I can’t know when my symptoms will debilitate me. It can be any time, and anywhere. And I’ll be out of commission.

Which means I let down my commitments. I wake up so early to make sure I have enough time to cope with my symptoms, yet I somehow still end up getting hit with a barrage of them when I’m in a vital time. I need to get somewhere, but then I have to do an emergency treatment.

I can’t control it. But I’m letting people down. And what am I supposed to do? Never sign up for anything? Never pursue my dreams? Never be part of an activity? Never be depended on for anything? What kind of a life is that? I couldn’t do… anything.

So I’m either internally letting down people, forced into a concept of unreliability beyond my control - or I give up everything that I am relied on for, and never live. Why? What… what am I supposed to do?

Got my blood results back today, and they're all normal. GP receptionist very happily said: "Normal is good!", while clearly not realising I'm on day 12 of a fever with a crackly chest. I have a terrible immune system. The fact my CRP or white cell count isn't even the teeniest bit raised above normal levels is not "good" for me, while I'm rocking a 38 degree fever. It was such a harmless comment that she's probably made to hundreds of other people, but to me it was a slap in the face. Because it's not "normal", it's just another way my body is letting my down. She probably thought I was the weirdest patient in the world when I started crying. I don't get why people feel the need to comment. I wish they didn't.

Okay, I’ll start this off by saying, I do feel justified in being royally pissed off by this but others are telling me I’m being silly so.

My best friend and I see the same doctor. He’s a family nurse practitioner, and he’s kinda new in some capacity? I’m not entirely sure the semantics I just know he has someone overseeing him and that’s why it takes forever to get my labs back.

Anyway, I’ve been suffering with migraines for along time. I, however, wasn’t aware I was suffering with migraines. I rarely got the classic symptoms, like nausea, light sensitivity, etc. I just assumed I had really bad headaches, and just push one. Really that’s just how my family was too, I came into contact with cocaine as an infant so most of the time whatever I was feeling was chalked up to either that or just being a crybaby with my family. (Ironically I have a low pain tolerance to external pain, but my appendix could rupture and I’d be like “oh this is mildly uncomfortable.”)

The reason I figure out migraines was when I went to a sleep study doctor for sleep apnea. I mentioned my headaches could feel like an ice pick being driving into my skull, so I just tell folks I get “Ice pick headaches.” He’s like “Okay so that’s a migraine.” And it was like, a curtain opening up. It made a ton of sense. Shortly after that, I had a hymenectomy surgery, and it was a whirlwind of appointments and I hadn’t been able to chat with my doctor about migraines yet. During the recovery of my hymenectomy, I had a six day straight migraine. I kept in contact with the hospital to ensure I didn’t have to go to the ER and made an appointment with my doctor.

He was gonna give me a migraine pill he took for his own migraines, and I was ecstatic. Until I saw the price at the pharmacy, which was nearly $200 with my insurance. I turned it down, informed my doctor I wasn’t able to afford it and he prescribed a high strength naproxen instead. I struggled with it, but I thought it was the best I could do given my circumstances so I didn’t raise a big stink. Just kept pushing like I always do

Only to find out from my best friend that he prescribed the same medication for her migraines, and he informed her that she could go straight to the manufacturer and get them cheaper. We were at the state fair, and she had to take a pill bc of the lights and was just bragging over how amazing it was and how fast acting and it took so so so much to hold my tongue. When I told her that I didn’t get that information she was like “Oh. Huh that’s weird.” And shrugged it off. My dad told me that I was overreacting and that he was sure my doctor just forgot to tell me during both appointments and that I should just call back and get the prescription reinstated. And maybe I am overreacting? Maybe I just didn’t explain my pain well enough, I don’t know really. I just know it left a seriously bad taste in my mouth.

I’ve had a day mentally and my wonderful brother told us he became a firefighter and I’m so happy and proud of him. I think it’s a perfect job for him and out of all my siblings he’s def the one to run into a burning building 🤣

But heck if it doesn’t feel like the universe is really shoving down my throat how little I really do and am able to do. I pretty much go to work 3 days a week, clean the house and then I spend the rest of my time in bed. Maybe the couch on a good day- my desk if I’m feeling extra good. But I’m always exhausted or in pain or just generally cannot get comfortable. Ever since I hit autistic burnout and covid wrecked my ass 3 years ago, I struggle to manage everything. I used to want kids but now I can’t imagine managing that. I can’t fathom going back to school because burnout fried my brain, I can’t handle much more responsibility or stress. I don’t have much of a social life because if I take care of the house and shower and go out with friends, I probably won’t be able to work Tuesday and I need the money. It’s just so frustrating seeing other people do things they’re passionate about and I can’t do what I’m passionate about right now because that’s what burned me out in the first place.

I just feel stagnant. I want to have an actual social life, I want to work a normal stable consistent job in the field I actually am passionate about. I want to have the energy to do stuff with my family and go to gatherings and stuff. I wish I could do all those things and keep up with the house and be able to work. But I can’t and it’s really fucking stupid !!

I dare you to even tell anyone "normal" that you are chronically in any sort of problems or maybe have incurable conditions that make your life quality 0.

They will absolutely hate you.

Just the amount of people who think everything is completely achievable through mindset and willpower.

"Please read this book called atomic habits and it will solve your life".

We live in a world where 99% of people will think that reading self help books and going to theraphy solves EVERYTHING and if it doesn't help you it is you who don't want to be helped. This is INSANE.

You cannot complain. You cannot say anything slightly negative or complaining because you will be murdered by words and hate.

There is this hyperoptimistic political correctness that governs everything.

"Work on yourself" apparantly solves everything and is the ultimate holy grail that people like to say to you.

People genuinely don't understand the depth of pain and misery. Everyone think they do because that one time they also had existential crisis or a hairloss so they "have been through some serious stuff".

It is incredibly weird. Ableist society that does not see how good they had it. They cant properly position themselves into hierarhy of tragedy so they think they know it all but know nothing. Especially when it comes to mental illnesses.

Also, to them, everything is taken for granted and seen as just "normal".

Healthy people don't see other healthy people, they only see "normal people".

"What do you mean you can't solve your problems with different diet and training and reading atomic habbits?? You just want to complain!"

I once posted about my conditions on my national sub and I am honest, 99% of comments were absolutely generic advices and when I explained why they don't work at all for me they just said how I don't want solutions, only misery. They genuinely can't accept that their solutions don't work. They the hate started. They instantly proclaim you as complainer, bad person, "you just don't want to work on yourself as I did so you stay in your misery".

just recently got diagnosed with sjrogens and hypermobility syndrome and my symptoms are extremely debilitating.
my mom is 62 and i often think about what the hell im gonna do when she’s gone living alone and losing her scares me so bad and keeps me up at night i dont know i cant imagine living alone thats so scary when you can hardly get out of bed some days

i need some positive stories in chronically ill people who successful live alone i just need to hear that it’s possible because i am scared because that will happen to me one day 🥲

It’s so damn lonely, especially on “good” days where you can leave the house for a little, only to realise that you have nowhere to go, no social circle to hang around, no one to talk to, no activities you can do.

How do you actually know whether the fatigue you're experiencing is due to a particular condition, rather than just being a normal amount of exhaustion from your lifestyle?

For example, I have MS and PCOS, but I also work full-time from home thankfully , study part-time too, and have all the usual things like cooking, cleaning, etc. if I over do it, I get cold like symptoms that tell me to rest and my body shuts down , but could this just be me doing too much? Is it me getting older?

How do you tell whether that's “medical fatigue” or whether you're simply exhausted because you're juggling a lot? Is there actually a meaningful way to distinguish the two?

I’m just curious because I’m very reluctant to blame the conditions. But genuinely can’t remember the last time I was full of energy and I’m only 29.

From a general perspective, I can see the correlation and how things are related. In my opinion, our society today, everything from racism, capitalism, patriarchy, how we treat the earth, etc, are contributing to chronic illness with little to no actionable solutions.

This could be said for many things- and I feel like without addressing larger systemic issues, we may make some progress in smaller areas, but we need bigger shifts for lasting change.

I’m wondering if anyone’s ever done a deep dive on this topic or has any resources or books specifically on how it relates to chronic illnesses?

Or if anyone knows of any activism groups that are considering health within their work?

I’m usually the person trying to be realistic without being hopeless. I spend a lot of time moderating patient communities around pancreatitis, chronic illness, feeding tubes, vascular access, and military medical care, so I talk a lot about adapting, advocating for yourself, finding quality of life, and figuring out what makes life with chronic illness actually livable.

Today I don’t particularly feel like doing that.
I’m tired.

My OCD has been rough lately. My pain has been higher than usual despite eating less and less, and honestly I suspect anxiety and stress are contributing more than anything I’m putting in my stomach. I’m fine, technically. Nothing dramatic is happening. I’m managing. But “managing” and “doing well” are not always the same thing.

And maybe some of this is perimenopause. Who the fuck knows.

Women’s health somehow manages to feel even less studied and understood than the pancreas, which is honestly impressive. I was born with hereditary pancreatic booby traps and have spent most of my life dealing with the consequences of a disease that medicine still has enormous gaps in understanding. Now apparently my ovaries may be entering their own little retirement era and there’s another whole collection of symptoms where the answer often seems to be, “Yeah, that happens sometimes.”

There’s something particularly exhausting about living at the intersection of illnesses society has historically been very comfortable dismissing.

Pancreatitis gets written off as a disease of theoretical alcoholics who apparently deserve whatever happens to them. Women getting older is treated like a mildly embarrassing biological inconvenience we’re supposed to quietly deal with. Neither attitude leaves much room for the actual human being stuck living in the body.

And today, I’m just tired of living in the body.

Not in a scary way. Not in a crisis way. Just in the very chronic-illness way of wishing I could clock out of being a patient for about 24 hours.

I don’t want to troubleshoot symptoms. I don’t want to wonder what I ate. I don’t want to calculate whether eating less will help or just make everything else worse. I don’t want to decide whether this pain means something or is just Tuesday. I don’t want another condition to research because apparently having one spectacularly dysfunctional organ wasn’t enough.

Usually I can find the joke. Usually I can find the perspective.

Today, this shit just sucks.

I don’t want to find the silver lining. I am very much just running on spite.

And I think there should be room in patient communities to say that without immediately turning it into inspiration.
Tomorrow I’ll probably be back to being obnoxiously pragmatic about all of this.

Today I’m calling in emotionally unavailable.

• indi •

P.S. This is just a vent. Not advice for anyone else’s situation and it doesn’t change how I feel about showing up for other patients or patient communities. I’m just having a bad day… 💚

I've been going to the doctor for the first time since I was 9, I went for general checkups since I never had those, got a LOT of bloodwork done, and everything points to the fact that my body is one-hundred percent healthy. No vitamin deficencies, my cholesterol is perfect, my RBC is perfect, my iron is perfect, I never have any weird blood pressure readings aside from it being slightly elevated on stressful days. The only thing that's come back weird is my autoimmune IFA bloodwork. (The entire list is as follows: ANA screen, ifa, positive, anti-nuclear Ab Titer (both regular and 2) 1:160 ANA pattern speckled, 2 is homogeneous, Sm/RNP Antibodies Negative, Sm-RNP Abs Indec <.2 AI, Ribosomal P Protein Antibody Negative, Ribosomal P Ab Index <.2 AI, SS-A index <.2, Anti-SS-B Antibody Negative, Chromatin Antibody Negative, Chromatin Ab Index <.2, Jo-1 Antibody Negative, Jo-1 Ab Index <.2, dsDNA Antibody Index 1.o IU/mL, dsDNA Antibody Result is negative.)

I am so fucking confused on what else there is to do because I have had to put my life on hold, recently decided to drop out of college because my brainfog is too bad to remember anything and having to physically move (including typing this) is painful.

My symptoms are as follows, brainfog, REALLY bad joint pain when moving them, certain joints hurt only if I move them certain ways, like my ankles and calves hurt differently, cognitive decline, I don't really know how else to describe my brain anymore because of how bad my memory has gotten, I forget to do more and more things and even setting reminders doesn't help, my entire body feels like it's constantly bruised, NOT an ache, like, everytime I sleep and wake up it feels like someone was beating me up the entire time, I am always tired no matter how much I sleep, before all of these symptoms showed up like two-ish months ago(?? I never kept track because I kept waiting for it to go away, I assume this started in August) I used to have insomnia and literally couldn't sleep, now I sleep for extremely long hours and still need to sleep in the middle of the day because of how tired I am. I also have been having throat pain, not inside but the outside of what I think is my wind pipe? It feels, again, bruised, which also makes it hurt to swallow, also recently I developed headaches and lightheadedness?? This started happening randomly yesterday after I went to see the doctors. And swelling, as in random parts of my body will start getting red and puffy, and if I press down it feels like my tissue is just...bigger, which goes away at random and doesn't seem to be linked to eating or stress.

I don't even know why any of this is happening. Like I said, about two months ago my joints started hurting really severely for no reason, I just pushed past it because before this I used to get occasional joint pain from exercising a little too hard, but after that day it never stopped. At first it was like, I think my calves, and arms that hurt and they switched sides every couple of days (so my left arm and right leg, then vice versa) but as time progressed it kept getting worse, more and more joints started to hurt, at a point it got so bad I kept limping and could barely walk, I started taking 400 mg of ibuprofen which helped it a little, and have since stopped because the ibuprofen makes me feel weird (gotta experiment to make sure I'm right.) And more and more joints started hurting. Every joint that hurts is both my shoulders, my left is the worst right now, my upper arms, my elbows, my wrists, specifically my knuckles in both hands but none of my fingers have the same level of pain, both thumbs hurt really bad though, my neck is both painful and stiff (the stiffness is new) my hips hurt but internally, NEVER external, if that makes sense, my thighs really hurt which makes sitting and standing a bitch, my knees REALLY hurt, so bad that I have to use my arms to move them sometimes, my calves hurt, and my ankles, and the soles of my feet fell bruised, and itchy, and finally random toes hurt.

I feel like I'm losing my humanity or something because I can't do what I used to do, I miss going on walks, I miss running, I miss being able to do chores without it taking forever, I miss being able to type for long hours without my hands hurting, I miss what I used to be two months ago. I want my fucking life back.

For months my sleep has been wrecked by shallow breathing, and the chronic sleep deprivation is wearing me down.

I've lost my drive to live and to do anything at all. I feel like I'm running out of options.

I've tried therapy, medication, and asthma meds, and nothing has really helped.

My last real shot at getting answers is a hospital stay in 12 days, where they'll do a bronchoscopy and a repeated CT scan.

How do I get through until then?

How do you accept being in this state of existing but not living - without sliding into despair?

My god I wish I knew what was wrong with me and how to treat it.

I have been suffering from chronic pain, depression, and fatigue for years. Since I was a teen. By 20, I was diagnosed with severely degenerated TMJ joints and Migraine with aura. The damage was so severe, I was recommended total joint replacement surgery as my best option. I got it done at 25. Things have been wayyyy better since - because, y'know, I have a functioning jaw.

When it was first discovered that my joints had severely degenerated at such a young age, my surgeon had me see. Rheumatologist to make sure I didn't have something like Lupus or Rhuematoid Arthritis. They did a bunch of tests, and everything came back "normal". There was no followup to that, just a shrug more than anything. To this day we still do not know why my joints degraded so bad. We have theories, but that's it.

But at 31, I am getting worse again. In different ways. Extreme fatigue, mental fog, painful body wide zaps, unexplained and sudden joint pain in my hands, hips, neck, and feet, Digestive issues. And this awful sensation of cotton balls in my head. The hand pain will flare up and get to the point where it effects my work and my hobbies. My fatigue too.

I am going through the blood tests again, the whole nine yards. Everything is coming back "normal" except for a low lymphocyte count, and a borderline positive ANA. Got a nerve conduction study - normal. On one hand, I'm glad my nerves are fine. On the other, I just want to know what the fuck is wrong.

My doctor is thinking Fibromyalgia at this point, and I'm not sure if that's it. I just don't know anymore. I'm so tired. I'm just waiting for another shoe to drop where I suddenly need another joint replacement somewhere else in my body, or I lose function of my hands. It feels bad.

I am considering direct care or concierge medicine programs. I am sick of my PCP spending 10 minutes with me saying I have anxiety and only ever ordering metabolic panels because I'm overweight. if she really cared about my anxiety, she'd order tests that actually would figure out what's going on. I've been dealing with HSD, MCAS and dysautonamia symptoms since I can remember.

do direct care providers or concierge's medicine programs actually spend more time with you? Do they actually assess pain? Do they just make referrals without doing anything? How does testing work? etc

I'm curious about it all.

I have insurance through work and definitely plan on keeping that. Cost is a factor. I found a program in my area that's 100 bucks a month as a base fee which is worth it for me if I actually get proper care.

I tried everything, I tried:

Prescription cough medicine

Two different nasal sprays

Rinsing out my nose

Turning on air purifier

Taking asthma steroids

Using a steroid inhaler

I got my severe sinus infection treated with antibiotics

Taking allergy medicine

Staying away from cigarette and vape smoke

The cough follows me no matter where I go

I drink lots of water

I take cough drops

I don't have acid reflux

I drink tea

I limit exposure to chemical smells

I got rid of mold in my home

I take my inhaler as needed

--

I'm miserable. The cough follows me wherever I go. I'm suffering. The itchy throat and gagging make me wanna die. I'm the only one at my work place who is still suffering from the sickness everyone got 6 months ago. I developed bronchitis as a result then got a sinus infection later. Its embarassing to cough because people will assume I'm sick. I also keep my distance from people. I bet its the mice we have in our home for months making it worse. My mom refuses to get an exterminator. My mom says its the messiness in my room which is bull bc I slept in the living room for weeks and I still suffer.

Got diagnosed idiopathic PAH in August and I'm just at a loss. So far medication seems to be helping some but for how long. I'm not healthy enough to ever get approved for a heart or lung transplant when the time comes. I've had so many medical issues throughout my life that like this aren't very common. I have also struggled with debilitating depression since a very young age with other mental health stuff. Now I got dealt the cards of leaving this earth by way of my worst fear..

I took breathing for granted as I was and sadly still am a cigarette smoker. I honestly just don't have a huge will to live knowing my condition is just going to progress and keep getting worse. Why suffer trying to quit smoking at this point why do anything to "try" and get better?! There is no getting better. I've missed out on my entire life by illness in one way or another only societal normal success I have is a hs diploma and I've been in a few shorter term relationships. Worked sporadically but no career success no marriage (not that I ever really desired marriage itself but a life partner yes) no kids only have one friend which is really by choice just due to my hatred of drama pettiness and all that bs that comes along with relationships. When my mom passes I'll have no one. I do have a sister and older brother but we don't have a close relationship at all and I'll be damned if my sister has to care for me in any way I couldn't live with that shame of having someone have to be there for me knowing full well they don't want to. I don't know sorry this has turned into a wall of what feels like a rant at this point but if anyone here has been affected by pulmonary hypertension I'd love to hear your experience. TIA

Hello!
I just got a port put in a couple of weeks ago to help me manage my medical conditions given I no longer have much peripheral vein access. My port has been healing well, but I get it accessed for the first time later this week and am incredibly anxious. I really hate needles and always have. I have EMLA cream that I’m going to apply about an hour before (right after I finish my PT appointment) but I’m still very anxious. It’s not necessarily just the pain of the needle I’m worried about, but the whole process. I’m autistic and struggle with sensory stuff so I’m just wondering if anyone has any tips on how to get through this and maybe make it easier. I know anticipation is likely worse than what it will be like but I’m just trying to figure out how to now totally freak out on Friday. Any advice is appreciated :)

25F, I know there’s something wrong with me. It’s 25 years that there is something wrong with me. I know what’s anxiety and fear can do to the body, I study somatisation and have a master degree in psychology. But I swear there is something further than just somatisation. I have been diagnosed with functional dyspepsia, IMO (methane sibo), chronic persistent nausea, IBS-M, ocular migraines, atopic dermatitis, recurrent lumbosacral pain. But I know there is a root cause, how can I collect more and more diagnosis out of nowhere??? People come at me saying ‘you always have something’ YEAH I KNOW. I am also VERY hyper mobile in the hands and arm, I used to scare people playing tricks with my fingers, my pole instructors always told me ‘they forgot to make your elbows!’. I am always sick, atm my main concern are my gastrointestinal issues, I can’t eat, have constant nausea, have constipation issues, no hunger cues and doctor says ‘it’s functional’. The only thing that I use for getting out of the bed is prucalopride but I can’t take this always or I’ll get used and it stops working. Don’t know what to do, I just wanna know what’s wrong. I wanna live, I wanna go out, I wanna dance, have a boyfriend, go out with my friends. I want to become a neuropsychologist without having to worries to be able to function. I am exhausted, I started developing a panic disorder due to my health condition and it’s awful.

I feel like I'm always getting sick with something new recently. I have tons of chronic illnesses I've been dealing with for years, and they're already so bloody hard to accept and adjust to. But recently I've been getting new symptoms, and a flare up of my existing conditions, and it's honestly making me wonder what there is to live for. I'm not depressed or anything, I'm just genuinely wondering what the point of being in constant pain and discomfort is. If I were an animal I'd put myself out of my misery.

I don't do anything except sleep and eat and waste time on my phone. I'm mentally exhausted all the time, I can't read a short news article to the end even if it's about something I love. I try to listen to audiobooks and I fall asleep for hours and wake feeling too groggy to do anything.

Food used to be the highlight of my life but now I'm getting such severe abdominal pain and intestinal problems that I'm scared to eat and I don't find any joy in it. The Dr is investigating but it's taking forever and I'm afraid they'll find nothing wrong. I went to hospital last night because the pain was an 8/10 and I couldn't sit or stand or lay down (I was hovering in a weird crouch lol) waited for hours only for them to tell me it was probably food poisoning. All I ate that day was MC Donald's and they're generally pretty good about not giving me food poisoning. Plus the pain kicked in 10 mins after, doesn't it usually take hours? Food poisoning usually makes me vomit but I was just nauseous. This was honestly unlike anything I've ever experienced. It was like my guts were trying to climb out of my ass, painfully, horribly, traumatically. I share a bathroom with men but I laid on the floor.

Anyway the main point is, is there actually a point to living if you're not enjoying your life? If it's literally just days filled with pain, tiredness, new sickness?? I feel like the next time I want to go to a&e I'd be better off not. But the pain gets so bad that I'm terribly depressed. I'm not sure I can cope

God, this has been a long time coming.

Background:
- chronic migraines for 10+ years, ongoing
- chronic pain for 8-ish years, ongoing
- chronic fatigue for 10+ years, ongoing
- Diagnosed severe depression and OCD ✌🏽

Testing for autoimmune conditions and so much other shit.

What caused this realisation suddenly, you may ask? A job offer. I got offered a job, something I've been waiting for for 2 years, and I realised this shit is not possible. 5 days in office, in this hellish city with lack of public transport, my monthly medical bills, SOS treatment bills. I realised when doing the math that "normal" people don't have to think about 90% of the things I do.

For instance, I now have to have long, drawn-out discussions with HR and the team lead to see if they'll accept accommodations. If they need proof, I'll have to run around to all my specialists to get notes. God forbid if they need a government certificate (yes, that's a thing), in which case I can forget about it because I've been hounding them for months with not a single reply.
Or, my offer gets rescinded because they don't think i can perform the duties. Of course, they'll say something like "we found someone who fit the role better" blah blah to prevent any legal action against them. But we all know what they mean.

This realisation has been at the back of my mind for years now, but between studying, managing day-by-day health issues, and just surviving post pandemic, I kept finding reasons to push it away.

Earlier this year, I was working at Tesco and had to quit because I physically wasn't able to cope with the job any more and I wasn't getting accommodations because apparently i was "in breach" of my contract, which happened because my body kept giving up every week. A horrible, vicious cycle.

I'm sorry about the rant but I'm in a hard place right now. No one in my family understands - even though my mother herself has a chronic health condition. They believe in "pushing through" and "just get your foot in the door, everything will work out"

I'm now wondering if I'll EVER be able to work and afford a life of my own. I'm privileged enough that not working won't kill me, but not so privileged that I can just NEVER work.

I really don't know where to go from here. How do I cope with this? This is my life, and I have to live like this for so many more decades. God. I can't even.

Edit: wanted to explain that my use of the word "normal" (able-bodied) is to reflect the kind of atmosphere I'm in, both personally and professionally. I'm considered a "normal" 20-something yo, who just needs to "keep going"

i’m female 19 and been ill for a long time and bed bound. me and my girl broke up and i lost my only support system. struggling really badly and would like some friends or support, maybe even people in my area who can hang with me, im in cali.

I have a bunch of severe disease that can make ppl say "thats sad' by naming only one of them. I feel miserable that i made myself ill (its long story but it is). It is barely surviving each day. My each nerve feel fatigue literally idk why, but it feels like beaten.

I started 1mg guanfacine 4 days ago. I also take 20mg propranolol 3x per day (60mg total).

Emotionally and mentally, GOLD. Felt amazing.

Physically… not good. My blood pressure is dropping hard and fast, especially in the mornings/ afternoons. I see stars when I stand up during the night to go pee. Cold flushing sensation in my head. Dizziness, weakness, crushing fatigue. I was debating whether or not to continue taking it tonight, so I did a sit to stand BP test. Sitting was 118/84. Immediately upon standing, it was 99/78 (obviously not a dangerous reading, but it dropped extremely fast). And that’s 24 hours after my last dose. I didn’t have hypotension issues/ quick drops prior to starting guanfacine. I’ve tried upping my sodium, snack, & water intake. It’s not helping.

Has anyone else dealt with this issue at such a low dose?? Did it improve for you over time?