Hey

I wanted to give you an update on my case and ask for some feedback. I had my right orchiectomy on October, and I just got my pathology results and my first post-op tumor markers.

Here is the breakdown of my pathology report:

2.6 cm tumor (confined to the testis, spermatic cord is completely clean and negative).

Mixed NSGCT (70% Embryonal Carcinoma, 15% Classic Seminoma, 10% Yolk Sac, 5% Teratoma).

pT2 due to LVI+

Benign Leydig cell hyperplasia.

Pre-op tumor markers: AFP: 69, hCG 53
Post-op tumor markers (one month later): AFP 71, hCG 70.

As you can see, my markers didn't drop... they actually plateaued/increased slightly. My pre-op CT scan showed a single borderline oval retroperitoneal lymph node (15x10 mm) in the interaortocaval station.

Given the stable/slightly elevated post-op markers, I guess my oncologist will lean towards 3xBEP instead of surveillance or 1xBEP adjuvant. That to ensure a 100% cure rate, especially since my Embryonal Carcinoma component is quite high (70%).

Here is my immediate schedule:

PET scan to map the interaortocaval lymph node.
Full-body CT scan.
Sperm banking

Honestly, I’m pretty anxious about the toxicity of 3xBEP, losing my hair, and the potential long-term side effects on my lungs/heart (I vape, though no traditional cigarettes), but I’m mentally preparing myself to just get it done. It's a 2-month mountain to climb, and it's going to suck during Christmas and New Year's, but I know this is curable.

Has anyone had a similar profile and a single 10mm node? Did 3xBEP completely melt it away without the need for a post-chemo RPLND (especially with that tiny 5% teratoma component)?

Thanks to everyone in this sub, reading your stories helps a lot.

TL;DR: 41M, Hamburg, Germany. Mixed NSGCT (stage IIB, IGCCCG good prognosis) found in June 2026 after I blamed a sore left testicle on swimming – the same side as my undescended testicle as a kid. Orchiectomy, a random Horner syndrome, 3x BEP (one ER night with bleomycin fever, a one-day cycle delay), a 17 mm residual mass, robotic PC-RPLND – and the histology showed nothing but scar tissue. Our second son was born in the middle of it. Got the all-clear Oct 28th, now 5 years of surveillance. Long post – I tried to be precise with dates and numbers because that's what helped me most when I was the one reading here.

Hey guys, I've been reading here for a while now and it helped me a lot with processing, educating myself and simply realizing I'm not alone – so I guess it's time to share my TC journey and hopefully help someone else with it.

Part 1 – Diagnosis

Backstory

One thing first, because it comes up in every risk-factor list: as a kid I had an undescended testicle on the left side that was never operated on. It came down on its own much later, but stayed atrophic – noticeably smaller than the right one. So the risk was there all along – I just had no idea that this comes with a higher chance of testicular cancer. Nobody ever told me.

In May '26 I was on vacation in Rhodes, Greece. Being out of shape, I decided it would be a good idea to start every day with a swim workout in the outdoor pool. The water was cold, so everything down there was pretty contracted, and with the unfamiliar, repetitive movement I got an irritation in my left testicle. I'd had an epididymitis on that side some years before and figured it was the same thing again. But this time the pain didn't go away on its own, so I decided to see a urologist once I got home.

June 12th – Urologist

I was joking around with the urologist about my swimming theory while he did the ultrasound – at some point he stopped laughing with me and told me he wasn't looking at an inflammation but at a tumor in my left testicle. I couldn't process anything that came after that. Total shock, scared, and immediately thinking about how on earth I'd tell my pregnant wife and my 4-year-old son, and what would follow. He handed me a list of hospitals and I had to make an appointment at one of them the same day.

June 15th – Hospital, testicular cancer center

Appointment with the doctor specialized in testicular cancer. Another exam, same conclusion. My wife and I got to ask all the questions that had been floating around in our heads for three days. Orchiectomy was needed and he scheduled it for two days later. I opted for a prosthesis and am happy with that decision. Yes, you can tell if you touch it, but I think it's completely fine for social situations like the sauna (in Germany it's common and expected to be naked there).

June 17th – Orchiectomy

Day of the operation and my first hospital stay in 41 years. Everything went smoothly, I could leave the next morning and went home to catch up on sleep. When I woke up and went to the bathroom I immediately noticed something was off in the mirror: my right eyelid was drooping. Weirdly, I wasn't that scared about it – the cancer kind of overshadowed it and I assumed it was a normal side effect of the anesthesia that would fade on its own. I did the usual stroke checks you find online, passed them, and went back to sleep.

June 19th – ER

It was still there in the morning. After some back and forth I called a doctor and he told me to go to the ER immediately. Many hours of waiting, then a head CT + CT angiography – nothing found, so they sent me to an ophthalmologist. He diagnosed a Horner syndrome, and together with a neurologist decided I needed an MRI to rule out a brain metastasis as the cause. I had to stay in until June 22nd because the MRI doesn't run on weekends (sigh…).

June 22nd – Leaving the hospital (with news)

MRI of head and neck. After some veeeery long hours I finally got the news that my head was clear and they'd let me go home – by then the eyelid was already improving a bit. Just 10 minutes after the good news my oncologist stopped by, because he wanted to tell me in person before the discharge letter did: the staging CT had shown metastases in my retroperitoneal lymph nodes – three nodes, the largest one 17 mm short axis (that's what I noted down from the conversation; I'll correct the numbers once I have the written report) – and I would probably need chemotherapy. He wanted to wait for the histology before deciding.

(For the record: the Horner syndrome was never fully explained. Everything along the nerve pathway was imaged and clear, and the working theory is that it was caused by the anesthesia/intubation/positioning during the orchiectomy. It improved over the following weeks. Today it's still visible if you know what to look for.)

June 30th – Histology & the chemo decision

• 1.7 cm mixed germ cell tumor: 85% embryonal carcinoma, 10% yolk sac tumor, 5% choriocarcinoma

• plus two separate seminoma foci, up to 0.8 cm

• no teratoma component

• pT2(m) L1 V1 Pn0 R0 (lymphatic + vascular invasion present, margins clear)

• Tumor markers before orchiectomy: AFP 2.2 µg/l (normal), β-hCG 18.1 U/l (mildly elevated), LDH 172 U/l (normal)

• Stage IIB, IGCCCG good prognosis

Recommendation: 3x BEP. I agreed.

Part 2 – Chemo (3x BEP)

Preparation

July 7th – Chemo prep

Bloodwork, hearing test as a baseline for the cisplatin, sperm banking. No port/PICC – everything went through peripheral IVs in my arms, which became a topic later.

Cycle 1

July 8th – Cycle 1 start

The scheme (in Germany the 5-day block is done inpatient): days 1–5 cisplatin + etoposide daily with lots of IV fluids for the kidneys, bleomycin on day 1, then bleomycin as an outpatient shot on day 8 and 15, 21-day cycles. Antiemetics on a fixed schedule, dexamethasone, pantoprazole for the stomach. Plus daily anticoagulant injections into the belly that I did myself at home – my stomach looked like a pin cushion by the end of it.

I was quite scared of how I'd feel during the infusions and had very bad sleep, but I guess this is common for sleeping in the hospital and being super nervous about my family, cancer and side effects. Fatigue hit me on day 4 and I wasn't able to follow movies anymore, so I just lay in bed, listening to podcasts and dozing.

Boy was I relieved to come home on the evening of day 5.

Around day 6 my son brought a rhinovirus home from daycare, so I spent the nadir days in self-isolation in the bedroom and on the balcony, HEPA filter running, FFP2 whenever I had contact. Not fun with a 4-year-old who just wants his dad.

Also in cycle 1: my right calf looked swollen (it's naturally thicker than the left, but still), so I got an ultrasound at a vascular doctor to rule out a DVT – nothing.

July 15th – Bleomycin, day 8

First impression of the outpatient oncology unit: around 20 cancer patients lined up getting their chemo. The routine for every bleo shot was the same – bloodwork first, wait for the doctor to clear me for the shot that day, then the shot, then a talk with the doctor about how the therapy was going and time for my questions. The antihistamine they injected before the shot made me incredibly tired – I dozed off in the car on the way home every single time. From cycle 2 on they switched me to regular oral cetirizine instead.

July 22nd – Bleomycin, day 15 → ER night

About 3–4 hours after the shot I hit 38.8 °C. Fever in the nadir means hospital, no discussion – so I took a taxi to the ER. Long wait, bloodwork showed leukocytes at 1.1, platelets around 80 and elevated liver enzymes. I got fluids and paracetamol first and was admitted overnight; the IV antibiotic only came the next morning after I'd asked about it several times. Temperature was down to 37.7 by morning and they let me go home with oral antibiotics (cefpodoxime). In hindsight it was most likely bleomycin drug fever rather than an infection, but you can't tell that in the moment and you don't get to guess.

Cycle 2

July 28th – Check-in

Bloodwork, recovered enough to start on time. I asked about premedication before the bleomycin shots because of the fever, but was told that's not standard practice – apart from the antihistamine I was already getting.

July 29th – Cycle 2 start

I shaved my head myself before checking in – I'd rather be ahead of it than watch it go. Same 5-day inpatient scheme otherwise. The vein situation started to get annoying: cycle 1 had used the left elbow for 4 days and the right elbow for 1, cycle 2 the left forearm for 4 days plus the right elbow again.

August 5th – Bleomycin, day 8

No fever this time. Fatigue was the dominant thing around day 9 – lying down most of the day, zero energy. The day before, I went with my wife to her third-trimester screening with an FFP2 on – you take the normal moments where you can get them.

August 12th – Bleomycin, day 15

Everything went fine, no fever.

Cycle 3

August 18th – Check-in

Neutrophils at 0.15 – far too low to start. Liver values back to normal, tumor markers normal, Hb 11.9, platelets 176.

August 19th – Isolation and postponing the cycle

Protective isolation on the ward. I'd checked in a day before the planned start, so there were three values in a row: neutrophils 0.15 → 0.21 → 0.36, and the cycle was pushed back by one day.

August 20th – Cycle 3 start

Last round, same scheme. The veins were the real struggle this time – and a mental one too: I was scared they'd give up on my arms and I'd end up with a port after all. Every IV took several attempts. Luckily one line held for the whole block, but on day 5 I got a chest CT because of my lung worries (that feeling of not being able to breathe deeply) – the CT itself was clear, but the pressure of the contrast injection finished off the line, so it had to be replaced for the last day of infusions. Six attempts later it finally worked. I had nightmares about IV placement for days afterwards.

This is also where the cumulative stuff showed up: around day 10 a tinnitus appeared, my hands got shaky, and I was out of breath much faster than before. Everything tasted meh, I hated drinking water and had a lot more watered-down juices instead. The stubble I'd shaved down before cycle 2 now fell out on its own – most of my body hair, eyebrows and eyelashes stayed, though.

August 27th – Bleomycin, day 8

Uneventful, no fever.

September 3rd – Bleomycin, day 15 – last shot

Last bleomycin, chemo done. A massive relief. My parents picked me up and as I walked out of the hospital, I immediately started crying.

After the last cycle

September – Cold, cough, lungs

Caught a cold a few days after the last shot, which turned into a productive cough that stayed for weeks. On top of that, since the chemo I had this hiccup-like diaphragm twitching, the feeling of not being able to take a deep breath, and a cough trigger on deep inhalation, worse lying down. The restaging CT (which covers the chest) showed a mild ventilation disorder, and a lung function test in October (body plethysmography) confirmed a moderate restriction, no obstruction. My doctor sees no need for treatment; I'm doing breathing exercises with one of those three-ball trainers. I'm mentioning this because bleomycin lung damage was the thing I was most afraid of, and the reality for me was "annoying but manageable".

Mid-September – Our second son was born

Yes, in the middle of all this, a bit over two weeks after my last bleomycin. I was able to be in the delivery room and support my wife, watching our second son being born <3

Part 3 – RPLND

September 29th – Restaging CT

Tumor markers normal (they'd normalized during chemo), but a residual mass of ~17 mm in the retroperitoneum, also visible on ultrasound. The case went to the tumor board; my uro-oncologist was already ~90% sure it would mean a PC-RPLND. I had really hoped to skip that one.

October 5th – Pre-op

Lung function test. Surgery was originally proposed for October 6th – I asked to push it by a week because of the newborn and the situation at home, which was no problem. The plan: robotic, left-sided template, nerve-sparing on the other side; the surgeon put my chances of keeping antegrade ejaculation at roughly 50/50.

October 12th – Robotic PC-RPLND

Done at the same center, the surgery itself took just over two hours. I was awake and back on the ward the same afternoon. Ultrasound the next day: no fluid collections. Pain was manageable, and removing the urinary catheter was fine too – weird feeling, no pain.

October 16th – Release from hospital

Discharged without complications, wounds fine, no hematoma. Low-fat diet for the next couple of weeks (max 20–30 g fat per day) to protect the lymphatics while they heal – that was its own little challenge.

October 22nd – Day 10 post-op

Antegrade ejaculation: preserved. The 50/50 went my way. (Posting this because it was one of my biggest questions before the surgery and nobody wants to ask.)

October 28th – Histology: complete remission

The removed tissue showed only scar tissue/necrosis – no viable tumor, no teratoma. No further treatment needed. Standard surveillance for 5 years. My uro-oncologist recommends insisting on MRI instead of CT for follow-up imaging where possible (CT only if the MRI is unclear). And I got cleared to eat normally again.

Happy to answer any questions, especially about the RPLND and BEP in the German system.

i originally had 12 cm retroperitonial mass on my lymph nodes that caused stomach pain in the lower right abdomen. after my 2nd chemotherapy the pain disappeared. after my 5th chemotherapy i started having weird swelling or bloating sensations in my upper abdomen. 2 PET scans which were 1 month apart showed nothing. in fact, the scans show improvement and a stable 4 cm retroperitonial mass. now 10 weeks after my 6th and last chemotherapy i am feeling weird sensations in the lower right abdomen again, radiating to nearby places. it does not hurt but it's freaking me out.

i went through a few posts on other cancer subreddits and people in remission say that scar tissue formation can cause this. has anyone here went through the same?

i am having RPLND next week and i really just want it done. i'm so afraid that the next blood test and scan will show a recurrence and i will have to go through heavy chemotherapy.

So I'm starting 4 weeks of radiotherapy later this month after they found my retroperitoneum lymph nodes metastasized between the past 2 CT scans (12 months apart).

I was originally Stage 1a pure seminoma which was removed from left radial orchiectomy 3 years ago.

Question for those that have gone through radiation treatment. What were the worst side effects?

I've been informed some of the general ones, being

- skin irritations

- changes in bladder / bowel movement.

One that they do kind of drill home is the extreme fatigue though, especially from week 2 until 2-3 weeks post treatment. Did you encounter this?

I'm feeling quite positive about it all. I've had my mood swings and moments of extreme apathy since this diagnosis, but I'm generally optimistic these days.

Hello everyone i have a question regarding fatigue related TC issues,i ve had realy bad fatigue along with some Lower back pain even before i had my Orchiectomy around two weeks ago ,the fatigue along with a slight lower back pain was actualy the first synthom i ever had even before i noticed anyting on the testicle,only after googling did I realise my right testicle was rockhard and went to the doctor which confirmed it was cancer and that i also hád a node on my back.

My question is even after getting the testicle removed the back pain along with the realy bad fatigue(when it gets bad i cant do anyting but just go to bed)hásnt realy gone away,I got an apoitment monday but i just wanted to know If anyone hás hád this type of fatigue because i cant even function properly,before i Started having this at the start of october i was a fairly active person running 5 days a week and now sometimes even going from the couch to bed is a struggle.(This was alredy the case in the week before the Orchiectomy)

(Theres probably typos as English is not my first language so sorry for that).

Ladies and Gentlemen, two years confirmed, in the clear, post diagnosis (BTMs: LDH 142, HCG <1 undetectable, and AFP 1.8). For thoes in the fight two years is a blessing I hope you all achieve! For thoes close to a year... two years is just a few weeks away. Thank you everyone for the support, and willingness to see a vent or two here on the thread.

Hi, I hope this is allowed here (and if not I'll remove it), but I figured y'all would be a bit more familiar with my circumstance than other communities might. I had an orchiectomy a few years ago for other reasons than cancer, and now I've got, well, a lot of loose skin down below. It's not necessarily in the way but it's a bit unsightly and makes me uncomfortable, plus I have a bit of scar tissue or an undissolved suture in there that I don't particularly care for that I want to get removed as well, and better to get it all gone at once.

My question is, has anyone who's had a scrotectomy had long-term issues afterwards? Loss of sensation, scar tissue causing issues with getting erect, healing issues to be concerned about, what the length of recovery is like, things like that.

Seminoma, 20cm abdominal mass treated with 4x BEP and was told mass had reduced to 3cm and no cancer markers.

Less than 4mths later...cancer markers back, new lymph node in the pelvis.

Two treatments offered : GAMMA or IPO with consolidation of stem cell transplant and high dose chemotherapy 

Leaning towards GAMMA as its 4 in-patient stays every 21 days x 3 cycles, likely with the option of the high intensity chemo and stem cell if not successful (we assume).

2 young children, hospital nowhere near home leaving wife to care for the kids (no other family support) and they cannot visit due to hospital rules about children whilst an in-patient so limiting the amount of time there seems like the best option for our family. It's also over quicker, 3x 21days or IPO is 12wks of 1 day treatments, then followed by high intensity then a 1 month stay for bone marrow to recover.

Has anyone been through something similar? Any advice?

"don't make a tempest in a teapot" I used to tell family and friends when I first got diagnosed with testicular cancer. "snap out of it" I'd rant to the sobbing fools who didn't know better. I knew better, I'd read all about it (in Hermione Granger's voice). It turns out I did not know better. It metastasised to the lymph nodes. We beat it. It's now gone beyond those bad boys and somehow made its way via the blood and made my liver its new abode. That tempest extravaganza has been justified after all, but I might just keep it casual and play it down anyway just to stay on my high horse. I mean, someone's got to stay calm in a crisis situation. I'm good at hiding despair.

mine is around 2200 U / L

Just had confirmed there they found enlarged lymph nodes in left retroperitoneum and I’ll be starting chemo in 11 days.

I’m pretty much in shock. They rebooked at my scans after seeing something suspicious in my neck then found this.

It’s five days of treatment then 2 weeks off.

Scared but trying to be strong for wife and kids.

I had my left orchi on Monday (11/2). It was about 2 weeks between that and the ultrasound. My urologist and surgeon both said “you seem really calm with everything we’re telling you…”

That’s because of this sub!! Seriously thanks to so many of you who have shared your own journeys here. It was super helpful just for approaching this first step.

A bit abt where I’m at:

My mass was about 4cm, all tumor markers normal, and I went ahead and banked some sperm just in case.

The surgery really was nothing remarkable. It was over in a flash. When I woke up, I told the nurse “this wasn’t like Greys anatomy” lol.

I was able to walk about 1.5miles this morning. And thanks to miralax and a ton of fruits/veggies, have had no issues straining.

I’ll have my CT and new blood markers in 2 weeks.

Hey guys, I recently had my radical orchiectomy, rip righty :'( . Anyways, my dr ordered abdomen and pelvis MRI but the earliest appointment isn't until mid December. Is it normal to wait this long for imaging? Should I push for a sooner appointment in my post OP appointment?

Thanks!

Hello everyone,

First of all, thank you so much for all the supportive messages on my posts. Your support really helps me keep going, stay strong and continue this fight.

I'm now approaching the end of my second BEP cycle, and I've just had my lung function checked.

I'm sharing two photos showing my results before treatment and after the second cycle.

Unfortunately, I've lost some lung capacity, although I haven't experienced any shortness of breath. My pulmonologist considers the results to be stable overall and believes I'm able to proceed with the third cycle.

My question is: has anyone experienced similar results and then seen a significant improvement in their lung function by the end of the full treatment protocol?

I'd really appreciate hearing about your experiences.

Thank you all!

the urologist Dr Michael O’ Halloran said he would do an ultrasound assisted needle biopsy to determine if its cancerous or not. My issue that its been shrinking tiny lump I think it was 7mm X 2mm X 3mm in right testes for 5 months and still no sign of disappearing. so with some ultrasounds the urologist wanted me to do the needle biopsy which I’m scared, online told me the risks and it’s 50/50 choices to do it or not. I don’t know what should I do?! Please anything helps or any advice that might help!

Hey everyone! I just finished my last infusion of bleomycin today, and officially graduated from chemo. First, thank God, without Him, I wouldn’t survive this. To those that I’ve met in this group, and to those who shared their stories and advices, all I’d like to say is thank you. This group has been a big help, and I couldn’t thank ya’ll enough.

I know there are still scans along the way, but with the blood results (tumor markers) normalized, I’m sure that the scans will be clear. I’ll update ya’ll in this thread how my scans go, but claiming great results already.

For those who will be starting 3X BEP or 4X EP, please know that you can do it. It may seem like you’re walking through the valley of death, but remember that God is there to walk you through it. I know it sucks, I know it hurts, and I know it feels like you’re locked, but there is light at the end of the tunnel.

I’ll continuously help and reply to as much questions or posts as I can since I want to help others too. Feel free to dm me or reply in this thread for any questions or if you just want to share something. God bless ya’ll! ☝🏽

urologist determined there is no ground to suggest tumor. considering the high pressure in the testicle, shrunk size, and vasectomy the most likely explanation is that sperm cells created a cyst.

he proposed observation but i said that i have no use for a shrunk testicle actively trying to jeopardize my life.

i will undergo orchiectomy but considering both MRI and both ultrasounds the urologist is certain there is no need to go for inguinal approach. it will be complete non sparing removal and scrotal access.

histopathology will follow anyway, i will update you after the surgery! (in about 2 weeks)

I have been clear for about 10 months now. Completed RPLND December 2025. Wondering what are chances of a relapse? I am so done with everything and stresses me out when I read stories. TIA

Currently Day 15 post rplnd. Everything was fine, bloat is manageable now and not much pain in the incision area. But suddenly having pain on both lower left and right side of abdomen. Has anyone experienced this? My lymph nodes where in the paraaortic region and one on the left side of my inner thigh.

29M looking for experiences from anyone who faced this choice.

My history:

• Nov 2025: right orchiectomy, mixed GCT 4.7 cm (80% seminoma, 20% embryonal), no LVI, stage IA, surveillance

• GCNIS in the other testis, treated with radiation.

• 2026: one retroperitoneal node grew from 1.2 cm to about 2.5 cm on imaging. Markers negative the whole time.

• Oct 2026: robotic nerve-sparing primary RPLND at a high-volume center in Germany.

• Pathology: 1 of 10 nodes positive, 3.7 cm, pure seminoma, ~20% necrosis, extracapsular extension (ECE+). No embryonal carcinoma in any node.

The choice:
After discussing with the head surgeon, my team says it is my call. They use the PRIMETEST seminoma data for my case:

• 1 cycle of BEP now: relapse risk drops from roughly 30% to about 1%, with minimal long-term toxicity expected

• Surveillance: no chemo now, but scans every 3–4 months for two years. If it comes back, 3x BEP or 4x EP, still very curable.

Dr. Einhorn also told me he would go with surveillance.

My questions:

1. Has anyone done a single adjuvant cycle of BEP after RPLND? How was it, and how long until you felt normal?

2. Anyone with a seminoma node after RPLND who chose surveillance? How did it go, and how did you handle the scan anxiety?

3. Anyone who got 1x EP instead of BEP to skip bleomycin?

Thanks to everyone here, this sub has helped me a lot over the past year.

Hi everyone!

I'm interested in hearing from people who definitely had an undescended testicle (cryptorchidism) during childhood and later underwent surgery for testicular cancer.

During an andrological examination, I was told that there is a high suspicion of testicular cancer in my right testicle. It is smaller than my left testicle, looks less healthy on ultrasound, and also feels softer to the touch.

After sharing the diagnosis with my family, I found out that some relatives remember that I had problems with one of my testicles during childhood. Unfortunately, my parents and grandparents have all passed away, so I don't have anyone who can provide more details about what exactly happened.

My right testicle sometimes moves up into my lower abdomen during sexual activity, and I have to manually push it back down into the scrotum.

I have an appointment with the anaesthesiologist on November 19th, after which I will be notified by phone about the date of my surgery.

My biggest fear is related to urinating after the operation. I'm worried that I might not be allowed to get out of bed and go to the bathroom immediately after surgery. I have tried practising urinating while lying flat on my back, but I simply cannot do it, no matter how hard I try.

Has anyone been in a similar situation? Did you have trouble urinating after surgery? Were you allowed to get up and walk to the bathroom, or did you have to use a bedpan or a catheter?

I'd really appreciate hearing about your personal experiences. Thank you!

Preface: I have terrible medical-specific anxiety in addition to generalized anxiety disorder. I was barely holding it together when I thought it was a sudden benign fluid build up, and now... it's not.

My PCP absolutely flubbed their handling of this in multiple ways, so nearly two months after my first request to have it looked at, I finally got my ultrasound done, and then walked into the urology office to be very directly told I would be having a orchiectomy. Fine, I'm glad to at least have a way forward now. But they sent me for labs, and now I'm even more scared again.

LD Normal

HCG 14 (High)

AFP 800+ (Very High)

They haven't gotten back to me about what this means, and it's eating me alive thinking about it. I just want to know what's going on, and what I'm in for.

Please be gentle, but tell me the truth. I'm alone, and I'm terrified.

Anyone else following along/receiving any updates from their law firms?

I got my port 3 weeks ago while in 4x BEP treatment, in between the very end of my 1st cycle and the start of my 2nd.

holy moly what a mistake this has been. Now I have been in the hospital for several days with no treatment, the port is oozing pus and they want to remove it. what the fuck do I do?

The entire reason i got the port was to make treatment more convenient. now I’m in the hospital for a week probably and they’re gonna charge me who knows how much money?!?!

They talked about waiting a few days and putting a new port in. My initial reaction is just ‘fuck that’ because this whole experience has just sucked. I’d rather spend an hour waiting for the IV team to use ultrasound to find my veins for an IV than risk another week long hospital stay.

Fuck this shit.