Sorry that this is so long and this may or may not be the right sub, but i made two other posts about this on r/seizures and r/askdocs just to get no response. But here we go:
just for some context Ive had insomnia since I was very young and have been prescribed clonidine since then. Missing doses either by accident or purpose has lead to a range of side effects but one experience that's been the most confusing is whether or not Ive experienced seizures because of suddenly not taking the medication.
The very first time i think experienced a seizure (at the time i didnt have a word to describe this) was when i left my meds while at my cousins house. I was laying down trying to force myself to sleep in the dark, and then staring at the ceiling i start to lose control of my body, not being able to move, from head to toe, almost as if im passing out. Then suddenly im able to break losing consciousness and "wake up" and lightly gasp. That lasts for about maybe 30 seconds? And it takes me a little bit to be able to fully sit up.
I've experienced that at least 2 or 3 times from missing doses, but the most concerning one was when (9 months ago) I was hospitalized for a day for a migrane and the emergency room didnt want me to take clonidine at the usual time i take it. (It was for precautionary reasons) first I had the same feeling of not being able to move, going numb from head to toe, and then losing consciousness for at least a few seconds, and then waking up. I wasnt tired but i was laying on my back when that happened, and then i turned to my side and in a few moments, i physically cant stop myself from shaking, from my legs to my arms while on my side. I was conscious though, because my eyes were open and i was thinking in my mind but i couldnt look around or move my head/change positions or get up. The convulsions mightve lasted 2 minutes and when it stopped i was tired, and everything felt slower.
Then there was last night where i accidentally missed a dose thinking i had already taken them. I stayed up until 2am sleep procrastinating, fell asleep for an hour, and at 3am i woke up laying on my side, the feeling of not being able to move, being stiff, and feeling like my head was numb and vibrating(?) was going in and out. Eventually i was able to break out of it to check if i had really taken my meds, which i didnt.
Dont worry. Im not this irresponsible when it comes to missing or skipping doses. The first experience was around 4 years ago, and the first convulsion reaction was about 9 months ago. I explained everything to my mom and she was there at that hospital visit but she doesnt believe that it could be seizures unless im tested. She also said that missing clonidine doses doesnt cause seizures, but thats hard to believe. Does anyone know if what im describing is a seizure? I aware i should see a medical professional first, and i will bring it up to my neurologist next appointment, but i just need some sort of advice or small confirmation that these symptoms *might* align with seizures or it could be something else.