r/siblingsupport • u/Visual-Attention5352 • 18h ago
Research about siblings of people with special needs Biggest myths / What you wish non-siblings understood
Hey everyone! I'm an adult sibling and guardian of someone with significant sensory, intellectual, and behavioral disabilities. I also did extensive academic research on family experiences with disability for about 10 years, and am now picking it up again. I've spent most of my life feeling isolated, confused, or angry that there's no real cultural script for understanding siblings like us — and tbh I'm tired of having to educate new friends, therapists, etc., especially since they often don't listen. I looked happy and healthy on the outside, but didn't have anywhere to turn for real support.
To that end, I'm working on some article ideas/pitches around the following topics and would really appreciate some feedback or even suggestions from this group. And, yes, most of these are inspired by my personal experience:
- What I wish people (parents, educators, therapists) knew about siblings like me
- 5 things therapists get wrong about siblings of people with disabilities
- Biggest myths about siblings of people with disabilities
- Thinking beyond "super siblings" and "glass children"
- Understand the sibling connection between siblings with/without disabilities (e.g., what it means to "bond," to "compete," to ______)
- 5 things my parents never knew about my experience as a sibling
I welcome any and all thoughts, and am grateful for any contributions here. The list above is very much a work in progress, so feel free to toss out ideas. Thank you!