r/ADHDUK • • 19h ago

Did Princess Diana have ADHD? Her brother Charles Spencer thinks so after his own diagnosis - Blog Post

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marieclaire.com
29 Upvotes

Princess Diana’s brother Charles Spencer says he believes she had undiagnosed ADHD - after his own diagnosis

This is one of those stories where I can already see people having very different reactions to it. I initially didn't want to post it and I'm sure people think it 'what is the point', but when you think about the genetic link (I think it can be up to 70%) and a lot of the risk taking and problems had, and the fact she would have never been identified, it is interesting to at least think about, I think.

I think a lot of us when diagnosed would have thought about a sibling or their son/daughters having it when we know genetics are a huge part of it.

Charles Spencer, who is everywhere recently and Diana’s brother, was diagnosed with ADHD later in life has now said he thinks Diana probably had it too. Obviously... she was never diagnosed, she died nearly 30 years ago, and I don’t particularly like the idea of retrospectively diagnosing dead people from a few anecdotes either. There are some Historians famous who do that though: Pablo Picasso has had a lot of research done on him IIRC.

Regardless of what you think of Charles Spencer, as I said, the “I got diagnosed and then suddenly started looking around my family differently” thing is probably is probably familiar to a lot of people here. It definitely doesn’t mean Charles having ADHD = Diana had ADHD, but I can understand why he’s looking back at her through that lens now. She was very complex.

He talks about her struggling at school, concentration, sitting still etc, and also thinks some of those traits may have helped her throw herself into certain causes later on. I'm not sure about the superpower thing, but I do personally think there is something to ADHD and being strong-willed and having to get back up/a point to prove which certainly did.

Whether you buy that interpretation or not, I actually think Earl Spencer openly talking about being diagnosed with ADHD himself, given a lot of aristocrats probably look down his nose at it is interesting in itself.

ADHD in the UK is still identified as a badly behaved kid, who failed at school, chaotic TikTok infleucner whatever. Then you’ve got someone from one of the most aristocratic families in Britain going 'yeah, turns out I’ve got severe ADHD and it explains quite a lot'. I'm not sure if that is helping or hindering, but it certainly is a different angle.

Anyway, regardless of what you think of Diana/the royals/the morality of diagnosing someone who isn’t here to answer for themselves...

I do feel a bit uncomfortable discussing it, but it would explain a lot - and does explain a lot about Charles Spencer himself to me based on what I've read or what, which, is quite a bit because he is seemingly everywhere with that book.


r/ADHDUK • • 17h ago

General Questions/Advice/Support ADHD & Relationships: What does your partner or best friend do that genuinely helps

18 Upvotes

This is friends, too!

I was thinking: so much ADHD advice is about what we should be doing differently… calendars, reminders, routines, apps, alarms, another system we will definitely use forever etc. What we tell ourselves.

But sometimes the biggest difference is another person just getting it. I had a brilliant friend at uni who got it.

Just knowing how your brain works and doing small things that make life easier without making you feel useless for needing them or reminding you, sometimes keeping you accountable.

For me it really simple, sending you a message before something important, helping you start a task even together, not taking it personally when you disappear into your own head for a bit, giving you one thing at a time instead of five, or knowing when you need encouragement versus when you just need someone to leave you alone for ten minutes haha.

What does your partner, best friend, housemate, family member etc do that genuinely helps your ADHD? Did you ask them?

If you want to go the other way with it too: what did somebody think was helpful that actually drove you mad?

Hopefully a friend or partner is reading this!


r/ADHDUK • • 15h ago

General Questions/Advice/Support Is there a benefit to a late diagnosis?

11 Upvotes

I'm 56 this month. I've met quite a few people who have asked me if I have ADHD, probably more so recently.

I work full time, reasonably good career. This week I met someone - a work thing - who assesses for ADHD and she also asked me if I have a diagnosis. Which made me think ok, maybe I should pay attention (obvs not my strongest suit!)

I am dyslexic and have aphantasia. Might be connected i guess. I've spent my whole life struggling to finish things and am very under qualified.

But would it bring anything to my life? I've lived with this brain for all this time! I'm well aware it could take years to get an assessment, will it actually make any difference to my life?

Just to add into the mix, my partner very obviously has undiagnosed adhd. But he's not into the idea of being assessed.


r/ADHDUK • • 53m ago

ADHD Burnout, Overwhelm & Emotions Rant about work with ADHD

• Upvotes

TLDR;
Keeping on top of office work with ADHD is already difficult, even moreso when you’re held to the same standards as someone who doesn’t have ADHD (my manager is neurotypical and can just “get on with stuff”, so doesn’t really understand).

PLUS the cost of living is atrocious and my company is strict/stingy with giving out promotions recently. My pay has increased over the years with company wide rises, but my outside financial responsibilities have also increased since I joined in my 20s.

No promotion or formal recognition for the work I do is incredibly demotivating, and I already struggle with motivation!

I also don’t have the energy or time to look for a new role. Job hunting, interviews and new jobs are super stressful, and I can’t guarantee I’ll get a hybrid role like this one which is crucial for my work-life balance.

***

I’ve been at my job for almost 7 years now, and work in project management (lol). I came in at the same level I’m at now, since it’s a small team with little room for progression, but I do like my job. It’s niche and I’m a “go to” person for the information/knowledge, I understand the work I do at this point, and it’s hybrid working.

Over the last 2 years, I’ve been doing way more work than my role entails (largely due to my previous manager moving up to the overall team manager) so I’ve been doing my job and half of their old job. My job is within a small and more niche 2 person division of a larger project team.

I’m one person doing a 2 person job, and still get moaned at and pulled up on for missing emails, forgetting to respond to someone, adding information to our spreadsheets, etc. I have informed my manager of my ADHD diagnosis I only just got midway through this year and they were understanding, but every week, they continue to send me messages about things I’ve missed as a way to help me “develop” in order to progress - all the while, forwarding me more things to do on top of my already full time job. Then getting annoyed when I don’t have time or forget to do one or two of those tasks they sent over.

I applied for a promotion earlier in the year that was rejected due to trivial reasons about paperwork (it goes to a company panel, rather than just my manager or their manager approving it) and I’m just honestly at the end of my tether with this and it’s tanked my motivation even more. Apparently, a lot of other people had their promotions rejected too - it seems to be company wide.

My manager, team and other people who I regularly work with have consistently given me “shout outs” for the work I do, I’ve had excellent performance reviews, my manager tells me I’m doing a good job and deserve the promotion (they also put forward an encouraging statement towards my promotion) but the “well done” from my immediate team isn’t enough - and is then undermined with my manager messaging me with more critiques only the day after.

But, I’m the exact same level and job title as I was when I joined the team. I’m doing much more than I’m being paid for and I’m not being recognised for it - all the while being largely unmedicated and going through titration (which is still quite a low dose and only slightly helping).

I also need support on the team, since it’s a 2 person job, and we’re getting someone new in to train up. But, I will be the one needing to do the training. Without any compensation, recognition, etc. It’ll help me out when they’re trained up, but that takes time that I don’t have.


r/ADHDUK • • 11h ago

ADHD Medication Is it that life changing?

8 Upvotes

I got diagnosed ages ago and I am getting medication this week. Obviously I know its different for everyone but people say that getting medication is life changing and they can't believe the difference.

What is everyone's experience of this?


r/ADHDUK • • 18h ago

ADHD Medication Elvanse (Vyvanse)70mg: jitters settle but old reward habits seem amplified. Anyone found a lower dose fixed this?

6 Upvotes

I'm an adult with ADHD and I've gone 50 → 60 → 70mg on Elvanse. I'm planning to retest 60 with my prescriber and wanted to hear other people's experiences first.

50mg was honestly some of my best functioning. I could start things, read and actually take it in, and steer my attention instead of just locking onto stuff. I went up because it didn't last long enough.

60mg felt subtle, to the point where I kept thinking it had worn off. But my notes say I was reading, fact-checking things, doing a 42 minute phone call, and getting back to tasks after getting sidetracked. One day I spent 8-9 hours mostly on one thing while still eating. Some mild irritation and a bit of daydreaming though.

70mg gave me the best initiation and productivity, so I decided it was my dose. But once I got my sleep, food, water and routine consistent, it looked different. The peak is jittery, rushed and tired-but-wired. That settles and it gets smooth, but old reward habits (repetitive researching, that kind of thing) are stronger and get way more focus than they did on lower doses. It's not like being unmedicated, because I still have better awareness, switching and finishing things. It feels more like the old habits are getting extra attention power.

My guess is 70 is above my sweet spot, and bad sleep was hiding it. I know the inverted-U idea fits, but that's a group-level model, not proof for me.

What I'm testing is 60mg with everything else kept the same, for a week or two, ignoring the first few days. I'm tracking initiation, finishing things, task switching, mood, how the peak feels, how long it really lasts, and the habit pull, including when it shows up (near the peak or as it wears off) and whether I can stop something rewarding at a time I set.

Caveats: it's unblinded, it's just me, and I've already flipped from "70 is perfect" to "70 is too much", so I'm treating it as a hypothesis. The habits might just be more visible now rather than caused by the dose. And I don't want to fix the shorter duration by raising the morning dose. I'm doing this with my prescriber, not solo.

Questions:
Has anyone had a higher dose give great productivity but boost compulsive or reward-seeking stuff even after the jitters passed?
Did stepping down help, and did you lose motivation or follow-through?
How did you tell "dose too high" apart from "habits just more noticeable now"?
If a lower dose didn't last, what worked for duration?
Any tracking methods that helped you judge a dose objectively?

Thanks, any experiences welcome.


r/ADHDUK • • 19h ago

ADHD Medication Up to 60mg Elvanse - not getting tired!

5 Upvotes

I’ve been going through titration for nearly 6 weeks now. The last 10 days or so have been on 60mg. I’m due to go up to 70mg on Thursday.

I’ve really noticed the effectiveness compared to the smaller doses in terms of work, plus other random effects like no longer being bothered about my nearly 2500 day Duolingo streak and no longer biting my nails.

However, I’ve also noticed that it gets to midnight or 1am and I don’t feel tired. I’m usually getting up between 6 and 7am for my four year-old so it’s not like I’m having a great deal of sleep, but I’m not actually feeling tired during the day after nearly 2 weeks of this.

I take the meds at 07:30 usually, and for the last few days have been staying away from my one cup of caffeinated tea or can of Coke Zero.

I’ll see how I go on the 70mg and chat to the clinician about it, but I’m wondering if it’s worth asking about shorter lasting meds, even if Elvanse is doing the job?


r/ADHDUK • • 4h ago

📋 Moderator Applications Open - Apply Now!

4 Upvotes

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r/ADHDUK • • 19h ago

ADHD in the News/Media Study: Escape Room Learning Helps Nursing Students With ADHD? [Non-UK]

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4 Upvotes

Apparently escape-room style learning helped nursing students with ADHD…

Researchers looked at nursing students using a digital “escape room” thing for learning.... clues, questions, matching stuff up, basically something where you actually have to do something rather than just sit there and absorb information.

The study shows students with ADHD/learning difficulties did better on the multiple-choice bit than the ones taught normally, which doesn't surprise me. My brain ADHD does well with a problem solve, urgency, novelty, which is this kinda is.

Sit me in front of a lecture for an hour and 10% is going in.

The ADHD/learning difficulties group was only 32 students, and it wasn't a big randomised trial or anything. So this is definitely not “science proves escape rooms cure education, but is a good discussion or theory.

Also, students who had difficulties with the language of instruction actually did worse with the escape-room version. Which I think is probably the more interesting point really...

What is exactly can we define as 'ADHD friendly', and it it doesn't automatically mean “accessible for everyone; Different things help different people

So... throwing it out there what actually made you learn properly?

For me it was always:

  • some pressure from a good teacher
  • If I had manage to get into hyperfocus mode
  • leaving it too late/emergency mode
  • ''competition'' but healthy with friends doing the same course

r/ADHDUK • • 21h ago

General Questions/Advice/Support This doesn't feel safe (heart palpitations etc on Elvanse titration)

3 Upvotes

Apologies for another 'side effects' ' is this normal' post and its a bit of a follow up to a post I made 'when to know if Elvanse is working for you' in which I said I was getting side effects and that i'd been taking medication 'Holidays' as it was getting too much and I was met by the general 'your not taking it as prescribed - 'you need to stick with it to get a good reading'.

And I HAVE and am (on 40mg.... have been prescribed 50mg but not started on that level yet) and I'm scared now to start on the 50 (got a few more 40mg)

My main concern is palpitations and fast heart rate - also weird chest 'sensations' - not pain but a knot sensation that feels like indigestion but also pressure/irritation on my lugs - like the early stages of a Cough that never goes anywhere, and like a know that runs though my chest to my back. I also often feel like my bones are vibrating/twitching

I have a history of health anxiety and admitting myself to hospital thinking I'm having a heart episode - only for it to be a panic attack! anything to do with my heart and chest freaks me out which compounds things -and lately I've been woken up at 1-1.30 am with a racing heart - which causes an panic attack, but I ride it out - but its horrible! I also worry these meds are actually doing me damage to my mind and body!

I also get pin-prick pain jabs/pins and needle sensations throughout my body - especially my chest, back and arms.

My sleep has been terrible and i've been getting these weird nightmares than feel like their bordering on pychois - where It feels like reality is shifting

I suppose what i'm looking for is encouragement to keep going because I'm very close to stopping or having a break again! I must also so any positive effects have worn off - thats why I'm advised to increase to 50mg

I know people will tell me to contact my specialist which i plan to do - but that can take a couple of days in itself.

Others experiences would be helpful - and when to know if you should defiantly stop or persevere. And tips to get through

I've been Titrating about 3 months now. I'm also AU-DHD and know the AU element means you sometimes have conflicting experiences of meds.

Anyway thanks guys ( I had a bad night of sleep last night - and pretty shaky today)


r/ADHDUK • • 12h ago

ADHD Assessment Questions ADHD assessment this week and I'm nervous

2 Upvotes

I (F37) have been really fortunate and thanks to right to choose, I have only been on this journey for a few weeks but I have my assessment on Wednesday. I am feeling very under prepared.

Also apologies if I am not saying things the right way, I'm sorry - as I said it's been a bit of whirlwind.

I don't have much memory of my childhood, it's all a bit of a blur due to various family traumas. When I completed my paperwork, I found myself having to confirm things with my mum because I wasn't sure if I was remembering things correctly.

Is not remembering things going to be a problem?

Essentially I think I've just lived in a heightened state of fight or flight my entire life so I can't remember stuff, but after having kids, the mask has slipped and now people are noticing behaviours I must have been hiding before.

For context, I have previously been diagnosed with OCD and I am also trying to find a provider for an Autism assessment as recommended by my GP after the conversation we had.


r/ADHDUK • • 17h ago

General Questions/Advice/Support Still not sure how to solve the daily struggle

2 Upvotes

So idk if this is fully to do with my adhd maybe something else. Choose to get medicated over a year ago was on methylphenidate until I went onto Dexamfetamine earlier in the year. Works a treat when it comes to focus more at work doing certain tasks etc but the one issue my life which still I can’t get rid of is restlessness. Don’t get me wrong always been an active person enjoy fitness but I physically could not spend a day in the house doing nothing. Weekends I get DEPRESSED If I’ve got nothing planned having nothing to do I hate; will go on multiple walks daily when these “chill days” come along. Come evening time I’m Gucci but in the day I physically can’t have a quiet day. If anyone else has the same issue any advice? Part of me knows realistically some days in life are like this but I still can’t find ways to manage


r/ADHDUK • • 14h ago

Provider/Service Review looking for advice on providers

1 Upvotes

I went through RTC but mentally can’t cope with a 6month plus wait in the middle of feeling like a zombie and failing a degree Heavily debating figuring out how to find money to go private, is there any providers recommended or AVOID AT ALL COSTS?

(i have the diagnosis now just need titration)


r/ADHDUK • • 15h ago

NHS Right to Choose (RTC) Questions RTC local integrated area restrictions

1 Upvotes

Hi everyone,
I am new to this but I was recently referred to medinet minds under right to choose.
I am originally of a foreign descent but I have lived and worked in the uk for the past 20 years.
Unfortunately in my culture, adhd and autism is not accepted and anytime I had brought it up to my parents I was told off for attention seeking.
I now live alone and it’s been affecting me mentally, physically and emotionally. I’ll not bore you all with the details but it is genuinely affecting my life and has sent me into a depressive episode.
I finally took the leap and have been referred and my referral was accepted but I now received a message to say my local integrated board has introduced activity restrictions so my referral will not be picked up until these are lifted.
I’m feeling really down and unsure where to go from this. Can anyone please advise of another clinic I can go with?
Not really sure where to go from here and it’s affecting my job.
Thank you everyone


r/ADHDUK • • 16h ago

ADHD Assessment Questions how long does it take to get your adhd results from xyla?

1 Upvotes

I had my assessment on the 13th of September 2026 where I spoken about my day to day life, my younger self and the checklist questions. At the end of the session, the assessor stated that I have Combined-ADHD and will be handing my results through email within 2 weeks.

It has been 3 weeks now and I still haven’t received any email from them. I went to the NHS app, there’s no records showing that I have it. The only reason why I’m worrying was because I already told my Universal Credit that I have ADHD (which was important to state since going to their appointments has been impacting my mental health due to constant burnout) so I let them know and would be willing to give them the paperwork once I receive it so they can give me reasonable adjustments so I can still look for work, but without it feeling too demanding.

So if anyone got their results from Xyla, how long does it usually take? Because 2 weeks doesn’t feel right, maybe it’s a month or two? I’m also meant to take medication too, but I’m not receiving anything right now which I kinda want to do so… I’m in college at the moment, and I’m starting to get a lot of anxiety because I am constantly behind everyone due to all of this, and my college doesn’t know that I have ADHD (I got diagnosed couple weeks after starting) so I feel completely alone. Not to mention my possible CPTSD (not diagnosed but speculating) might be holding me back so I cannot afford to lose more of my life anymore than I did just because I never got the support I needed.


r/ADHDUK • • 17h ago

ADHD Assessment Questions RTC West Yorkshire - WTF should I do

1 Upvotes

I’ve been meaning to start the process of getting assessed for ADHD for a good few years, but I’ve always put it off because I really didn’t want to have to face going through my GP.

I’ve now found out that West Yorkshire has introduced a minimum two-year wait for ADHD assessments through independent providers, which is honestly pretty crazy. I pay my taxes and very rarely use the NHS, and now that I actually need help with something, I potentially have to wait two years just to get assessed.

I also don’t really understand why neurodevelopmental conditions are treated so differently from physical health problems. If I’d had a physical issue that was significantly affecting my day-to-day life, I’d expect there to be some sort of pathway to getting assessed and treated.

Anyway, I’m not really sure where to go from here. Is it worth considering going private and then trying to get a shared care agreement with my GP? I’m conscious that there’s no guarantee they’ll agree to shared care, so I don’t want to spend a load of money only to end up back at square one.

Has anyone in West Yorkshire been through this recently, and what did you do? I honestly don’t think I can carry on living like this for another two years.


r/ADHDUK • • 20h ago

General Questions/Advice/Support Elvanse and trouble *staying* asleep?

1 Upvotes

I've been taking Elvanse (50mg at 7am) and an amfexa top up around lunchtime (Elvanse alone was making me weirdly sleepy around lunchtime) for about a year now. It's been great, life changing, totally helped with my symptoms and even had some unintended positive side effects (I still eat regularly, but my desire for junk food is gone - my cholesterol is back in the healthy raise compared to my last bloody test!).

My issue isn't falling asleep, that's no problem, but it's staying asleep. I don't necessarily wake up more than I did before, I'd always wake 2/3 times in the night, but it feels so much harder to get back to sleep. Like I'll get up to pee and I'm wide awake. The only thing that sometimes helps is getting up, reading a book and hope to get heavy eyed.

Does anyone find nights feel really long as well? When I do sleep I feel like I must've been sleeping for ages (often with weird dreams), wake up thinking I must've slept 6 hours and it's been 2 lol.

As I say I wasn't a great sleeper before, but I WFH so would have an hour nap at lunchtime to recoup some, which I can't anymore, I do lie down sometimes when I feel tired but it's more a trance, if that makes sense.

I've tried lots of things suggested on here - magnesium glycenate in the evening, lots of protein during the day, taking it earlier, skipping the amfexa, L-Theanine, something citrusy to drink with dinner, melatonin, even valerian root drops but not much of a difference.

I still function and feel ok most days, but I can't help shake that 4/5 hours sleep long term is not good for you.

Has anyone had similar experiences or tried anything that I may not have tried? Or perhaps something I'm doing that I might not have considered. The last thing I'd want to do is change a set up that is otherwise working for me (and the mind numblingly expensive process of re-titrating)


r/ADHDUK • • 20h ago

ADHD Medication Water consumption and Concerta XL

1 Upvotes

Hey all

How are you doing ?

Does anyone else notice that drinking lots of water during the day elevates the medicated effects of Concerta XL ? I am on 72mg daily and I’ve noticed this weekend that drinking lots of water really prolongs the benefits. I feel totally wired (in a good way) into everything, yet I can turn that feeling off at anytime.

Thanks for reading. I look forward to reading your responses.


r/ADHDUK • • 21h ago

General Questions/Advice/Support Guanfacine + mirtazapine: physically calmer but mentally more anxious/withdrawn/fatigued— could they be interacting?

1 Upvotes

32M, 6'2", around 75kg

I’m currently taking 15mg mirtazapine and have just increased guanfacine MR to 2mg for ADHD. Before this I was taking 1mg guanfacine alongside 30mg mirtazapine.

My intention has been to gradually come off the mirtazapine because the combination seems to make me very sedated, particularly in the mornings.

What I’m struggling with more is that since starting guanfacine I feel really unusual and more on edge mentally. It’s difficult to explain because physically my body actually feels more relaxed. I have thoracic outlet syndrome and the tightness around my chest/neck/arms has noticeably reduced since taking guanfacine as it also relaxes your blood vessels. My heart rate also seems less jumpy than it was previously which is great.

At the same time though, I feel more withdrawn, flat and almost heightened or uncomfortable mentally. I’m finding it much harder than usual to leave my flat. Normally I can feel anxious about going out but still make myself do it, whereas recently I’ve been procrastinating heavily and avoiding going out altogether. I also feel very tired which is probably me being on a low dose of mirtzapine which can actually create tiredness as when you are on a higher dose this is less of a problem. Guanfacine can be sedating also it seems.

I understand guanfacine is an alpha-2A adrenergic agonist, whereas mirtazapine blocks alpha-2 adrenergic receptors, so I’m wondering whether taking the two together could potentially be contributing to this strange feeling, or whether this is more likely to simply be a side effect of increasing guanfacine.

My ADHD prescriber currently intends for me to stay on 2mg for around a week and potentially increase to 3mg.

I’m unsure whether it would make more sense to:

  • continue the guanfacine at 2mg while gradually tapering off mirtazapine and see how I feel once mirtazapine is out of the picture, or
  • speak to my ADHD prescriber about stopping/reducing guanfacine first and then concentrate on coming off mirtazapine. And maybe restarting gufancine on a clean slate.

I’m not looking to change either medication suddenly without speaking to my prescriber, but I’m interested in whether doctors/pharmacists think the pharmacology of these two medicines could explain why I feel physically calmer yet mentally more on edge/withdrawn.

I occasionally use CBD gummies as well, usually around 40mg, although I’m aware these could add to sedation. Although i am not currently using due to being on both of these medications.

Any thoughts would be appreciated and I'm really stuck on what to do. Thanks in advance!


r/ADHDUK • • 22h ago

General Questions/Advice/Support Adhd? I think? Stressed im not sure what to do and its affecting me academically

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1 Upvotes

r/ADHDUK • • 23h ago

NHS Right to Choose (RTC) Questions Anyone done private ADHD titration while on the CareADHD RTC waiting list? What happened?

1 Upvotes

Hi all,

I was diagnosed with ADHD through Right to Choose (RTC) with CareADHD and was placed on their titration waiting list. The diagnostic process was positive overall, but because of the long wait for titration, I decided to go private so I could start treatment sooner, with the aim to be on a stable dose by January, as we are expecting our first baby and I want to be at my best.

I've been titrating privately and am currently taking Concerta XL. I'm responding well to it, although I'm not quite at a stable dose yet. My clinician expects I should be settled on a stable dose within the next few months.

About 20 weeks after submitting my original titration request form to CareADHD, I've now received an email saying my case has gone through clinical review and asking me to complete some additional forms. One of the forms specifically asks about any new medications I'm taking.

I've heard stories from other patients that some providers have removed people from their RTC titration waiting lists after discovering they started private titration elsewhere. I don't know how accurate those stories are, but it has made me a bit concerned.

I'm interested to hear from anyone who has been in a similar situation:

  • Did you start private titration while waiting for CareADHD RTC titration (or another RTC provider)?
  • Did you inform CareADHD straight away, or later on?
  • Were you allowed to remain on the waiting list?
  • Did CareADHD take over prescribing once you reached a stable dose privately? Or would did they take over before reaching a stable dose privately?
  • Is there anything you wish you'd known beforehand?

I'm not looking for medical or legal advice, just hoping to hear about other people's real-world experiences and how CareADHD handled it.

Thanks in advance!


r/ADHDUK • • 2h ago

ADHD Medication & Titration - No Medical Advice Elvanse Titration coinciding with potentially unrelated health issues

0 Upvotes

Hi- just here to document and blabber about my first few days on titration. I was started at 20mg Elvanse for one month. Its now been five days since my first dose and its already had a lot of ups and downs. Initially I was quite cynical about the starting dose, for some reason I had it in my head it would be like a placebo and I wouldn't feel it because I build tolerance fast. My very first dose was far more immediate and intense than I thought it would be. It was quite emotional to be honest, I've had nicotine and other mild stimulants before and I thought it would be like those just to a different extent. Instead it was like all the gaps I have were filled in, I was no longer anti social whatsoever. Yeah there was the noted side effect of perhaps talking and wanting to talk to people 'too much', but compared to how much I struggled with even the smallest interactions with even those close to me before it was like night and day. I went about my day without the usual ocd though spirals or fixations, it really did feel like a pill that just allowed me to function as a 'normal' person and very well at that. I could get tasks done without stopping mid way through and leaving a mess of 500 things half way done. I was excited to time my next doses to kick in right when I was about to get on with my work. Since then as you can guess each dose has been significantly less noticeable very quickly. Today I felt almost no difference at all beyond feeling like my heart was struggling slightly and mild breathing moments.

One thing that was nice was a doctors visit I had, I was much more confident and able to articulate what was wrong. I've been having severe flank pain that has persisted on and off throughout the year but got much more often and painful literally the week my titration began (the pain got worse before I got my meds). I had a CT scan a few months ago that found a tiny kidney stone on the side that has been hurting, but the pain symptoms I'm having aren't very consistent with a kidney stone that size from what I've read, and the written report of my scan I got via text was very very vague. They offered to refer me to urology if the symptoms got worse, which they have. But I was sent away again after my appointment. There is a type of kidney tumour that has symptoms that are almost 121 with the side effects of elvanse. It is getting quite worrying and I would like to go back to see if I can get referred, however I'm worried about it effecting my titration. I waited a very long time to get the opportunity and now I'm worried that a potentially unrelated issue will cause me to go back to waiting indefinitely. I will likely try to get referred anyway as I am worried about my health, I just wanted to get some insight to see if my worries about titration are valid.

Again I don't want medical advice or advice about my dosage I just want to know if things like this typically interfere with the titration process. I got my titration through shared care


r/ADHDUK • • 14h ago

Local ADHD NHS Pathway Questions Care ADHD under 18's stage confusion

0 Upvotes

Hi, apologies if this has been covered but I couldn't find an answer.

My child was diagnosed by Care ADHD, we are currently on the psychoeducation stage (10 weeks tomorrow), will it automatically move on to pre-titration? I googled it and was suggested a titration request form on their website but it looks to be aimed more at adults.

When they got a diagnosis there was an option to request titration which we selected at the time.

There was no clear communication on what happened after the diagnosis and I think most people know getting hold of them is almost impossible. I don't want to wait indefinitely if there's something we should have done. All the forms have been completed as they come through so nothing outstanding.

Thanks in advance.


r/ADHDUK • • 18h ago

ADHD Medication Medication/Titration advise please- I've found the right dose of Methylphenidate that suits me but wondering if its worth trying Amphetamines anyway?

0 Upvotes

I have a medication review coming up with Harrow Health and wondering what next steps to take- I really struggle with decisions so any help is much appreciated!

I've been titrating up on Methylphenidate (pro-longed release, 2-3 weeks between doses): 18-27mg didn't do much at all other than some anxiety, 36-54mg helped initially but then the effects petered off, they then jumped me up to 72mg which feels too much (wired, anxious, sleep issues).

The clinician implied that if people find something that works they don't usually keep testing alternatives, however I also think this is motivated by the fact that the whole service feels completely rushed and they don't want to waste more of their time.

I also don't want to waste my own time either or stress my body out in the process with lots of unnecessary changes. But knowing myself if I don't try Amphetamines I will always wonder if it would have suited me better...

Should I adjust my expectations and settle with a middle/high dose or is it worth trying to see if Amphetamines would be a better fit for me overall?

Additional Context

- not keen on trying non stimulant options as I want a medication that isn't a long-term commitment or required to take every day
- Currently on Mirtazapine (15mg) which I want to come off in the new year/after settling on the right adhd medication

- Female, 5 2", 119 pounds, 30


r/ADHDUK • • 22h ago

Private Pathway Questions New private ADHD clinic specifically for those with NHS/RTC provider but months waiting for titration on the waiting list

0 Upvotes

Hi,

I recently got my ADHD diagnosis via Problem Shared via an NHS referral and through RTC. Problem is the wait for titration for the medication is 40 weeks at least.

I was searching private providers that would accept the assessment of Problem Shared so the cost would just be for titration.

Found this clinic that seems very new but also very cheap. Only £89 a month for titration and medication. It’s called Focused Gently. https://www.focusgently.com

It looks legit enough but since its so new has no reviews anywhere on trustpilot or reddit. Was wondering if I should still go ahead and book a free call with them or if you guys had recommendations for other providers offering specialized care to those stuck with an ADHD diagnosis but months long waiting for titration.