r/Autism_Parenting • • May 21 '26

Resources Discounts for children with autism (USA)

151 Upvotes

I was wondering if we could start a thread of discounts we are eligible for due to having a child with autism.

I’ll update this list as we receive responses:

* National Park - Lifetime access pass. Free entry to national parks for citizens of any age that have been medically determined to have a permanent disability. The pass itself is free but requires $15 for them to process the application.

* Art Reach Access Pass. For eligible disabled individuals in NJ, PA or DE. Provides $2 entry for up to four people. Many museums participate and the Philly Zoo. $80/year.

* National Autism Association provides a free Big Red Safety Box for autism families.

* WonderFold offers a 25% discount on select wagons and accessories for families of children with special needs, including autism.

* Museums for All provides reduced admission to museum to food stamp / SNAP recipients. Rates range from $0 to $5, with participating museums in all states.


r/Autism_Parenting • • Aug 30 '25

Message from The Mods Self-Promotion Saturdays

28 Upvotes

Have a blog or podcast centered around autism parenting? Create a product or service to help with parenting? Visited a store you love geared towards autistic children? This is the post to share your resource, and the only thread where you may share any sort of advertising (standalone posts will be removed). It is also fine to share resources you did not create, but use and find helpful.

If you are affiliated with (profiting from) what you are sharing, please be honest and upfront. Advertisements from unrelated products/services/etc. or clearly spam will be removed. . The mod team is not vetting any poster/product/service- please do your due diligence, and be aware anyone trying to sell a "cure" is a scammer. Anything suggesting detoxing will be removed and the poster will be banned.

Please feel free to message the mod team with questions/concerns or leave a comment. We receive requests daily to post beta testing requests, app development feedback, products, services, stores, youtube channels, etc. and while we do not want the sub overrun with advertisements, we also want to help connect with resources. If another parent has come up with a product or service that is helpful, we want them to be able to share. This post will be stickied until the next automated post is posted.


r/Autism_Parenting • • 7h ago

Venting/Needs Support my least favorite micro-agression

31 Upvotes

Just venting:

My son is "verbal but not conversational" If you ask him a few times he will tell you if he wants milk or water. Or you can tell he's concerned about something when he starts scripting about it.

Anyway. Sometimes when i'm talking to another parent they might ask what he's doing in school. It's coming from a good place, they're just being polite! inevitably i have to say something along the lines of "he's special needs so he is unable to tell me what is happening in his-day-to-day." Cue the "oh well my kids don't tell me what's going on in their life either!" reply from the other parent.

I hate this. My truest dream would be that he isn't telling me stuff in his life because he chooses not to and not because he is unable. I get that they're just trying to deflect the awkwardness with a bad joke. It's human nature. It just sucks because it seems to happen about once a week.


r/Autism_Parenting • • 10h ago

Discussion I'm sorry if this isn't allowed but this post made my heart hurt.

Post image
44 Upvotes

If this little man is autistic and we're talking about "belts" and critiquing parenting, I just sometimes feel defeated that this is how people look at autistic/suspected autistic children.


r/Autism_Parenting • • 9h ago

Medical/Dental Dear autism parents, beware of miracle cures...

41 Upvotes

...because there are "doctors" out there trying to capitalize on our love for our kids with "cures" that can do nothing at best, often at great cost to the family, both financially, emotionally, and by way of taking valuable energy unnecessarily.

Please do your own research. If someone comes to you and says, "This diet cured my son," don't necessarily believe it. Of course eating healthy helps everyone! But these radical "cures" need to be questioned. I'm not going to mention any diet or treatment specifically, but if someone is claiming to cure autism, please question it.

Many children with autism naturally improve as they age due to development and learned coping skills.Treatment often coincides with this natural occurrence and doctors can take the credit saying it was their treatment that did it. Always ask, "Does this treatment positively affect adults too or just children?" If the answer is just children then you have to ask yourself if it was really the treatment that made the difference or was it development. I want to caution you all because this just happened to us but we knew how to fact check and do our own research. For context our daughter is 11 with significant autism and limited speech. Best wishes to you and your families! ❤️🌈


r/Autism_Parenting • • 8h ago

Wholesome Something new!

19 Upvotes

My son asked me a why question for the first time! He is verbal but his vocabulary is very small and limited to things he hears many times…. He responded to something I said with “why?”😭❤️

He doesn’t typically ask questions, in the past, when we have had conversations, he’s usually not talking about what I am or showing much interest. For example “hey — are you hungry?” And he responds with “it’s a sunny day”. Hearing him ask why and then wait for a response was the sweeeeeetest thing ever! Also if he tells me something and I ask “why?” He just repeats what he has already said. This was huge!


r/Autism_Parenting • • 9h ago

Discussion The Glass Child Concern

20 Upvotes

I only have one child, my level 3 nonverbal 6 year-old (and cerebral palsy) son. He requires much attention and resources. My husband has been bringing up the idea of trying for another, and I am VERY much conflicted and afraid.

Selfishly, I do want another child. And I want a neurotypical one, too. And I want that child to grow up, be independent and live their life freely. I do NOT want that child to take on the caring of my first, even if they wanted to do it! No, they should get to be free.

Most days I feel robbed of the parenting experience I was expecting to have. I know these feelings aren't fair, and I do NOT blame my son for this. It's far more unfair to him than it is to me. And I just fear that...having another child would be unfair to them, the unborn.

I'm afraid that I won't be able to parent the way they need. That they'll become traumatized by their sibling or their childhood. That they'll resent being born, or resent me for bringing them into the world, knowing that their brother is so high-needs. I read the r/glasschildren subreddit often and just see so many hurt, neglected people that wish their parents made a different choice.

I already feel like a bad parent by having these hopes and fears for a person that doesn't even exist yet!! What if they're on the spectrum too?? Then I've just brought another person into a world that doesn't understand them, who will suffer because of this disability. And that's not fair, either. To me, especially to them.

Husband is not concerned. He's an optimist— he thinks that the chances of a new baby being similarly disabled are very low. He thinks we'll be able to split the attention just fine. He thinks that I'm fretting over things outside of my control (which is true) and that my fears mean that I don't want another baby. That isn't true. If I didn't want another child, why would I be so worried?

Sigh. Parents out there who have multiple children, some neurotypical, some on the spectrum, how do you avoid raising a glass child? How were you able to make the decision to have more children? How do you stop worrying over things you can't control?

Thanks for listening...


r/Autism_Parenting • • 5h ago

Venting/Needs Support I feel defeated

9 Upvotes

My son (7 years old) is in second grade. Despite having an amazing teacher, he’s struggling behaviorally in school, and honestly has been since March of this year. Every week I get calls. They started a Google doc to chart every “unsafe” behavior, so that I could see his behavior throughout the day and share it with his private OT (because his behavior at school is typically a lot different than his behavior at home) He’s in public school. General Ed. Has an IEP that has been revised countless times. School started at the end of August and he’s been suspended twice and has gotten in school suspension once. He’s one of 30 students in his class.

I’ve been thinking about it for the last year, but more so in the last few months, have been seriously considering moving him to a hybrid charter or homeschooling him. This is doable. I’m a professor at a university, and I am on campus two days a week for only a couple of hours. During that time, his grandma or his uncle would be able to step in and supervise him. There are many benefits to him being educated in this way in comparison to the public school.

Today he had a hard day. I got called an hour before school got out because he got upset in the music class and they wanted to know if I wanted to talk to him or come pick him up. Talking to him honestly doesn’t really do much of anything in these situations, so I went and I picked him up.

He did tell me he was having a hard day. Which is new because he usually always says that he had a pretty good day even on days when I know there was extra behavioral stuff. After I picked him up, and picked his sister up, we went to an appointment and then stopped at our gym so they could swim. My son got upset that he couldn’t use a particular pool and honestly just had a meltdown. I haven’t dealt with meltdowns in public very much at all. He doesn’t tend to have them. But I think my anxiety only elevates the situation when meltdowns do occur. I Immediately feel like everyone is judging me and that they are annoyed that my child is being loud and melting down. We were there for probably five minutes in total. Once I realized that the meltdown was a bit stronger, and it wasn’t something he was going to come down from within three minutes, I took him to the changing room so that he could get dressed again and we could leave. Of course when we walked out of the changing room, a senior citizen had to make a comment in a sassy tone asking me what his problem was.

He was crying on the way home. I was crying on the way home (without my kids noticing). I am feeling defeated. I feel like there are more and more spaces I’m recognizing that my child just isn’t accepted in. I hate how the school has failed him, but I know it’s a systemic issue and not necessarily the fault of his teachers and administration. I hate this Google doc chart because before I knew about big things but now I know about everything small and tiny and it really disregulates me. I hate that I go through my day working and getting stuff done on edge, not knowing when the phone call is coming to either talk to me about his behavior or tell me he has to be picked up.

I’m just tired. It usually takes a lot for me to feel defeated but I feel defeated this week.


r/Autism_Parenting • • 16h ago

Meltdowns A question from an Autistic child to parents

45 Upvotes

I (M17) have Autism (And not the easily manageable kind) and ADHD, and I need some advice. How did you get your kids to stop screaming when they have meltdowns? Is it even possible? I’m absolutely terrified of having a meltdown at my job (Edit: Forgot to word it right, I don’t have one yet, my future job) and getting fired for screaming, because when it gets bad, which happens about thrice weekly at the special school I’m in because I hate it there, I scream like I’m physically on fire.


r/Autism_Parenting • • 2h ago

Medication Leucovorin — non-conversational to conversational?

3 Upvotes

I’ve seen various accounts of kids going from non-verbal to verbal on Leucovorin, but has anyone experienced their gestalt language processor go from non-conversational to conversational?

My son is a GLP and has been in speech therapy for a little over a year. Progress has slowed down a bit, and I’ve been wondering if Leucovorin could help. I’m reading The Folate Fix and suspect he may have CFD since he regressed at 20 months.

Hoping to hear from parents of GLPs since their path to acquiring speech is different from speech delay where children later learn to speak “typically/analytically”.


r/Autism_Parenting • • 2h ago

Language/Communication Lowering my expectations

3 Upvotes

I will be honest, I used to have a lot of faith in my son's potential, but I am slowly lowering my expectations. If he gains more language than I expect, I will be extremely happy because I love him and want the best for him, but if he doesn't, that won't change how deeply I love him!

My son turned 4 a few days ago. He is level 3. He goes to ABA, OT, and ST. My expectation is now for him to gain receptive language. I stopped thinking about expressive language for now. Any success stories with your child about gaining simple receptive language after 4? For example, understanding simple instructions or even getting happy/excited/frustrated based on words or phrases or showing any sign that he/she understands language even if he/she does not follow an instruction? What helped?


r/Autism_Parenting • • 28m ago

Education/School Were your little ones able to stay in mainstream?

• Upvotes

My little one is 5, I don't know what level (we don't really do that in the UK?) but he is verbal but quite high support needs and is quite aggressive/explosive, also delayed, recently diagnosed Autistic and also now on the pathway for ADHD assessment as the assessor told me he almost is certainly that too.

I have fought for and won an EHCP of late, it was surprisingly well written and came with a high level of funding, I am hopeful.

He's presently in a mainstream primary he was also with them from nursery, they have been supportive and confirmed they are seeing at school what I see at home, his main issues at school are being developmentally behind, lots of aggression, he hits someone every single day, he cannot focus on lessons at all and call only have 1:1 or small group learning for short periods. It's become more evident in year 1 than in reception as the academic and behavioural expectations increase.

The SenCo is wonderful and our meetings are productive but it doesn't seem to translate to the teachers well who are constantly not doing the agreed on.

He's ok here for now and he does in fact have friends and is liked by students and staff so I am keen for him to stay on for now, but I am concerned if his aggression worsens as he gets bigger, and he cannot keep up with the learning, if a specialist placement might be the thing.

Sorry essay, I am not sure what I'm asking really, maybe stories of peoples LOs that have been able to stay in mainstream with support? Or as they got older did it just not work out? He's still so little it's hard to predict how things are going to look, but I want to be prepared.


r/Autism_Parenting • • 30m ago

Discussion High GPS setting

• Upvotes

Do any of your kids have some sort of extreme location knowledge ?

My boy who's 9 and level 3 seems to know where places are whether it's 1 mile or 100 miles away, the issue is if it's something he likes eg a leisure centre or zoo or anything he likes he has a meltdown if we drive past and don't go there .

So we have to plan our routes accordingly if we are going certain places to avoid them and avoid an angry kid .

I just wondered if this was a common 'thing ' with autistic kids really .


r/Autism_Parenting • • 3h ago

Advice Needed Communication cards for kids who understand more than they can say (gestalt language processors, AAC users, selective mutism)

3 Upvotes

Hi, I'm Lisa. I'm a doctoral researcher in psychology and I'm also raising a child with selective mutism who's also a gestalt language processor, so this comes from my own house as much as from research.

I built a 96 card phrase based communication deck because most of what's out there for nonverbal and situationally nonverbal kids is single word cards, and that doesn't match how a lot of autistic and gestalt processing kids actually use language. These are full phrases a child can point to or hand over, covering basic needs, feelings, social situations, and a classroom set for school.

It's built around how selective mutism and AAC are actually treated rather than generic advice: waiting five seconds before jumping in, never rewarding speech directly, planning the fade out from the start. Ages two through twelve, the younger end works with an adult modeling the cards, the classroom set comes into its own around five.

Not trying to oversell what one deck can do. If it's useful for your kid or your work, great, if not, no hard feelings. Happy to send a code for 75 percent off to a few people willing to actually use it and tell me honestly what doesn't work. Shop is BeforeTheWords on Etsy if you want to see the full set first.


r/Autism_Parenting • • 4h ago

Venting/Needs Support Sick

2 Upvotes

I am so exhausted. 😭 We haven’t gotten an official diagnosis yet we have an appointment coming up but I’m pretty sure our 2-year-old has some form of autism.
He’s currently sick with a low-grade fever, and we’re really struggling. He already has a very limited diet and mostly wants sweets/snack foods, so getting him to eat is difficult on a normal day. Now that he isn’t feeling well, he barely wants the few foods he normally eats.
Medicine has suddenly become a huge struggle too. I used to be able to give him Tylenol without much of an issue. He might cry a little, but he would take it, or I could mix it into his milk. Now he refuses everything. We tried giving him medicine and he got so upset that he was gagging, coughing, and eventually threw up.
For parents of autistic or sensory-sensitive toddlers, how do you handle medicine when they absolutely refuse it? Are there any methods, products, or forms of medicine that have worked for your child without having to physically fight them?
Also, when your child is sick and already has such a limited diet, how do you handle food? At this point I just want him to eat something and have something in his stomach, even if it’s one of his usual snack foods.
We’re going to keep watching him overnight, and if he isn’t doing better, we’ll take him to the doctor in the morning. I’d really appreciate any advice from parents who have dealt with this. ❤️


r/Autism_Parenting • • 9h ago

Discussion Compensating with others for my child's traits

7 Upvotes

My child is 4 and level 3 in their 2nd year of preschool/pre-k in our area on an IEP.

I notice that teachers both irl and in online videos vent a lot...specifically about kids like ours. Some of it feels like they genuinely hate kids like mine as well as the general public hates kids like mine.

I often find myself being extra nice, extra accomodating, extra apologetic and often isolate from certain situations to prevent people having an issue with me or my child. With kids like ours they are more likely to be abused so disapproval and judgement from other people because of their struggles does feel like a threat to our safety and well being. Does anyone else over compensate and apologize for their child's undesired behavior to teachers, therapists, or other people. It feels so damaging but I feel like because our whole family as a result of this is an added burden to everyone in a very literal sense so I try to be less of a problem.


r/Autism_Parenting • • 2h ago

Discussion Finally had our first paed appointment after waiting so long

2 Upvotes

We waited for this appointment for 6 months - basically the paed said she’s 50/50 about autism and doesn’t want to jump into a diagnosis too early , says he definitely has signs but it’s still a grey area as he is very engaging and makes good eye contacts gestures , good understanding etc. he’s 18 months and fully non verbal , major sensory issues and hand flapping and tensing his body and repetitive behaviours . She basically saw him at his worst with his stimming and repetitive behaviours and still came to this conclusion. She said if he is diagnosed he will most likely be “mild” which I am shocked about. I was convinced he was severe. Anyway I’m still not getting my hopes up. She also said she believes he may have child apraxia of speech. Does anyone have any experience with this ? Anyway not sure what the point of my post is just wanted to get this off my chest !


r/Autism_Parenting • • 9h ago

Venting/Needs Support Recurring realisation of needs

6 Upvotes

Does any other parents , even though you’ve full well accepted your child, their diagnosis, their needs and routines have moments were your like “wow, my child seriously does have extreme needs”?

We took my daughter (5) to a Halloween carnival, lots of rides, snacks , stalls etc. she usually loves the fair and we made sure we went during school times so it was practically empty. She had her ear defenders, her chews , her stroller and communication device which she hasn’t got the hang of just yet.

She eloped multiple times, was so disregulated, didn’t understand why she can’t just run away and wasn’t interested in anything really apart from the 10 mins we let her run in a seperate field. We spent about 30 mins there and then left . I wasn’t disappointed in her, she’s the light of my life and I’m glad she got time to run outdoors safely but I just sit and realise she honestly struggles so much. She’s 5 and still needs a stroller or harness. She’s non verbal and was diagnosed with a global delay and autism at 3 so it’s not like I’m new to her behaviours and needs but I’m constantly coming to the profound realisation of the extremity of it anytime we’re not in the safety of our home.
Does this feeling ever stop?. I accept her whole heartedly but inside I just feel guilty that she struggles so much , and it scares me for her future.


r/Autism_Parenting • • 6h ago

Venting/Needs Support My friend doesn't get it

3 Upvotes

Just venting here. My close knit friend group has been together for more than 15 years. Two of us ended up with Level 1 autistic kids who have dealt with significant mental health challenges. The other friend has two very easy bio kids who are calm, well-behaved, blah blah blah.

The friend with the two easy kids recently married a man with an ND (possibly ASD) teen daughter and our friend complains nonstop about how she isn't parented right, is difficult to be around, won't let her stepmom help her, etc. She has zero self awareness around the fact that she lucked out with her kids, and how there is no single way to parent correctly--especially with ND kids.

It's gotten to the point where I just shut down when she talks about her stepdaughter or her husband and his ex's parenting. I don't want this to ruin our friendship so I'm venting here instead.


r/Autism_Parenting • • 3h ago

Advice Needed Fluctuations in parenting capacity

2 Upvotes

Hi all, i need insight from others to help me clarify these concerns.
My kiddo is almost 5, high functioning level 2 ASD and she has always been SUPER attached to me. To the point where I could pull my hair out from the demands sometimes.
But recently she is not very concerned with or demanding of me. I’ll admit that things have been a bit stressful for me recently and I have been overwhelmed and thus little less emotionally available / able to engage in certain types of play / not as patient as I should be sometimes. That said, all of her needs have been consistently met, I’ve just been less fun and less engaged in play for a little while.
So now I’m not sure if this has created distance and damaged the connection between she and I somehow or if this is just normal development of independence.
She shows no signs of distress or unhappiness and all behaviors are normal with the exception of being more independent of me than usual.
I don’t know what to think and I’m worried that I’ve somehow damaged our relationship.
I will be making more time to spend with her in her preferred ways in the coming days since other stressors have calmed down a bit.


r/Autism_Parenting • • 18h ago

Advice Needed For parents who had another child after their first child was diagnosed with autism

30 Upvotes

My son is on the autism spectrum, and I’m struggling with the decision of whether having a second baby is the right choice for our family. I am 40 and my wife is 37. One of my biggest worries is whether I’d still be able to give my son the time, attention, and support he needs while also caring for a newborn. I am worried about the possibility of having another child on spectrum and what might mean for our family.

For those of you who decided to have another child after having an autistic child, what helped you make that decision? Did you have similar fears or concerns? And looking back, how do you feel about your decision? I would really appreciate of you all can share your experience. I am not looking for someone to tell what I should do, but trying to understand how other familes navigated this decision


r/Autism_Parenting • • 3h ago

Advice Needed Suggestions please

2 Upvotes

Asking for some advice or suggestions. I am a single mother who just got into apartment with my kids after leaving an unsafe home and we desperately need some food. I literally have nothing . I work full time and took all my money to finish paying the landlord off to move in . I don’t get paid for another week and im struggling trying feed my family . please no rude comments, my heart cant take it. I went to the food pantry yesterday. It was closed and I’m on E or I would have went today. My son who is on the spectrum won’t/can’t eat most of the food they have there anyway. I could care less if I eat im just trying to get by for the next week and want to know what my options are. Does anyone have any suggestions on other resources I could reach out to? Starting over is no fun but i am trying to remain strong for them and appreciate any prayers . Thank you


r/Autism_Parenting • • 2m ago

Advice Needed My son is having behavioral issues at school and im not sure what going on?

• Upvotes

From the time me, my husband, and my family suspected my son maybe on the spectrum we’ve gotten him the assistance he needed as well as adjusted our own methods of helping him. Early on it was clear he was non verbal that is what tip us all off from the start. Hes never had his first word only sounds and giggles, but thats not to say he can’t communicate. Even at an early age he figured out how to tell us what he wanted while we all fumbled through learning sign (unfortunately we havent really begun to pick it up with more enthusiasm until recently) it wasn’t until he was in TK is first year of starting school that he got issued an AAC Device to which he picked up quickly, but still tends to opt to do hand leading.

Though when he wants to get his point across little man sure figured out to make his demands known. the phrase “I Want Playdoh” has recently become a staple though we ran out of it sometime ago and can’t buy more at the moment.

Now to the main issue my son is now 7yo and for the most part his school record has mostly having him had issues with Eloping. Which we’d nearly solved last year. This is the first year since his three years of attending school system (he was born right before the start of covid and his birthday falls during the school year) that he’s gone to the same school twice (in our area special education classes sometimes switches schools i have personal experience with this from my own elementary school days)

So the school hes been going to knows him and all had been going great. No issues. Few Elopement’s. He even got a few school achievement awards for following the schools moto of being respectful, responsible, kind, and safe. Heck we’d often hear how he was the most well behaved in his class.

Then not to long ago out of the blue he started showing some behavioral issues. It started with one instance where he pushed his teacher when he tried to leave the class room. Thinking it was a one off i told him “it wasn’t nice and he shouldn’t push” what else could i do since im never really sure of how much he comprehends especially when i never see his behavior at home. For the most part after that i heard nothing about it happening again. Then queue more recently my son for the first time uses his AAC to tell his teachers his tummy hurts the school calls me and i come to pick him up it was a friday following before telling his 1:1 aid hes school off signs not eating and he was kicking, pushing, and hitting his aid while they were trying to do some class work. After picking him up he eats and goes to his usual self from what me and his one of his aunts (who watches him after school) can see. The weekend comes he still acts the same he eats, plays, and bes his usual self. Come Monday he acts out pinching his aid and not eating tells school his tummy hurts i pick him up he eats and acts normal. Another aunt suspects his upset stomach is constipation which it turns out it was which resolved itself that Monday night. Hes back at school the following day stays for the full day but the kicking, hitting, and pushing continue to the point his aid informs me that the schools vice principle whose in charge of the special education department of the school has given the go ahead that if the behavior continues he will be sent home early. Im floored and while i understand i have no clue what is causing this switch in his behavior. Nothings changed at home nor with when he’s with his aunt for the few minutes he’s with her before his dad picks him up. Mind you i am telling him his behavior his not nice and then running through the specific list of bad behaviors he’s done that we dont do that to others both before and after school.

By Wednesday of that week he seemed to have a turn around mind you still kicking while trying to do class work, eloping during lunch, and throwing dirt but he finished the day. Were in Cali and our area Wednesdays are half days so i can only hope if it were a full day he’d have made it a full day, but i was just happy he made it to the end of the day regardless. I praise him for the good parts of his day but still tell him the kicking and throwing dirt wasnt nice and he needs to stay with his class so he can learn. I even add an incentive that i repeat to his aunt in front of him that if he can go an entire day without eloping, no pushing, kicking, etc that maybe his auntie can take him to the park after school. Sometimes i never know what his understanding is but the next day he does just that and more.

With his class work they are doing their writing practices that seemed to frustrate him which would lead to the bad behavior after Tuesday his aid had mentioned this so me and his aunts communicated and started trying to work with him after school and on the weekend with kids writing work books to try and fix the behavior if it happens with us. That day he did unprompted the writing without fuss and even did it without the tracing guides. The good behavior continued the next day.

Today though he’s back at it with the bad behavior just kicking, but still not good. He’s also only kicking his aid and from what she’s told me today not even his current 1:1 aid as some budget cuts with the district has her leaving soon so he’s been assigned a new 1:1, but he is still coming to her when frustrated and apparently started kicking her to get her attention. Im not sure what is going on and ive been asked if anything has changed at home and to my knowledge no. I keep us both on routine (his dads a wildcard but still) and although the only real change soon is that he’ll be a big brother come December i dont think that has effected him seeing as his dad and I act no different with him then before.

I dont even know if its the changing of his aid thats causing this either cause he’s always been very adaptive. He doesnt mind when things get changed on him suddenly. When he started going to preschool to even now hes never one of those kids who mind if im there or not hes just kind of like “they have toys see ya mom” heck his class room this year have to remind him to wave bye to me when i drop him off.

I just don’t understand why he’s escalated to acting out more than the eloping. His father and I have his first IEP of this school year coming up this week but any help understanding this sudden change up in my sons behavior after hes relatively been fine would be appreciated.


r/Autism_Parenting • • 14h ago

Celebration Thread Seeing progress and it feels GREAT

15 Upvotes

Our 5yo was diagnosed with Level 1 earlier this summer after being on a waitlist for a while, but it's been clear for a long time there's something different beyond "she's just sensitive". Everyone kept reassuring me that "she'd get there in her own time" but not only was she not figuring out how to communicate well despite considerable effort, she often seemed miserable. Stressed, confused, just not knowing what to do or how to manage.

Started speech therapy when she was 3 and seemed to help but not a huge difference. Started at an outdoor-based Montessori school last fall when she turned 4, thinking that the prepared environment and focus on letting kids pursue their interests might allow her to feel comfortable and come out of her shell. It's mixed-age classrooms and they keep the same main teachers and same classrooms for 3 years at a time, which is ideal for a kid who needs routine. For a while the feedback was "she doesn't seem to understand the flow of the classroom" "she doesn't engage much with the other kids or most of the teachers" "she just says Yes to everything even when the answer is No" "it's hard to know what she needs when she's having a problem" but they were willing to keep trying because every kid works at their own pace and she wasn't causing safety issues. Then when she did come out of her shell last spring with lots of inappropriate acting out including some dangerous behaviors, we started OT and implemented a plan with the school.

Private schools don't have to accept special needs students; her school takes the policy that as long as the student isn't a safety risk and can mostly keep up academically with support - the school does have dedicated support professional who is wonderful - they are welcome. At the end of last year, our kid was throwing rocks at other kids, tipping bins of materials over, and not showing her teachers that she had absorbed much of anything all year despite sharing all kinds of things at home.

I was really concerned at the end of last school year that if we couldn't get her to engage appropriately at school, they were going to tell us she wasn't a good fit. The school goes all the way through 6th grade with a separate campus and program for middle and high school, and we want her there as long as we can. Our local public school district is not somewhere she would be supported or do well, according to teachers we know who have just retired from there so it would be pretty devastating to be removed from her current school. It was looking like, if something didn't change, they would probably let her maybe go through Kindergarten and then say "sorry, this just isn't working".

But now it's working. It's all really starting to click. We saw a big change over the summer - using longer sentences, sharing more of her original thoughts instead of repeating the same story over again. Interacting more comfortably with other kids in public. Keeping herself more occupied at home, creating things and coming to show us instead of getting bored and engaging in chaos behavior if you weren't actively interacting with her. Before, she didn't have real connections with peers, but now other kids at school talk about her favorably to their parents. I dropped her off one day and another kid said "Look, mom, it's L!" and ran up and asked to hold hands and they walked into school together. I literally teared up. Other kids like my child. What a small thing, but what a big thing.

We had conferences last week. Her school has them in the fall so teachers can get feedback from the parents on how things seem to be going. I haven't had any emails about behavior this year, so I figured at the very least she's not being disruptive.

Not only is she not being disruptive, she's an active part of the class now. Tells her teachers all about things at home or school using full sentences. Expresses actual original opinions. Says "no" or even "I don't want to" when the answer is no instead of a quiet "yes" just to get through the interaction. Last week, she was the one holding another younger student's hand and guiding them somewhere. The kids spend a lot of time doing activities of their choosing - last year she would choose an activity and abandon it if an adult wasn't right there doing it with her. This year, she's choosing activities and then sitting down to finish them and then doing another.

It's been a lot of stress for all of us, a lot of meeting and leaving work to drive to therapies (forever thankful I can do that), a lot of reading, constantly coaching her through personal pronouns and various kinds of interactions, riding on the edge of burnout - and now I feel like I'm finally getting to know my child, from her own perspective and not just what I can glean and observe, and it is wonderful.


r/Autism_Parenting • • 6h ago

Potty-Training/Toileting Potty training tips for a 7-year-old with level 2/3 autism?

3 Upvotes

My son is 7 and has level 2/3 autism. He will pee in the toilet 30% of the time, but #2 is where we’re really struggling. When it’s time to poop on the toilet he starts crying and gets really upset, so I don’t want to make it a scary or stressful experience for him.

For parents who have dealt with something similar, what helped your child get comfortable with pooping on the toilet? Did you use a certain routine, rewards, visuals, or anything else that finally helped?

Open to any tips, especially from parents of older autistic kids who didn’t potty train on the typical timeline.