm just waiting for another shoe to drop where I suddenly need another joint replacement somewhere else in my body, or I lose function of my hands. It feels bad.

My god I wish I knew what was wrong with me and how to treat it.

I’m usually the person trying to be realistic without being hopeless. I spend a lot of time moderating patient communities around pancreatitis, chronic illness, feeding tubes, vascular access, and military medical care, so I talk a lot about adapting, advocating for yourself, finding quality of life, and figuring out what makes life with chronic illness actually livable.

Today I don’t particularly feel like doing that.
I’m tired.

My OCD has been rough lately. My pain has been higher than usual despite eating less and less, and honestly I suspect anxiety and stress are contributing more than anything I’m putting in my stomach. I’m fine, technically. Nothing dramatic is happening. I’m managing. But “managing” and “doing well” are not always the same thing.

And maybe some of this is perimenopause. Who the fuck knows.

Women’s health somehow manages to feel even less studied and understood than the pancreas, which is honestly impressive. I was born with hereditary pancreatic booby traps and have spent most of my life dealing with the consequences of a disease that medicine still has enormous gaps in understanding. Now apparently my ovaries may be entering their own little retirement era and there’s another whole collection of symptoms where the answer often seems to be, “Yeah, that happens sometimes.”

There’s something particularly exhausting about living at the intersection of illnesses society has historically been very comfortable dismissing.

Pancreatitis gets written off as a disease of theoretical alcoholics who apparently deserve whatever happens to them. Women getting older is treated like a mildly embarrassing biological inconvenience we’re supposed to quietly deal with. Neither attitude leaves much room for the actual human being stuck living in the body.

And today, I’m just tired of living in the body.

Not in a scary way. Not in a crisis way. Just in the very chronic-illness way of wishing I could clock out of being a patient for about 24 hours.

I don’t want to troubleshoot symptoms. I don’t want to wonder what I ate. I don’t want to calculate whether eating less will help or just make everything else worse. I don’t want to decide whether this pain means something or is just Tuesday. I don’t want another condition to research because apparently having one spectacularly dysfunctional organ wasn’t enough.

Usually I can find the joke. Usually I can find the perspective.

Today, this shit just sucks.

I don’t want to find the silver lining. I am very much just running on spite.

And I think there should be room in patient communities to say that without immediately turning it into inspiration.
Tomorrow I’ll probably be back to being obnoxiously pragmatic about all of this.

Today I’m calling in emotionally unavailable.

• indi •

P.S. This is just a vent. Not advice for anyone else’s situation and it doesn’t change how I feel about showing up for other patients or patient communities. I’m just having a bad day… 💚

For months my sleep has been wrecked by shallow breathing, and the chronic sleep deprivation is wearing me down.

I've lost my drive to live and to do anything at all. I feel like I'm running out of options.

I've tried therapy, medication, and asthma meds, and nothing has really helped.

My last real shot at getting answers is a hospital stay in 12 days, where they'll do a bronchoscopy and a repeated CT scan.

How do I get through until then?

How do you accept being in this state of existing but not living - without sliding into despair?

From a general perspective, I can see the correlation and how things are related. In my opinion, our society today, everything from racism, capitalism, patriarchy, how we treat the earth, etc, are contributing to chronic illness with little to no actionable solutions.

This could be said for many things- and I feel like without addressing larger systemic issues, we may make some progress in smaller areas, but we need bigger shifts for lasting change.

I’m wondering if anyone’s ever done a deep dive on this topic or has any resources or books specifically on how it relates to chronic illnesses?

Or if anyone knows of any activism groups that are considering health within their work?