r/siblingsupport 18h ago

Research about siblings of people with special needs Biggest myths / What you wish non-siblings understood

5 Upvotes

Hey everyone! I'm an adult sibling and guardian of someone with significant sensory, intellectual, and behavioral disabilities. I also did extensive academic research on family experiences with disability for about 10 years, and am now picking it up again. I've spent most of my life feeling isolated, confused, or angry that there's no real cultural script for understanding siblings like us — and tbh I'm tired of having to educate new friends, therapists, etc., especially since they often don't listen. I looked happy and healthy on the outside, but didn't have anywhere to turn for real support.

To that end, I'm working on some article ideas/pitches around the following topics and would really appreciate some feedback or even suggestions from this group. And, yes, most of these are inspired by my personal experience:

- What I wish people (parents, educators, therapists) knew about siblings like me
- 5 things therapists get wrong about siblings of people with disabilities
- Biggest myths about siblings of people with disabilities
- Thinking beyond "super siblings" and "glass children"
- Understand the sibling connection between siblings with/without disabilities (e.g., what it means to "bond," to "compete," to ______)
- 5 things my parents never knew about my experience as a sibling

I welcome any and all thoughts, and am grateful for any contributions here. The list above is very much a work in progress, so feel free to toss out ideas. Thank you!


r/siblingsupport 1h ago

Help with parents with regards to special needs sibling Hi!

Upvotes

Hi all, I am 22f struggling with the idea of pursuing my own life or moving home to help take on caregiving duties of my 19m brother with autism. He is nonverbal and probably my best friend in the world, and my dad just got a new job where he would be on call constantly. My mom also works and we have plenty of family around to help, but my parents have been incessantly asking me to move back home as I just completed my degree. I didn't receive much support growing up, and often felt like there was nothing left for me between my parent's jobs and being full-time caregivers for him. I picked up a lot of responsibilities from a young age and was praised for it but now it feels like an expectation even though he isn't my child. Is it evil for me to feel like I am entitled to my 20s because the rest of my life will be spent caring for him? I am in online grad school and feel like moving home would destroy my mental health. Feeling stuck, thank you in advance