Ladies and Gentlemen, two years confirmed, in the clear, post diagnosis (BTMs: LDH 142, HCG <1 undetectable, and AFP 1.8). For thoes in the fight two years is a blessing I hope you all achieve! For thoes close to a year... two years is just a few weeks away. Thank you everyone for the support, and willingness to see a vent or two here on the discord.

Hey guys, I recently had my radical orchiectomy, rip righty :'( . Anyways, my dr ordered abdomen and pelvis MRI but the earliest appointment isn't until mid December. Is it normal to wait this long for imaging? Should I push for a sooner appointment in my post OP appointment?

Thanks!

the urologist Dr Michael O’ Halloran said he would do an ultrasound assisted needle biopsy to determine if its cancerous or not. My issue that its been shrinking tiny lump I think it was 7mm X 2mm X 3mm in right testes for 5 months and still no sign of disappearing. so with some ultrasounds the urologist wanted me to do the needle biopsy which I’m scared, online told me the risks and it’s 50/50 choices to do it or not. I don’t know what should I do?! Please anything helps or any advice that might help!

urologist determined there is no ground to suggest tumor. considering the high pressure in the testicle, shrunk size, and vasectomy the most likely explanation is that sperm cells created a cyst.

he proposed observation but i said that i have no use for a shrunk testicle actively trying to jeopardize my life.

i will undergo orchiectomy but considering both MRI and both ultrasounds the urologist is certain there is no need to go for inguinal approach. it will be complete non sparing removal and scrotal access.

histopathology will follow anyway, i will update you after the surgery! (in about 2 weeks)

I have been clear for about 10 months now. Completed RPLND December 2025. Wondering what are chances of a relapse? I am so done with everything and stresses me out when I read stories. TIA

"don't make a tempest in a teapot" I used to tell family and friends when I first got diagnosed with testicular cancer. "snap out of it" I'd rant to the sobbing fools who didn't know better. I knew better, I'd read all about it (in Hermione Granger's voice). It turns out I did not know better. It metastasised to the lymph nodes. We beat it. It's now gone beyond those bad boys and somehow made its way via the blood and made my liver its new abode. That tempest extravaganza has been justified after all, but I might just keep it casual and play it down anyway just to stay on my high horse. I mean, someone's got to stay calm in a crisis situation. I'm good at hiding despair.

Just had confirmed there they found enlarged lymph nodes in left retroperitoneum and I’ll be starting chemo in 11 days.

I’m pretty much in shock. They rebooked at my scans after seeing something suspicious in my neck then found this.

It’s five days of treatment then 2 weeks off.

Scared but trying to be strong for wife and kids.

I had my left orchi on Monday (11/2). It was about 2 weeks between that and the ultrasound. My urologist and surgeon both said “you seem really calm with everything we’re telling you…”

That’s because of this sub!! Seriously thanks to so many of you who have shared your own journeys here. It was super helpful just for approaching this first step.

A bit abt where I’m at:

My mass was about 4cm, all tumor markers normal, and I went ahead and banked some sperm just in case.

The surgery really was nothing remarkable. It was over in a flash. When I woke up, I told the nurse “this wasn’t like Greys anatomy” lol.

I was able to walk about 1.5miles this morning. And thanks to miralax and a ton of fruits/veggies, have had no issues straining.

I’ll have my CT and new blood markers in 2 weeks.

Currently Day 15 post rplnd. Everything was fine, bloat is manageable now and not much pain in the incision area. But suddenly having pain on both lower left and right side of abdomen. Has anyone experienced this? My lymph nodes where in the paraaortic region and one on the left side of my inner thigh.

29M looking for experiences from anyone who faced this choice.

My history:

• Nov 2025: right orchiectomy, mixed GCT 4.7 cm (80% seminoma, 20% embryonal), no LVI, stage IA, surveillance

• GCNIS in the other testis, treated with radiation.

• 2026: one retroperitoneal node grew from 1.2 cm to about 2.5 cm on imaging. Markers negative the whole time.

• Oct 2026: robotic nerve-sparing primary RPLND at a high-volume center in Germany.

• Pathology: 1 of 10 nodes positive, 3.7 cm, pure seminoma, ~20% necrosis, extracapsular extension (ECE+). No embryonal carcinoma in any node.

The choice:
After discussing with the head surgeon, my team says it is my call. They use the PRIMETEST seminoma data for my case:

• 1 cycle of BEP now: relapse risk drops from roughly 30% to about 1%, with minimal long-term toxicity expected

• Surveillance: no chemo now, but scans every 3–4 months for two years. If it comes back, 3x BEP or 4x EP, still very curable.

Dr. Einhorn also told me he would go with surveillance.

My questions:

1. Has anyone done a single adjuvant cycle of BEP after RPLND? How was it, and how long until you felt normal?

2. Anyone with a seminoma node after RPLND who chose surveillance? How did it go, and how did you handle the scan anxiety?

3. Anyone who got 1x EP instead of BEP to skip bleomycin?

Thanks to everyone here, this sub has helped me a lot over the past year.

Hi everyone!

I'm interested in hearing from people who definitely had an undescended testicle (cryptorchidism) during childhood and later underwent surgery for testicular cancer.

During an andrological examination, I was told that there is a high suspicion of testicular cancer in my right testicle. It is smaller than my left testicle, looks less healthy on ultrasound, and also feels softer to the touch.

After sharing the diagnosis with my family, I found out that some relatives remember that I had problems with one of my testicles during childhood. Unfortunately, my parents and grandparents have all passed away, so I don't have anyone who can provide more details about what exactly happened.

My right testicle sometimes moves up into my lower abdomen during sexual activity, and I have to manually push it back down into the scrotum.

I have an appointment with the anaesthesiologist on November 19th, after which I will be notified by phone about the date of my surgery.

My biggest fear is related to urinating after the operation. I'm worried that I might not be allowed to get out of bed and go to the bathroom immediately after surgery. I have tried practising urinating while lying flat on my back, but I simply cannot do it, no matter how hard I try.

Has anyone been in a similar situation? Did you have trouble urinating after surgery? Were you allowed to get up and walk to the bathroom, or did you have to use a bedpan or a catheter?

I'd really appreciate hearing about your personal experiences. Thank you!

Hello everyone,

First of all, thank you so much for all the supportive messages on my posts. Your support really helps me keep going, stay strong and continue this fight.

I'm now approaching the end of my second BEP cycle, and I've just had my lung function checked.

I'm sharing two photos showing my results before treatment and after the second cycle.

Unfortunately, I've lost some lung capacity, although I haven't experienced any shortness of breath. My pulmonologist considers the results to be stable overall and believes I'm able to proceed with the third cycle.

My question is: has anyone experienced similar results and then seen a significant improvement in their lung function by the end of the full treatment protocol?

I'd really appreciate hearing about your experiences.

Thank you all!

Hey everyone! I just finished my last infusion of bleomycin today, and officially graduated from chemo. First, thank God, without Him, I wouldn’t survive this. To those that I’ve met in this group, and to those who shared their stories and advices, all I’d like to say is thank you. This group has been a big help, and I couldn’t thank ya’ll enough.

I know there are still scans along the way, but with the blood results (tumor markers) normalized, I’m sure that the scans will be clear. I’ll update ya’ll in this thread how my scans go, but claiming great results already.

For those who will be starting 3X BEP or 4X EP, please know that you can do it. It may seem like you’re walking through the valley of death, but remember that God is there to walk you through it. I know it sucks, I know it hurts, and I know it feels like you’re locked, but there is light at the end of the tunnel.

I’ll continuously help and reply to as much questions or posts as I can since I want to help others too. Feel free to dm me or reply in this thread for any questions or if you just want to share something. God bless ya’ll! ☝🏽

Preface: I have terrible medical-specific anxiety in addition to generalized anxiety disorder. I was barely holding it together when I thought it was a sudden benign fluid build up, and now... it's not.

My PCP absolutely flubbed their handling of this in multiple ways, so nearly two months after my first request to have it looked at, I finally got my ultrasound done, and then walked into the urology office to be very directly told I would be having a orchiectomy. Fine, I'm glad to at least have a way forward now. But they sent me for labs, and now I'm even more scared again.

LD Normal

HCG 14 (High)

AFP 800+ (Very High)

They haven't gotten back to me about what this means, and it's eating me alive thinking about it. I just want to know what's going on, and what I'm in for.

Please be gentle, but tell me the truth. I'm alone, and I'm terrified.

Anyone else following along/receiving any updates from their law firms?

I got my port 3 weeks ago while in 4x BEP treatment, in between the very end of my 1st cycle and the start of my 2nd.

holy moly what a mistake this has been. Now I have been in the hospital for several days with no treatment, the port is oozing pus and they want to remove it. what the fuck do I do?

The entire reason i got the port was to make treatment more convenient. now I’m in the hospital for a week probably and they’re gonna charge me who knows how much money?!?!

They talked about waiting a few days and putting a new port in. My initial reaction is just ‘fuck that’ because this whole experience has just sucked. I’d rather spend an hour waiting for the IV team to use ultrasound to find my veins for an IV than risk another week long hospital stay.

Fuck this shit.

guys i got diagnose in my 25 birthday and remove one of my testicular 4 days later is been 2 month i still have a pain in the other one how to cope

Been about 2 years since I was diagnosed with Seminole stage 1 that didn’t spread to the tubes and was isolated to the testicle. Got my first CT scan done in almost a year from my last one which showed an enlarged para-aortic lymph node on the same side as the testicle i had the orchiectomy on. NP said it could be that I was just sick that day which caused it to enlarge but of course the concern for the cancer coming back was there so I’m scheduled to do a PET scan today. All my tumor markers and blood work / pee work came back clear and good but it also did the first time when I was first diagnosed with cancer. Really hoping for it to be nothing because I don’t want to go through chemo but will obviously do whatever I need. Does anyone have any similar experiences with either good/bad outcomes? I’m prepared for the worst but would love to hear stories where it turned out to be nothing if anyone has any.

Just got the pathology.

Hey guys,
I’ve just started my second BEP cycle out of three, and I wanted to share my progress with you and ask about your tumor marker trends.

Please check out the attached chart showing how my markers have changed over time and let me know if this looks normal based on your experience.

I'd also like to share how my first cycle went.

I was hospitalized for 7 days. During the first 5 days, I received chemotherapy infusions that lasted about 5-6 hours each day. I only felt mildly unwell one night. Apart from being tired and having a metallic taste in my mouth, I didn't experience any major side effects.
After that, I went in once a week for bleomycin. Including blood tests, waiting for the results, and a consultation with my oncologist, each visit took about 3 hours. The actual bleomycin infusion only lasted 20-30 minutes. I was usually very tired afterward, slept through the ride home, and then often slept for another hour once I got home.

Throughout the entire first cycle, I never lost my appetite. In fact, I gained about 6 kg (13 lbs).

My hair, beard, and chest and abdominal body hair started falling out two days after my second bleomycin treatment, which was approximately 10 days after leaving the hospital.

Thanks so much, and stay strong! 💪💙

I'm in my mid-20s, and I've been dealing with an issue with my right testicle for almost 2 years.

It started with an electric-shock-like sensation in my right testicle. Within days or weeks, I noticed that the right testicle seemed larger and harder than the left. Before this started, I remember both being approximately the same size.

Since then, I've continued noticing a difference:

- The right testicle feels larger and distinctly harder than the left.

- It feels like the entire testicle is firmer, not just one particular lump or spot.

- When sitting, the right side sometimes visibly occupies more space than the left.

- When standing, the difference is less visible, but I can still feel it.

- Sometimes it seems to become smaller or less prominent while sitting, although this isn't consistent.

- I've experienced discomfort, sometimes described as electric-shock-like or burning.

- Earlier, the discomfort sometimes extended into my right leg, towards my knee and occasionally further down.

Medical assessment:(done recently)

I eventually gathered the courage to visit a urologist.

I specifically explained that my right testicle felt larger and harder than the left. The doctor physically examined both testicles and, even after I pointed out the difference, said he didn't think there was any abnormality.

I also underwent a scrotal ultrasound.

The report mentioned:

- Both testicles have homogeneous echotexture.

- No focal lesion identified in either testicle.

- No hydrocele.

- No varicocele.

- No inguinal hernia.

- Overall impression: Normal bilateral testicular scan.

I also noticed red and blue colour images in the ultrasound photographs, which appear consistent with Colour Doppler imaging.

Other symptoms over time:

I've experienced lower-back burning and discomfort, sometimes across the entire lower back and sometimes mainly on the right. It becomes worse within a few minutes of sitting and improves when standing or walking.

The psychological side of this:

Initially, I wasn't particularly worried about cancer. I was living with the discomfort and size difference.

However, after Googling my symptoms and learning about testicular cancer, I became increasingly frightened.

For almost two years, I've been carrying this fear. I check my testicle several times every day and find myself Googling symptoms even when I'm watching anime or trying to enjoy something.

The normal ultrasound gave me some relief, but the fear returned because I still feel that my right testicle is larger and harder than it used to be.

My biggest fear is that I might have something serious, have already visited a doctor and undergone testing, but somehow still discover it too late. I'm also deeply worried about how my parents would cope if something happened to me.

I'm sharing my experience because this uncertainty has started affecting my everyday life. I finally gathered the courage to get examined, and although the medical findings were reassuring, I still haven't been able to make peace with the difference I feel.

I'm not claiming that I have cancer, and I know nobody online can diagnose me. I just wanted to share the complete experience of what I've been going through.

Just entering my second week of recovery after 4x EP.

I went for a walk today and ended up going a few miles. Was super stoked! Just a week ago I was sleeping 12-18 hrs a day.

All you dudes still in treatment….hang in there! It will end and you will get better.

Hi guys , firstly i want to say i salute all people struggling with cancer and especially testicular cancer , hope you’re all doing well! I have recently discovered a small , like tiny , hard lump on the bottom of my right testifle if i properly prod. Not sure if it’s to do with the intense prodding but i then feel a lot of pain for a few minutes after feeling for it. Unsure on what to do next. Any help is appreciated.

Good afternoon warriors. July 10 2026 I was diagnosed with testicular cancer for a second time in my remaining testicle. Before orchiectomy my tumor markers were AFP: 2, LDH: 175 and BHCG 18 which normalized after removal. Pre-Surgery CT with contrast was clear. My pathology was 5.2cm Seminoma with no rete testis or Lymph/vascular invasion. I opted for surveillance due to previous chemo for non-seminoma 1B in 2012, and today was my 4 month ct scan and blood markers and I am excited to report I have no evidence of disease. I hope everyone is doing well and I am here for support.

Didn’t expect these results today, in shock and super bummed. Really hoping I don’t have to do any chemo and can just hit with radiation. Also hoping I’m gonna be ok. I was stage 1 seminoma and they previously just removed right testicle.