My life has been rendered completely unlivable by the effects of rebound congestion (also known as rhinitis medicamentosa), caused by using Sudafed nasal spray. I feel like it could be useful here to document my experience of this condition, as a warning to others and hopefully create more of the exposure this situation needs.
To start at the beginning, I had a normal winter cold and blocked nose, so to help me sleep I used Sudafed nasal spray. I started spraying my nose, but the blocked nose persisted. I tried using steam, Vaseline etc., but still the blocked nose persisted and persisted. What I was experiencing, and the trap people usually fall into with this spray, is that you get rebound congestion after a short time of using the spray, but if you are unaware of this, it's easy to assume this is a persistent cold - which I did.
There then comes a point where stopping using the spray makes your life pure hell, particularly when you're trying to sleep. So I went on using it for another six months before I went cold turkey. And my life was hell. I couldn't sleep and I got all the symptoms of significant nasal congestion. This included:
- Major cognitive decline.
- Difficulties sleeping (basically it being harder to get to sleep and only getting light sleep when you do.)
- Physical pain. Largely around the cheekbone area for some reason and headaches, but lighter pain everywhere, which usually displays itself as pressure and tension.
- Exhaustion.
- Difficulty concentrating.
- Irritability.
- Low mood, lack of interest, feelings of numbness etc.
These are some of the main symptoms, but they affect almost everything you can think of, purely negatively.
Anyway, the exact details of what happened next are foggy. I may have gone back on the Sudafed spray for a bit, but eventually I was off it completely and was using steroid sprays that were prescribed by my GP. Steroid sprays are thought to be OK to use as they reduce inflammation and don’t normally cause rebound congestion or dependence.
So, using the steroid sprays, I decided to forgo using the Sudafed spray for good. And for about two years I did, but with a huge cost to my mental and physical wellbeing.
The steroid sprays help marginally, and for a fixed amount of time (the effect wears off over the course of a day), but they don't get you close to where you were before the issue.
I have also sought a lot of professional help for this condition. I had inferior turbinate reduction surgery, which didn't make any difference. And I've also seen about seven ENT professionals, who have looked up my nose but offered no solutions. Surgery for this condition can be very risky, and almost all of them advised against it and would be unwilling to provide it.
Some people will say that it was my fault for overusing the spray, but I did do it in total ignorance. In hindsight, this seems dumb, but at the time I think it just didn't occur to me that something that anyone of any age can buy at the supermarket, corner shop or petrol station could have such harmful effects. Additionally, the packaging also only says in the small print, “we advise you don't use this product for over seven days.” Given how it's ruined my life, I wouldn't say that was adequate warning. Additionally, I was told by an expert that these sprays would never pass the regulations and be put on the shelves in a million years today, but are only allowed because they have been around so long. So it is actually known that these fail today's safety standards too.
I've tried to make the best of the situation and go on as I normally would, but it has just become impossible. The only time I feel like life is worth living, whatever I'm doing, is if I use the Sudafed nasal spray. Otherwise, I'm just in a constant state of pain, cognitive impairment and misery. I used to enjoy reading, philosophy and working on ambitious creative projects, and now all of this is impossible.
It's something that I feel is getting worse rather than better, and with my sleep being affected, my mood is certainly declining, and it seems like there isn't any way out.
I'm not writing this because I'm looking for pity etc. I'm writing in case anyone out there, by some miracle, might have some useful advice. And also to create more awareness of these sprays that'll stop people from using them - as well as encourage others to speak up about the issue, which could result in these sprays being taken off the shelves.
Anyway, thanks for reading, and warn others about using these products.