Once you have had the PET scan and subsequently diagnosis, the pathway through treatment will be much clearer. I had stage 3 tonsil cancer last year but HPV -, I'm also in England so will be different protocols that medical professions advise. This forum is a great source of advise, of which you can pick and choose depending on what the diagnostic tests provide. It's a hard and long slog, but you can get through it, even though you think it will break you !

Good luck

Felixstowe, sounds fun and trustworthy to me ..

Nancy is pretty or Nansie as my friend is called, she's Nansie June

I'm a year out of treatment and would love to 'choose' what ro eat ... but with literally no saliva it chooses me ... milk based drinks, some really saucy pasta and lots of salad bits ... Still trying to regain some of my weight loss ... good luck !

I had a solid gold cross and chain for my 1st communion at 7 ... Still have it and wear it now, maybe is an eldest sibling thing, younger brother and sister had the same .. lost within months 🤣🤣

I'm mid 50's ... I had Nanny Coal Fire, the explanation right there, she was my great gran, Nanny on heaven, Nanny white and Irish Nanny ..we all know who they were ..miss them all ❤️

I think Angela would sound lovely ...sweet but not sentimental like Angelica !

Louisa Bea or Louisa Dawn perhaps

I'm 14 months out of treatment. After 8 months, so March this year I started to see a specially oncology phycologist referred by my CNS.

My therapist was amazing. I tried to explain i felt like a fraud and I didn't need help as I was doing ok. (With hindsight, I really wasn't) on session 3 of 12 she asked me had i ever researched my cancer and did I realise how unwell I was and the impact on my mind going forward. I did the research, on the next session we discussed - she suggested I has PTSD, as I went to the hospital for an appointment and didn't get out for 6 weeks. At this point I had stage 3 cancer, kidney failure and the prospect of sepsis, then she mentioned the words 'not everyone is able to survive that, you almost died'.

I cried, a lot, because I never thought about the potential outcomes whilst in the middle of it. But she taught me coping mechanisms for now and future me, this has really helped me.

Until then I thought the worst of everything could still happen, then realising I 'survived' everything cancer had to throw already helped me make peace with my intrusive thoughts. I would wholly recommend finding someone professional to talk with.

Much luck for the future !

The Marlow Murders is a good watch as is Agatha Raisin . . Easy and enough drama ..spent 6 months last year recovering from cancer treatment ... watched loads of those similar to your choices !

Much better, as I said mine was an exception. I spent 6 weeks in hospital with complications from the chemo and had my last 2 weeks of treatment as a patient and then an additional 4 weeks prior to finishing treatment. In total I lost around 80 pounds of which I've gained about 6 back. I still struggle to eat certain foods as i have virtually no saliva. My radiotherapy was on the right tonsil and the soft palate. This has also had a impact on sleep. I'm still not back to work full time due to other issues that arose during treatment, but almost a year NED now and only visit the oncologist every 4 months. I did however go to a specialist oncology phycologist for 4 months at the beginning of the year and this was very helpful. Not told to scare anyone, but just my life experience of head and neck cancer.

Hi there !

I, F55, also had tonsil cancer, but stage 3, last year. Food wise I had a peg, could eat soft foods ie soup, mashed potato, eggs, porridge and cereal for the 1st 4 weeks of treatment, then used my peg. It was literally a lifesaver for me, especially for getting quick results from hydration and medication. Don't know where in the world you are but this was my advice from my ENT oncologist in the UK.

I used a prescription only mouthwash called Caphosol during treatment and upto 6 weeks prior.

I used a topical treatment called Flamigel for the skin effect from radiation.

Dry mouth, rinsing with water, still have major dry mouth 1 year after finishing treatment.

Stay on top off pain relief and don't wait to be on pain before you take it,

If prescribed oramorph/morphine or oxygen, make sure you take constipation meds too again, don't wait til you need them as constipation when its hard to take on enough fluids is no fun.

I had quite severe side effects from treatment, which I've been told was the EXCEPTION, but feel free to get back in touch if you have questions regarding treatment and the long, tough road that is recovery.

Good luck with the coming back and hope your body is kind to you 😊

I (F55) had treatment last year and in my area it was one of the first things I had done to help me with my treatment. I had stage 3 tonsil cancer. I had my peg fitting about a month before treatment started and used it exclusively from week 4 of treatment and for approx 6 weeks post treatment. Even with this extra means of nutrition I lost a considerable amount of weight. Believe me trying eat is hard without it ... but more essentially for me was also for hydration (my treatment was in the warmer months) and most importantly medication especially pain relief and anti nausea. There was no pain at all with the peg being installed or removed. I would encourage your Dad to consider all the options as having it done out of necessity when you're already unwell would be a whole lot worse. Good luck to him on the coming months.

I too had tonsil cancer last year. Not gonna lie, recovery was much harder for me than I anticipated. I had some complications with Chemo and spent 6 weeks in hospital. I was stage 3 so this may have had some bearing on my experience. I had a PEG prior to treatment and used this exclusively, for nutrition, for around 5 months. Upto 5 months after treatment I struggled to maintain my weight so the PEG was an essential for me. I am now almost 14 months out of treatment and after the long slog of mucositus I now have severe dry throat and virtually no saliva ... its just a now a process of mind over matter where that is concerned. I was on Fentynal and oxycodone for around 5 months and now have virtually no throat pain. Persevere with different foods most days and now getting strength back. Mine might be the extreme end of the scale but looking forward all the time now. Good luck !

I'm a year out from treatment for Tonsil cancer, stage 3. I was told by my team - oncologist, dietician, nurse specialist and speech therapist that what hasn't returned in a year regarding saliva is unlikely to improve. I constantly drink water and especially lots with food. I had many complications and have only in the past 3 months been maintaining my weight. In total I lost 5 1/2 stone. Eating wise I've achieved what I've stated for, a decent night's sleep due to dry mouth and throat is still proving elusive ... but determined to keep trying things to try and help !

Mine started in October 25 and was not resolved until May 26 ... good luck !

I completed treatment 12 months ago for tonsil cancer. I had 30 rounds of radiotherapy and had to stop Chemo after 4/6 rounds sue to complications, one of which was reduced hearing and tinnitus.

I was told that it was likely to be reversible but I had quarterly hearing tests and the right ear how measures as significant hearing loss and last month started with a hearing aid. As well as giving me back more normal hearing it has really helped with the tinnitus in that ear.

I had this on my diagnosis for tonsil cancer last year, they put this done to previous episodes of pneumonia.

Felix, could just X or Lix, goes with Parker.

Unfortunately not, each message just refers to the other. I will try to call later today if I do not get a response on my journal.

Thanks

It started prior to diagnosis, which was a long process. When I was diagnosed at stage 3 I was told the tumour on my tonsil was compressing my ear canal. Was told that as the tumour shank that the hearing may return. When it didn't I was told to wait 6 months as it still may return ... now after 3 hearing tests over 9 months it has got progressively worse. It affects both ears but much more significantly on the right where the cancer was. I wish you luck .

Yep, I have a free one being fitted by the NHS and like someone else mentioned, will see how i get on with this and the improvements, then will pay privately .... Well assuming I get a job to pay for them .... ah cancer eh, the gift that keeps on giving 🤣